-
It's a go
Well, went today for consent and meetings with psych eval and nutritionist. I passed all the requirements and got my first neupogen shot today. Tomorrow morning I have surgery for the trifusion port. I know there are other options if this doesn't work, but damn it's scary guys. My sister made it in today and I am extremely…
-
Ever wonder what your Trigger was?
The experts say Non-Hodgkins is triggered by a series of stressful events. Has anyone ever figured out which events triggered it? Have you ever wondered if one stressful event per year over three years could have caused it? Does anyone know if the stressful events that cause NHL are a series of events within one week? or a…
-
booking flight
Hi all, Having a bit of a problem. I need to book my flight to Houston. Everytime I check out the available flights and pick them out, I get scared to press the buy this ticket button. I know that this is so silly, but I still can't bring myself to do it. I have already reserved the hotel room, but the flight is just so…
-
Surgery is done
Ok the trifusion port is in. Got my second shot after the surgery and now ready for a nap. I'll check in later. Take care everyone! Beth
-
Blood test results
Hello everyone, I saw my oncologist Monday, May 9. She didn't offer another Pet Scan, because the last 2 scans were negative for cancer. I am due to see her again in Sept 2011. I did have a complete blood test. I was able to get some of the results on Monday. Everything was perfect on the first sheet. Yesterday, I had to…
-
Got my Itinerary for the pre-transplant testing
Can we say WAY too much?? Good Grief. 12th at the Hospital 10:15 EKG 10:30 Echo/Resting 11:30 Panorex X-Ray 12:00 Chest X-Ray 1:00 Apheresis Education 2:00 Pulmonary Function Tests 13th at the Outpatient Clinic 8:30 Labs 8:50 Health & Physical 9:30 Evaluation Financial Workup 10:00 Evaluation Psych Workup 11:00 Bone Marrow…
-
Good PET scan results
I've only ever posted here a few times but I got my PET scan results that were taken after round two of my escBEACOPP finnaly. My Hematologist said that the results were "fabulous" and that he "couldn't of hoped for a better result" which is alot considering the terminology doctors usually seem to use, and have used in the…
-
Neupogen
Does anyone know if there are any long term effects from neupogen shots? I know there is paing while taking the shots, but I was wondering if anyone experiences pain after finished with chemo & neupogen shots? I was reading on the net that some people experience joint pain long after finishing the injections.
-
Rash results/Treanda
Had my onc visit Monday.He feels the Treanda should be out of my system and had no clue why I still have this itchy rash(5mos).So he sends me to a dermatologist close to his office for a biopsy.O.K. the Dermatologist did a punch biopsy and called today with the results.Said the rash is a chemical reaction -he feels from…
-
Enlarged neck muscle
For several years the Sternocleidomastoid muscle on the left side of my neck has been gradally getting bigger. Had several scans over the years and the doctors do not know what’s going on. Anyone experience this. I have slow growing NHL.
-
Results
Well I had the pet scan and got the results this morning. It's not all gone, it is better dropped to about a 4 suv and when we started it was 8. I am pretty disappointed, but my onc thinks they'll still go through with the transplant as scheduled. He says that they do chemo first to make sure it's going to respond to chemo…
-
Stem cell transplant,Portland,OSHU
Howdy: New here. Wanted to know if anybody here has had a stem cell transplant at OSHU in Portland, Oregon. Or maybe knew of or know of anyone who had it. I live in Eugene, diagnosed with intermediate NHL,unclassified. No one can figure out what it is. Frustration to say the least. Starting Tx #4 soon of R-Epoch at…
-
Pictures of Baby Lizzy
Hi Guys, Sorry I've not been around as much..I've been helping the kids out with baby Lizzy. I think they are getting the swing of things much better now and I'll be able to be here at home more...(not that I mind being there)...ha! Anyways...I posted some pictures on my expression page of Lizzy. I just love holding…
-
Emotions
Hi all Just wondering how you handle your emotions. I seem to be all over the place today. Simple things bring me to tears. I get overwhelmed so quickly. Things that should be easy are feeling very difficult. Does anyone else ever feel this way. Just wondering. Thanks, Lisha
-
Post Chemo
It's me again. My daughter finished abvd on March 17th with her PET scan coming up on the 25th of this month. She is feeling pain in her left shoulder blade which is the same side that she had the mass in her chest on (Hodgkin's). She says it gets worse as the goes by.Has anyone experienced anything like this before or…
-
blue line
i added this sight to favorites and now i have a blue line that says add to favorites how do i get rid of it im really dont know that much about computers any help denise
-
Struggling with HEADACHES
Beth and Sue, I want to be sure you got this msg as I replied earlier since I unfortunately had not been in touch... thanks for checking in. Sue is right - I realize I could not just check in daily anymore becuz my energy had been sapped by work and - yes, headaches. I feel sad that I don't have the same kind of energy. I…
-
thrush
does anyone ever keep getting oral and if so do you know why. i just got over it and now i haave it again?
-
Nerves
My nerves are awake and functioning at top form today. Pet scan is critical tomorrow and my poor brain is having a rough time focusing on anything else. I think it's time to bring out the zanax. I wish the weather was a little warmer today I'd be out in the yard diggin in the dirt while I can. I may just have to layer on…
-
Sad news today
Hi All, Many of you may remember me posting about my daughters first love who was lost in a crevace on Mt Everest in 2005. Well, they found him after all this time. They also found his camera and the pictures he was taking before his death. We just found out today. It's very sad news all over again. Just wanted to share…
-
clean!!!!
Hi guy's my second PET scan since remission can back clean, it's going to be a beautiful summer!!! I wish the same for everyone on this site....... I have a question, does any one know of a good Life insurance company that would insure us recovering cancer patients. Stupid question but I'm just asking? Stay well Vinny
-
Day 2 Down
Got done with my 2nd day, or most of it. They had to reschedule the Psych evaluation for the 19th. I know I am tired. They did do the bone marrow biopsy today and it hurt. They pretty much just only numbed with the stuff they use at the dentist. I know I cried a little bit. The aspiration part hurt so bad and they said…
-
Missing Bandaid
I've heard of strange things happening, but I have to admit, this was a new experience for me LOL. The bandaid they put on my butt started coming off, so my hubby put another on it. Everything was cool, other than sore. So a little later I go to bed and the second bandaid is gone! I can't find the silly thing…
-
Donald51
Hello Donald, I was just wondering how you are doing? Hope all is still well. I seem to be doing ok , have my ups and downs but still in remission So this Christmas will be two years since the Zevalin. For the most part I try to make believe this disease does not exist. But that is hard to do. Well just want to wish you…
-
Marge,Maggie &Donna
Know Marge and Maggie had scans done yesterday and Donna today.Just wanted you all to know I'm sending good thoughts your way.Waiting with all.Take care,Michele Dx95 FNHL3
-
Podcast: May 11, 2011: Update on Follicular Lymphoma
To Register Go To: http://www.cancercare.org/get_help/tew_calendar.php there are several podcast to register for. p.s. tried to make a copy for the Discussion Board "Long-Term Survivors" but it moved the entire post there. oops
-
Beth's schedule...
Hi Beth, I was looking at your schedule for this week and wanted to tell you that you are in my prayers today. It's a busy day for you.... EKG-Echo/Resting-Panorex X-Ray-Apheresis Education and Pulmonary Function Tests. Whew...makes me tired just thinking about what you are doing today! Tomorrows schedule looks to be even…
-
Notes from Podcast: Follicular Lymphoma
John, Please add to what I missed from today's Podcast: Update on Follicular Lymphoma 779 Participants on the tele-conference Dr. Stephanie Gregory - Overview of FL 70,000 new cases/year 500k - 600k living with lymphoma, loose 20k/year 90% are B-Cell, 10% t-cell Most common lymphomas is Follicular (low grade - indolent)…
-
FNHLPodcat: FLIPI Score and NoLASH
At today's CancerCare Podcast, Dr Stephanie Gregory talked about our Flipi Score and NoLASH. Flipi Follicular Lymphoma International Prognostic Index NoLASH stands for the 5 factors that are used to measure: number of Nodal areas, LDH, Age, Stage, and Hemoglobin level. this site has the Flipi calculator:…
-
Thank you
Hi all, I just want to say thank you for your warm and caring replys to my post. I was a bit unsure if I should post since it was not cancer related, but am glad that I did. Sharing the bad and the good with all of you has made my life so much stronger. It was just such a shock to all of us and especially my daughter.…