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sister
Hi all, Just found out that my sister's breast ca has returned. I've been sorting out my feelings all morn. The last few weeks I have been worrying about my mammo and results. Now this just is adding to my worry. Feeling a bit lost about what and if I should do anything more or different. Knowing family history , well it…
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Lingering Cancer?
So far as up to today, I have a 'lingering' cancerous spot in my chest. Ive long since finished my treatment, but now I have to get PET EVERY 3 months and they wont let me get my port out. I thought that when you get done with treatments its supposed to be over, but for me every day drags by until my next PET scan to tell…
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Great News
Well we got Lisa's results and they are all negative!!!!!!!! Thanks for all the prayers!!!!! I'm getting my second PET scan since my last treatment next friday, so we are hoping for two wins in a row! LOL Vinny
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Bubbles
Hey John, Just thought I'd let you know that this chemo has me peeing bubbles too LOL. I was going to post this a couple days ago, just too tired. Beth
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Questions about what to expect?
Hello all- My husband has just been diagnosed with Follicular NHL, Grade II, we are going to get the stage on Monday (he just finished the PET scan, the MRI, bloodwork, and bone marrow biopsy). He has swelling in the lymph glands in his groin, neck, and armpit. There is a lot on confusing information out there about this…
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How are you doing Liz?
Just wanted to let you know I'm thinking about you. I hope everything is as good as can be and that you are Ok. Take care of yourself! Beth
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Protocol AHOD0031
Hi my son is 14 yrs old and was diagnosed with Hodgkins, he has finished 16 rounds of chemo four cycles. He was cleared after two cycles. we are now at the point where the doctor is deciding if he needs radiation. I would like to know if anyone had this protocol with out radiation and how they are doing, also he was in…
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How long does it take after Chemo (ABVD) to feel 'normal' ?
My husband will be receiving his final (12th) ABVD chemo treatment this Friday, April 29th (also his 80th birthday, AND the Royal wedding). His PET scan after the 8th showed complete remission I realize that everyone is different, but he keeps wanting to know... when will he stop being tired? When will his taste buds…
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Lose of Friend
Seems like April, start of beautiful weather, new life, blooming flowers and plants is also very heavy in sadness this year. Seems a lot of us on this board have shared a lose in recent months. About 3 months ago a friend of our family was diagnosed with ALL. This disease came on really fast and ravished her body in a very…
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late stage NHL ?
My husband was diagnoised in 2006 with stage 4 NHL. Chronic lymphatic leukemia/small b-cell lymhpatic lymphoma. Treated with chemo 2006-2007 and went without treatments til March 2010 to present. I need to know if anyone has experienced confusion, being disoriented, child like manners, stroke like symptoms or anything like…
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back
Hello everyone, the surgery went well, unfortunately there will be the customary waiting game..... he are hoping to hear something on Friday afternoon, staying positive, stay well everyone..... Vinny
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A little better
Just thought I'd let you all know I am beginning to feel a little better. Course I haven't been to work since Friday morning for a couple hours. I did get out and drive today and went to see Jim's Aunt and Uncle to kind of go over the paperwork stuff and caregiver stuff to see if they'd go with me to the meetings. They…
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Post Chemo-Hodgkin's
Hi I was wondering if anyone could help me. My daughter finished her chemo mid March, and I was wondering if she should be still feeling the effects of it. She sometimes complains of pain in her back but it isn't there at all times. Also, she is complaining of pains in her stomach. She describes it as being "gasy". She had…
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dixiegirl
not much on any kind of onlie chatting just a quite person but i am glad tour feeling a little better i know god has his arms around you. denise
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Dawn/our pharmacist has been blocked
Hi,Just got an e-mail from Dawn,she wanted me to let you all know she will keep trying,but that she has been" blocked "from here.She has a facebook and gave me the site but not sure that she wants it on here or not.Will get back on that.Blessings,Michele DX95FNHL3
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RAI for thyroid and pet scan needed at the same time.
Hello there, I had a stem cell transplant in May of 2010, I am scheduled to have a followup pet scan for lymphoma. I am also scheduled to have RAI for papillary thyroid cancer. My thyroid doc said that I have to be four months without a petscan before they can do the RAI. If I have the petscan first, does anybody know how…
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friday Pet Scan yippee!!!
Ah yes the Friday PET scan.... having to spend the weekend wondering! lmao!!!! but seriously I feel confident that everything is going to come back clean.... Happy Mothers Day to all you Moms!!!!!! Enjoy your day.......... Talk to you all soon Vinny
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Seems like I am back
Hey all, Been out of touch for a while,but I was here everyday reading the post. I was not able to respond for some reason. I could read every post but could not log in.It appears I was banned for some unknown reason to me. I want to thank everyone that did respond to get me back on the site. You all know who you are just…
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Dr.stopping Treanda
Hi,Called my dr. this morning as this rash and itching are out of control.Nurse called back to inform me onc feels the Treanda is causing all this so they are stopping the treatments.They also made me an appt to see my dermatologist first thing in the morning.I have been truly blessed all these years never to have had such…
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pharmacist
Hello, I found this site researching protocols. I am a pharmacist, not a cancer survivor. Reading your posts has me sitting here with tears streaming down my face. I work the overnight shift, and I check the chemo orders, as they have to be done by 2 pharmacists. I just wanted to let you all know that when we are doing…
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In case you didnt know
There is a free house cleaning service available to cancer patients that are on chemo. It is called "Cleaning for a Reason". Service are upon availability in your area. And is available in almost every state.
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7:42
Ok, what's wrong with this picture...it's 7:42 CST and no new posts today? Are there more issues? I worked all day today, amazingly enough and I've been in bed for over half an hour. If I make it to 8:15 I will be surprised. Good night everyone! Beth
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sthanue andd cobra666
Sue, and Cobra666 thank you for your support and concern. First I had a kideny infection, then thrush, whitch I did'nt know what it was, all kinds of sores and blisters were inside of my mouth, brocitics, A endoscopy, colenospy, which my other doctor had already scheulded. The emergeny room doctor didnt even examine me,…
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5 year old
Only one comment today about my hair loss. My 5 year old great neice looked at me with her hands on her hips and told me "You look different" LOL I guess it could have been much worse, but was kind of cute. Out of the mouths of babes. Happy Easter Everyone! Beth
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Treanda Knowledge is POWER
I searched Bendamustine on Youtube.com and found some good listening material. Did not hear/mention of side affect rash/itching during treatments, but maybe Michele will have a better ear for picking up on it than I did. There are positive vibes for everyone in these videos! even one from M.D. Anderson in the States!…
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A favor to ask
Hey gang, I have a favor to ask of you. Its not for me, but for my brother-in-law who is a truly awesome guy. My name is Ray and I have posted a few times on the colon board about my experiences with CC and have learned a lot and been really touched by the kindness shown to me there. My BIL is also named Ray (and his son…
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How's it going Beth?
Hi Beth, Hope your 3 days of chemo this week didn't knock you down too bad. Has hubby gotten home yet? I'm keeping you in my daily prayers and good thoughts..(along with everyone else)! Take care friend...Love...Sue (FNHL-2-3A-6/10)
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Follicular Lymphoma - Rituxan and Bendamustine
Howdy - Anyone try this combination with anything close to Stage IV, Grade 2 follicular lymphoma?
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Dry Eyes/Restasis
I posted yesterday about my eye doc wanted to try me on Restasis but because of cyclosporin in the script he wanted me to clear it with my oncologist first. Well, my Onc's office just called and he needs to see me first as he stated it's very complicated. I have no idea why I need to go in but have an appointment for…
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hard time posting
Hey, I am trying to post to everyone that I can,but the computer is only letting me post every so often. I write post and can't get them posted and the site freezes up. Happens so often, but do get a few to go thru. Hope this one goes thru. Anyway all my other site are fast as ever. Thinking of you all. John