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Dysphagia Exercises?
Hello I'm a 15 year survivor of NPC (Diagnosed when I was 14) I was unable to eat and swallow food for almost a year afterwards and ever since its been hard for me to swallow food. I have to take a drink after almost every bite of food to get it to go down. I plan on bringing it up again at my upcoming appointment, but…
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H&N Related Inspiring Woman and Related Trach & Ventilator Informational Videos
Hello all you H&N folks. I hope everyone is doing the best they possibly can. I was helping a friend search for information on trachs the other day when I ran into a young woman who has had perplexing illnesses and has now ended up using a trach and ventilator. Her enthusiasm and bright spirit are uplifting despite the…
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Hello
I was recently diagnosed with tongue cancer and surgery has been recommended which I want to opt-out of . Is there anyone else here who refused surgery of the tongue and just did radiation instead?
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24/7 taste of burnt metal in mouth after radiation
I quit treatment after 21 sessions and was told taste would return in about 2 weeks. It's almost 5 and though I can taste a bit, I have this terrible taste in my mouth all the time and it seriously taints anything. My tongue feels pickled and dry and mouth very sensitive and dry. Has anyone else had this constant bad taste…
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Red
Hello everyone, I've been diagnosed with stage 3 nasopharynx now just over 2 years. I'm now stage 4....
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Medical Bill Assistance?
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Wishing Everyone A Happy 4TH of July
As we go forward into and following this July 4th holiday may we value and cherish the blessings we have in this country and as we celebrate our independence, the joy of freedom and God-given rights and blessings may we always remember the sacrifices of past generations and our founding fathers and live in light of that…
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Recovery time
My husband just finished his 6 week course of Cisplatin and radiation on Monday June 27th. I was just wondering how long it took others to begin to feel better? He has very little energy, isn't eating or drinking due to everything tasting like salt. All of his nutrition and hydration is through a PEG tube currently. He…
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Persistent throat irritation nearly 5 years out
Hey all - been a while since I posted here mostly because things are going pretty well, I'm nearly 5 years out from my surgery (Dec 2017) and subsequent radiation... but over the past few months I've been dealing with a mild but persistent throat irritation on the right side, same side as the HIV base of tongue tumor had…
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Not eating or drinking due to stomach pain
Hello! First post on behalf of my husband. He was diagnosed with Stage 4 throat cancer on the base of his tongue back in March. He had 3 chemotherapy sessions and 35 radiation treatments. No surgery. The last one was about a week ago and the last chemo session 2 weeks ago.He never had a feeding tube and up until last week…
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Greetings from New Member
Hello All ! My name is Adrianna I am semi-new to this club. After years of voice fatigue, voice hoarseness and being followed by an ENT at one of my follow-up visits he saw a lesion on my rt vocal cord on January 25, 2022. I was scheduled for surgery on Feb 9th and based on the first/final pathology I was diagnosed on Feb.…
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Low white blood cell count
Hello everyone. My husband was diagnosed with tonsillar cancer with lymph node involvement in April. He had TORS surgery and a radical neck dissection, where they removed 44 lymph nodes, four of which were positive and one of those had extranodal extension of the cancer. He was prescribed 6 weeks of Cisplatin and 32…
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Esophageal wall thickening
Hello I'm new to this thread I'm 43 years old a woman my name is Misty. 3 years ago I was having issues swallowing long story short they did an endoscopy and it showed some papillomas that he biopsied he told me they were non-cancerous and never really mentioned that I should follow up or anything being so young and busy…
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Head & Neck Cancer Survivorship And Symposium (HNCA) Register Now
Hello folks. Don't miss this opportunity. Medical information from top medical people. Here is information and links that you can access a webinar run by HNCA (Head and Neck Cancer Alliance) HNCA and the American Head and Neck Society (AHNS) are pleased to announce the 2022 Virtual Head and Neck Cancer Survivorship…
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Nausea with radiation
Did anyone else get nauseous during radiation??? I've been super nauseous lately. It's gross -_-. I looked in the symptoms part of the superthread, but didn't see nausea listed.
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Hello, new member
Hello, I just joined this. I had oral cancer in 2015, a tumor on the right side of my tongue that was cancerous and spread to the lymph nodes on the same side of the neck. Went thru 6.5 weeks of radiation and 3 treatments of chemo. I had part of my tongue removed and replaced with a chunk from wrist area. I also had a neck…
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Hello all
It was late Nov the last time I strolled through here, just after my 3 1/2 year checkup. Last month, on May 19 (my birthday), I had my 4 year checkup and all is well. I saw my ENT and as nurse practitioner on this visit, and I'll just see a couple nurse practitioners in Nov. I've been a little confused as to how long the 6…
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Hondo
This is Hondo's daughter, I wanted to let everyone know that he passed away Monday. He has been struggling with pnemonia from aspirations since August. He was hospitalized about a month ago and since then was just unable to bounce back. I know you all meant so much to him and gave him so much support and uplifting during…
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Research and experience on reducing side-effects from platinum-based chemo/radiation
In October of 2021, I underwent TORS (left side) w/ a left-side neck dissection.. followed by 30 treatments of radiation (proton - both sides), and seven weekly chemo infusions (cisplatin). I did two things you might want to research to reduce side effects: 1. fasting during chemo infusion; and 2. daily red-light therapy…
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Confusing results
I had a pet scan on the 8th June which showed a spot on one of my lungs. My oncologist ordered a ct scan for the 17th June so a "work up could be performed" . The spot that was on the pet scan had disappeared on the ct scan.........but the ct scan showed there was another spot beneath the original that was 4.9 mils . The…
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getting off the peg tube
hello everyone, I need help! I have finished treatment now 6 weeks 30 radiation sessions for tongue base cancer and am doing well I am told, but I am having a heck of a time getting back to eating. I can swallow and some foods are going down, but it seems like it is all trial and error. It is too easy to use the Peg tube.…
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Somehow We Hold On
Hello folks. I recently came across a song that had me thinking about my cancer experiences and some unbelievably tough times I had endured now and then. I also have in my mind the many members on here I have seen go through some of the toughest things you can imagine. There are some amazing triumphs that the folks on here…
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Lymph Node Involvement? Should I Ask for a Scan?
On April 4, I went for a routine cleaning at the dentist. They found a white patch that looked concerning. Had a biopsy on April 14. On May 4, results came back as advanced dysplasia/pre-cancerous (no margins in sample). So, they sent me to onc. I just had the first appt on May 31. They looked at it, checked my lymph nodes…
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leukoplakia
I am a 7 1/2 year survivor of Tonsillar cancer positive for the HPV virus. I finished 6 weeks of radiation and have been cancer-free ever since. The only side effect of the treatment is some dry mouth which is very manageable. I decided to get an appointment with my ENT just to follow up and he noticed a couple of white…
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After Radiation and Chemo
Hello, I have just joined the group, five years ago I had squamus cell carcinoma on my tongue and had about 20% of it removed surgically after which the cancer was gone. Five years later I developed a new spot above the original area that was cancerous as well and this time I had 43 radiation treatments and five chemo…
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New to CSN Throat Cancer stage IV
I very recently discovered that I am faced with Stage IV throat cancer. The origin site will be further explored later this week. Based on what I have read there are two basic options for treatment, chemo or neck dissection followed by radiology. If I go with the neck dissection does the radiation alone kill the cancer in…
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Dang the Rad damage
NPC w/concurrent C&R, 68 Gys to bottom half of throat, 60 to top half, and 56 above the chin back in early 2009. First came the aspiration and discovery of Rad damage to the esophagus as the cause, and have been FT-dependent since 8/2019. Car accident just before my 14th Birthday= crushed windpipe @ larynx got me 23 Ops.…
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Memorial Day-We Honor Our Fallen
It is Memorial Day once again and we enjoy the freedom and blessings of living in a free country with many blessings. At the same moment, we need to be sure we all take the time to remember our fallen soldiers who gave their last great measure for their country and for free men and women everywhere. Take time today to…
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Tongue / Flap swelling one year after full glossectomy
I had a full glossectomy on April 21 last year followed by chemo and radiation treatments in June and part of July. My surgeons told me the swelling would go down in 6 to 8 months so I remained optimistic and vigilant with my recovery. Everything appeared to be going as planned and by September, the swelling was coming…
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Basal Cell-Squamous Cell-Forehead Flap
Hello H&N folks. I found an interesting video to share that I happened on, believe it or not, looking at different pill crushers. Anyway, this relates to the fact that she had squamous cell on top of basal cell, which many of us have had but not together. I will let the video speak for itself. It has over 4 million views.…