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new member from the nederlands
hello everyone myname is martin 47 yaer old end i live in the nederlands . left kindney removerd two monds ago tumor stage 3a aggressivenes2 no metastases . in the nederland there is little information about kidney cancer so i hope to find a lot of infermation here . i write my tekst with google translate . in the…
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Here we go again Scan Year 3
Hi alll.. This will be my scan # 5 in 3 years...I went to annual scans and I am feeling better with almost no scanxiety.... Hopefully I can bring some goods news to this forum....little nervous but manageable ......
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New diagnosed
Hello everyone I'm George 41 years old About a year ago I was diagnosed with complex cyst 2.8x2.5 cm , the doctor said don't worry its happen,i don't have any symptoms or blood work abnormalities, and they said I have to do CT scan after 6-12 months.I did right after the medical exam in February, and the CT scan…
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Rib Metastasis???
Hello. I am SO new to this kidney cancer journey. Hopefully I am just worried about nothing. I was diagnosed 1/2/21 with a radical nephrectomy performed on 1/20/21. I have Stage 3 RCC with a "highly aggressive" type (the tumor was a 7 cm type IV) according to the surgeon and oncologist. I am recovering well and have a scan…
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Possible Kidney Cancer or UTUC in Kidney, Newly Diagnosed
Good Morning All, I've been reading you all for quite a while, well, since december to be exact lol. I went into the emergency room for diverticulitis, when a CT scan found a 4cm mass in my right kidney. I scheduled an appt. with a urologist/surgeon for Jan 27th and in the meantime saw my oncologist (thyroid cancer…
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Lumps in abdomen UPDATE
On my 4 1/2 year colon cancer ct scan and 2 1/2 year kidney cancer ct scan.....they have found 2 small lumps on the right hand side of abdomen. They are only 1/2 millileter so to small to biopsy at the moment. I will be having another scan in February followed by a biopsy if they are big enough then. This has really thrown…
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Ablation x PN
Guys, let me ask you something, With the current advance technologies, does an ablation of a small exophytic renal mass (2 - 4 cm) in a healthy patience have good a prognosis as a partial nephrectomy? I'm talking about oncologic outcomes (reocurrence, survivel rate, etc.) Thanks in advance
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Robotic surgery was tolerable
Had my robotic assisted partial nephrectomy and it wasn't too bad. There was some pain coming out of anesthesia and I had 5/10 on the pain scale for some hours even with meds but I made it okay. Now I'm at home healing up. One physician described these surgeries as "well tolerated" procedures. That's what I'd say. Small…
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Ct scans or mri
My last time I had my scans I was Ned I get scans every three months I had always got mri so we decided we could do ct scans every other three months do you guys think ct scans are as good as mri just wondering
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Pathology: renal cell carcinoma with sarcomatoid features
We got our results from the lab- renal cell carcinoma with sarcomatoid features. The numbers he gave us were T3/N1, metasized to the adjacent adrenal gland and regional lymph nodes. A pet scan is ordered for next week as well as xrays, and further testing. Does anyone here have experience with this diagnosis? He didn't…
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Kidney cancer and social media- you're being watched
Hello, I want to know if anyone else had experienced this? I haven't posted anything on Facebook about my upcoming surgery for my under 2cm renal mass... but Facebook algorithms are suggesting cancer information to me nonstop. There should be consumer protection laws for this kind of stuff. I've only searched Google on…
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Surgery vs SBRT for Lung Met and MRI Anxiety
I've been back and forth on this decision for 2 weeks now. Doctor supports either option. The tumor is 3.3cm and up against my second rib on the outside on the right. Hard to tell from the CT scan how involved or if it's involved the rib(s). The surgeon wants an MRI to get a better look. Oncologist wants a brain MRI to…
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Blood Tests during Active Surveillance
Hi everyone, My mother just had her 2 year ultrasound follow up. Her solid kidney lesion was 1.3 cm compared to 1.1 cm two years ago. She has significant flank pain every once in a while. Is this common with such a small lesion? She does have 3-4 other simple cysts across the two kidneys. All under 2 cm. She also is tired…
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RCC in 2018, what is standard follow-up for you like?
Hello all, I was diagnosed with an aggressive RCC in Jan 2018. My kidney and 7,5cm tumor were removed 3 weeks later... and then they said: you are cancer-free. I have annual CT scans of my abdomen, an annual check-up with a nephrologist and dietician. My remaining kidney is at 41%. I also have bloodwork every 3 months. *…
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Renal cancer- passing blood clots
Good morning, My partner has received a clinical diagnosis of renal cancer. He is having surgery this month to remove his effected kidney, the tumor, and possibly the regional lymph nodes and adrenal gland. He has been passing pretty large blood clots but I can't find any information online about this issue. Has anyone…
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Going for surgery soon
Going for surgery soon to remove my 1.5 cm tumor (incidentally detected, no veins or collecting system involement), robotic assisted partial. Is the robotic assisted partial really that bad? Seems a lot of people have well tolerated procedures. I'm middle aged F with no other co-morbidities and on no meds. I chose surgery…
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RCC in the NBA
I don't know how many of the members here have seen this, but an NBA player named Caris LeVert was involved in a trade. As a requirement of the trade, a full physicall was performed that included an MRI. In that MRI, they discovered a mass on LeVert's left kidney. He is 26 years old. I didn't hear much more until…
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Nodule on adrenal gland — metastasis vs scar tissue from Nephrectomy
The CT finding indicates indeterminate nodule in middle of adrenal gland with findings of small rcc metastisis vs scar tissue from nephrectomy last November. The nodule was only 14mm. My follow up CT with contrast is tomorrow. Has anyone else had scar tissue appear as nodule in the adrenal gland?
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Kidney Cancer / Post Surgery
I was diagnosed with Kidney Cancer and had 50% of my left Kidney removed on Janaury 15, 2003. I find myself still scared and confused. Doc says they are 70% sure all cancer was removed and my survival rate was put at 70% as well. I would appreciate any comments about when I will start to feel like the survivor they say I…
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Ned today
Had my scans today was Ned going to enjoy my evening
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7 years later, The big C returns.
This time with a mass in my left lung. Doctors have confirmed it as Renal Cell Carcinoma which suggests it is residue from the first bout from 2013. Mass is in a difficult to access location. Radiation will commence tomorrow. I used to live in the Chicago area. We now reside in the Lehigh Valley of Pennsylvania. So far, we…
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NED again but...
Hi everybody. I just had follow up CT Scan last week and doctor appointment today. Good news NED for kidney cancer, but there is 1.4 cm mass on my pancreas. Just wanting some good vubes and prayers. Will have biopsy and then we'll see. I so appreciate all of the help and support from the members on this board. Thanks.
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Recurrence in Lung
Hi. I just found out today I have a new tumor in my lung. It's about 1" and located in the upper right part of my lung at the top. Somehow I had a feeling cancer would be back for me. I was a little surprised to have 6 years NED after the adrenalectomy. I'm feeling very emotional today. Sad. Depressed. Scared. I lost a…
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partial nephrectomy vs. lap. cryoablation, what to choose?
Hello, my surgeon gave me the choice of doing a laparosopic cryoablation or a robotic partial nephrectomy to remove my kidney tumor. Any advice, personal experience or helpful information on what to choose is welcome. What has the least complications or quicker recovery and will preserve more of my kidney function? Thank…
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Hot Flashes
Hi to all, I have read that some people experience hot flashes as a symptom. I am starting menapause and realize that causes them, but I'm getting them EVERY DAY about 20+ times day. It's starting to become disruptive too my life. 36 degrees last night and I had window open with a fan. My husband is starting to get upset.…
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And Happy New Year to all...
When I was Dx'd in 2006 with kidney cancer (it doesn't deserve to be capitalized), I was told that "unless something could be done", I had 5-7 months to live. That prognosis didn't agree with me, at all. So we pursued on, even after many tears and phone calls, and tests, and finally the initial surgery. Out came the R.…
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timeline
This site was a tremendous help and the beginning of our journey. Everyone is different but when I was going through it I wanted examples of timelines. Here is ours: 12/4/2012 hubby had cancerous tumor removed from his kidney. 6/25/2014 Stage 4 advanced and aggressive. 6/25/2020 oncologist said treatment is no longer…
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I’m new
Was diagnosed 4 months ago. Do not understand or know how to handle this or where to get support. This is the craziest worst ride ever.
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NED!
Hey all, it's been quite some time since I've been on here but I wanted to share some good news. Almost 2 years out from my partial nephrectomy (January of 2019) and I am NED again on my most recent scans! Was a little less anxious this go around too, which was great. I am still wiaitng to hear officially from doc but i…
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It is NED
Hi all, just want to share my 51st-month scan reports and so glad uncle NED visited again! Hope he keeps coming back each year! This time, I did Ultrasound, CXR and bone scan (because of the bone island). All came back as normal. Except it mentioned kidney stone is forming, but guess it is a lesser concern! Thank you…