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Radiation Necrosis in the throat and neck
TORS tonsilar cancer surgery in May, 2022, 30 IMRT's completed Aug, 2022. Had SCC in left tonsil/lymph nodes in 2007. Minor surgery, 35 IMRT's, 7 weekly Cisplatin treatments. LEFT SIDE IS STILL NED. However, there are parts of my neck and throat that received parts of all 65 IMRT's from both events. First post-treatment…
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Anyone get sick from drinking Boost?
I am nearly 15 months out of radiation for bot cancer. While I expected to lose some taste and saliva glands, I thought that I’d be able to eat much better by now. I still have problems swallowing many foods, some surprising to me. (mashed potatoes!?! Feels like I’m trying to swallow wet sand).. So I’ve been living mostly…
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NED - Year One
Hi all, Ringing the one year bell! CTs ordered by the MO and scope and poke by ENT show all clear - NED! Most report various long term side effects and about a year out declare their new "normal". A handful declare a new normal as good as or efven beetter than the old normal. For some unknown reason, I'm extremely…
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tongue cancer
I was recently diagnosed with tongue cancer. I had part of my tongue removed and a neck dissection. I would like to connect with others who have been diagnosed tongue cancer.
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Coughing that doesn't stop
I finished my treatment back in July I have this cough that just doesn't stop it keeps me up all night I prop myself up sleeping or I just sleep sitting up on the couch my Dr's have prescribed hycodan, codeine, numerous magic mouth washes, guafesin syrup, I've tried a couple Over the counter cough syrup that don't have…
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Therapy for Vertigo
It's been 2 years since I completed my chemo and radiation treatments for cancer in left tonsil and lymph nodes in left neck. My surgery was in June 2020. My neck scar is still sensitive at times and I have slight numbness around my ear. None of that bothers me. My last scan in Sept 2022 shows no cancer. I've done a bit of…
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Numbness in chin and tongue
Well folks, Stage 4 tonsil cancer, 1 node removed, surgery, chemo, rad. 10/2003. Here I am 19 years out, living my life, just became a grandparent. About a month ago I started feeling a tingling on the right tip of my tongue (cancer side) that has spread to my chin. Went straight to my Oncologist. He told me it could be…
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New diagnosis - Stage IV Nasopharyngeal Cancer metastasized to lymph nodes and lungs
Hello all, I am new here and I am hoping to gain a such insight so I can help my husband through this new journey and perhaps in turn, after we’ve been through it awhile, perhaps his experience might can be helpful to someone else. He is 55 years old, been retired from the military after 30 year when he was 48. In that…
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Side affects of Radiation / List up-date
Does anyone have the Full list of Radiation Side effects, it seams like every time I go to a doctor about a problem I am told it is Radiation side effects. At what point do they stop blaming it on the treatment and start being doctors again and looking. Just asking to see if anyone else is having this same problem.
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Numbess in chin and lower lip, left side
Calling all long-term survivors of HNC. Over the last 2 mos. or so I have developed numbness in my chin and lower lip, left of center. Coincidentally (or not?) my HPV16 positive HNC was on my left side (tonsil and lymph nodes). I am almost 4 years post treatments and doing great so I just chalked this up to another "new…
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Too much mucus and excessive cough
It's been 6 months post radiation of my throat and I'm just miserable. I have so much mucus I'm spitting up will it ever stop? And a constant cough nothing helps I can't use cough drops because now I have dysphagia so if my liquids aren't thick I choke n my food has to he mashed I feel Like I'm living in hell I have no…
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4 weeks out of treatments
Hi, I'm new to the group. My name is Scott and I was diagnosed in August of 2022 with Metastatic Squamous Cell pos. P16. It has been 4 weeks since I finished 35 rounds of radiation and 6 of chemo. I am wondering if there is anyone on here who have went through this and how they are doing after treatments.
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Tongue radiation
I didn’t realize it would be so slow and every day would have new symptoms. The treatment stopped after 6 weeks and doctors said everything is owing great. I don’t feel so great. Every day it’s either my mouth is extremely dry or the next day it’s full of heart saliva. Does it get any better. It’s already seven weeks after…
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Yeast
I am a little past 6months from last radiation. Have been doing well eating. Just no spicy food. Friday after thanksgiving I lost my voice and ended up wit white spot under tongue and on inside of cheek. Throat started hurting also. Has anyone experienced anything similar?
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Searching for a close friend
Hello everyone. I am a member of this site, and connected with a lady named Constance Hammond. I dont remember her code name, but she had sinus cancer, and wound up having a permanent trach in her neck, as I do. She is married and resides in Indiana. For some unknown reason she stopped emailing me. She said she was having…
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Mouth sores and sleeping problems while undergoing chemo/radiation
Hi all! I am posting in the hopes of finding some helpful tips to share with my dad who is currently finishing his 3rd week of daily radiation treatments and 1x/week chemo to treat H&N cancer. His most persistent problem right now seems to be that he's barely able to sleep at all because during the night he is waking up…
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Treatment Delayed Due to Shingles
Hi all, My mother (61) was supposed to have her radiation mask fitted Monday with treatment starting in a couple weeks for HPV 16+ oral cancer. That’s now been delayed because she has shingles. It seems she caught it early and is on antiviral medication and a cream now for the next 10 days, which I hope clears it all up.…
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Happy Thanksgiving To Everyone May Your Blessings Be Many
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New Path report--, my cancer is back again, at Primary site.
Today, I read the two pathology reports from the Punch biopsies taken Monday, soft palate/ right tonsil. The tonsil there is gone, as it was invaded by SqCC by my primary tongue tumor. ( see my Profile). The area has bothered me for months. Of course, I was in the hospital with Double Lung Pneumonia, in June and again…
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bilateral neck dissection
I had the neck dissection about 5 weeks ago along with removal of tumor on soft palette and reconstruction. I have severe tightness in my neck and it feels like I am being choked. Is this part of the normal healing process and what can I do if anything since it is actually giving me anxiety episodes. I would appreciate any…
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Newly Diagnosed (HPV+ Oral SCC)
Hi all, Regrettably, my mother (61) has recently been diagnosed with HPV 16+ Oropharynx Squamous Cell Carcinoma. She had little to no symptoms. However, unbeknownst to me, her lymph node on one side of her neck swelled for several weeks. She took the “wait and see” approach until finally going to an ER. The ER did a CT…
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New to Site, family member of Patient issue with Cetuximab
Hi, I am new to this site in my efforts to support my brother who was diagnosed with stage III HPV Squamous cell Oropharyngeal Cancer. He is being treated at a Teaching University, so I'm pleased about that, however in researching the treatment protocol of the Generic Erbitux, Cetuximab I'm very concerned with what I've…
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new to group
hi, I'm new to this group. I was diagnosed with this cancer last year and completed treatment (radiation and chemo) in June of this year. I'm apparently cured according to my doctors but I have some lingering symptoms that I'm wondering about. The most annoying/painful one is the skin on my head is incredibly sensitive…
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Hello and Taste Question
Wish I would have found this discussion board sooner during my treatment. Diagnosed with p16 and p40 HPV+ Squamous Cell Carcinoma, with primary tumor on base of tongue and lymphnodes on both sides affected on 11/1/2021. Completed radiation and 3 doses of cisplatin on January 20 and clean PET scan in April. All follow up…
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Dentist after radiation?
I had 6 1/2 weeks of radiation. surgery, and chemotherapy in 2011. I have had teeth extracted in 2016 and had 30 Hyperbaric Oxygen treatments for the extractions; to help bone heal. It is now April 2018 and I have more dental issues. I also have reduced saliva production. I now live in Killeen, Texas and wonder are there…
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Patulous Eustachian Tube
Have any of you had radiation to the head which cause Patulous Eustachian Tube. That's where the "E" tube does not close and you can hear yourself talk, breath, etc.
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92 year old with oral squamous cell Ca
My 92 year old mother in law was recently diagnosed with squamous cell carcinoma in 2 areas in her mouth - R cheek and alveolar ridge close to her jaw. Her cancer has not been staged. She has had two CT scans and will have a PET scan this week. She has met with the surgeon, radiologist and oncologist. She has COPD, CAD,…
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Questions regarding pyriform sinus tumor
I am in search of others with a pyriform sinus tumor diagnosis. I started to feel a lump in my throat about two months ago. I have a history of severe GERD, esophageal stricture and hiatal hernia so I went to my gastro, who found a tumor, he called it a polyp, in the pyriform sinus via scope. He stressed that my lump…
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Newly Diagnosed - What Sort of Tests Would Be Done After a Positive Biopsy Result on a Tongue Lesion
Hi there, I am new to the group so hello everyone and thank you for having such a group for people who are having to go through this horrible illness. I have just received a positive cancer biopsy result on a lesion on my tongue (I have had oral lichen planus since 2006 so white patchy lesions on tongue are common) and my…
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Gerd in head and neck cancer
My mother aged 71 years is having pyriform fossa cancer extending to upper esophagus. She I having chemo radiation as the treatment. She had 17 radiation and 2 chemo. Now she is suffering with gastro reflux every time the whole day. Any way to handle it. Anyone experienced this Also it will be good if anyone knows about…