-
Requesting for info on treatment of aggressive DLBCL
My brother was diagnosed with mediastinal dlbcl stage 4b on Jan 19, 2011. Its spread to kidney, liver and bones. He's 27 years old, and has the aggressive form. He just finished his first course of r-epoch, but his vomitting cannot be controlled. He can't keep anything down, including pills. He's constipated as well. An…
-
Last Treatment!!!!!
I just got home from my last chemo treatment, well hoefully. I will have a Pet scan done to confirm. But I'm excited. I think it's done with. And even more so my birthday is July 1st. What a great birthday gift, to be done with chemo!!!
-
Donald where are you?????????
Wondering how you are doing now a days? Would be really nice to hear from you and how you are doing these days. I have my problems but taking one day at a time for sure. Have a egd planned for tomorrow for stomach pain. So will see. Would love to hear how you are doing. Hilde
-
Numbers are great and maybe home later this week???
Sorry for not posting much, but it's been such a whirlwind with clinic visits, family and just tired, BUT there is a light at the end of the tunnel!! My WBC just as an example 6/15 0.2 6/16 0.3 6/17 0.2 6/18 0.5 6/19 1.2 My ANC count needs to be 1500 6/18 0.9 (barely discernable) 6/19 720!! Nurse practitioner says I may be…
-
Got the "R" right today...LOL
Sue, Good Luck on your Rituxan TODAY!!!! John(FNHL-1-4A-5/10)
-
Another jerk
John, sorry I forgot to include in my last email about Weiner. I can't believe people do the things they do. They all need help. Maggie
-
Private Message
Hi, How can I read a private message from a friend on this site? Thanks Maggie
-
Is it possible ?
Hey Is it possible to survive non hodgkins lymphoma for thirty years or so.? Does anybody know of someone who has? Even twenty years. Tahnks Richsterr
-
low grade nhl
Hi i was diagnosed last october with low grade nhl i had a bone marrow biopsy and ct scan last november, my bone marrow fluid is fine i have small traces in my bone marrow but was told thats common in newly diagnosed people, it was the best pre xmas presen i could have had. I have CLL i went this march for a check up and i…
-
THE BIG "R" TODAY
Sue, How did the Rituxan go today? I am pretty sure today was your appt. John
-
Happy Father's Day
Hi Just want to wish all the Dads a wonderful day. I hope you are able to spend some time with your loved ones. Peaceful healing Lisha
-
The ugly things people say
I hope that I am not the only one that has come across this. I was on another chat site (not for cancer patients) for anyone to chat about anything. I had posted that I had cancer and most people were really nice and continued to check in with me daily to see how I was doing. Recently I recieved I post from a young man…
-
New to the site.. anyone care to share their experiences?
Hi my names Ian, i just signed up on this site in hopes of being able to talk to other survivors and vent out stuff i have on my chest. when i try to talk to people about my experiences they almost get scared and are uncomfortable talking about it. i hate talking to social workers at the hospital its like talking to a text…
-
DHAP chemo?
Hi! I just finished my first round of DHAP chemo. This is my second attempt at salvage chemo. Little punks just keep holding on through all this chemo! Has anybody had this type before? Ive done rchop and rice before, but they haven't been even close to as bad as this kind!
-
Latest SCT Update...sorry so late
The easiest way to describe this is by days. I think you all knew that on May 23rd I collected the requried cells needed for transplant. The problem after that was the delay in getting the BCNU (one of the chemo drugs due to shortage) so my high dose chemo was delayed by about a week. I Started my 5 day chemo round on…
-
proud of daughter
after 2 long hard years with 2 babies my daughter graduated from the bussiness college on the deans list so very proud of her makes you remmeber the things that makes it worth fighting for blessings denise
-
Another subject entirely
Hello, I hope my text is alright with everyone. Considering all the health issues all of us have. If there are any Florida residents on this site, I suppose their comments would be more intense? Any thoughts on the Casey Anderson trial in Orlando? Not sure if because there is nothing on TV in the evening, I find myself…
-
How does Chat work?
when I click on Chat from left Navigation, I get a blank screen with: Please e-mail any questions to webmaster@acscsn.org. How does Chat work? Thanks Janelle
-
MERRYWINNER..WHERE ARE YOU???????????????
Where are you Mary? I miss you on the board? Always think of you because you were the first one to respond to me way back when.It was a year ago last month. Hope you are doing fine. I know you are busy. Full time work alone takes at least a 1/3 of your day.If you get a chance give us a holler and let us know how things are…
-
Follicular Lymphoma - Rituxan and Bendamustine
Howdy - Anyone try this combination with anything close to Stage IV, Grade 2 follicular lymphoma?
-
How long before the symptoms go away?
Hello everybody! I had NPL Hodgkin's Lymphoma stage 3 for who knows how long. I did the RCHOP regiment for 9 months and now have been cancer free for almost 3 months. My question is how long before my stomach stops hurting all the time and the overwhelming fatigue goes away? I let my oncologist know about the symptoms but…
-
A year later...
Hi everyone, It was a year ago May 27 that I got my diagnosis. Here it is June already and unfortunately the NHL is active again. Have had many doctor appointments lately and have a gastro test on Friday to try to determine if "it" is in my small intestine. Either way I need treatment but... the doc at Sloan Kettering said…
-
Cat's Claw advice
Hello All, I take all the usual vitamins, but I have never taken any herbs. Does any on this site take Cat's Claw, and would you have any information on this herb? A friend of mine is recovering from stage 2 aggressive breast cancer. She will be starting Cat's Claw very shortly. I realize I must ask my oncologist first…
-
Beth, thinking of you
Hi Beth, Just want to let you know that I am thinking about you. I hope you are resting and feeling comfortable. You have been through so much. Hopefully you are able to read a few posts now and then. Totally understand if you are not up to posting any reply. Just in case you are reading this, know that I am thinking of…
-
Doctors Appointment
My daughter will be visiting her heamotolist on Tuesday for the results of her PET scan. Of course I will be going along with her. We are both very nervous. We know that it lit up but at the time she spoke to him he said he didn't know what it was. She finished chemo (ABVD) in March, scan in May. Keep us in your thoughts…
-
PET scan tomorrow
My 6th PET scan will take place tomorrow. Fun times I should say. I should be worried about the results, instead I'm upset about the fact I can't have my morning 3 cups of coffee. Ohhh the little things in life. I remember after being diagnosed with Cancer how I got more upset about the fact that the Heart Center where I…
-
Sunday evening hello
Hi all, Just wanted to drop by and say hi. Hope everyone had a lovely weekend. Yesterday was below avarage temps, but today really was nice. I think we are finally ready to start our spring weather. Haha, just in time for summer. I think global warming is messing with the weather big time. I hope all of you have a peaceful…
-
Night sweats back
Husband completed 3 round of Chemo, Rituxan & Bendamustine, the night sweats which had gone away are now back again. Is anyone still having night sweats?
-
Transplant done
Day 0 is here, transplant is done. I am exhausted, will write more later ok? Love you all Beth
-
time flies
I can't believe it's time for our yearly camping and fishing trip to the Pocono's. This year is really special to us, because last year, I was having my port inserted and receiving my first chemo treatment the day after we got home! I was reading Sue's post about how time flies, boy it sure does!!!!!! I just can't believe…