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Spring Renewal Blessings and Flowers
Hello, all you good folks. It is always nice to take a little break from the subject of cancer and celebrate the blessings around us. I just want to celebrate spring and warmer weather with you with a couple of pictures of some local flowers and plants What was not long ago this-- Is now this--- It's amazing to me how…
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Had my first post Tx PET and it was clear - why don't I feel better about it?
SqCC HPV + (primary base of tongue, 1 lymph node in neck) Stage 1. Tors in August, completed chemo in late Nov & rads in early Dec. Got though it w/out a PEG and lost 30 lbs. Am doing PT for my right arm and overall conditioning. I'm now able to lift my arm straight up from the prior 90 degrees. Went for a 2 mile walk…
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I’m a cancer survivor. Now what?
This is from Merck, I had a video downloaded and was searching where it came from and found it. Just want to share it with you guys for whatever you get out of it. There is a short moving video on this page, at least to me about being a survivor. One of the ladies commented how friends and family that know you are done…
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Cannabis warning
Hello, just ran across this info. might be worth taking note. https://futurism.com/neoscope/research-thc-accelerates-growth-tumors
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Hyperthyroidism
I tested a bit high on my TSH, 3rd Gen numbers, at my last test. It is my understanding they want to get another blood draw for a (4th Gen?) test. Does anyone on here deal with the symptoms of Hyperthyroidism, or take meds for it? I'm probably jumping the gun, as this was my first high test ... but I wanted to be…
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Wishing Everyone A Happy And Blessed Easter
Hello, fellow Surthrivers of the CSN H&N group. I would just like to wish everyone a Blessed and Happy Easter and that we will continue to be Blessed with many NED's and Clear Scans ahead. He is risen! ... Today, we remember Jesus' sacrifice and give thanks for what he brought to our world. Wishing you a Blessed and Holy…
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OZZYMANDIBLE
Has anyone saw/heard any update from this lady? I think the last thing I read from her was that she was having a recurrence Prayers for all.. Jerry
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OZZYMANDIBLE
Has anyone heard from this lady? I think the last post I saw from her was that she had a recurrence. Prayers for all Jerry
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Does Medicare cover HBOT?
Hi all, I may be facing a tooth extraction (not sure yet). Rad onc said I’ll need 20 dives of HBOT prior to the extraction and 10 after. Tooth had 65 grays. Does anyone know if Medicare covers hyperbaric oxygen therapy? Also, for those out there who’ve had HBOT prior & after extractions, love to hear about your experience…
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Embracing death, coming clean about the cause, and other thoughts
During my cancer treatment, the whole time I was very positive and quite upbeat. I still am today although I have been humbled by this experience and the big word that keeps broadcasting across my mind is the word SOFT. I've always been an intense person, type A, division 1 athlete, all about accolades and more accolades.…
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Metastatic prostate cancer
How long before taste might return after radiation to my neck for C2 PC?
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Looking for guidance
Hi everyone my name is Michael (content removed by CSN staff), I am from a small city in upstate New York and was recently diagnosed with a squamous cell on my tongue. Yesterday was my first visit with an ENT specialist at Upstate Cancer Center. I am looking for any guidance from anyone that has battled this type of cancer…
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Surgery or not?! Tonsil Cancer
I have HP16 tonsil cancer and have yet to do my PET scan, but my ENT is thinking surgery will be an option. I am not particularly opposed to surgery but read about some risks with it. If offered surgery as an option, should I take it (not sure if it is TORS) Is surgery riskier than just radiation and chemo? Would surgery…
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Update on LitlCJdoll:
Crystal asked me to share her story with her friends here on CSN. She is currently in a Hospital, but may be going to Hospice, soon. She tells me that her lung issues make it very difficult for her to breathe. It has been decided that any treatment for her new Cancer doesn't offer probable extension or quality of life. As…
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Osteoradionecrosis
I've come on here to post a new thread regarding osteonecrosis as there only seems to be older stuff in the hope that I can get some recent information. After having squamous cell carcinoma (cancer in tonsil) I have been living with osteoradionecrosis of right lower jaw. I have had 3 debridements but the bone is still…
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Things Move On
I saw my ENT from Hershey last week for my 3-month follow-up and scoping that has been going on since my release from the hospital in late 2019. Thankfully all is clear. And my ENT agreed to extend my next visit to 6 months out instead of 3 months. Nice relief to get the all-clear on a visual. I have also taken my ENT's…
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Side affects - Calling upon members!
I thought this would be helpful for people that are doing research that is about to go into treatment or are in the middle of treatment, or even after. I had a lesion on my left vocal cord. It was stage 1a, but the RO after that wait with everything decided to stage it as a T2. No node involvlement. I didn't have enough…
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Hoarseness
It's been 4 months since my last radiation treatment for BOT cancer. Tumor is gone. Pet scan scheduled in a month. My main problem is hoarseness and dry mouth. My ENT says a dry throat can contribute to a hoarse and raspy voice , but I haven't read many blogs where hoarseness is a problem. Is any one out there finding his…
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Year +5, my saliva is back.
I did 35 IMRT/carbotaxol for stage III tonsil back in 2016. Last treatment Jan , 2017. I was NED at my 5 year in September. I did get my taste back, in about March 2017. I still have periodic muscle spasms in my jaw. I have been using Xylimelts constantly for the last 5 years. A few weeks ago I was working in the yard,…
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Newly diagnosed and new to CSN
Greetings all, I had what was thought to be a granuloma on my right vocal cord. A biopsy had now labelled it "Invasive keratinizing squamous cell carcinoma" . The lab report also says, " The tumor is positive for p63 confirming squamous cell. P16 is negative." Being diagnosed just yesterday, I don't know what any of that…
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Cetuximab
Anyone in head and neck hear of this treatment and can give some feedback? Was informed that this is last hope and was only used as a extended life thing and to top it off was only 10% effective, my oncologist that’s been one of my positive outlooks now says we’ve gone as far as we can go, I kinda see why this is on 10%…
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2 months after last radiation treatment
I was a non believer when my radiologist at MD Anderson told me that it could take 2 months to have the effects of radiation end. I'm so happy to say that it's now approaching the end of week 8 and no more damn ulcers!!! Hallelujah! I am noticing a funny thing and that's the back of my mouth, call it the roof of the area…
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Immunotherapy and Keytruda
My mother was recently diagnosed with a recurrence of her jaw tumor. This time it's floor of the mouth, localized. We went through double mandibulectomy and fibula free flap, chemo and rads the first time two years ago. This time, she is starting treatment with Keytruda and her oncologist is very optimistic. I did not see…
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6.5 weeks after last radiation treatment
Hey folks, I have not been on here in a while. I went through some unfreaking real hell at week 6 through week 8. I know everybody is getting different sorts of treatment but I was an MD Anderson patient so I had 33 radiation treatments and I only made six out of seven chemo treatments. It is now 6 and 1/2 weeks after the…
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limited range of motion - right arm
i had surgery last August, TORS on the tongue and removal of 21 lymph nodes in my right neck. completed chemo & rads early december. i've noticed in the past 5-6 weeks or so that i can't raise my right arm straight up - pointing to the ceiling. best i can do is have it come level to the floor, pointing to the wall. there…
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Chemo and Immunotherapy for life
My husband's new cancer(s) have been deemed to be inoperable as the surgeries would not be beneficial without the ability to have radiation. He had the lifetime max of radiation in 2016. He will be taking part in a study at Siteman Cancer Center in St. Louis, MO. He will have chemo and an immunotherapy drug for the rest of…
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Dematologist soon after Radiation?
I was wondering if any of you started to notice new moles, spots on their necks real soon after radiation treatment? It's only been a month and a half since my treatment ended and I can feel spots that weren't there. I feel as though I need to get seen by a dermatologist. Did anyone else notice this so soon? Where I live…
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When to use Biotene, when to use salt & soda rinse...
I guess I need a little clarification from you guys that have already done it. I am fixing to start my seventh week of treatment and I am just now getting the sore-ish throat and tongue. Really my tongue hurts more than my throat. I had stopped using the biotene a while back, because it didn't really seem to work to well -…
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HPV16+ SCC diagnosis - is chemo really necessary?
My husband was diagnosed with HPV16+SCC in Nov. 2021 and had surgery Dec. 2021. Tissue (and tumor) removed from the base of his tongue, plus neck dissection and 6 nodes removed (w/extensions). He will soon begin radiation treatments on both sides of his neck, but the rad doctor told him chemo may not be effective on his…
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Hey Everyone. I'm new here
I just wanted to introduce myself. I'm Pete, I'm 46 and last Thursday, I was diagnosed with cancer on my tongue. I've felt pretty alone through everything so far as I don't have much family around me. On Friday, I had a CT scan to see if the cancer spread to my lymph nodes or lungs. On the 18th, I'm having the rest of the…