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Kidney Cancer

NED again but...
Hi everybody. I just had follow up CT Scan last week and doctor appointment today. Good news NED for kidney cancer, but there is 1.4 cm mass on my pancreas. Just wanting some good vubes and prayers. Will have biopsy and then we'll see. I so appreciate all of the help and support from the members on this board. Thanks.
Recurrence in Lung
Hi. I just found out today I have a new tumor in my lung. It's about 1" and located in the upper right part of my lung at the top. Somehow I had a feeling cancer would be back for me. I was a little surprised to have 6 years NED after the adrenalectomy. I'm feeling very emotional today. Sad. Depressed. Scared. I lost a…
partial nephrectomy vs. lap. cryoablation, what to choose?
Hello, my surgeon gave me the choice of doing a laparosopic cryoablation or a robotic partial nephrectomy to remove my kidney tumor. Any advice, personal experience or helpful information on what to choose is welcome. What has the least complications or quicker recovery and will preserve more of my kidney function? Thank…
Hot Flashes
Hi to all, I have read that some people experience hot flashes as a symptom. I am starting menapause and realize that causes them, but I'm getting them EVERY DAY about 20+ times day. It's starting to become disruptive too my life. 36 degrees last night and I had window open with a fan. My husband is starting to get upset.…
And Happy New Year to all...
When I was Dx'd in 2006 with kidney cancer (it doesn't deserve to be capitalized), I was told that "unless something could be done", I had 5-7 months to live. That prognosis didn't agree with me, at all. So we pursued on, even after many tears and phone calls, and tests, and finally the initial surgery. Out came the R.…
timeline
This site was a tremendous help and the beginning of our journey. Everyone is different but when I was going through it I wanted examples of timelines. Here is ours: 12/4/2012 hubby had cancerous tumor removed from his kidney. 6/25/2014 Stage 4 advanced and aggressive. 6/25/2020 oncologist said treatment is no longer…
I’m new
Was diagnosed 4 months ago. Do not understand or know how to handle this or where to get support. This is the craziest worst ride ever.
NED!
Hey all, it's been quite some time since I've been on here but I wanted to share some good news. Almost 2 years out from my partial nephrectomy (January of 2019) and I am NED again on my most recent scans! Was a little less anxious this go around too, which was great. I am still wiaitng to hear officially from doc but i…
It is NED
Hi all, just want to share my 51st-month scan reports and so glad uncle NED visited again! Hope he keeps coming back each year! This time, I did Ultrasound, CXR and bone scan (because of the bone island). All came back as normal. Except it mentioned kidney stone is forming, but guess it is a lesser concern! Thank you…
Nerve pain after Thermal ablation
Hello gang. About 10 days ago I underwent a thermal abulation on my left kidney to remove a 2 cm tumor. As the recovery days went on, my nerve pain that runs from my left crotch area up toward my waist has gotten worse and worse. It feels like a tingling/bad sunburn on the surface of the skin, a sheet touching it or taking…
Here we go again (Update)
Well hello my friends at CSN, I wanted to give an update, I was supposed to have surgery August 7th, but had to be rescheduled to Oct 2nd, thank you COVID... This past Friday Oct 2nd I had my second partial nephrectomy, this time it was my left kidney. I spent one night in the hospital, three nights in an Airbnb, and I…
Radiofrequency ablation
3 days ago I had RFA procedure on my left kidney to remove a 2 cm tumor. I was wondering if anyone has had this done and what the recovery was like. Thanks
Starting Sutent today for adjuvant treatment after nephrectomy
Hello, My first post, but I have been reading threads excessively since my diagnosis October 6th. Very blessed that removing my kidney (9cm tumor) has apparently removed the cancer as scans are all clear 6 weeks after surgery. I started 50 mg Sutent today and was hoping there were some recent members who have had…
NED !!!
Happy Thanksgiving to all cpl days ago I had my test results and they were NED it has been 5 years and 6 months thanks to all your support special thanks to icman his knowledge helped me alot thanks to all
First ultrasound
I've never had an ultrasound done on my Kidneys before. What is bosniak? Do I need a full bladder for the ultrasound?
Ultrasound update
Got the results from my ultrasound 12 mm cyst on my left kidney. At the moment it's going both ways, could be slightly complex or could be simple. Radiologist wants me to have another ultrasound in six Months. This waiting game sucks. :(
At Thanksgiving
We are still here. We are still "fighting" for normalcy...in many parts of our lives, ie. Covid 19, the Weather, Politics, Schools and Towns to open the way they used to be. But we are still here; maybe isolated, maybe sheltering in place, limiting our contact with the outside world, having meetings and appointments on…
Bone Island
Hi all, I had my CT Scan back in July, it's NED. But my doctor also mentioned there is a bone island on the pelvis bone. They believe it is just a bone island as it was there in 2016 on my first CT and the size hasn't changed at all. But they also offered me a bone scan if I would like to, and it is optional. I would like…
New here
I'm new here, so bare with me. I'm not super tech savvy. Last week I was in the hospital for a bowel obstruction. Had a cat scan with contrast done, and it found cysts on my kindeys. One I was aware of, and in the process of getting a referral to see a Nephrologist for. I was surprised when the surgeon had told me there…
Genetic testing question
Hi everybody...I haven't been on in quite awhile and I'm sorry for that. I am doing ok. Still NED almost 4 years out. My younger sister was just scheduled for a partial nephrectomy. She is in shock and processing all of this. She has a tumor 2.8 cm and another subcentimeter one that will be removed by robotic surgery. She…
A month after surgery
The pain for the first two weeks at home was the worst. The third week felt amazing and I felt like I was way ahead of schedule. The fourth week I hit a wall. I have mild-to-moderate pain, but I've lost my appetite entirely. I feel weak and depressed and I'm sleeping 14-15 hours per night. Despite a positive prognosis and…
Cinnamongirl passed
We kept up some on FB. Don't know if her family even knows about this place, but I thought you guys should know. As far as I know, she went peacefully today.
Uncle Ned, I miss you...
Round 1 was 8 years ago I had my kidney and 7 cm Grade 4 tumor removed. I was told I was NED. Six month later, Round 2, there was a solitary met on my lung and part of a lung removed. For the last 7 years ( 2645 days), there was no evidence of disease. My Oncologist had said, the risk of CT is now greater than the risk of…
NED!!!
It's Ned and hoping to see many more//Thank for your support and positive vibes around.
Outpatient nephrectomy?
Good morning, I have asked several questions in this forum and received clear and concise answers which I appreciate. I am seeing my surgeon this week for an upcoming nephrectomy. This will be a robotic procedure. He is going to attempt a partial, but because I have had two ablations with resulting scar tissue, he doesn't…
Cystic Renal Masses: How do they fit into the current management of kidney cancer in 2020?
Hi all, As cystic Renal Masses are less common than solid masses. It is not easy to find useful information online and even from our Urologist. I have found this video by Dr. Phillip Pierorazio is an Associate Professor of Urology and Oncology in the Brady Urological Institute at Johns Hopkins University. The video talks…
BIG news in treatments: Opdivo study halted EARLY, and another drug coming too!!!
Stopped a clinical trial of its drug Opdivo six months early after the therapy kept kidney-cancer patients alive longer compared with those taking a standard treatment. In the late-stage study of 821 patients who had been previously treated for advanced renal cell carcinoma, Opdivo met the primary goal of improved…
questions about process
I have a "friend" who has surgery done very recently from September 17, 2020, and it appears nothing has grown back for at least one month. Apparently, he has a hard time sitting still for long periods of time. What can he do to minimize this pain? He feels scared because he doesn't know how to sit still. He is already…
Exercise - afraid to push it
Looking for some advice. 8 weeks ago I had my right kidney removed. I am 65 year old male, was in pretty good shape going into surgery. Exercised pretty regularly, walked everyday, did some biking, yoga etc. Haven't experienced real pain, just some discomfort now and again. For the first month, I did nothing except…
Wow, finally got my first treatment of nivolumab plus ipilimumab
Just got back from Longbeach VA center and they confirmed that my cancer tumor in my kidney is RCC and not urethelial. They also did a biopsy on a tumor in my lung that magically apperared....7CM. Two days later I finaly got my treatment started and they decided not to have me take the sutent that has been sitting in my…

Kidney Cancer

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