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Pain after Core Biopsy
I had a core Biopsy done Tuesday on a periaruricular lesion abutting the underlying lymph node. It took well the doctors over an hour but he got a few core biopsy samples and sent it out for flow cytometry. It was a solid lesion, not a cyst as he first thought. I forgot to ask him about paim as it was numbed for the…
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Difficult to Diagnose? Anyone have this issue?
I am not sure I belong here or where I belong. I seem to be getting nowhere with diagnosis of the problem and feel worse everyday. Recap- since February a Chronic everyday sore throat (back of mouth all the way down to my pharyngeal area (doesn't respond to antibiotics, allergy meds, etc), I've lost 27 lbs now with no…
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HBOT & Extraction
Hello, all I just wanted to share with you all that several months ago I had a tooth (Molar right side second from the back) get sore and my jaw swelled up a bit. The dentist referred me to an oral surgeon due to my cancer treatment for extraction. Upon seeing him he recommended HBOT therapy of 30 treatments before…
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Happy and Blessed Thanksgiving
To all here on the forum. May your blessings be many. I know they are you just have to count them. Feel free to add to this to send thanksgiving well wishes to all our members-Take, Care-God Bless-Russ Live in the present You may always be looking ahead to the next exciting thing. But when you do that, you can miss out on…
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Never trouble trouble...
..till trouble, troubles you. Thats what they say, right? So, the right side of my throat, under my chin, about an inch down, is really hurting when I swallow.. anything. I am exhausted ALL the time - I can sleep 24 hours a day, no problem, and still be exhausted. Other little things, like food catching, coughing for no…
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Ultrasound Tomorrow
It all started 5 months ago. Symptoms of having a raw throat, whitening of my pharynx behind my jaw line, increased anxiety, an ulcer that hasn't gone away located behind my left bottom wisdom tooth, right ear pain, pain surrounding my larynx and in the bottom of my jaw, all leading up to having a hardened buldge on the…
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Hello, and wondering about laryngopharyngectomy and non-curative treatment
Hi everyone, I'm new here. My husband was diagnosed in February 2020 with hypopharyngeal cancer, stage IV. He's been through chemo and radiation with Erbitux, which has shrunken his tumors but according to the 3 month post-treatment PET scan we just had, not enough to get rid of all the cancer. We've been told that his…
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Rads' Gys confusion/discrepancy?
An 11 year and 7 month Nasopharyngeal Survivor, unknown Primary, I have the final report from the Rad Dr. and her IMRT facts. 56 Gys from the chin up 60 Gys to top half of throat 68 Gys to bottome of throat So, how does this relate to the number of places that get "zapped" with Rads/session? I had a co-worker get zapped…
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Left Tonsil and Lymph Node Stg3 Recent Diagnosis
Glad I found this site. Seems to be THE place to go. I have already read dozens of stories and threads. As each of you have already experienced, I have a lot of questions... to be more clear, I am SURE that I have questions, but most of them have not yet appeared in my mental inbox as I really do not even know what to ask…
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Throat Cancer Blog
Hello. My name is Drew. I was recently pronounced cancer free after being diagnosed with tongue and throat cancer late last year. It has been a hell of a roller coaster ride, but I am happy to be on the other side of this finally and looking forward to the days ahead. I built a blog some time at the end of January to…
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Oropharyngeal tumor
Hello im new on here and im Having a biopsy sept 9 to have part of my tumor in my throat to be tested for cancer and it’s a oropharyngeal tumor left side of my throat growing inside of my throat and appeared 41 days after having a full tonsillectomy and adenoids removed cause I had stones on my tonsils that never went away…
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Healios
Has anyone tried Healios Or manuka honey? I have read some very very positive reviews on both with almost everyone that have used them. TIA
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HBOT Complication Has Anyone Ever Experienced This?
I have been taking HBOT (Hyperbaric Oxygen Treatment) in preparation for having a tooth pulled to avoid complications and the possibility of osteoradionecrosis (ORN) since I had 2 previous radiations in the H & N area. HBOT treatment started on Sept. 14 and I was to receive 30 treatments and then have the tooth extracted,…
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Not able to eat regular food
My husband was diagnosed with nasopharyngeal cancer in late May. He went through radiation and chemo treatments through the end of July. Now he has one more post chemo treatment (out of three). The additional treatment was delayed for about one month due to weight loss plus his inability to eat solids. Actually, he stopped…
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Starting radiation soon seeking advice
My fiancé was diagnosed with stage 2 tongue cancer she has a pre existing conditio, fanconi anemia that puts her more at risk of infection and cancers she is currently 24 and has had a 3/4 of her tongue removed her surgery was rough on her because her tongue began to clot so she had to go into surgery 3 times she is now…
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Post 3 month PET Scan
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nerve damage (formerly titled: 'paraneoplastic syndrome?')
My sweet 50yr old husband (Nelson)has had more than his share of difficulties during and following treatment. The last two months have seen him in the hospital 4 times with presumed medication reactions, uncontrolled coughing, and then a blood clot with a side of cellulitis from a peripheral IV. Thankfully, the clot is…
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Webinar on Oral Care for Head and Neck Cancer Survivors
I just posted this on the CSN announcements board. Go there for the details, once the announcement has been approved by CSN.
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Anyone ever experienced rash prior to diagnosis?
Hi everyone. It's been a while. I usually post here on behalf of my dad (usually to get support as a caregiver as he was diagnosed with stage IVB nasophangeal cancer back in 2017). His last scans as of a year ago were clear and he's been doing well. :) I am a bit concerned and curious about something though as he's…
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Rash on face, head and neck: prediagnosis
Has anyone heard of a rash on your forehead, sides of nose, neck and scap being related to tonsil cancer? Pre-diagnosis April 19th to be exact I developed a rash after a minor car accident in which I was rear-ended. At the time I went to the ER cause my neck hurt and my friend thought I should. Well they diagnosed it as…
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Post 3 month PET Scan
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Just Passed the 3-Year Mark - ALL CLEAR
Just popping in to share that I just passed the 3-year mark since my treatment ended (35 rads and chemo) for my BOT stage 3 cancer. Keep your head up and one day it can all be behind you. The only lingering symptom I have is occasional dry mouth that is easily relieved with a lozenge. Looking forward to two more years of…
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HPV - Post Surgery & Post Proton Beam Therapy
Hi all, first post. I'm 42 and I was diagnosed with HPV-16 in my left tonsil and base of tongue back in April 2020. In May I had TORS to remove the tumors and a neck dissection to remove the lymph nodes on the left side of my neck. I had to go through proton beam radiaiton after surgery due to the fact that it had spread…
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Best News from Bad News
Just got biopsy results back. And if one has to have bad news, at least there is some good components to it. The tonsil cancer has been confirmed, but so has HPV16. I am also being treated by a significant specialist in this field in Ft. Smith, Arkansas. So I am not pleased to be diagnosed with cancer, I am relieved that…
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4.5 years NED scan
Hello all, Glad to announce a clean CT Scan today. 4 years 7 months since my last treatment. Had stage IV HPV tonsil cancer w/ multiple nodes involved. Rad and chemo, no surgery. I received the scan in light of some issues I am having with radiation damage in my neck, which made it a little more unnerving than a normal…
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Poorly Differentiated Papillary Thyroid Cancer
Has anyone had Poorly Differentiated Papillary Thyroid Cancer. The cancer has come back twice and I have had two surgeries to remove the tumors. I am being offered 30 sessions of proton therapy as a prevetative against it coming back again but I am very concerned about side effects. I would greatly appreciate anyone's…
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Odd Rad Side Effect
Had lower dose rads in 2012. Lucky for me my side effects have been few. Most are the same as everyone else. The last few months I've noticed my lips hurt if touched or opening my mouth wide. No cold sores pop up and it doesn't hurt if left alone. A very strange one indeed. Didn't bother to Google it as all the answers are…
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Tongue Cancer
Hello I'm a new member on this Network. I had tongue cancer and went through surgery on my tonuge and also removed lymph node on one side. Now I will be going through Radiation therapy. Has any one used MuGard ? Does this help? Please advise. Thanks.
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Never ends
Hi everyone, My name is Lisa & I had Ssc of tissue where left tonsil was. Tiny, had for 3 yrs all Drs I asked said it's nothing, irratition from allergies & a couple colds? Was sent to ENT for meds to control 365 environmental & 7 food allergies. Nothing was helping even steroid Sprays always coughing, sneezing, runny…
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Easting After Free Flap Reconstructive Surgery
I had microvascular oral free flap reconstruction surgery in May 2020. Half my tongue was replaced with leg muscle and I haven't yet been able to eat solid food. I still have a feeding tube, but am adding in smoothies, soup, yogurt, etc. My question is - when will I be able to eat solid food? As of now, it falls down under…