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non-hodrkins
Morning all I am new to this discussion, I originally had breast cancer and am llike 3 days shy of the 5 year mark. naturally I felt great, I had beat that cancer. Found a huge lump Sat a week ago,doctor Tue. CT full body Wed, surgeonou. Fri. O.K. my reg doc, not the oncologist, told me that there was only one node…
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bone pain with bendamustine
My wife is experiencing bone pain after her 5th round of bendamustine/rituxan. I have seen many reports of joint aches and pains on this board but not a discussion of bone pain. Does anyone have any thoughts on this? She has had Rituxan numerous times without any issues so we are fairly sure it is the Treanda that is…
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anyone know how
anyone know how to get some of thejunk off the computer? blessings denise
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talked to a onc nurse at lymphoma center
i talked to a onc nurse today, she said the vaccine follicular nhl is in phase 3 she doest't know when will be ready. they do have a vaccine for prostate cancer and the only way we get into a clinical trail is everything else is exausted. blessings denise
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other pages
john i looked on other pages and anoher board i just a lot i feel to bad i go to the onc this week,so they can do bloodwork for cancer markers blessings denise
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new name
hi everyone, hope everyone is ok. I had to put my computer in the shop and for some reason I could't have the name scukklebug so i took one it suggested. blessings denise
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Numbers
Just frustrated these days. Met with Dr yesterday. My numbers are slow to recover and it ticks me off...they were doing so well. He talked yesterday about giving me a double transfusion of platelets to get my count high enough to get my port out, but then the schedule they gave me doesn't have me going back until Monday. I…
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Pics on Expressions Page
Ok Sue, I posted a couple pics. Take Care, Beth
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Leslie(YESYES)
Leslie, It has been a while since we have heard from you. Are you doing OK?John
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Lymphoma Research Foundation Ask the doctor sessions
Has anyone here ever attend any of the Ask the Doctor sessions or workshops put on by the Lymphoma Research Foundation throughout the States for lymphoma patients and/or caregivers? There is one next month at Stanford and I was wondering if they are worth the commute. July's overview * Lymphoma overview * Treatment options…
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Sorry that I haven been posting
The last 6 months have been up and down with different things going on post chemo, been to urgent care several times , to the ER twice with kidney problems , been suffering severe sinus infections due to retuxin, and now for the last 6 weeks i have had a fever that wont go away and it seems that tylenol does not have a…
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SLL: possible recurrence
I am new to this site. I have been in remission from SLL for 9 1/2 yrs and have recently found swollen lymph nodes at the back of scalp. I think my anxiety is greater now than originally. I know that recurrences are not good. Does anyone have experience with recurrence of Small lymphocytic lymphoma. I was dx at 37 yrs old…
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Requesting for info on treatment of aggressive DLBCL
My brother was diagnosed with mediastinal dlbcl stage 4b on Jan 19, 2011. Its spread to kidney, liver and bones. He's 27 years old, and has the aggressive form. He just finished his first course of r-epoch, but his vomitting cannot be controlled. He can't keep anything down, including pills. He's constipated as well. An…
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Last Treatment!!!!!
I just got home from my last chemo treatment, well hoefully. I will have a Pet scan done to confirm. But I'm excited. I think it's done with. And even more so my birthday is July 1st. What a great birthday gift, to be done with chemo!!!
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Donald where are you?????????
Wondering how you are doing now a days? Would be really nice to hear from you and how you are doing these days. I have my problems but taking one day at a time for sure. Have a egd planned for tomorrow for stomach pain. So will see. Would love to hear how you are doing. Hilde
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Numbers are great and maybe home later this week???
Sorry for not posting much, but it's been such a whirlwind with clinic visits, family and just tired, BUT there is a light at the end of the tunnel!! My WBC just as an example 6/15 0.2 6/16 0.3 6/17 0.2 6/18 0.5 6/19 1.2 My ANC count needs to be 1500 6/18 0.9 (barely discernable) 6/19 720!! Nurse practitioner says I may be…
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Got the "R" right today...LOL
Sue, Good Luck on your Rituxan TODAY!!!! John(FNHL-1-4A-5/10)
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Another jerk
John, sorry I forgot to include in my last email about Weiner. I can't believe people do the things they do. They all need help. Maggie
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Private Message
Hi, How can I read a private message from a friend on this site? Thanks Maggie
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Is it possible ?
Hey Is it possible to survive non hodgkins lymphoma for thirty years or so.? Does anybody know of someone who has? Even twenty years. Tahnks Richsterr
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low grade nhl
Hi i was diagnosed last october with low grade nhl i had a bone marrow biopsy and ct scan last november, my bone marrow fluid is fine i have small traces in my bone marrow but was told thats common in newly diagnosed people, it was the best pre xmas presen i could have had. I have CLL i went this march for a check up and i…
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THE BIG "R" TODAY
Sue, How did the Rituxan go today? I am pretty sure today was your appt. John
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Happy Father's Day
Hi Just want to wish all the Dads a wonderful day. I hope you are able to spend some time with your loved ones. Peaceful healing Lisha
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The ugly things people say
I hope that I am not the only one that has come across this. I was on another chat site (not for cancer patients) for anyone to chat about anything. I had posted that I had cancer and most people were really nice and continued to check in with me daily to see how I was doing. Recently I recieved I post from a young man…
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New to the site.. anyone care to share their experiences?
Hi my names Ian, i just signed up on this site in hopes of being able to talk to other survivors and vent out stuff i have on my chest. when i try to talk to people about my experiences they almost get scared and are uncomfortable talking about it. i hate talking to social workers at the hospital its like talking to a text…
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DHAP chemo?
Hi! I just finished my first round of DHAP chemo. This is my second attempt at salvage chemo. Little punks just keep holding on through all this chemo! Has anybody had this type before? Ive done rchop and rice before, but they haven't been even close to as bad as this kind!
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Latest SCT Update...sorry so late
The easiest way to describe this is by days. I think you all knew that on May 23rd I collected the requried cells needed for transplant. The problem after that was the delay in getting the BCNU (one of the chemo drugs due to shortage) so my high dose chemo was delayed by about a week. I Started my 5 day chemo round on…
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proud of daughter
after 2 long hard years with 2 babies my daughter graduated from the bussiness college on the deans list so very proud of her makes you remmeber the things that makes it worth fighting for blessings denise
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Another subject entirely
Hello, I hope my text is alright with everyone. Considering all the health issues all of us have. If there are any Florida residents on this site, I suppose their comments would be more intense? Any thoughts on the Casey Anderson trial in Orlando? Not sure if because there is nothing on TV in the evening, I find myself…
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How does Chat work?
when I click on Chat from left Navigation, I get a blank screen with: Please e-mail any questions to webmaster@acscsn.org. How does Chat work? Thanks Janelle