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Osteoporosis treatment following radiation for throat cancer
I'm hoping that someone has some information, thoughts or suggestions for Osteoporosis treatment following radiation from base of skull to collar bones. 5 years ago I had squamous cell carcinoma of the oropharynx, was treated with cetuximab and 33 cycles of proton radiation. Fast forward to now, and I've just been…
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Help Needed - Vomitting
Hi all, My husband is in week 5 of radiation and completed round 2 of chemo last week. Since chemo last week he has been taken over by nausea and throws up almost everything he eats. He doesn't have a sore throat and has not had problems swallowing. We initially thought the nausea/vomitting was caused by thick saliva. He…
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Hearing Loss & Tinnitus - caused by Cisplatin - now hesitent to do last round of chemo
Hi, My husband, Joe, has 6 more days of radiation and 1 more chemo (Cisplatin 100mcg/m2) to go. He has developed all of the typical side affects posted here and hopefully can get through the rest of treatment and onto recovery. (I'm very nervous about us managing all of the side affects post-recovery, but we did managed…
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Permanent Denture using implants
I just found this out as it happened to me on Saturday, January 25. My permanent lower denture came out. This was held in place by 4 screws that went into posts implanted into my lower jaw. With time, these screws can become weak based upon eating and possibly griding teeth while sleeping. On Saturday, my entire lower…
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Feeling Cold
Those of you who have been through treatment: What's with this feeling cold all the time. Bob(my husband) is 5 months out - all is well, but he is always complaining about being cold. Anyone else out there feeling "chilly" when no one else is????? Just wondering?
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G tube question
Yesterday, I had the G tube placed in my stomach. The pain is tolerable today with the help of Tylenol. My question is about feeling like I need to burp but can't. Is that a normal symptom? I feel the pressure and I just can't burp to get it out. I also feel nauseous at times when I'm up moving around. Will this go away on…
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Problems with teeth after radiation
I was just wondering if anyone could comment on their experiences with teeth issues after radiation. Has anyone been lucky enough NOT to have any teeth problems? If you have had problems, what kind were they? Any experiences with HBO and ORN? I still have all my teeth but will need some dental work soon and am concerned…
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Waiting to find out treatments
Yesterday, I had the radiation mask made for me. It wasn't as bad as I had pictured it to be. Today, I had an MRI. Monday, I have the G tube put in. Tuesday, I have some dental work being done. It just seems like so much happening that it's hard to keep organized. If I didn't have a calendar and notebook in my purse, I…
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72 yr old facing TORS tonsilar procedure......HELP!!
15 yr survivor of SCC left tonsil/lymph nodes. Had 35 IMRT and 7 Cisplatin chemo in 2007. NED until this week. Just had a biopsy for a sore throat and the results are not good. SCC again but in the base of where the right tonsil was. Waiting for PET appt. Have appt with Oncologist and TORS Surgeon scheduled for next week…
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To sleep with the G tube
I'm getting the G tube put in on Monday the 15th. I'm concerned about sleeping. I am a stomach sleeper, which I'm sure that probably won't be possible. I can side sleep but then I usually end up on the stomach. Sleeping positions? Is there any tips on being comfortable and getting restful sleep with the g tube? I already…
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Right side tonsil cancer spread to 2 right lymph nodes
Hi there, I have been reading all the current discussions, and I wasn't sure whether to start a new one or piggy back one that has already been started (which I felt weird about). So here I am. I am 52 years old and discovered a lump in my neck in mid June. Fast forward to today-I have had 2 ultrasounds, a biopsy of the…
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Sharing The Beauty Of Summer
It's that time of year again, about the peak of things growing for the summer. About 1 more month of push till September, then things start showing summer wear and start phasing out. Enjoy the blessings of the beauty of God's creation. Take care, God Bless everyone
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Scared - Not Sure I Belong Here
Hi Everyone, I’m going to preface this by saying that my husband is in the process of testing/ scans and we have not received results beyond physical exam and ultrasound. I have a lot of questions and am in need of some support. That said, if this is not an appropriate place for me to be please let me know. My 38 year old…
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Good days...
Today is a good day and I'm hoping that we all have many good days ahead. I am so appreciative that I have found this board and have gotten so many positive, helpful responses with great ideas and tips to help me along the way. I know that my care team will assist me with medical advice and be assuring in my treatment.…
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I'm new to this site and wanted to introduce myself
I'm a 56 year old wife and mom to 1 son and 2 fur babies. I am from small town Midwest USA. I was a caregiver to a family member for 9 years before he passed and now I am the one needing care. I was diagnosed in June of 2022 with squamous cell carcinoma of the head and neck. I recently had a second biopsy to confirm the…
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Eating
I do not want to eat. I watch food shows but doesn’t help. Has anyone else faced this. I am again losing weight
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Taste change.
Hello. I’m new here. About 1/2 way through chemo/radiation for Oropharyngeal Squamous Cell Carcinoma. AKA, tonsil cancer. Recently had the tastebud “change”. Everything taste super nasty right now. So far I’ve only lost 1 pound but this feels like a game changer. Two or three bites and I gotta stop. Super discussing. I’ve…
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Prescriptions for Insomnia
I am currently using Edular (Zolpidem Tartrate) 10mg sublingual tablets to help me sleep. They do help me get a little sleep (doze), but the side effects (groggy/drowsy/no energy) limit my ability to be active during the day. I would like to know if anyone else has been prescribed another drug that is sublingual for…
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Longer term questions - gums, voice, thyroid
Hi All! First of all, am I crazy or did this forum used to be divided into different sections like "long term issues," "care givers," "eating," etc.? I was looking for those sections but can't find them, so if I have posted this in the wrong place, please let me know. To the questions: I am 4 years out now from the end of…
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Has anyone had gum bone replacement?
Hi All, I have lost my gum bone or my left face has a hole since they removed my gum bone, tonsil, and my mouth turned out small (less than an inch opening). This is due to my 2nd tumor in my nose in 2019 after the first one in my throat in 2014. I had two times radiation and chemo treatments 2014 and 2019. Now, my left…
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Post Tx B12 & Testosterone Monthly Injections -- WHY??
Of course, I will need to review with my oncologist, but I thought I would ask around here anyway. My tx ended March of 2021. Doc says I will need these monthly B12 and testosterone injections "for life". Has anyone else dealt with this? I am wondering why these are needed. I am very active (walk 3 miles/day and bicycle 30…
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Switching tube feeds
Hello everyone, Newbie here, currently in hospital. I am about to be released from hospital to go home for two weeks before starting chemo/radiation. I have gotten a G tube, currently on Pivot 1.5. They are switching me to Jevity 1.5 to go home unless I can’t tolerate it. Anyone know why they would switch formulas just…
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Dysphagia Exercises?
Hello I'm a 15 year survivor of NPC (Diagnosed when I was 14) I was unable to eat and swallow food for almost a year afterwards and ever since its been hard for me to swallow food. I have to take a drink after almost every bite of food to get it to go down. I plan on bringing it up again at my upcoming appointment, but…
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H&N Related Inspiring Woman and Related Trach & Ventilator Informational Videos
Hello all you H&N folks. I hope everyone is doing the best they possibly can. I was helping a friend search for information on trachs the other day when I ran into a young woman who has had perplexing illnesses and has now ended up using a trach and ventilator. Her enthusiasm and bright spirit are uplifting despite the…
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Hello
I was recently diagnosed with tongue cancer and surgery has been recommended which I want to opt-out of . Is there anyone else here who refused surgery of the tongue and just did radiation instead?
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24/7 taste of burnt metal in mouth after radiation
I quit treatment after 21 sessions and was told taste would return in about 2 weeks. It's almost 5 and though I can taste a bit, I have this terrible taste in my mouth all the time and it seriously taints anything. My tongue feels pickled and dry and mouth very sensitive and dry. Has anyone else had this constant bad taste…
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Red
Hello everyone, I've been diagnosed with stage 3 nasopharynx now just over 2 years. I'm now stage 4....
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Medical Bill Assistance?
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Wishing Everyone A Happy 4TH of July
As we go forward into and following this July 4th holiday may we value and cherish the blessings we have in this country and as we celebrate our independence, the joy of freedom and God-given rights and blessings may we always remember the sacrifices of past generations and our founding fathers and live in light of that…
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Recovery time
My husband just finished his 6 week course of Cisplatin and radiation on Monday June 27th. I was just wondering how long it took others to begin to feel better? He has very little energy, isn't eating or drinking due to everything tasting like salt. All of his nutrition and hydration is through a PEG tube currently. He…