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Yervoy and Opdivo Therapy
My oncologist is trying to get insurance approval for me to start Yervoy and Opdivo therapy soon. We like to travel by RV, he said I could never be far from a good medical facility and certainly never out of cell phone coverage, that some of the potential side effects are sudden and deadly. We know our trips will have to…
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I was Ned today
Doctor said he seen no sign of cancer still got to go every three months for two years
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Almost that time again
One week till my scans again starting to worry again it's weird you feel fine then when your scans are due you start feeling pains again does it ever get easier
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Need some support
Hello everyone. My name is Julio and I am 36 years old with a 4 year old . They found a 1.5 cm growth in my kindey about 3 days ago. My mind is racing and I am super scared. I don't know what to do or anything. I tought I had a appointment for tomorrow but it was canceled. Now I am probably going to worry all weekend.
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Checking In After Long Absence
Haven't been here in so long! Decided to stop in and see how my RCC family is doing. Missed you guys. So many new people! Will catch you all up on me. I had CT scans earlier this week and I'm still NED. I get scans and blood work every 3 months. It's been 5 1/2 years since my adrenal met and adrenalectomy. I'm very…
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One kidney and intermittent fasting diet. Possible?
Hi everyone! I hope all are well and safe in these strange times we are living. I was diagnosed with kidney cancer, last year, and one of the kidneys have been removed. Well... I've got a few kilos too much during the last months and want to get back to normal shape. The complication part is that I can't do too many sports…
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Scanxiety part VII.2: bloodwork
So had some bloodwork. Solitary kidney working top notch. Nephrologist asked me to drop at least 10 pounds so my cholesterol and other stuff comes down. Not a big. I'm happy that the other guy's doing its job! The funny: I hate needles. I hate having blood drawn, and I hate everything related to needles. Not a phobia, as…
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One year NED Today-
From the Prostate. Eighteen plus years NED from the Kidney (still have a US in 8 weeks).Whth Prostate in 17 more years I will be 94. icemantoo
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3.2 by 3.2 by 3 heterogeneous kidney cyst
I was MRI diagnosed with the above. Will i need to have it removed? and how likely is it cancer. mass extends into renal sinus
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Pain and Stomach Bulging Post-Op
Hi everyone, I had a partial nephretomy back in February due to stage 2 RCC and am still experiencing pain anytime my stomach contracts or when I try to lay on my side. My incision is pretty big , 8-9 inches or so, and I have a relatively small frame. I notice my stomach buldges now and everytime I wear tight pants it…
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7 Weeks Post Op - Finally went for a jog!
Hi All,, Just wanted to post something positive with all the sad news lately. I had surgery on 7/15 (with lots of pains and complications along the way) and my goal was to be able to jog a 15 minute mile by 9/1, and a 10 minute mile by 10/1. Well, I finally gave it a shot today depite the discomfort and was able to do it…
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Newbie here 45 from Oz
Hi everyone. Ive just had the news that I too have cancer of the kidney and it's malignant. it was over the phone due to COVID which wasn't the best.. the tumour is on the edge of my kidney and measure 12mm so pretty small. Obviously I'm really scared and it was a bit of a shock as I'm pretty healthy with no cancer in my…
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RGCC - Group (Research Genomic Cancer Center)
Quesion for the group: Has anyone heard of RGCC - Group? <Content removed by CSN Support Team> I have just started researching them. I have two tumors RCC in my pancreas, my doctors have given me two choices, one is major surgery to remove pancreas, spleen, gallbadder and part of stomach, other is to start immunotherapy.…
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Ablation vs removal
i am back again after three years, I had a small tumor in my kidney and had an ablation which appeared successful. My yearly MRI showed the tumor had returned; as before it is less than an inch in size. Another ablation a month ago was unsuccessful. The radiology department, after reviewing the MRI, has stated the tumor is…
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Checked ou of hospital
Hey everyone I have checked out of hospital. Operation went perfectly , zero complications and excellent margins. The pain isn't too bad. The catheter was definitely the worst bit, but even that wasn't that bad. Waiting on histopathology. Fingers crossed that its benign but I know that unlikely. Anyway its nice to be tumor…
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Just got my results
Hey guys, Just thought I'd let you know that I just saw my surgeon and got my results. No evidence of malignancy. The tumour is incredibly rare and the histopathology was something they hadn't really seen before. They are calling it a Hamartoma or unusual segmental dyspepsia. Its so rare that they are sending it to John…
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Got a question to ask
I get scan every three months my next scans are the first of October Iam having a little pain in my kidney my wife says it's in my mind it happen the last time just before my scans and it was nothing I went in for early ultrasound and my surgeon said I was fine do you think I need to call surgeon again or do you think it's…
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I am new here
Hello My name is Sean. After a CT scan for an unrelated issue they discovered a 1.7cm growth in my kidney, all other organs fine including lymph nodes and veins. Possible RCC or oncocytoma. Waiting to see a specialist. This has definitely been the toughest week of my life to date and I cannot help but think that I am in…
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Here we go again
Well I hate to post this, but it looks like my left kidney wants in on the action now. Back in 2015 I had a right partial nephrectomy, remove two tumors removed from my right kidney kept most of my kidney. Now let’s fast-forward to 2018, a 5mm spot was found on my left kidney. In 2019 it had grown to 8mm. Now in 2020 it…
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Here we go again...
So I can't postpone this anymore. I'm going in for the follow up CT on Friday. I had moved it as much as I could because of COVID. But I can't keep moving it anymore. It's time to get in the tube. Frankly, I'm more concerned about COVID than the CT and its results. Although I went to the facility and they appear to have…
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Chadswick Bosman( Black Panther)
I was so sad to learn of Chadswick Bosman (Black Panther) passing of colon cancer at 43. He was such a strong man performinng many movies during treatment. Such a great loss. It also made me start to think again about getting a colonoscopy. I am 44 and wonder if its time to have one. I ask my Oncologist last year she didnt…
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6 years NED today
Hi all, it's been a while Today is my sixth year cancer free anniversary, old buddies remember it was a huge 10 cm tumor. Six years past and here I am, NED, NED, NED STAY VIGILANT AND POSITIVE
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Catching Up with Good News
Hi guys I have been away for sometime now. I had alot going on in my personal life. One can only handle so much. I was diagnosed 2/18. Had my kidney removed 3/18. Shortly after my cancer metastasized to lungs liver lymp nodes and spine. Causing me to have compression fractures at L spine and T spine. Along with 2 blood…
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Heading Home
Hey guys Just had my kidney drainage line pulled out (worse than the catheter coming out). If I remain stable then I am heading home tomorrow and will get my histopathology results on Wednesday. Thanks for all your support guys. It held me in times of great stress . I hope I can put this dark time behind and use this…
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NED Thank God
Report came back IMPRESSION: Status post partial nephrectomy changes of the left kidney. No definite evidence of local residual/recurrent neoplasm. Thank God!
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Surgery tomorrow morning
Hi all, I have robotic partial nephrectomy tomorrow morning at 930am. Feeling really nervous. Hoping desperately that the growth isn't bigger than it seems on CT and fearful of going under for surgery. Thanks for all your support and I will see you on the other side.
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How sweet the sound...
When they call and tell you NED! A year and change ago from my neph. And I had to move the scans to the right b/c of COVID. Today's a damned good day! To all of you new here, hang in there. Trust your docs and be hopeful even when the night's dark. This is a great community. NED! OH HELL YEAH!!!!
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Newly diagnosed Stage IV
My husband had an emergency Nephrectomy in 2018 to remove a 22 cm tumor along with his right kidney and adrenal glands. The pathology report showed the tumor had rhabdoid and sarcomatoid qualities, which meant it was aggressive. There was a positve margin on the vena cava. After his surgery, he's been having abdominal and…
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"Good Thought Exchange" date and time....
What started off as an idea to celebrate NED status for the 2016 group has evolved into what I'd like to call a "Good Thoughts Exchange". Let's plan on Saturday, July 11 at 6 pm central time to toast, send good thoughts, eat a pizza (Jazz--a great way to remember Fox), send a prayer--whatever you like. My hope is that each…
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Now I am really confused
What a roller coaster ride im taking and I have yet to be treated. I believed I had stage 4 renal cell carcinoma and then it was stage 3. Now they dont know what kind of cancer i have as the biopsy came back inconclusive. They were putting me on Sutent and then they told me not to take it. They believe I may…