The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

NED on my 5th year CT scan!

lobbyist0724
lobbyist0724 CSN Member Posts: 516 Member
in Kidney Cancer #1

Hi all, hope everyone is doing well under this pandemic.

I would like to share my NED result after my 5th year CT scan (but not till Sept to be 5 years). 

Somehow, my scanxiety was much higher than the last couple of years. Maybe because understanding the recurrent time is usually later for the early-stage survivors.

The report also mentioned there are 3 sclerotic bone lesions but they have been stable since 2016 and my bone scan result is normal as well. 

I still haven't talked to my doctor, but the nurse shared the news with me and I read the reports online. I recalled my doctor agreed to continue the follow up on me for another five years. But not sure if it is gonna be yearly or continuing as every 6 months.

 

Take care everyone and good health!

And best wishes to the Class of 2016 on their 5th-year results!

 

Lobby

Like Care

Comments

  • Biner
    Biner CSN Member Posts: 137 Member
    edited August 2021 #2
    Congrats!Stay NED whole life

    Congrats!Stay NED whole life

    my scan tommorow 1.5 year i very scaryFrown

    Like Care
  • misterace
    misterace CSN Member Posts: 37 Member
    #3
    Yay!

    Thank you for coming on here and sharing the good news with us :)

     

     

    Like Care
  • misterace
    misterace CSN Member Posts: 37 Member
    #4
    Biner said:

    Congrats!Stay NED whole life

    Congrats!Stay NED whole life

    my scan tommorow 1.5 year i very scaryFrown

    My Chest CT is also tomorrow

    I pray we are both NED. Sending you positive energy Biner.

    Like Care
  • eug91
    eug91 CSN Member Posts: 471 Member
    #5
    awesome

    YES! Congrats!

    Like Care
  • daisybud
    daisybud CSN Member Posts: 541 Member
    edited August 2021 #6
    Great news!

    Congrats!

    Like Care
  • lobbyist0724
    lobbyist0724 CSN Member Posts: 516 Member
    edited August 2021 #7
    misterace said:

    My Chest CT is also tomorrow

    I pray we are both NED. Sending you positive energy Biner.

    I will pray for both of you

    I will pray for both of you that Uncle NED will visit! Also, most cystic RCC are indolent, so try not to worry too much (i was very scared too ....)!  

    Like Care
  • Mmoses25
    Mmoses25 CSN Member Posts: 327
    #8
    Great news

    Congratulations on the news stay Ned and enjoy your life

    Like Care
  • stub1969
    stub1969 CSN Member Posts: 995 Member
    edited August 2021 #9
    Congratulations, Lobby

    We're on the same 5 year track.  

    Stub

    Like Care
  • Biner
    Biner CSN Member Posts: 137 Member
    #10
    Wish you never see C again

    Wish you never see C againWink

    Like Care
  • lobbyist0724
    lobbyist0724 CSN Member Posts: 516 Member
    #11
    Thank you everyone for the

    Thank you everyone for the support. 

     

    Finally spoke with my doctor, and he will continue to follow up on me for at least 10 years. So CXR+US in 6 months and then CT in one year.

    Like Care
  • Deanie0916
    Deanie0916 CSN Member Posts: 641 Member
    #12
    Great news!

    Here's to many more visits from Uncle Ned. A fellow 5 year survivor.

    Like Care

Discussion Boards