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Lymphoma (Hodgkin and Non-Hodgkin)

Lisha
Hi Lisha, Just checking to see if you have come home yet, or still in Texas at MD Anderson. Keeping you in my prayers dear friend. Much love..Sue (FNHL-2-3A-6/10)
Diets for Lymphoma
I am a newly diagnosed NH lymphoma(-tic). I am not obsessed, but do agree proper diet has its just rewards to most any malady. Does anyone have a proven diet, or just a list of what "to" and "not to" eat for lymphoma? Yes, I checked the i'net, but like most searches was deluged with yadda-yadda. Any and all suggestions are…
Latest results from second opinion
Well the doctor i saw for the second opinion had me do lab cultures, and asked me questions from my medical history from 20 plus years ago, i was in nursing back then , i worked in hospitals doing patient care, he asked me if i ever had a positive TB result from the TB shot, i said yes i did but i was told i was most…
Introduction
Hello all. I'm new here. Just wanted to give you a brief introduction and am hoping to receive some support and information from those of you (patients and caregivers) who have also been battling with lymphoma. My b13 year old son, Kiefer, was diagnosed with Burkitts NHL about a month ago. What we thought was tonsilitis or…
Only 300 people in the USA have what I have..
I am at MD Anderson for two days for testing the dr told me there are only 300 people in the USA that have hodgkins LP like me... They are going to put me on R-CHOP and I am wondering if anyone has had that and what kind of symptoms they had with it... I have to admit I am scared and am hoping someone can tell me how it…
After 20 years, a Lymphoma re-occurrance
Yes, I had Non-Hodgkin Lymphoma 20 years ago. I had a small relapse 5 years ago (I went on Chemotherapy for several months), but now it seems to have re-occurred. I don't even know the name of the type of Lymphoma that I have now -- it used to be called "poorly differentiated". I started to notice lumps in my groin area…
Help with symptoms
Hi All, I am having some bad health issues and am getting nowhere with physicians. I'm 39 years old and was diagnosed with hodgkins 2b in 2007. I went through about 15 rounds of chemo and about 15 of radiation also. After treatment I was clear of all cancer. About a year ago I began having chest pain. A couple times I had…
CHOP Chemo
Hello all I am wondering if anyone has had CHOP Chemo. My Dr thinks that is what I am going to be taking but I wont know until monday when I go to MD Anderson and I was really hoping for someone to tell me how it was for them. I am really scared to have to do Chemo and I am not sure how to take it. I have stage 1 type A…
All finished with R Epoch treatments
I just finished my 7th (I had one exra) and final treatment of Re Poch for Large Cell lymphoma. Last Pet scan looked good - no active lymphoma. Now we wait and pray it doesn't come back. I still have CLL (Chronic Lymphocytic Leukemia) but that is still stable.
To everyone, especially Johm
Hello all, I am pasting a copy of my post to John. John was so hurt that some of us haven't posted, or posted as much as before. I am not sure if everyone will read the post from me to John. Therefore, I just want everyone to know, I haven't forgotten anyone. I love all of you, and think of you often. See below under the…
Checking in
Hi all, Just wanted to say a quick hello. I am feeling a bit bruised and battered, but okay. Very tired, nothing new as this seems to be my everyday normal. I am waiting for more appointments and some results. Hopefully I will have a better idea and a new plan. Beth, so so happy that you are home. Your strength and courage…
Please respond to the post INTRODUCTION...
Hi guys, I'm still disturbed about a post that was submitted to our group last night from a young man going by the username of "Mofo". Many of you may not have seen it before it was removed by the moderator, but I'm concerned that Bryan may have read it. I think as many of us as possible should post a comment under the…
Home
:) I get to go home!!! Could have done it today, but nobody available to clean my house first. So last night at Hope Lodge! Port comes out Monday, so happy he's letting me go home early. Platelets are at 39,000. I am very happy but my sister is making the dogs stay in the basement. It breaks my heart because neither of…
Hello to all!!
Sorry to have been "away" for so long. I have checked in often and try to keep up with all of the posts. I guess I've just been busy and the time just seems to fly by. I do think of each of you often. Otherwise all is OK here(I hope). I will return to Mayo on July 27TH so they can let me know how I am then. Take care…
searching for informatio
Hello; I am a 39 yr old female. I have had an enlarged lymph node in my neck for almost two years now. By last year it had doubled in size so I was sent for a biopsy. The needle biopsy came back "suspicious". I had a chest xray done and it showed something on my lower lobe of my lung, but they thought it was scar tissue.…
Burkitts Non Hodgkins Lymphoma
My husband was diagnosed with Burkitts Non Hodgkins Lymphoma in Dec 2010, and was started on aggressive chemo treatment. He had his 6th chemo the end of Apr, 2011 and has not been able to have more because his blood counts are not high enough. He had a bone marrow biopsy dont two wks ago and the results came back that he…
very bad nausea three weeks after last chemo?
Hi I had my last chemo three weeks ago but have very bad nausea, I had hugkin lymphoma and did 6 cycles treatment and did never had this much long nausea, anti nausea medicne does not work and is much worse in the morning. had gone to dr and can not say why, has any one had the same experience and had the diagnoise or any…
Leaving tomorrow
Hi all, Just a quick hello and Happy 4th to all. I leave in the am for Texas. I have been trying to not think about it to much. Of course I am now getting nervous. I have had so so much going on lately, time has just zoomed by. Still have the landscaper people working, this small garden should have been done weeks…
Tom...Where are you
Where have you been Tom? We are all wondering about you and how things are going. Hope all is going good for you.John(FNHL-1-4A-5/10)
Hi!!!
Hello everyone, just checking in, hope every one's summer is going great, for all my friends still in treatment , keep up the fight!!!! Take care! Vinny
How many have extranodal lymphoma
How many have extranodal lymphoma. IF so where is/was yours located. Mine is in my neck.
Wondering about Donald 51
I have not seen Donald post anymore. I am so wondering how he is doing by now. Because he received the Zevalin like I did also. I am doing my scan in August and then we will see. I have issues and feel that it is not all ok. But will see in August. Hilde
Sun sensitive...
Well...I tried laying out in the sun today, and once again I just couldn't handle it. I've tried it 3 times this summer.Each time after 15 minutes, I get hot "very" quickly..light headed and dizzy. Today, I even felt sick to my stomach after 10 minutes. Sooo weird! I'm done trying...guess I'll just be pale for the summer.…
Extra chemo
I had my last chemo on June 21 and a PET scan done on July 1. The results of my PET scan showed that there are 2 spots, one near each collar bone, that have pruned like raisens. My oncologists said that they are dead and may just be scar tissue. He said I have the choice of doing extra chemo just to be sure they got…
blood test results
I finaly had the blood work to check for cancer markers, my onc nurse called me today and said he wants me to have a mri, to check my brain, little does he know don,t have one LOL but i,m really concerned because he has never had me to have one. blessings denise
Melt down
My numbers keep dropping so they gave a neupogen shot again to try to "jump start" my system. I am so disappointed. I can't get my port out because my ANC is below 500, at one point it got to 1810. I can't go home until I get the port out. It's a vicious circle of getting nowhere. I had a melt down today and actually cried…
cobra666
i guess chemo brain again,my 13 yearold daughter imformed me i am scuttlebug 11,i had my oldest daughters laptop while mine was in the shop. now what do ido to fix the problem. i'm begining to think it will hang on forever. my family thinks i have head problems blessings denise.
Waldenstrom's
My name is Charles and Ihave been diagnosed with Waldenstrom's. Am interested in any persons or family memebers who are dealing with or who have delt with this type of disease. About to have Rituxan.
20 years old
still dont know how to handle it. im so young and im still mad that i got and i dont know if thats healthy.
Fran....Where are you?
Fran, Just wondering how you are doing. We have not heard from you for a while. Hope all is good. Thinking of you. John

Lymphoma (Hodgkin and Non-Hodgkin)

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