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Salagen or Evoxac ?
Hi. I have dry mouth very bad and very hard to swallow food I dont produce any saliva I cain't even lick a envelope. I was asked if I had tryed Salagen or Evoxac which I have never heard of. I looked them up on Wed MD and got mixed reviews has anyone tryed them or is there anything better. I am seeing my Doctor next week I…
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Hiccups
Hi everyone. My husband had his first treatment Wednesday. We were there all day. He had Taxotere and Platinol. Got there around 8:30, treatments started around 9:00 and we didn't get out there until almost 4:00. Came home and an hour later a nurse showed up to give him more. I think that type is called 5FU. He will be on…
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aloe vera
just thought i'd share that moms mouth sores are MUCH better after starting aloe vera gel. she bought a thick gel version of it... swishes it around as long as she cans and swallows. she has noticed a big improvement in her sores and they do note hurt that much anymore. we'll see if this changes .. 1/2 through now =) she…
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Dr. Oz talks about Oral Cancer!
Today's episode of Dr. Oz is talking about the rise of oral cancer that is caused by HPV. mine wasn't related to HPV, but it is important for everyone to know that Oral Cancer can hit anyone, especially now that there is a known link with HPV.
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Please help information needed
Hi Everyone, I had my feeding tube removed 2 weeks ago it did not hurt at all a little sting. Now I have some swelling around the aera It feels like fluid any ideas? I still have dry mouth very bad and it is hard to eat all i can get down is soft food with a lot of coffee or water. My reason for this post Is my…
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POST Rads fever any comments.
My wife is 12 weeks post radiation. Has anyone developed a fever with "unknown source" after RADS? Clear
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Care Giver BOT new
Hello, I am new to CSN and have spent all day on this site. My husband has been diagnosed with base of tongue cancer. I think you all use BOT for short. My question is. "Any caretakers out there who suffer from depression? I have suffered for years and take meds. Part of the cause is being the family carefamily taker since…
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Hello and looking for advice
Hello Everyone. I was diagnosed with Stage 2 nasopharyngeal cancer on March 21, 2011. I am a nurse practitioner who worked in geriatrics. I'm 50. I'm now still on short-term disability. The journey has been painful, humbling and eye-opening. I had a PEG tube placed. It is a button style. If I could do it over, I would have…
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Looking for Jason1111
Just wondering about how your Father is doing my friend Hondo
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Dental Insurance and cleanings
I thought I would share with everyone that I just did get my Dental Insurance to approve cleaning of my teeth every 3 month (rather than every 6 mnths that the plan states unless you have paradontial issues) due to the radiation I received. My dentist wrote a lengthy letter stating the damage radiation can have on the…
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Where in the World Are You ~ Bumped
I just wanted to bump this thread again incase there are any members not included, that would like to be added; Where in the World Are You Best, John
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Really amazing pictures
Hey guys, I wanted to share some really cool pictures with all of you. I have a Norway Maple tree in the middle of my back yard. My grandmother planted the tree when it was only a couple of inches tall. It is over 50 years old. When I was little I would climb this tree and play for hours in it. Last weekend I was working…
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Good News!
Hi All, After a few weeks of scary tests PET/CT and biopsy, Pat got the all clear today! Thanks so much to all of you for your prayers and support! Twenty months out and doing well. Myka
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Same ol' crap
I am so frustrated. I called my hubby onco this morning in tears. He has not had any nutrition since Thursday night. Friday he had low grade fever and slept most the day. Saturday he got so constipated he asked me to take him to the er. He was cramping and his bottom was so sore he could not sit. They could not do much…
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FOOD
Hi Everyone! I finished rad treatments 3 and a half weeks ago and am looking forward to having my PEG taken out. But I have ZERO appetite. Any suggestions for jumpstarting the appetite? My best to all of you!
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Good News!
Hi All, After a few weeks of scary tests PET/CT and biopsy, Pat got the all clear today! Thanks so much to all of you for your prayers and support! Twenty months out and doing well. Myka
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Good News!
Hi All, After a few weeks of scary tests PET/CT and biopsy, Pat got the all clear today! Thanks so much to all of you for your prayers and support! Twenty months out and doing well. Myka
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Good News!
Hi All, After a few weeks of scary tests PET/CT and biopsy, Pat got the all clear today! Thanks so much to all of you for your prayers and support! Twenty months out and doing well. Myka
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Good News!
Hi All, After a few weeks of scary tests PET/CT and biopsy, Pat got the all clear today! Thanks so much to all of you for your prayers and support! Twenty months out and doing well. Myka
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to MDA or not?????
Hello All, I'm facing a dilemma and would like a little input. My 83 year old mother is dealing with a recurrence of her paranasal cancer along the ethmoid sinus. She has an appt. at MDA on the 22nd. Her surgeons in Charleston at MUSC want to remove the eye, scheduled for this week. I'm scared the 22nd for MDA might be too…
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parotid gland acinic cell CA
Has anyone had RT & chemo tx for acinic cell CA of the parotid gland ?
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Food and Comfort - reposting Eagle project brochure to help those getting treatment for H&N
HI everyone, I noticed today that there are some new postings about trying to find food and drink and comfort items during radiation treatments. I'd like to share this brochure with you all. My son put this brochure together for part of his Boy Scout Eagle project. He did a survey of folks undergoing treatment and then…
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Very disappointed I wasn't told that salivary gland damage was a permanent quality of life change
While I am grateful for seemingly being rid of the squamous cell on my tonsil I am very depressed and upset that for the rest of my life I will not be able to enjoy food as I did prior to the radiation treatments. If I had been told that this may result in a lifelong dry mouth I would of at a minimum research other…
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plaque film on teeth
Hi I have had surgury, chemo, and radiation. The treatments were finished a month ago. I wake every day with sticky plaque film covering my teeth and interior of my mouth. I am very concerned about the damage this must be causing to my teeth, gums, and jawbone. Does anyone have any advice for controlling this and possibly…
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urinary tract infections
I got one. What an awful and uncomfortable infection. I had one in my twenties but don't remember much of that one. Seems it's pretty rare for men to get them. Incidence goes way up past 50 y/o of which I qualify. Wondering if there is any correlation to our treatment? Wondering how many have had a UTI post treatment, men…
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Another PEG question
O'k I have "tube envy" for those of you who've had yours removed. I'm at the other extreme; I had mine inserted after 15 years and it looks like I will have it cremated with me when I die. I've had mine in for about nine months and am wondering what the average time is before this one starts leaking or something and has to…
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Recurrence and treatment options
Tony's cancer is back after 8 months post treatment. Original diagnosis was Stage 4 tonsil cancer that had spread to 11 nodes on the left side of his neck. He had radical neck dissection, chemo, and radiation treatments. And it's back already again in the nodes on the left side of his neck... has anybody been through…
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Weight gaining and muscle mass
I am into my 11th month on a PEG...........Although I am up to 144 which is down from 190 but up from 126, I seem to be at a brick wall as far as further weight gain.........My intake mainly consists of shakes with one egg,1 bottle of Ensure plus,one packet of instant breakfast and milk 8 times a day.(which is about 2…
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A little balance ...
We are all here today, basically, because we've traveled the path of surgery, chemotherapy and radiation to treat our cancer. A lot has been said about the possible benefits of alternative therapies, either 'in addition to' or 'as an alternative to' our mainstream treatment options. Links to further information have been…
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A new question or an old one if posted before
I'm still not feeling back any where near 100% pre chemo and radiation. Have been going to the gym, walking riding my bike to get my lost physical condition back, (or trying to). My end of treatment was in December 10, but I had many setbacks between then and now with various hospital stays for multiple related issues.…