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MERRYWINNER..WHERE ARE YOU???????????????
Where are you Mary? I miss you on the board? Always think of you because you were the first one to respond to me way back when.It was a year ago last month. Hope you are doing fine. I know you are busy. Full time work alone takes at least a 1/3 of your day.If you get a chance give us a holler and let us know how things are…
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Follicular Lymphoma - Rituxan and Bendamustine
Howdy - Anyone try this combination with anything close to Stage IV, Grade 2 follicular lymphoma?
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How long before the symptoms go away?
Hello everybody! I had NPL Hodgkin's Lymphoma stage 3 for who knows how long. I did the RCHOP regiment for 9 months and now have been cancer free for almost 3 months. My question is how long before my stomach stops hurting all the time and the overwhelming fatigue goes away? I let my oncologist know about the symptoms but…
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A year later...
Hi everyone, It was a year ago May 27 that I got my diagnosis. Here it is June already and unfortunately the NHL is active again. Have had many doctor appointments lately and have a gastro test on Friday to try to determine if "it" is in my small intestine. Either way I need treatment but... the doc at Sloan Kettering said…
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Cat's Claw advice
Hello All, I take all the usual vitamins, but I have never taken any herbs. Does any on this site take Cat's Claw, and would you have any information on this herb? A friend of mine is recovering from stage 2 aggressive breast cancer. She will be starting Cat's Claw very shortly. I realize I must ask my oncologist first…
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Beth, thinking of you
Hi Beth, Just want to let you know that I am thinking about you. I hope you are resting and feeling comfortable. You have been through so much. Hopefully you are able to read a few posts now and then. Totally understand if you are not up to posting any reply. Just in case you are reading this, know that I am thinking of…
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Doctors Appointment
My daughter will be visiting her heamotolist on Tuesday for the results of her PET scan. Of course I will be going along with her. We are both very nervous. We know that it lit up but at the time she spoke to him he said he didn't know what it was. She finished chemo (ABVD) in March, scan in May. Keep us in your thoughts…
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PET scan tomorrow
My 6th PET scan will take place tomorrow. Fun times I should say. I should be worried about the results, instead I'm upset about the fact I can't have my morning 3 cups of coffee. Ohhh the little things in life. I remember after being diagnosed with Cancer how I got more upset about the fact that the Heart Center where I…
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Sunday evening hello
Hi all, Just wanted to drop by and say hi. Hope everyone had a lovely weekend. Yesterday was below avarage temps, but today really was nice. I think we are finally ready to start our spring weather. Haha, just in time for summer. I think global warming is messing with the weather big time. I hope all of you have a peaceful…
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Night sweats back
Husband completed 3 round of Chemo, Rituxan & Bendamustine, the night sweats which had gone away are now back again. Is anyone still having night sweats?
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Transplant done
Day 0 is here, transplant is done. I am exhausted, will write more later ok? Love you all Beth
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time flies
I can't believe it's time for our yearly camping and fishing trip to the Pocono's. This year is really special to us, because last year, I was having my port inserted and receiving my first chemo treatment the day after we got home! I was reading Sue's post about how time flies, boy it sure does!!!!!! I just can't believe…
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WHERE IS LISHA??????
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Another Question about ABVD
So, I'm still basically new at receiving this treatment, but It seems after the treatments that I've had, I've had some pretty painful effects. After this last one which I had on the 24th wednesday I started having chest pain again on Saturday, then on Sunday started having stomach pain accompanied with it. Now its more…
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New pictures of Lizzy.
Hi all... Well..Lizzy is 4 weeks old today, so I posted some new pictures on my expression page. Geez...where does the time go?!!! She weighs 10.4 lbs now..her mama says all she wants to do is eat, and it shows!..ha! Sure am lovin her. Sue (FNHL-2-3a-6/10)
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a little worried
hi, im Anthony and im 20 years old. i had my 8th and final round of chemo on december 2010. it was b-cell lymphoma. recently my doctor (Dr. Uzair Chaudhary, in my opinion, the nicest doctor I have ever met)looked at my CT scan and said its still shrinking. the problem is my insurance expired on the 4th of this month. but…
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My post is for women only LOL LOL
Dear Ladies Only, I am trying so very hard to take care of myself. Today, Monday June 6 I have an appointment for my mammography. It is only a routine yearly screening. I never had a problem before, but things can change??? Tomorrow, Tuesday I have an appointment with the GYN doctor. It is for the dreaded PAP test. I have…
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Friend just diagnosed......Help!
Hi all I am member here, but on the breast cancer site and garnered so much based on the experience of others. Anways I have a freind that has just been diagnosed with Lymphoma and will be starting R-CHOP regimine on Friday. My question to you all is, are there any secrets or tips for dealing with this particular type of…
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To all my dear friends on this site
Dear All, I would rather post my concerns for all of you at the same time. To the men, get your yearly check-up, colonscopy and prostate screening. anything else I left out. To the women, get your yearly mammo, colonscopy, and pap test. Anything else I left out. I know, I am so scared also, they will find out something…
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Promethazine nausea meds
Anyone taking this med experienceing wierd side effects? I've been taking this on and off for 8 months now and I noticed last month that I was have trouble with controling movement of my head and neck and shacking in my right leg. It went away after a few days or so but since I have had chemo again and had to start taking…
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dry mouth medication
I had radiation to the jaw for lymphoma approx, 5 years ago. I have done very well except for a chronic dry mouth. I have used Evoxac intermittently with good results. My insurance company is now (after 5 years) refusing to continue to provide support for this and refusing to allow a refill. They now say that there is no…
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fevor
does anyone ever feel like they have a fevor but nothing ever show on the themometer even though its new i do this often could it be because my immune system is low. denise
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PET Scan
HI What is the time you should wait from your last chemo treatment to your PET scan? Does anyone know this?
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Day 3
Well last night the second round I threw up darnit. Today so far feel pretty good, but we're just getting started too. I am at the hospital today and tomorrow rather than the clinic, but hopefully I can just stay all day so I don't have to leave and come back later. We'll see. Starting to really slow down now though.…
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Transplant update..sory haven't been commenting too much lately
I feel so bad that I really haven't updated much with what's going on with me, so I will back up and try to start from the beginning. Had my trifusion port surgery on Friday the 20th which went really well and doesn't bother me all that much anymore. Did my stem cell harvest on Monday the 23rd and got them all in one day…
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Mediastinal Large B Cell Lymphoma
My nephew was diagnosed Stage IV Primary Mediastinal Large Bcell Lymphoma at the beginning of April, 2011. He's was in pretty bad shape and was started on a chemo that was supposed to be given once every 21 days - I think it might be the R CHOP or Epoch that's been discussed. I've read where it can be given in 14 days if…
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Persistent cough
Has anyone had any problems with coughing? My husband went to the doctor for it but they said that it was nothing to worry about and that his lungs were clear. They gave him cough syrup with codeine but the cough still has not gone away. He went through round 3 Chemo Rituxan/Bendamustine last Monday, Tues and Wednesday.…
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Gonna get drunk here in a bit
The drug I've been waiting on is BCNU and is mixed with alcohol. I get to get drunk complete with the hangover in a little bit. I have to have 2 hours of saline first before I get the chemo, they want me going to the bathroom a lot with it to help reduce dangerous effects of the drug. I'll let you know how it goes. Thanks…
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Drug released
Chemo starts at 7:30 am tomorrow. They have me scheduled for 7 hours. I got the call this morning that the doctors didn't want to wait to start till monday. So we're back at hope lodge this evening. Computer is very iffy right now so I don't know how much I'll be able to keep in touch. Hope everyone is doing well and all…
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Flexeril for Painful Joints
Have found relief after almost 9 months of limping around due to ankles that were locked tight every morning. Bloodwork confirmed it wasn't rhumatoid arthritis or lupus or Fybramyalga, so I was referred to a Rhumatologist to discuss other possibilities & after hearing me describe when my ankles would be locked tight vs the…