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Lotions and Potions
Folks, the dreadded rash from Eributux has showed up. What lotions did you all find sucessful. I know to us mild soap and not scrub them. Thanks, Joe
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USA
FRIENDS, I know this is not on topic but I should just like to wish USA the very best if luck tonight, G.
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dose ear tubes hurt to get put in
HI all i hope everyone is good and well I have a ? im still having trouble with my ear I had prednisone but it helped a little I might need the ear tube they said they will cut my ear and i will be woke is this painfull?
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Side Effects from radiation
Hi all, I'm excited to say that I just became a member of CSN today. I have read some of your stories and know I will learn alot from all your experiences because I do have questions that only you guys can answer. First, briefly about me. I was diagnosed with Squamous cell cancer on the floor of my mouth in Sept of 2013…
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PET result
Interval resolution of previous areas :-) However...always that damn however...slight uptake in right supraclavicular lymph node. (Collar bone area) What that means...another CT scan this Wednesday. Really, is the insurance going to buy into a CT last Thursday, a PET Friday and another CT Wednesday?Doc claims CT last week…
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On the road again...
Well folks, H&N Squamous part duex began today. I had radical neck dissection on the left side with a thyroidectomy two weeks ago and today we started 18 weeks of chemo. Three rounds of Carbo/tax/eributux and then 15 rounds of eributux alone. We took a CT (from abdomen to neck) on Monday as a bench mark and nothing showed…
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Fingers crossed
Just finished 35 radiations over seven weeks and three chemo treatments over the same period of time with infusion of cisplatin. all the tumors appear to be gone this includes one or two lymph nodes and one at the base of my tongue. My radiologist believes that the cancer is now gone but we won't know until the pet scan in…
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Olfactory neuroblastoma... Plz help
I checked my husband MRI last night and this what i found Heterogeneous tumor along both sides of cribriform plate with solid and cystic component as described above. The appearances favor an olfactory neuroblastoma/esthesioneuroblastoma. Neurosurgical consultation and further evaluation with MIBG scan is recommended.…
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Thyroid?/Update 6-18-2014
First off how is everyone doing this Fathers Day?Hope everyone is fine and having a good time,I was going to post a new thread about the thyroid gland,Went in Friday to have an ultra sound done on my thyroid and during my check up the Lady running the ultra sound was stopping frequently and marking small dark spots here…
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Peg insertion tomorrow :-(
Hi there, I am very very nervous. It is now 11.50 pm and I am going to be at the hospital tomorrow morning at 7.30 for peg insertion, think I am the first of the day. I am extremely nervous. Then 1 more week and treatment starts. Its now becoming real. Robyn
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Took another step
Hey gang Took another step in my recovering.Seen my Dr and he finally removed the trach tube.What a break that was.He said to keep it covered for about a week and to press my finger over as I speak,cough,or sneeze.Seems like my swollowing is a little better also.Maybe someone has gone though this or knows something about…
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Thinking of you, Candi....
I am an idiot....I thought today was Friday (this is what retirement has done to me...I don't know what day it is!!).....But at least you know I'm thinking of you, even on a Tues.... It is Tues, isn't it? p
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CT Scan...
I have myself completely freaked out. I did my 18 month CT scan Tuesday night after work. Dr says she does not have the results back yet. All prior scans were back within 24 hours. I have myself convinced that something showed up thus creating a delay. Ugggg. Wish I could do something to calm myself down. Now I will have…
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Well, that escalated quickly. How to manage pain when swallowing?
Hi all, I posted in another thread on Thursday about having a 'lump' in my throat feeling while eating. Well, now it's very painful to swallow anything. Water, ice cream, doesn't matter, anything that makes me do a swallowing motion is very painful. I can get food down fine but it just hurts like a bugger. I think it might…
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Pumakitty is going to jail (to work)
Hi guys, I am so sorry I have not posted for awhile. I have been reading all of your posts and sending prayers all the time. I wanted to give you a little update. In the year since I lost dad and mom my life has changed in major ways. I posted some time about my job search and my sick kitty. Spot is doing good for a 17…
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Recovery
Hello all...hope this note finds you all well. My son has completed his treatment [ 3 chemo tratments and 35 rounds of radiation ]. The last radiation treatment was 2 weeks ago. Since his last treatment he has basically been in the hospital due to the fact he is nauseated all the time and throwing up. He has a feeding tube…
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To catch you up
First, I've had all the tests, including, an ultrasound, and my thyroid is normal. No one seems to know why I keep gaining...I'm working on eating healthier,exercise and all that happy stuff, so we'll see. Now, I've had a spot on my arm for 13 years, it would poof up and then go away. A couple months ago, it poofed up and…
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A Happy Post
I met Marcia, my "Chiquita", on-line in October of 2010. We started by corresponding by email and chatting on line. I was taken by her beauty and also by the way she wrote as I could hear her accent in her words. We began speaking by phone and she sounded exactly as I imagined. To this day hearing her speak makes me smile…
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How long does it take for the npc tumor to totally shrink after treatment
Hi everone, i have npc and completed all my treatments about 8 weeks now and had my first follow up today. The tumour have gotten smaller by half and i am wondering if this is normal and how long does the treatment takes to work and totally clear the tumour. Can anyone please advise me. Thank you.
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Thought this was interesting...
It seems HNC is starting to get on the cancer radar.....new things are being approved every other month or so (or at least I've seen more in the last 6 months). http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm401085.htm?source=govdelivery&utm_medium=email&utm_source=govdelivery
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Low blood pressure, high heart rate after radiotherapy
My wife had 16 lymph nodes removed from her neck by surgery and 3 of them were malignant at the end April 2010. She then had 29 radiotherapy sessions. After 7 weeks she now is mostly ok. Sense of taste is still weird and no saliva. She also has a high heart rate (100 bpm) and low blood pressure 100/60. I have read this…
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Skiffin ~ 05JUN2014
Well..., I'm still here..., LOL Not a lot has changed concerning eating and appitite..., surviving mainly on Ensures and cereal. I did have all drains removed last week, but both holes the one from the week before and the latest are still spewing out nasty smelly gunk..., but I presume that's better than being inside me. I…
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Nick770
Facebook postings indicate that Nick770 (Nick Fama) lost his battle with this beast this morning. Please keep his wife and 3 children in your prayers.
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Neck Burns
Hi Everyone, after avoiding a peg etc and finishing chemoradiation a week ago I find my neck deteriorating although I am due to see Doctor tomorrow. Any hints or tips on your regimes appreciated as want to nip it in the bud. Have been using aqueous creme so far. From what I gather around about a week is usually a bit of a…
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NED!!!
21 MONTHS OUT, Cat scan done Monday, received the NED today! Dr. Said he couldn't be any happier with the results. Was impressed with how well my teeth are looking. See him again in 6 months and will discuss when the next scan will be. Needless to say had to celebrate, dinner out with husband. Drunken chicken and creme…
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What to Expect
Hello everyone. Hope things are going well for all of you. I've been lurking here for a few days and felt it was time to say something. My husband has HPV16+HNSCC (Stage IV) in his trachea and thyroid. PET is scheduled for Thursday, so that dx could change a bit. Reading the success stories here has been instrumental in…
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Just Diagnosed with a Tumor in my Tongue
I just wanted to say hi before I passed out for the night. I was diagnosed about a couple of weeks ago with a Tumor located on the underside of my tongue. The doctor wrote the official name on a card in my purse. And the only thing I remember right now is that it is Stage 2 vs. Stage 3. I am just recovering from the…
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Raising a child post treatment NPC
Hi, Wondering if anyone has had a child after head and neck cancer, and how they are managing to deal with all of the long term side effects. I am totally blessed to have this amazing kid who will turn five this year, but constantly feeling like I'm fighting an uphill battle just to keep up with everything. Dry mouth,…
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GoodLuk Today Phrannie
Sending warm thoughts you way Hope All Goes Well..........................................
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Antibody Treatment
I have come back to my 'head and neck' family to seek advice! I posted several weeks ago about possibly having a good portion of my tongue removed only to find the CT and biopsy came back negative! I was elated but still in so much pain I'm now on pain patches with roxicet for break-through pain. Friday I had 2 more…