-
Pictures of Baby Lizzy
Hi Guys, Sorry I've not been around as much..I've been helping the kids out with baby Lizzy. I think they are getting the swing of things much better now and I'll be able to be here at home more...(not that I mind being there)...ha! Anyways...I posted some pictures on my expression page of Lizzy. I just love holding…
-
Emotions
Hi all Just wondering how you handle your emotions. I seem to be all over the place today. Simple things bring me to tears. I get overwhelmed so quickly. Things that should be easy are feeling very difficult. Does anyone else ever feel this way. Just wondering. Thanks, Lisha
-
Post Chemo
It's me again. My daughter finished abvd on March 17th with her PET scan coming up on the 25th of this month. She is feeling pain in her left shoulder blade which is the same side that she had the mass in her chest on (Hodgkin's). She says it gets worse as the goes by.Has anyone experienced anything like this before or…
-
blue line
i added this sight to favorites and now i have a blue line that says add to favorites how do i get rid of it im really dont know that much about computers any help denise
-
Struggling with HEADACHES
Beth and Sue, I want to be sure you got this msg as I replied earlier since I unfortunately had not been in touch... thanks for checking in. Sue is right - I realize I could not just check in daily anymore becuz my energy had been sapped by work and - yes, headaches. I feel sad that I don't have the same kind of energy. I…
-
thrush
does anyone ever keep getting oral and if so do you know why. i just got over it and now i haave it again?
-
Nerves
My nerves are awake and functioning at top form today. Pet scan is critical tomorrow and my poor brain is having a rough time focusing on anything else. I think it's time to bring out the zanax. I wish the weather was a little warmer today I'd be out in the yard diggin in the dirt while I can. I may just have to layer on…
-
Sad news today
Hi All, Many of you may remember me posting about my daughters first love who was lost in a crevace on Mt Everest in 2005. Well, they found him after all this time. They also found his camera and the pictures he was taking before his death. We just found out today. It's very sad news all over again. Just wanted to share…
-
clean!!!!
Hi guy's my second PET scan since remission can back clean, it's going to be a beautiful summer!!! I wish the same for everyone on this site....... I have a question, does any one know of a good Life insurance company that would insure us recovering cancer patients. Stupid question but I'm just asking? Stay well Vinny
-
Day 2 Down
Got done with my 2nd day, or most of it. They had to reschedule the Psych evaluation for the 19th. I know I am tired. They did do the bone marrow biopsy today and it hurt. They pretty much just only numbed with the stuff they use at the dentist. I know I cried a little bit. The aspiration part hurt so bad and they said…
-
Missing Bandaid
I've heard of strange things happening, but I have to admit, this was a new experience for me LOL. The bandaid they put on my butt started coming off, so my hubby put another on it. Everything was cool, other than sore. So a little later I go to bed and the second bandaid is gone! I can't find the silly thing…
-
Donald51
Hello Donald, I was just wondering how you are doing? Hope all is still well. I seem to be doing ok , have my ups and downs but still in remission So this Christmas will be two years since the Zevalin. For the most part I try to make believe this disease does not exist. But that is hard to do. Well just want to wish you…
-
Marge,Maggie &Donna
Know Marge and Maggie had scans done yesterday and Donna today.Just wanted you all to know I'm sending good thoughts your way.Waiting with all.Take care,Michele Dx95 FNHL3
-
Podcast: May 11, 2011: Update on Follicular Lymphoma
To Register Go To: http://www.cancercare.org/get_help/tew_calendar.php there are several podcast to register for. p.s. tried to make a copy for the Discussion Board "Long-Term Survivors" but it moved the entire post there. oops
-
Beth's schedule...
Hi Beth, I was looking at your schedule for this week and wanted to tell you that you are in my prayers today. It's a busy day for you.... EKG-Echo/Resting-Panorex X-Ray-Apheresis Education and Pulmonary Function Tests. Whew...makes me tired just thinking about what you are doing today! Tomorrows schedule looks to be even…
-
Notes from Podcast: Follicular Lymphoma
John, Please add to what I missed from today's Podcast: Update on Follicular Lymphoma 779 Participants on the tele-conference Dr. Stephanie Gregory - Overview of FL 70,000 new cases/year 500k - 600k living with lymphoma, loose 20k/year 90% are B-Cell, 10% t-cell Most common lymphomas is Follicular (low grade - indolent)…
-
FNHLPodcat: FLIPI Score and NoLASH
At today's CancerCare Podcast, Dr Stephanie Gregory talked about our Flipi Score and NoLASH. Flipi Follicular Lymphoma International Prognostic Index NoLASH stands for the 5 factors that are used to measure: number of Nodal areas, LDH, Age, Stage, and Hemoglobin level. this site has the Flipi calculator:…
-
Thank you
Hi all, I just want to say thank you for your warm and caring replys to my post. I was a bit unsure if I should post since it was not cancer related, but am glad that I did. Sharing the bad and the good with all of you has made my life so much stronger. It was just such a shock to all of us and especially my daughter.…
-
Pain on right side=Tracie
Dear Tracie, I am answering your post on a separate posting. For years I have had pain on and off on my right side just above the waist. When I got the pain I was paralized and couldn't move or walk. If I was home I had to lie on my bed and roll from side to side. Or if that didn't help, I would have to take Moltrin. If I…
-
Questions to Dawn
Dawn is off in training but sent me a note.Ask me to please let everyone know she hasn't forgotten us and we can reply to her on the address she provided.Still blocked here.Have a great day all.Michele Dx95 FNHL3
-
25 year Hodgkins diagnosis anniversary
Today, I celebrate my 25th year of the survivorship to Hodgkin's Lymphoma. I was diagnosed with Stage 1A (I know, early stage, but I still celebrate) in 1986 at the age of 11. While the journey to this point has been a long and difficult battle, I am happy to be alive!! I would love to help anyone out there with their own…
-
Questions about what to expect?
Hello all- My husband has just been diagnosed with Follicular NHL, Grade II, we are going to get the stage on Monday (he just finished the PET scan, the MRI, bloodwork, and bone marrow biopsy). He has swelling in the lymph glands in his groin, neck, and armpit. There is a lot on confusing information out there about this…
-
Help requested
Dear readers, My name is Derk and I am from Holland. My brother now suffers cancer for 9 years. it has been 'banned'' and returned 4 times. He has had dozens of chemotreatments, radiations etc etc. From the treatment alone you can kill someone. Currently he is sort of 'given up here in Holland. The only treatment that…
-
Hida Scan
Tracie, I knew the Hida Scan was done for gallbladder, but didn't realize the scan also checks the Billary tract. Perhaps your doctor will order a Hida Scan also. I just did some fast research, and pasting what I have found. Since I had this scan years ago, I wanted to research again. HIDA imaging is done by a nuclear…
-
friend has just started chemo
friend has just started chemo for non Hodgkin's lymphoma . He is having severe hiccups almost like he cant breathe.Then he throws up and feels better. rituxan treanda are the chemo drugs he is on. Does anyone know about this type of reaction? It lasts as long as 2 hours at a time..
-
Thursday Hello
Good morning all, I just want to say hello to all. I think of you everyday and hope you are all doing as well as can be. Peaceful healing Lisha
-
A Caregiver for a friend
I am trying to be a caregiver for a friend who was diagnosed in March with Hodgkins Lymphoma. He called me to come to the hospital where they admitted him. Turns out his cancer had went to two of his vertebra and that is why he was having back pain. I have been with him every since. I stayed at the hospital and moved over…
-
Introduce myself
Hi all, Let me say first that I am a very private person. Keep to myself within my family and do not even have a Facebook account. Reason for stating this is how hard it is for me to reach out and share. I have not even told my friends. I don't want to be "the one with cancer". I know I will change in their eyes. I feel…
-
Not a Happy Camper
Exhaustion hit me today at work. Could barely keep my eyes open, rested during break and lunch and finally left for home at 1:45. The drive home was ok, just the wake up bumps got me once....not from sleeping but mind drifting. So I have been in bed ever since, but my legs and hips are killing me! I think it's from the…
-
Mother's Day
To all, I wish everyone on this site a wonderful Mother's Day. May your day be blessed with family and friends. Let's not forget our animals, we are mommies to them too. Love, hugs and peace to all. Love Maggie xoxoxoxox