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First Post Treatment Appt.
I saw my RAD ONC today, she said that I look great after the treatments and that there is "no evidence of disease". Of course I know that I must wait for the PET scan for a better defined diagnosis. I will take all good news I get these days. Mike
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Head and chin wrapped
Just wondering if anyone has had this done.My chin and along sides of chin where swollen.Made me look like Fred Flitstone.Was told it was lliquid that forms there and since the lymph nodes would help move it along to other parts of the body.While going to the speach specialist also started to go to a guy and he would…
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TREND SETTERS AT LAST
Well, it has finally happened, we tube feeders in the network have finally become trend setters in the world of weight management! Last night I was sock knocked off while watching the news on WPLG Channel 10 here in sunny/rainy tropical South Florida, when they aired a story about a doc in town who has brought from…
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Anyone had what looked like decay on upper teeth?
Been examining my mouth extensively for months now and just noticed what looks like decay on the bottom edges of my two front teeth. Wierd. Anyone else experience this one? PJ
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Teeth Removal
My radiation and cemo treatment for neck cancer ended about a year ago and I’m now faced with another issue. I broke a tooth in December last year and was going to have it removed along with some other dental work this past January. I was going to start capping some teeth. Well my dentist did not want to pull the tooth and…
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Cured
Just back from the cancer institute. Met with the ENT, he scoped the throat and said it looks awesome, and then said, "your throat cancer is now cured" good words to hear. It's been 5 years since trestment ended (last rad and cisplatin June 17th 2009). It can be done, feeling real good about this, he said to not make an…
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updates
Hello everyone, Well the brother's completed all the tx's. And the peg was pulled today. He's around a month out already. Thrush rears it's ugly head, but the drs. are staying on top of it for him. Now it's healing time. First scan will be in Sept., CT w/contrast. Then a PET/CT 6 mo's out. Wonderful ENT very experienced…
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released by the oncologist
Happiest of news yesterday! Four years after successfully completing what the oncologist called a 'brutal treatment', Jim was released by the oncologist. For anyone starting or working their way through their cancer treatments, we are with you in thought and prayer. Remember, it can be done and we hope for good outcomes…
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New jaw bone not attached
dr Garvey at md Anderson is my plastic surgeon. Heres the current problem. 3 years ago had part of mandible replaced with fibula bone And secured in place with titanium plate, Everything went fine and no cancer so far however. The new bone has not grown together with the original jaw bone. It is at 45 degree angle. It also…
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Checking In
Hi all: Back from NC. I had a good time in spite of the snakes, my mother-in-law getting a bad case of the shingles and having to watch out for the neighbor's dog that has taken to biting if anyone gets too close to her puppies; but other than that it was grand time! As I have mentioned before my mother-in-law does have…
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Remind me...
...to never date any girls named PEG(GY) ever again. The date I had with her on Friday left me extremely sore and tired...and not in a good way...I'm still recovering...
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Antidepressents/anti-anxiety meds....
Is anybody taking these post treatment? I'm almost two years out, and I'm thinking of talking to my Onc about taking something again....I took them during treatment...if they helped or not, I couldn't tell. p
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IMRT Radiation Therapy
In early August, my husband will start 6 weeks of IMRT (possibly proton if the insurance company approves the appeal) of his tracheal area at MD Anderson in Houston. The on-site hotel there does not offer a monthly rate and is $120/night, so I am looking at alternative lodging with shuttle service to the hospital. My…
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Swallowing issues
I was diagnosed with Stage 4 cancer of the larynx Jan. of '13. Did 35 rads plus 3 chemos followed by neck dissection Dec. of '13. About a week ago I noticed my right eye is droopy and speech is a bit slurred because the right side of my tongue doesn't work quite right. Have had trouble swallowing all along. Have been NED…
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mucoepidermoid of the mandible
Mandible. I was diagnosed with mucoepidermoid carcinoma in 2000. I had a malignant tumor in my right mandible. Most of my right mandible was rescected because of the wide margins required. My mandible was reconstructed using my fibula. I'd be happy to talk to anyone facing this type of surgery.
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Chef Daddy Mike
Mike is down and out; he got evicted from where he was living because he could not pay the rent; So on top of all his health issues he is now homeless. I can’t understand how the government can give money and housing to people who should be out working and people who are sick and in need can’t get any help. Please keep…
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Doctors Disagreeing
Today my husband went back to his local oncologist for round 2 of induction chemo and had an upsetting conversation with the oncologist. He made it very clear that he still believes the lungs show disease despite the biopsy done at MD Anderson saying "NO MALIGNANT CELLS IDENTIFIED". He wants to order another biopsy. WTF...…
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Lemons and Lemonade
Started the week off with feeling lonely. Then I had a major crying jag and was praying God would just take me. Then I broke my glasses, was told my closing on condo was postponed for two months and if that wasn't enough, I came home yesterday afternoon to find my house smelling like a sewer. Not just lemons, but rotten…
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Skiffin 16 It is time for an up-date
Hay John it is time for an up-date on how you are doing Tim
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Vacation if Over already
Made it back Wow just came back from a wonderful vacation down in Central American. I stayed two weeks in a Botanical Garden on the Island of Utila in Honduras, what a great place to live. I could not eat the fruit off the tree but did pick the fruit and bring it in my room to blend in my Nutribullet to go in my PEG tube.…
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special care for dental work?
hi, i had 35 rad tx to my larynx which ended 10/22/09. because the larynx is farther down the throat and more away from the teeth, i'm wondering if i still need special care to have a tooth pulled? I'm getting one pulled next Tuesday but was thinking since my teeth weren't directly in the line of rads, i should be ok. what…
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New member
Hi, My dad was diagnosed with stage 4 oral cavity cancer (left side of his face ) with 1 postive lympnodes involvement 2 months ago and he already had the operation that remove the cancer mass and most of his jaw bone (because the cancer mass is already covering his bone) and also remove 3 lympnodes(2 left and 1 right ) 3…
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Lung Biopsy Negative!
Hi All, The lung biopsy done Friday at MD Anderson of the 3-4 masses in his lungs came back negative for cancer!!!!!!!!!!!!!!!!!!!!!!! They said it was some inflammatory process of pnemonia that was of no consequence and they will just watch the areas. (The SUV uptake in those areas was 4.5) They are going to do one more…
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getting voice back after radiation and chemo
How long will it take to have my voice back after radiation and chemo. My radiation and chemo will be ending on July 11. The primary site was the soft pallet and before my treatments started I had surgery to remove all the lymph nodes on the left and some on the right for a total of 75. My mouth and throat is so sore that…
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The Cold Hard Facts
Had a serious conversation with my MedOnc today and it was good to finally let myself ask the hard questions. The deal is, if the spots in my lungs are infectious, the chances of my beast coming back is 60%. If one or more of the nodules in my chest are cancer, the recurring percentage is 90%. The good news is in either…
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A Little Update
Hi Sorry, that i wasn't too active in the fourm these past few weeks but anyway i am here so i decided to update little bit about my dad. He is already in his 13th days of radition and he will start his second round of chemo on the 10th of this month. His mouth is starting to hurt a little and he said that his throat hurts…
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Laryngectomees Heads Up
Hey guys (unigender) it would appear that there are a number of folks here who, like me, are laryngectomees. So, I just want to give this heads up to everyone, in case someone does not know, about the International Association of Laryngectomees (IAL) on the web; and Webwhispers, a daily e-mail forum for larys. The IAL and…
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Lake George
Any good restaurants heading down for the 4th of July
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The beast came by last night...
...and whispered in my ear, "Ever dance with the devil in the pale moonlight?"...to which I answered, "Fred Astaire ain't got nuthin' on me, bring it, ****"...so we had a seven hour Cisplatin marathon today...some salsa, cha-cha, a little merengue, some languid bossa-nova, a torrid tango, and I finished with a flaming…
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Welcome Ajax FC!!!!!
He's here!!! :) . Welcome brother (Ajax FC) I love you and you're gonna be ok.