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Swallowing issues
Hello everyone. I was diagnosed with HPV throat cancer and have recently completed 34 radiation treatments and 7 chemo treatments. I’m almost 5 weeks out of treatment. Over the last couple of weeks I have started having some swallowing problems. Liquid tries to go up my nose when swallowing and having trouble swallowing…
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Help with nutrition to get rid of the G tube
I am finished with my radiation treatments and still have my G tube for nutrition. It has been 3 weeks since my last treatment and I am slowly getting taste back....just sweet on the tip of the tongue. I have experimented with a few things which didn't end up well. I have found out that I can eat scrambled eggs, with a…
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Larynginal cancer , after 35 radiation treatments ---- when's the pain stop
So 48 and lost my voice last November , fast Fwd April and I find out ! Months of my ears ringing like a dog whistle just stoped , n a week later the residual pain came , w vengeance , 35 radiation treatments n that all hit me , tired sickly melted throat , went from 175# to 138# ! First 3 weeks were the worst .. I'm 2…
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D-Limonene Clinical Trial for Xerostomia
Hello Friends: I was diagnosed with HNSCC P16+/HPV cancer in January. Completed 70/56 Gy (RT only) on April 13, 2021. With the permission of my medical team. I decided to replicate the following clinical trial (minus the Chemo which I did not require) that is ongoing at Stanford during my treatment. It is very, very early,…
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Left tonsil and left lymph node.
Hi I have just been diagnosed (4days ago) with cancer in my left tonsil and left lymph node. I am 56 and reasonably fit and well. In general I did not have any symptoms to speak off (still don’t) until the lump in my neck appeared at the beginning of June. I saw the dr after 14 days as the lump had not gone and he put in…
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New to the group
Hello, My husband was diagnosed with Stage IV oral cancer. He had surgery in August and came home from hospital last week. I am his fulltime caregiver and I am struggling - tube feeds, medications, mental wellness are all a challenge. He is to start radiation and chemo next week to get what the surgery could not. I am…
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New Here, just finished treatment
I’m a 49 y/o male that was diagnosed with a large mass at base of tongue in April of 2022. It all started with severe pain in the right ear in September of 2021 .I was told by several different urgent care Dr’s that it was fluid in my ear, a severe ear infection and allergies. I ultimately made an appointment with a ENT Dr…
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New caregiver here - looking for some encouragement and advice!
Hi all - my name is Michaelene and my husband, Michael (yes, we are Michael and Michaelene), just got diagnosed with metastatic squamous cell carcinoma (right lymph node). Only symptom was a swollen lymph node, but the biopsy has confirmed it. He did a contrast CT scan yesterday and they don't see any other tumors and…
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Anyone use medical marijuana?
Two years after my surgery for BOT HPV-related tongue cancer, and a full neck dissection/took 63 nodes, I'm dealing with chronic neck discomfort. Been examined thoroughly by my ENT, surgeon and radiation oncologist, had a CAT scan and multiple larngoscopies, no one's been able to ID any malignant cause of the…
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LitlCJdoll (Crystal) An Honored and Dear Member Has Passed.
Obituary Link Below-There is a short tribute video below the obituary-very nice- It is with great sorrow that I bring this news to the Head & Neck group. LitlCJdoll (Crystal) has passed on September 12, 2022 She was a true warrior in her battle with cancer and a staunch supporter of others here on the forum. She had…
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Would appreciate info from the experienced
I'm 73, had TORS for a new SCC right tonsil in May of 2022 along with radical neck dissection for carotid ligations. Did "OK" in the weeks following TORS then had 30 IMRT's in July/Aug. I have to mention too that I was diagnosed in 2007 w/SCC left tonsil and lymph nodes resulting in CISPLATIN weekly chemo concurrent with…
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Post Tx Follow up schedule / PET vs CT / too many doc's & different opinions.
This is a bit complicated. I received my rad & chemo at Peace Health - St. Joe's in Bellingham Wa. I am followed by a surgeon at a 2nd place in Bellingham, Wa. (had my Tors / neck surgery in Seattle with a different surgeon). Finished treatments in early Dec 2021. PET in early April was NED & CT done yesterday was NED. My…
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Been a while
Haven’t visited for a while but need some suggestions. I can’t seem to gain weight….due to my head and neck radiation my esophagus is about the size of a drinking straw. Im at about 155 and just can’t seem to increase my weight. I’ve had a total of 13 EGD procedures with basically no improvement I have difficulty…
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mask for radiation...?
Ive read many people referring to a mask used for radiation. Is that used for all types of Cancers diagnoses or only specific ones? Certain types of radiation also? Mom has unknown primary, to my understanding they most likely are going to radiate " all over" in common head and neck locations. thanks, just wondering trying…
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What A Difference a Day Makes-New Situation
I had a sore neck on the same side as previous lymph cancer August 30th. I let it go about 5 days and it got better but didn't go away. Knowing my past cancer history I didn't wait any longer. I had an upcoming ENT appointment and I made it sooner. I Asked if I should get a scan before the appointment. They set me up with…
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HPV- SCC spread to lungs
2018 I had a SCC tumor on the base of my tounge. No sugery just radiation and chemo. June scans, and last week biopsy came back positive in both sides of my lungs. I have no symptoms yet. Looking for guidance/hope, and info to base decision making on. I do not always take what the oncologist says as gospel. Thanks
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Feeding tube discharge
My husband had a cap come off the Lopez Vale today, which happens from time to time, usually the discharge is the color of formula but today was brown. He hadn't had his breakfast yet, was taking meds with a red bull. I'm just concerned because I haven't noticed brown contents from the tube before. He has a low grade…
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mucoepidermoid carcinoma
I am looking for surviors of mucoepidermoid carcinoma of the salivary gland(low grade)
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SCC, HPV 16+, right lymph node, primary source unknown
Hi all- Wanted to give a quick update on my husband’s dx. Unfortunately, they have not been able to find the primary source. ENT is recommending putting my husband under and looking for spots to biopsy in his mouth + right side tonsillectomy if she can’t find any other potential source. Obviously, I understand the benefit…
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Ear pain after tongue biopsy?
Hello. I had a tongue biopsy a little over a week ago. I still have a fair amount of pain and fullness in my ear (same side as biopsy). I wake up at night with a stabbing pain in my ear. During the day, it's mostly a dull ache right next to my ear, where my jaw starts. The oral surgeon suggests I go back to a soft diet and…
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New here, seeking advice, questions to ask for treatment approach, question on surgery
My husband was diagnosed 22nd of December, 2021 with HPV+ SCC the right tonsil, Stage Il. Additional history…presumed cT2 N1 MO SCC of right tonsil, HPV+, P16. He completed 33 rounds of radiation along with 7 chemo on 4/5/2022. His MRI on 5/27 came back clear. 6/16 CAT Scan showed positive lymph nodes and…
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maxillectomy with obturator recon
Hello, I have had a lot of excisions for SCC inside my mouth. I also have had a SCC tumor removed in my lower jaw 10 years ago. I have not had to had radiation nor chemo. I now have been diagnosed with Invasive Well-Differentiated SCC in my upper back jaw and an "inferior posterior maxillectomy with obturator recon" has…
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Obturator
I am hoping someone sees this post, since it looks like a couple of my posts have not been answered lately. Does anyone have an obturator? My temporary one was placed during surgery and I am told that when my mouth is healed enough, my prosthodontist will take a mold for another, and so on, until I am ready for a more…
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Benecalorie Food and Protein Enhancer
Hi all, I have several packs of Nestle Benecalorie I won't use. I am willing to ship them to anyone in need.
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Back of throat - squamous cell cancer
I was six years clean from Stage IV cancer of the larynx and 2 lymph nodes. Had 33 radiation and 7 chemo with feeding tube and chemo port and had been fine - no issues. I just received diagnosis on a punch biopsy from the back wall of my oropharynx for squamous cell carcinoma and am awaiting a PET scan. Had covid about 7…
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Osteoporosis treatment following radiation for throat cancer
I'm hoping that someone has some information, thoughts or suggestions for Osteoporosis treatment following radiation from base of skull to collar bones. 5 years ago I had squamous cell carcinoma of the oropharynx, was treated with cetuximab and 33 cycles of proton radiation. Fast forward to now, and I've just been…
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Help Needed - Vomitting
Hi all, My husband is in week 5 of radiation and completed round 2 of chemo last week. Since chemo last week he has been taken over by nausea and throws up almost everything he eats. He doesn't have a sore throat and has not had problems swallowing. We initially thought the nausea/vomitting was caused by thick saliva. He…
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Hearing Loss & Tinnitus - caused by Cisplatin - now hesitent to do last round of chemo
Hi, My husband, Joe, has 6 more days of radiation and 1 more chemo (Cisplatin 100mcg/m2) to go. He has developed all of the typical side affects posted here and hopefully can get through the rest of treatment and onto recovery. (I'm very nervous about us managing all of the side affects post-recovery, but we did managed…
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Permanent Denture using implants
I just found this out as it happened to me on Saturday, January 25. My permanent lower denture came out. This was held in place by 4 screws that went into posts implanted into my lower jaw. With time, these screws can become weak based upon eating and possibly griding teeth while sleeping. On Saturday, my entire lower…
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Feeling Cold
Those of you who have been through treatment: What's with this feeling cold all the time. Bob(my husband) is 5 months out - all is well, but he is always complaining about being cold. Anyone else out there feeling "chilly" when no one else is????? Just wondering?