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Connie needs your help & Support
To all my friends on this network, I do not come around as often as I did when Connie was really sick although as most of you know this disease always keeps a person on edge even when the scans come back clean. Connie has been out of treatment since 2011 and she had her feeding tube taken out in early 2012. We really could…
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Mouth exercises
After surgery in upper jaw area (Trigonal area) mouth no longer opens fully. Any exercises to widen openiing back to normal?
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Has anyone had this?
The left side of my tongue rapidly pulsates. I can't feel it moving but can see it in a mirror. If memory serves me right, it happened before and resolved itself. My dentist thought maybe damaged sensory nerves trying to reattach. Since it has been going on 2 weeks now, my speech is not as clear and on rare occasion water…
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GoodMorning
Good Morning Hope Everyone Has A wonderful Day Or At Least try's To Sending happy Thoughts Your Way.................I Have A dentist app This Morn I hate Going To The Dentist............................................
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Endoscopy
had an endoscopy this morning for second try to open my blockage. No luck again, next stage they will put me out and go through stomach and up to blockage guided by X-ray. If that doesn't work next step surgery. I don't fancy more X-ray seems I've had more than my share lately. It would be nice to eat and drink properly…
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My Introduction & Sharing About Squamous Cell Carcinoma
I officially became a member of this club two weeks ago when I was diagnosed with Level 1 Squamous. A few notable and relatable things are that I am a 60-year old man. Okay, TOMORROW I will be 60. I am a survivor of non-hodgkins lymphoma as of 2006. I quit smoking in 1991 and to say I drink alcohol lightly is putting it…
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All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
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Update
Had a scope done by my oncologist on 20-May-2014, during my regular follow-up (done every 4 months, and from now every 6 months). I am at 1 year 9 months post radiation and 1y 6m post last chemo treatment for NPC. Everything looks OK. No imaging done though (as per Hospital’s policy), so I can’t possibly know if anything’s…
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Insurance woes....****UPDATE****
Back in January I had an MRI (I had to go to a hospital out of town because the local imaging center wasn't in the network)...the scan was denied by the insurance company as an "unneccesary procedure".....I went through the Oncologist's office and got that straightened out, and in February I received a letter from the…
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It's not cancer till the doc's say it's cancer. Well, they said it's cancer+UPDATE of UPDATE
Went in this morning to have a 1.4 cm lesion removed along with half my thyroid. They did a quick check of the tissue in the OR and found some cancer cells. The surgeon, who told me before the surgery that if it was positive was going to take the whole thyroid. Well he didn't. He felt that the margins were firmly defined…
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How do I check in on the 2014 roll.
I'm 3 years cancer free but I do not know how to add my name to roll call
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Back From The Doctors
I just got back from my E.N.T............. He sprayed some funny stuff in my nose and kinda froze me hate that stuff 30 buks later.....he put this long thing up my nose He said my tonsil were good and didnt see anything down my throat out of the normal and told me he thought the iratation In my throat was due to alergies…
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1 Year NED - UPDATE
Just a quick note to say I've been given the great news of being NED one year post treatment by my ENT/Surgeon. I have an upcoming appointment for a swallow study, blood work and visit with my MO but I expect all will be well. The side effects, while many, are managable. Keep up the good fight! Positive thoughts and…
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week #4 into tx's (brother)
Hey everyone, Wanted to update on my brother. He's having issues with a low white count so no chemo this week. Rads. continue. On the nystatin for thrush, so of coarse they increased the pain meds for awhile. Just starting to notice spices hurt....as is temp of foods and swallowing is getting a bit rough. I had told him…
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Stupid Chatroom
I downloaded java and chat is still not working go figure.....................................
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CAN NOT BELIEVE THAT SOMEONE WOULD POST THIS IN MY PRIVATE MESSAGE
Dearest one, I do sincerely apologize for my intrusion of your privacy here in this wonderful site, I have a serious concern with which I believe you might be of help and for this reason, I cannot but reach out to someone. My name is, Mrs Sarah Duke. A Nationality of Finland I am married to late Mr. David Duke, who worked…
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Aggressive Tongue Cancer Surgery
Good Morning, I have been off and on this board since 2008 when I was first diagnosed with tongue cancer. I have had chemo and radiation and then 3 surgeries to get rid of 'small' cancers on the tongue. I had a biopsy last Friday and a CT scan. The surgeon is pretty certain the cancer is back and this time I will need…
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Sour sop
Just read an article on the Glaviola....Sour-sop fruit. It says its a natural cure for cancer...anyone heard of it?
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NPC treatment longterm side effects
Hello gentle folks, It's been a while since I posted on the forum. I have checked it out only a couple of times lately. Hope all of you are doing fine. It's been 2.5 years since my treatment ended for T2-N0-M0 NPC. I am happy to report that I am still in remission. However, I have been experiencing some side effects of the…
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Prayers Needed
My Dad "HAWVET" has been in ICU for 4 nights and needs your prayers. From his daughter, Shirley
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One week and soon to be alone
My daughter and her family are leaving in the morning. My sister left Thursday. My son lives here but works long hours and my sisters who live near have jobs and family, so tomorrow I will face my first day alone. No one to stay strong for, no one to distract me, keep me busy or make me laugh. Just me and my tears. Oh how…
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Chat
Anyone Know how come chat is working lol.................................
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just joined , treatment starting soon.
Hello, I have just joined this site. Im looking for advice on anything to do with the treatment I am starting in just over 3 weeks. I am getting very scared. I have met with a team of drs yesterday for 3 1/2 hrs. I have been told I will be starting radiation treatment 5 days a week and chemo 1 day a week for 7 weeks. I…
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Article - Johns Hopkins
Hello all :) I found this article, i thought i should share it with you guys. Maybe its already known information for some of you, but still i think you should read it. https://wausaunews.wordpress.com/2014/01/18/big-hospital-finally-telling-the-truth-about-cancer-johns-hopkins/ Have a lovely day/night dears :) Goyca.
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anyone have the neck dissection AFTER rad/chemo?
the lymph gland is dead..but it isn't absorbing into the body like they would like it to do so they want to be safe and are considering the neck dissection after his finishes rads this week..has anyone else had the surgery AFTER?
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Latest pathology report back...
Hi all, On April 14th I had a white patch of leukoplakia excised from my tongue and I've just recieved the results of the pathology. Pathology came back as hyperplasia, with no evidence of dysplasia or carcinoma. This is an improvement on the situation last year when I had a large white patch removed from my tongue and…
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May have been posted before, but PLEASE read
Folks, take 15 minutes of your time and watch this video. It is truly enlightening. Here is the link. Scroll down to the second video "can we eat to starve cancer". http://www.ted.com/playlists/a_cure_for_cancer Joe
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Doctor's App Tomorrow
My App Is Tomorrow ............I hope my E.N.T can see by scoping or looking if its something serious...........my tonsils are not swollen but My throat is sore on the left side ......I dont have a cold but my nose seems to be runny Most of the time I am Anxious and Nervous Gosh......I havetried to stay of the search…
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A Good E.N.T
Do you think A Good E.N.T Can have an idea whats going on with you By scoping and looking at your Throat
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An Update
I haven't updated for a while. (At least I don't think I have) Coming up on 4 months since my laryngectomee. I have been back at work - in the office - for 6 weeks now. I am only working about 20 hours a week - I can't seem to get more than that, as it is really draining me. I am working Monday, Tuesday, and Thursday.…