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arndog64 ~
Anyone heard any word since the PEG being scheduled for install last Wednesday June 8th.... JG
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Regaining appetite and taste
Hi everyone, I'm new to the site, an Englishman living in Germany. Finished 6 weeks of Cisplatin 3 weeks ago (1 dose a week) and finished 37 sessions of RT last Thursday - hooray! My tastebuds were shot after just 2 sessions of RT and 0 chemotherapy, but worse was the fact that I developed an aversion to food (and drink)…
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checking in - delayed
Hi Everybody, Sorry I have not been on the site in awhile. Just trying to move ahead with life. No excuses I know. Sorry about that. I do think of everyone on this board very frequently and still think how lucky I was to find this site to help my husband (and me) through treatments. An update on my husband, Joe, (SCC…
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Just diagnosed with Mucoepidermoid Carcinoma of the Larynx
Hi I am new here, I have recently been diagnosed with Mucoepidermoid Carcinoma of the Larynx. Does anyone here have this or know anyone who does? I most likely will be having my larynx removed and following up with rads.
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Mike (jeepman)
Hey Mike, as you said..."full steam ahead"!!! Good luck tomorrow beginning your tx. Let us know how you're doing as you go along. Peace, Love and (((((((HUGS)))))) Laurie
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Recurrence
Husband just had first pet scan and two spots lit up. One In hip. One in femur. We are baffled because I have never seen anyone post in head and neck forum about metastasis to bone. His biopsy is Friday. Anybody have experience like this. Needless to say we are scared... Robinleigh
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Question about PEG TUBE
I had my last of 33 radiation treatments for throat stage 4a on April 25th. Praise God, I am able to swallow and don't even use me peg tube. I have to flush it daily but no feedings. Ive had a endoscope that came back clean and have a CT scan on thwe 15th of June. I am wondering if anyone has an idea as to how long I have…
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Salagen or Evoxac ?
Hi. I have dry mouth very bad and very hard to swallow food I dont produce any saliva I cain't even lick a envelope. I was asked if I had tryed Salagen or Evoxac which I have never heard of. I looked them up on Wed MD and got mixed reviews has anyone tryed them or is there anything better. I am seeing my Doctor next week I…
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Hiccups
Hi everyone. My husband had his first treatment Wednesday. We were there all day. He had Taxotere and Platinol. Got there around 8:30, treatments started around 9:00 and we didn't get out there until almost 4:00. Came home and an hour later a nurse showed up to give him more. I think that type is called 5FU. He will be on…
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aloe vera
just thought i'd share that moms mouth sores are MUCH better after starting aloe vera gel. she bought a thick gel version of it... swishes it around as long as she cans and swallows. she has noticed a big improvement in her sores and they do note hurt that much anymore. we'll see if this changes .. 1/2 through now =) she…
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Dr. Oz talks about Oral Cancer!
Today's episode of Dr. Oz is talking about the rise of oral cancer that is caused by HPV. mine wasn't related to HPV, but it is important for everyone to know that Oral Cancer can hit anyone, especially now that there is a known link with HPV.
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Please help information needed
Hi Everyone, I had my feeding tube removed 2 weeks ago it did not hurt at all a little sting. Now I have some swelling around the aera It feels like fluid any ideas? I still have dry mouth very bad and it is hard to eat all i can get down is soft food with a lot of coffee or water. My reason for this post Is my…
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POST Rads fever any comments.
My wife is 12 weeks post radiation. Has anyone developed a fever with "unknown source" after RADS? Clear
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Care Giver BOT new
Hello, I am new to CSN and have spent all day on this site. My husband has been diagnosed with base of tongue cancer. I think you all use BOT for short. My question is. "Any caretakers out there who suffer from depression? I have suffered for years and take meds. Part of the cause is being the family carefamily taker since…
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Hello and looking for advice
Hello Everyone. I was diagnosed with Stage 2 nasopharyngeal cancer on March 21, 2011. I am a nurse practitioner who worked in geriatrics. I'm 50. I'm now still on short-term disability. The journey has been painful, humbling and eye-opening. I had a PEG tube placed. It is a button style. If I could do it over, I would have…
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Looking for Jason1111
Just wondering about how your Father is doing my friend Hondo
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Dental Insurance and cleanings
I thought I would share with everyone that I just did get my Dental Insurance to approve cleaning of my teeth every 3 month (rather than every 6 mnths that the plan states unless you have paradontial issues) due to the radiation I received. My dentist wrote a lengthy letter stating the damage radiation can have on the…
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Where in the World Are You ~ Bumped
I just wanted to bump this thread again incase there are any members not included, that would like to be added; Where in the World Are You Best, John
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Really amazing pictures
Hey guys, I wanted to share some really cool pictures with all of you. I have a Norway Maple tree in the middle of my back yard. My grandmother planted the tree when it was only a couple of inches tall. It is over 50 years old. When I was little I would climb this tree and play for hours in it. Last weekend I was working…
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Good News!
Hi All, After a few weeks of scary tests PET/CT and biopsy, Pat got the all clear today! Thanks so much to all of you for your prayers and support! Twenty months out and doing well. Myka
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Same ol' crap
I am so frustrated. I called my hubby onco this morning in tears. He has not had any nutrition since Thursday night. Friday he had low grade fever and slept most the day. Saturday he got so constipated he asked me to take him to the er. He was cramping and his bottom was so sore he could not sit. They could not do much…
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FOOD
Hi Everyone! I finished rad treatments 3 and a half weeks ago and am looking forward to having my PEG taken out. But I have ZERO appetite. Any suggestions for jumpstarting the appetite? My best to all of you!
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Good News!
Hi All, After a few weeks of scary tests PET/CT and biopsy, Pat got the all clear today! Thanks so much to all of you for your prayers and support! Twenty months out and doing well. Myka
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Good News!
Hi All, After a few weeks of scary tests PET/CT and biopsy, Pat got the all clear today! Thanks so much to all of you for your prayers and support! Twenty months out and doing well. Myka
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Good News!
Hi All, After a few weeks of scary tests PET/CT and biopsy, Pat got the all clear today! Thanks so much to all of you for your prayers and support! Twenty months out and doing well. Myka
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Good News!
Hi All, After a few weeks of scary tests PET/CT and biopsy, Pat got the all clear today! Thanks so much to all of you for your prayers and support! Twenty months out and doing well. Myka
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to MDA or not?????
Hello All, I'm facing a dilemma and would like a little input. My 83 year old mother is dealing with a recurrence of her paranasal cancer along the ethmoid sinus. She has an appt. at MDA on the 22nd. Her surgeons in Charleston at MUSC want to remove the eye, scheduled for this week. I'm scared the 22nd for MDA might be too…
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parotid gland acinic cell CA
Has anyone had RT & chemo tx for acinic cell CA of the parotid gland ?
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Food and Comfort - reposting Eagle project brochure to help those getting treatment for H&N
HI everyone, I noticed today that there are some new postings about trying to find food and drink and comfort items during radiation treatments. I'd like to share this brochure with you all. My son put this brochure together for part of his Boy Scout Eagle project. He did a survey of folks undergoing treatment and then…
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Very disappointed I wasn't told that salivary gland damage was a permanent quality of life change
While I am grateful for seemingly being rid of the squamous cell on my tonsil I am very depressed and upset that for the rest of my life I will not be able to enjoy food as I did prior to the radiation treatments. If I had been told that this may result in a lifelong dry mouth I would of at a minimum research other…