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Cinnamongirl passed
We kept up some on FB. Don't know if her family even knows about this place, but I thought you guys should know. As far as I know, she went peacefully today.
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Uncle Ned, I miss you...
Round 1 was 8 years ago I had my kidney and 7 cm Grade 4 tumor removed. I was told I was NED. Six month later, Round 2, there was a solitary met on my lung and part of a lung removed. For the last 7 years ( 2645 days), there was no evidence of disease. My Oncologist had said, the risk of CT is now greater than the risk of…
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NED!!!
It's Ned and hoping to see many more//Thank for your support and positive vibes around.
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Outpatient nephrectomy?
Good morning, I have asked several questions in this forum and received clear and concise answers which I appreciate. I am seeing my surgeon this week for an upcoming nephrectomy. This will be a robotic procedure. He is going to attempt a partial, but because I have had two ablations with resulting scar tissue, he doesn't…
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Cystic Renal Masses: How do they fit into the current management of kidney cancer in 2020?
Hi all, As cystic Renal Masses are less common than solid masses. It is not easy to find useful information online and even from our Urologist. I have found this video by Dr. Phillip Pierorazio is an Associate Professor of Urology and Oncology in the Brady Urological Institute at Johns Hopkins University. The video talks…
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BIG news in treatments: Opdivo study halted EARLY, and another drug coming too!!!
Stopped a clinical trial of its drug Opdivo six months early after the therapy kept kidney-cancer patients alive longer compared with those taking a standard treatment. In the late-stage study of 821 patients who had been previously treated for advanced renal cell carcinoma, Opdivo met the primary goal of improved…
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questions about process
I have a "friend" who has surgery done very recently from September 17, 2020, and it appears nothing has grown back for at least one month. Apparently, he has a hard time sitting still for long periods of time. What can he do to minimize this pain? He feels scared because he doesn't know how to sit still. He is already…
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Exercise - afraid to push it
Looking for some advice. 8 weeks ago I had my right kidney removed. I am 65 year old male, was in pretty good shape going into surgery. Exercised pretty regularly, walked everyday, did some biking, yoga etc. Haven't experienced real pain, just some discomfort now and again. For the first month, I did nothing except…
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Wow, finally got my first treatment of nivolumab plus ipilimumab
Just got back from Longbeach VA center and they confirmed that my cancer tumor in my kidney is RCC and not urethelial. They also did a biopsy on a tumor in my lung that magically apperared....7CM. Two days later I finaly got my treatment started and they decided not to have me take the sutent that has been sitting in my…
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Yervoy and Opdivo Therapy
My oncologist is trying to get insurance approval for me to start Yervoy and Opdivo therapy soon. We like to travel by RV, he said I could never be far from a good medical facility and certainly never out of cell phone coverage, that some of the potential side effects are sudden and deadly. We know our trips will have to…
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I was Ned today
Doctor said he seen no sign of cancer still got to go every three months for two years
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Almost that time again
One week till my scans again starting to worry again it's weird you feel fine then when your scans are due you start feeling pains again does it ever get easier
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Need some support
Hello everyone. My name is Julio and I am 36 years old with a 4 year old . They found a 1.5 cm growth in my kindey about 3 days ago. My mind is racing and I am super scared. I don't know what to do or anything. I tought I had a appointment for tomorrow but it was canceled. Now I am probably going to worry all weekend.
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Checking In After Long Absence
Haven't been here in so long! Decided to stop in and see how my RCC family is doing. Missed you guys. So many new people! Will catch you all up on me. I had CT scans earlier this week and I'm still NED. I get scans and blood work every 3 months. It's been 5 1/2 years since my adrenal met and adrenalectomy. I'm very…
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One kidney and intermittent fasting diet. Possible?
Hi everyone! I hope all are well and safe in these strange times we are living. I was diagnosed with kidney cancer, last year, and one of the kidneys have been removed. Well... I've got a few kilos too much during the last months and want to get back to normal shape. The complication part is that I can't do too many sports…
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Scanxiety part VII.2: bloodwork
So had some bloodwork. Solitary kidney working top notch. Nephrologist asked me to drop at least 10 pounds so my cholesterol and other stuff comes down. Not a big. I'm happy that the other guy's doing its job! The funny: I hate needles. I hate having blood drawn, and I hate everything related to needles. Not a phobia, as…
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One year NED Today-
From the Prostate. Eighteen plus years NED from the Kidney (still have a US in 8 weeks).Whth Prostate in 17 more years I will be 94. icemantoo
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3.2 by 3.2 by 3 heterogeneous kidney cyst
I was MRI diagnosed with the above. Will i need to have it removed? and how likely is it cancer. mass extends into renal sinus
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Pain and Stomach Bulging Post-Op
Hi everyone, I had a partial nephretomy back in February due to stage 2 RCC and am still experiencing pain anytime my stomach contracts or when I try to lay on my side. My incision is pretty big , 8-9 inches or so, and I have a relatively small frame. I notice my stomach buldges now and everytime I wear tight pants it…
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7 Weeks Post Op - Finally went for a jog!
Hi All,, Just wanted to post something positive with all the sad news lately. I had surgery on 7/15 (with lots of pains and complications along the way) and my goal was to be able to jog a 15 minute mile by 9/1, and a 10 minute mile by 10/1. Well, I finally gave it a shot today depite the discomfort and was able to do it…
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Newbie here 45 from Oz
Hi everyone. Ive just had the news that I too have cancer of the kidney and it's malignant. it was over the phone due to COVID which wasn't the best.. the tumour is on the edge of my kidney and measure 12mm so pretty small. Obviously I'm really scared and it was a bit of a shock as I'm pretty healthy with no cancer in my…
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RGCC - Group (Research Genomic Cancer Center)
Quesion for the group: Has anyone heard of RGCC - Group? <Content removed by CSN Support Team> I have just started researching them. I have two tumors RCC in my pancreas, my doctors have given me two choices, one is major surgery to remove pancreas, spleen, gallbadder and part of stomach, other is to start immunotherapy.…
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Ablation vs removal
i am back again after three years, I had a small tumor in my kidney and had an ablation which appeared successful. My yearly MRI showed the tumor had returned; as before it is less than an inch in size. Another ablation a month ago was unsuccessful. The radiology department, after reviewing the MRI, has stated the tumor is…
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Checked ou of hospital
Hey everyone I have checked out of hospital. Operation went perfectly , zero complications and excellent margins. The pain isn't too bad. The catheter was definitely the worst bit, but even that wasn't that bad. Waiting on histopathology. Fingers crossed that its benign but I know that unlikely. Anyway its nice to be tumor…
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Just got my results
Hey guys, Just thought I'd let you know that I just saw my surgeon and got my results. No evidence of malignancy. The tumour is incredibly rare and the histopathology was something they hadn't really seen before. They are calling it a Hamartoma or unusual segmental dyspepsia. Its so rare that they are sending it to John…
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Got a question to ask
I get scan every three months my next scans are the first of October Iam having a little pain in my kidney my wife says it's in my mind it happen the last time just before my scans and it was nothing I went in for early ultrasound and my surgeon said I was fine do you think I need to call surgeon again or do you think it's…
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I am new here
Hello My name is Sean. After a CT scan for an unrelated issue they discovered a 1.7cm growth in my kidney, all other organs fine including lymph nodes and veins. Possible RCC or oncocytoma. Waiting to see a specialist. This has definitely been the toughest week of my life to date and I cannot help but think that I am in…
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Here we go again
Well I hate to post this, but it looks like my left kidney wants in on the action now. Back in 2015 I had a right partial nephrectomy, remove two tumors removed from my right kidney kept most of my kidney. Now let’s fast-forward to 2018, a 5mm spot was found on my left kidney. In 2019 it had grown to 8mm. Now in 2020 it…
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Here we go again...
So I can't postpone this anymore. I'm going in for the follow up CT on Friday. I had moved it as much as I could because of COVID. But I can't keep moving it anymore. It's time to get in the tube. Frankly, I'm more concerned about COVID than the CT and its results. Although I went to the facility and they appear to have…
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Chadswick Bosman( Black Panther)
I was so sad to learn of Chadswick Bosman (Black Panther) passing of colon cancer at 43. He was such a strong man performinng many movies during treatment. Such a great loss. It also made me start to think again about getting a colonoscopy. I am 44 and wonder if its time to have one. I ask my Oncologist last year she didnt…