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special care for dental work?
hi, i had 35 rad tx to my larynx which ended 10/22/09. because the larynx is farther down the throat and more away from the teeth, i'm wondering if i still need special care to have a tooth pulled? I'm getting one pulled next Tuesday but was thinking since my teeth weren't directly in the line of rads, i should be ok. what…
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New member
Hi, My dad was diagnosed with stage 4 oral cavity cancer (left side of his face ) with 1 postive lympnodes involvement 2 months ago and he already had the operation that remove the cancer mass and most of his jaw bone (because the cancer mass is already covering his bone) and also remove 3 lympnodes(2 left and 1 right ) 3…
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Lung Biopsy Negative!
Hi All, The lung biopsy done Friday at MD Anderson of the 3-4 masses in his lungs came back negative for cancer!!!!!!!!!!!!!!!!!!!!!!! They said it was some inflammatory process of pnemonia that was of no consequence and they will just watch the areas. (The SUV uptake in those areas was 4.5) They are going to do one more…
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getting voice back after radiation and chemo
How long will it take to have my voice back after radiation and chemo. My radiation and chemo will be ending on July 11. The primary site was the soft pallet and before my treatments started I had surgery to remove all the lymph nodes on the left and some on the right for a total of 75. My mouth and throat is so sore that…
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The Cold Hard Facts
Had a serious conversation with my MedOnc today and it was good to finally let myself ask the hard questions. The deal is, if the spots in my lungs are infectious, the chances of my beast coming back is 60%. If one or more of the nodules in my chest are cancer, the recurring percentage is 90%. The good news is in either…
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A Little Update
Hi Sorry, that i wasn't too active in the fourm these past few weeks but anyway i am here so i decided to update little bit about my dad. He is already in his 13th days of radition and he will start his second round of chemo on the 10th of this month. His mouth is starting to hurt a little and he said that his throat hurts…
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Laryngectomees Heads Up
Hey guys (unigender) it would appear that there are a number of folks here who, like me, are laryngectomees. So, I just want to give this heads up to everyone, in case someone does not know, about the International Association of Laryngectomees (IAL) on the web; and Webwhispers, a daily e-mail forum for larys. The IAL and…
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Lake George
Any good restaurants heading down for the 4th of July
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The beast came by last night...
...and whispered in my ear, "Ever dance with the devil in the pale moonlight?"...to which I answered, "Fred Astaire ain't got nuthin' on me, bring it, ****"...so we had a seven hour Cisplatin marathon today...some salsa, cha-cha, a little merengue, some languid bossa-nova, a torrid tango, and I finished with a flaming…
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Welcome Ajax FC!!!!!
He's here!!! :) . Welcome brother (Ajax FC) I love you and you're gonna be ok.
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What would you say to a billionaire
What would you say to a billionaire who just got diagnosed??? I thought about this. At first of course I would wish him health and a speedy recovery. Then what??? What would I really say after having lived with this for 15 years Would I tell him how many on this site have survived only to lose everything that they have…
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Neck dissection
had just talked to the doctor today and found out my scans came back and was told that I had limp nodes on both sides of my neck that were border line,The lump was the only other place that showed any signs of cancer,My neck is the only place for reoccurence and the doctor says we still don't know the primary yet,Also…
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The Rolling Green Hills Of Kentucky
Hello, my friends. Just wanted to let you know that I have been in Kentucky with my daughter since June 14. Can't remember when I last posted, but am reading posts & following everyone's journey, old friends & new. I was stunned to see the change in my daughter from a year ago. As I watched Ron slip away, I now watch this…
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Tomorrow's the day...
for my CT scan.....my ear is still tingling and still feels like it needs to pop. This last month has been nerve wracking, since I can never escape "the ear" reminding me that something is different this time around. Asking for good mojo, positive thoughts, prayers.....crossed digits too, if it's not too uncomfortable. You…
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second opinion
well we went for our second opinion and this dr stopped the new chemo right away..said his scan looks good..he is concerned about the one node but said a 6 weeksscan is really early ...but he just wants my hunny to heal and get stronger and get a new scan in 6 weeks and go from there..he felt pretty confident his scan…
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Mike Metzler
Has anyone heard from Mike? He has a site of his own but hasn't posted there since June 19th. Hoping to hear good news on his recovery. He had an infection but at last post was off the antibiotics and taking in soft foods. His drop foot was improving and he was hoping to be in a walk/run over the 4th so was thinking about…
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Eviction
WHere can I go for help? Eviction next week. Been out of work w/out pay since cancer surgery in March followed for 7 1/2 weeks chemo/radiation
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H&N Strikes Another High Profile Person
NEW YORK (Reuters) - JPMorgan Chase & Co Chief Executive Officer Jamie Dimon said he has been diagnosed with throat cancer but that the ailment is curable and he plans to remain actively involved in the largest U.S. bank's business. In a memo to the bank's employees and shareholders on Tuesday, Dimon, 58, said the cancer…
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Back to the grindstone....
All, any thoughts about returning to work? I'm not quite ready to return yet 2.5 weeks post treatment but am planning ahead. Any examples of how long before a staged return? I had neck dissection/tonsil out/3 cisplatin/33 rads. IM very active and eating well. Neck still a bit stiff. I know there will be lots of experience…
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Question about teeth extractions
Hello to all my dad recently went to the dentist because his cap came out. The dentist said he had 2 teeth eroding from dry mouth and that he recommended pulling them. We went to an oral surgeon and he would recommend grinding them down and then leaving them. He did talk about the hyperbaric oxygen chamber but said it had…
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One year....NED
My bloodwork shows that my thyroid is still functioning normalls (for now, they said!) and my chest xrays all came back clear. They have not done any scans and do not feel that any are needed. I feel so relieved! Thank you ALL for your encouragement last year. YOU helped me through!!
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Thursday
This coming Thursday the 3rd July is my next appointment with the ENT at Hershey, will have a strobescope like always and then a meeting with the man. This will be my five year checkup for my larynx. Last July he said if the throat looks the same next July he will consider my larynx cancer to be cured. Throat still feels…
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It is more than cellulitus
Saw new ENT Thursday who delivered not so good news. The fibula they used to rebuild my jaw 2 1/2 years ago is dead. Will have bone scan to see if all or part is bad. It is exposed inside with no good blood supply. Also, my left vocal cord is paralyized. Don't know how long it has been that way. He said they will remove…
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5 Year STGIII Tonsil Cancer ~ Clean and Clear...
Even though I'm struglling from the Whipple.... I just want to ofer encouragement for my fellow survivors, care givers and those battling... I have officially hit the five year post treatment mark... Clean and clear... So even though you may be going through hell, been there, or just starting this journey.... It does get…
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Financial Aid
HOw do patients keep up with bills while undergoing treatment? I had extensive mouth surgery at the beginning of March and 4 weeks later started 7 1/2 weeks of chemoand radiation treatments. All this time I was not paid and it does not look like I can return to work soon. I get medical bills every day along with doctor…
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scanxiety
Well just finished my scans were a CT and a PET scan today.I know that I have a small lump that we biopsied with a needle and found SCC again,Just need to see where the primary is,And that's the scanxiety part now the wait starts again for about 5 to 7 days,Hate the wait.
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radiation Nerve Damage
I have had radiation treaments that ended March 10, 2014, and since then I have had some new problem eveyday day the one I have now, is as long as I'm sitting down it don't happen but sometime I stand up and my legs start jerking and I have to hold on to something before I fall then my hands start jerking and if I I'm…
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FROM NED LAST WEEK TO A NERVOUS WRECK TODAY
Went to see ENT today thinking it was just going to be routine visit since I had just got a NED from my cat scan last week from the radiation oncologist. ENT doesn't like the looks of the right side of the thyroid on the cat scan, says it is larger than the left side. Had an ultrasound today.He discussed all the kinds of…
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NED for my husband
Hi guys, It's been a while. . its almost 2 years since my husband was diagnosed of NPC stage 2. . but we heard a good news from his doctor. He said that my husband has a clear mri result and no mass detected as of May 2014. So they decided to have his next scan after 1 year since after the 3 mri (6 months interval) all…
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ok all you smarty pants!
ok we got results from the scan...here they are There is a mild Asymmetric uptake and tissue thickening in the left hypopharynx extending into the left tonsillar bed. Uptake values of up to 5.3 are seen in this area (previous 11.6) the uptake is not focal and is likely related to prior surgery and radiation. No new focal…