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5 year old
Only one comment today about my hair loss. My 5 year old great neice looked at me with her hands on her hips and told me "You look different" LOL I guess it could have been much worse, but was kind of cute. Out of the mouths of babes. Happy Easter Everyone! Beth
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Treanda Knowledge is POWER
I searched Bendamustine on Youtube.com and found some good listening material. Did not hear/mention of side affect rash/itching during treatments, but maybe Michele will have a better ear for picking up on it than I did. There are positive vibes for everyone in these videos! even one from M.D. Anderson in the States!…
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A favor to ask
Hey gang, I have a favor to ask of you. Its not for me, but for my brother-in-law who is a truly awesome guy. My name is Ray and I have posted a few times on the colon board about my experiences with CC and have learned a lot and been really touched by the kindness shown to me there. My BIL is also named Ray (and his son…
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How's it going Beth?
Hi Beth, Hope your 3 days of chemo this week didn't knock you down too bad. Has hubby gotten home yet? I'm keeping you in my daily prayers and good thoughts..(along with everyone else)! Take care friend...Love...Sue (FNHL-2-3A-6/10)
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Follicular Lymphoma - Rituxan and Bendamustine
Howdy - Anyone try this combination with anything close to Stage IV, Grade 2 follicular lymphoma?
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Dry Eyes/Restasis
I posted yesterday about my eye doc wanted to try me on Restasis but because of cyclosporin in the script he wanted me to clear it with my oncologist first. Well, my Onc's office just called and he needs to see me first as he stated it's very complicated. I have no idea why I need to go in but have an appointment for…
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hard time posting
Hey, I am trying to post to everyone that I can,but the computer is only letting me post every so often. I write post and can't get them posted and the site freezes up. Happens so often, but do get a few to go thru. Hope this one goes thru. Anyway all my other site are fast as ever. Thinking of you all. John
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liltazcat/Laurie's husband passed
Hi guys, This message was posted in an older thred so I thought I should bring it to the front of the line in case some of you missed it. Heart breaking. Love..Sue April 28, 2011 - 5:29pm My beloved has passed Came home with hospice care. They were wonderful and caring people who did a great job. We got home on April 8,…
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John
Hi All, I 'talked' to John, and he is fine but unable to post. Seems that he is blocked. I agree with Sue, we need to do something about this now. Lets come up with a great plan. We need John and his kind wisdom... Lisha
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San Francisco Results
Hi all, Boy have I been having lots of problems trying to get on this site or post. I know it's not our computers as I have no problems with any other site or board. So CSN whats Up? My trip up to see my specialist at UCSF went well. However, I mentioned to him about having a continuing headache which woke me from a sound…
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In need of a good friend
I am 31, single mom of 2 kids. I have hodgkins lymphoma and I have had 9 treatments so far. Up untill last week I had what I thought was a great boyfriend, who seemed very understanding and patient. Come to find out he only felt obligated to stay because I was dealing with cancer. So now he's gone and I'm having a really…
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I'm Back..............
Hi Peeps, Can't I be away from the boards for 10 days without all this excitment and stress? Way way too many posts to answer them all so I'll try and do it with one post. My lord John, what you have been going through on this board sounds terrible. Your our resident welcome and good humor man and I for one would be lost…
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Newbie also being treated with Rituxan/Bendamustine
Hello, I was diagnosed with NHL in Feb 2011. I have been reading your posts since then. I decided to join in when I saw a comment regarding a rash from this treatment. Two weeks after my first round I broke out in a rash from my neck down to my thighs. My doctor said she had never seen that before. It's now been a week…
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A special but sad week
Hi, dear Friends, Sorry I had been out of touch and read most of your posts. I had been busy adjusting going back to work the first 2 weeks then visiting mother often until she passed away a week ago due to ovarian cancer. She stopped treatment last Jan. - it was her decision and she was 83 so she had a long life but it is…
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Bummed
Hi all, Well, it seems that my onc and my gastro doc are both thinking that the lymphoma is not only in my stomach but also in my small intestine. Have had diarrhea since the first week of December - losing weight. Having a capsule endoscopy Monday. Hopefully that will confirm or deny this. My onc mentioned Treanda as a…
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Ouestion..???
Hi guys, I was wondering...can "anyone" come on our Lymphoma site and flag our comments? For instance...I check out other sites...colorectal...breast cancer, etc, but don't post comments..I just read whats going on at those boards. The reason I ask is because I can't figure out why some of John's comments were pulled. I…
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Long-Term Survivor - Possible Recurrence or Second Cancer, Rough Time
Hey, everyone. I'm a long-term Hodgkin's survivor (details available in my profile). At present I'm experiencing night sweats/overheating plus generalized itching, which of course could be absolutely anything, but could also be lymphoma, either Hodgkin's or NHL, so my hematologist is on it. I see him Thursday afternoon for…
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MCL
My MIL was diagnosed with stage 4 MCL with 3 different systems involved...Spleen, BM & lymphnodes...she is undergoing aggressive chemo and has a stem cell transplant scheduled...any more info would be helpful. We are worried.
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mantel cell lymphoma
updates, news who's been through it
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surgery
Morning everyone, I'm on my way to the hospital with Lisa, today is her surgery, praying of course that what they take out, comes out clean.... very weird feeling to be on the other side, I always said that its just as hard on the caretakers as it is on the patients! Take care all, I read your posts everyday and pray for…
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Lisa surgery?
Sending positive thoughts your way for tomorrow as I believe your having surgery.God bless,Michele DX95FNHL3
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Day one
Day one of 3 done. I'm glad it's over, but tomorrow will be here soon enough. I told my father in law I'm not going to work in the morning tomorrow. I am not feeling that great that I can turn into someone nice on the phone. LOL I had my neighbor girl come take sam for a walk for me after playing fetch for about 45 min. I…
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2 Round - Treatments of R/B
I pray everyone is doing well out there. I just wanted to share some good news….Today was my husband’s 2nd round of Ritxuan/Bendamustine (8 hour infusion). I am so happy to report that he did very well. No side effects to mentions, he was even able to go to our grandson's baseball game right after we left the hospital.…
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Belated Happy Easter!
Sorry I missed sending Easter greeting to everyone. I worked all weekend so had no computer time. Hope everyone's Easter was good and that spring will give us all new and continued beginnings. Mary
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Questionable treatment tomorrow
I am not sure if I'll get my treatment tomorrow or not, will depend on my platelet count. Nurse told me today Dr. says it needs to be at 100. Won't know till morning about 8:30 or 9:00. She said she'd talk to the on call doc cause he didn't mention waiting until next week. I hope it doesn't get pushed back, I've worked my…
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rituxan and pregnancy?
Hi everyone... My husband finished his treatment for Non Hodgkins Lymphoma in December. His petscan showed a significant decrease and diminishing in activity! We are very happy with this news. Now, he will be on a maintenance program which is Rituxan every 3 months for 2 years. He has already had Rituxan with his Chemo,…
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Has anyone heard from BlueRoses?
Hello, Has anyone heard from BlueRoses? Its been a while since I have seen any posts from her. thanks
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Happy Easter
Hello,Hope you all have a peaceful day filled with loads of blessings.God bless,Michele
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Wide awake
Hi all, Here I am, wide awake. Trying to sort out what lies ahead. I'm sure that this is not the best time for sorting, but what else is there to do in the middle of the night. Walked the dog a little longer tonight , hoping I would be so tired and fall right asleep. Nope. I'm super tired, but thats nothing new, but not…
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BEACOPP - How bad is it??
Okay sooo I just found this site and joined it...soo Let me briefly list what's going on. Last year in late October I was diagnosed with Hodgkin's lymphoma (I think it's stage 4...I had it in my lymph nodes and lungs...none below my diaphragm...Idk, no one told me.) I left school, came home and started treatment in late…