Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Tongue radiation
I didn’t realize it would be so slow and every day would have new symptoms. The treatment stopped after 6 weeks and doctors said everything is owing great. I don’t feel so great. Every day it’s either my mouth is extremely dry or the next day it’s full of heart saliva. Does it get any better. It’s already seven weeks after…
Yeast
I am a little past 6months from last radiation. Have been doing well eating. Just no spicy food. Friday after thanksgiving I lost my voice and ended up wit white spot under tongue and on inside of cheek. Throat started hurting also. Has anyone experienced anything similar?
Searching for a close friend
Hello everyone. I am a member of this site, and connected with a lady named Constance Hammond. I dont remember her code name, but she had sinus cancer, and wound up having a permanent trach in her neck, as I do. She is married and resides in Indiana. For some unknown reason she stopped emailing me. She said she was having…
Mouth sores and sleeping problems while undergoing chemo/radiation
Hi all! I am posting in the hopes of finding some helpful tips to share with my dad who is currently finishing his 3rd week of daily radiation treatments and 1x/week chemo to treat H&N cancer. His most persistent problem right now seems to be that he's barely able to sleep at all because during the night he is waking up…
Treatment Delayed Due to Shingles
Hi all, My mother (61) was supposed to have her radiation mask fitted Monday with treatment starting in a couple weeks for HPV 16+ oral cancer. That’s now been delayed because she has shingles. It seems she caught it early and is on antiviral medication and a cream now for the next 10 days, which I hope clears it all up.…
Happy Thanksgiving To Everyone May Your Blessings Be Many
New Path report--, my cancer is back again, at Primary site.
Today, I read the two pathology reports from the Punch biopsies taken Monday, soft palate/ right tonsil. The tonsil there is gone, as it was invaded by SqCC by my primary tongue tumor. ( see my Profile). The area has bothered me for months. Of course, I was in the hospital with Double Lung Pneumonia, in June and again…
bilateral neck dissection
I had the neck dissection about 5 weeks ago along with removal of tumor on soft palette and reconstruction. I have severe tightness in my neck and it feels like I am being choked. Is this part of the normal healing process and what can I do if anything since it is actually giving me anxiety episodes. I would appreciate any…
Newly Diagnosed (HPV+ Oral SCC)
Hi all, Regrettably, my mother (61) has recently been diagnosed with HPV 16+ Oropharynx Squamous Cell Carcinoma. She had little to no symptoms. However, unbeknownst to me, her lymph node on one side of her neck swelled for several weeks. She took the “wait and see” approach until finally going to an ER. The ER did a CT…
New to Site, family member of Patient issue with Cetuximab
Hi, I am new to this site in my efforts to support my brother who was diagnosed with stage III HPV Squamous cell Oropharyngeal Cancer. He is being treated at a Teaching University, so I'm pleased about that, however in researching the treatment protocol of the Generic Erbitux, Cetuximab I'm very concerned with what I've…
new to group
hi, I'm new to this group. I was diagnosed with this cancer last year and completed treatment (radiation and chemo) in June of this year. I'm apparently cured according to my doctors but I have some lingering symptoms that I'm wondering about. The most annoying/painful one is the skin on my head is incredibly sensitive…
Hello and Taste Question
Wish I would have found this discussion board sooner during my treatment. Diagnosed with p16 and p40 HPV+ Squamous Cell Carcinoma, with primary tumor on base of tongue and lymphnodes on both sides affected on 11/1/2021. Completed radiation and 3 doses of cisplatin on January 20 and clean PET scan in April. All follow up…
Dentist after radiation?
I had 6 1/2 weeks of radiation. surgery, and chemotherapy in 2011. I have had teeth extracted in 2016 and had 30 Hyperbaric Oxygen treatments for the extractions; to help bone heal. It is now April 2018 and I have more dental issues. I also have reduced saliva production. I now live in Killeen, Texas and wonder are there…
Patulous Eustachian Tube
Have any of you had radiation to the head which cause Patulous Eustachian Tube. That's where the "E" tube does not close and you can hear yourself talk, breath, etc.
92 year old with oral squamous cell Ca
My 92 year old mother in law was recently diagnosed with squamous cell carcinoma in 2 areas in her mouth - R cheek and alveolar ridge close to her jaw. Her cancer has not been staged. She has had two CT scans and will have a PET scan this week. She has met with the surgeon, radiologist and oncologist. She has COPD, CAD,…
Questions regarding pyriform sinus tumor
I am in search of others with a pyriform sinus tumor diagnosis. I started to feel a lump in my throat about two months ago. I have a history of severe GERD, esophageal stricture and hiatal hernia so I went to my gastro, who found a tumor, he called it a polyp, in the pyriform sinus via scope. He stressed that my lump…
Newly Diagnosed - What Sort of Tests Would Be Done After a Positive Biopsy Result on a Tongue Lesion
Hi there, I am new to the group so hello everyone and thank you for having such a group for people who are having to go through this horrible illness. I have just received a positive cancer biopsy result on a lesion on my tongue (I have had oral lichen planus since 2006 so white patchy lesions on tongue are common) and my…
Gerd in head and neck cancer
My mother aged 71 years is having pyriform fossa cancer extending to upper esophagus. She I having chemo radiation as the treatment. She had 17 radiation and 2 chemo. Now she is suffering with gastro reflux every time the whole day. Any way to handle it. Anyone experienced this Also it will be good if anyone knows about…
PET scan and biopsies
Have any of you had MRI that shows abnormality near where original cancer was, then a biopsy that is negative, and weeks later PET scan and MRI still light in that area. So..gotta go for another biopsy so ENT surgeon can remove more tissue???? Treatment was 8 months ago. So very confusing with these tests.
Just Diagnosed - SQUAMOUS CELL CARCINOMA - Tonsil
I had covid back in January of 2022 right after I had facial paralysis then noticed a lump in my neck all within 3 months Jan-April. Went to E.R. for facial paralysis. They said it wasnt stroke. Ran CT Scan on me with dye, didnt see anything. Face returned to normal within few weeks. Doctor said the lump in my neck was…
G tube or no G tube?
Hello all - it has been a while since I posted. My husband is currently in treatment for squamous cell carcinoma of unknown primary (found in RT lymph node). He is 3.5 weeks in (17 of 30 rads complete) and 4 of 6 chemo treatments completed. He hasn’t really been able to eat much for a week now. I can barely get him to…
wmc (Bill) An Honored and Respected Member Of Our H&N Group Has Passed
wmc (Bill) An Honored and Respected Member Has Passed Please remember Bills family in your prayers. Rest In Peace Bill It is with great sadness that I pass on this information. I know it is a bit late but I just found out about it. Bill was always a great inspiration and example to me showing me to never give up hope and…
Minor Salivary gland cancer palate
I am brand new here. I had a 1 cm polymorphous adenocarcinoma tumor removed from my rear left hard palate almost 2 weeks ago. I first noticed it as a tingling on my palate 8 months ago. Then I noticed a painless swelling. I thought it would go away on its own because bumps in the mouth often do. 3 months later I showed my…
Swallowing issues
Hello everyone. I was diagnosed with HPV throat cancer and have recently completed 34 radiation treatments and 7 chemo treatments. I’m almost 5 weeks out of treatment. Over the last couple of weeks I have started having some swallowing problems. Liquid tries to go up my nose when swallowing and having trouble swallowing…
Help with nutrition to get rid of the G tube
I am finished with my radiation treatments and still have my G tube for nutrition. It has been 3 weeks since my last treatment and I am slowly getting taste back....just sweet on the tip of the tongue. I have experimented with a few things which didn't end up well. I have found out that I can eat scrambled eggs, with a…
Larynginal cancer , after 35 radiation treatments ---- when's the pain stop
So 48 and lost my voice last November , fast Fwd April and I find out ! Months of my ears ringing like a dog whistle just stoped , n a week later the residual pain came , w vengeance , 35 radiation treatments n that all hit me , tired sickly melted throat , went from 175# to 138# ! First 3 weeks were the worst .. I'm 2…
D-Limonene Clinical Trial for Xerostomia
Hello Friends: I was diagnosed with HNSCC P16+/HPV cancer in January. Completed 70/56 Gy (RT only) on April 13, 2021. With the permission of my medical team. I decided to replicate the following clinical trial (minus the Chemo which I did not require) that is ongoing at Stanford during my treatment. It is very, very early,…
Left tonsil and left lymph node.
Hi I have just been diagnosed (4days ago) with cancer in my left tonsil and left lymph node. I am 56 and reasonably fit and well. In general I did not have any symptoms to speak off (still don’t) until the lump in my neck appeared at the beginning of June. I saw the dr after 14 days as the lump had not gone and he put in…
New to the group
Hello, My husband was diagnosed with Stage IV oral cancer. He had surgery in August and came home from hospital last week. I am his fulltime caregiver and I am struggling - tube feeds, medications, mental wellness are all a challenge. He is to start radiation and chemo next week to get what the surgery could not. I am…
New Here, just finished treatment
I’m a 49 y/o male that was diagnosed with a large mass at base of tongue in April of 2022. It all started with severe pain in the right ear in September of 2021 .I was told by several different urgent care Dr’s that it was fluid in my ear, a severe ear infection and allergies. I ultimately made an appointment with a ENT Dr…

Head and Neck Cancer

Discussion List

Discussion Boards