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Swallowing issues
I was diagnosed with Stage 4 cancer of the larynx Jan. of '13. Did 35 rads plus 3 chemos followed by neck dissection Dec. of '13. About a week ago I noticed my right eye is droopy and speech is a bit slurred because the right side of my tongue doesn't work quite right. Have had trouble swallowing all along. Have been NED…
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mucoepidermoid of the mandible
Mandible. I was diagnosed with mucoepidermoid carcinoma in 2000. I had a malignant tumor in my right mandible. Most of my right mandible was rescected because of the wide margins required. My mandible was reconstructed using my fibula. I'd be happy to talk to anyone facing this type of surgery.
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Chef Daddy Mike
Mike is down and out; he got evicted from where he was living because he could not pay the rent; So on top of all his health issues he is now homeless. I can’t understand how the government can give money and housing to people who should be out working and people who are sick and in need can’t get any help. Please keep…
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Doctors Disagreeing
Today my husband went back to his local oncologist for round 2 of induction chemo and had an upsetting conversation with the oncologist. He made it very clear that he still believes the lungs show disease despite the biopsy done at MD Anderson saying "NO MALIGNANT CELLS IDENTIFIED". He wants to order another biopsy. WTF...…
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Lemons and Lemonade
Started the week off with feeling lonely. Then I had a major crying jag and was praying God would just take me. Then I broke my glasses, was told my closing on condo was postponed for two months and if that wasn't enough, I came home yesterday afternoon to find my house smelling like a sewer. Not just lemons, but rotten…
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Skiffin 16 It is time for an up-date
Hay John it is time for an up-date on how you are doing Tim
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Vacation if Over already
Made it back Wow just came back from a wonderful vacation down in Central American. I stayed two weeks in a Botanical Garden on the Island of Utila in Honduras, what a great place to live. I could not eat the fruit off the tree but did pick the fruit and bring it in my room to blend in my Nutribullet to go in my PEG tube.…
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special care for dental work?
hi, i had 35 rad tx to my larynx which ended 10/22/09. because the larynx is farther down the throat and more away from the teeth, i'm wondering if i still need special care to have a tooth pulled? I'm getting one pulled next Tuesday but was thinking since my teeth weren't directly in the line of rads, i should be ok. what…
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New member
Hi, My dad was diagnosed with stage 4 oral cavity cancer (left side of his face ) with 1 postive lympnodes involvement 2 months ago and he already had the operation that remove the cancer mass and most of his jaw bone (because the cancer mass is already covering his bone) and also remove 3 lympnodes(2 left and 1 right ) 3…
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Lung Biopsy Negative!
Hi All, The lung biopsy done Friday at MD Anderson of the 3-4 masses in his lungs came back negative for cancer!!!!!!!!!!!!!!!!!!!!!!! They said it was some inflammatory process of pnemonia that was of no consequence and they will just watch the areas. (The SUV uptake in those areas was 4.5) They are going to do one more…
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getting voice back after radiation and chemo
How long will it take to have my voice back after radiation and chemo. My radiation and chemo will be ending on July 11. The primary site was the soft pallet and before my treatments started I had surgery to remove all the lymph nodes on the left and some on the right for a total of 75. My mouth and throat is so sore that…
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The Cold Hard Facts
Had a serious conversation with my MedOnc today and it was good to finally let myself ask the hard questions. The deal is, if the spots in my lungs are infectious, the chances of my beast coming back is 60%. If one or more of the nodules in my chest are cancer, the recurring percentage is 90%. The good news is in either…
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A Little Update
Hi Sorry, that i wasn't too active in the fourm these past few weeks but anyway i am here so i decided to update little bit about my dad. He is already in his 13th days of radition and he will start his second round of chemo on the 10th of this month. His mouth is starting to hurt a little and he said that his throat hurts…
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Laryngectomees Heads Up
Hey guys (unigender) it would appear that there are a number of folks here who, like me, are laryngectomees. So, I just want to give this heads up to everyone, in case someone does not know, about the International Association of Laryngectomees (IAL) on the web; and Webwhispers, a daily e-mail forum for larys. The IAL and…
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Lake George
Any good restaurants heading down for the 4th of July
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The beast came by last night...
...and whispered in my ear, "Ever dance with the devil in the pale moonlight?"...to which I answered, "Fred Astaire ain't got nuthin' on me, bring it, ****"...so we had a seven hour Cisplatin marathon today...some salsa, cha-cha, a little merengue, some languid bossa-nova, a torrid tango, and I finished with a flaming…
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Welcome Ajax FC!!!!!
He's here!!! :) . Welcome brother (Ajax FC) I love you and you're gonna be ok.
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What would you say to a billionaire
What would you say to a billionaire who just got diagnosed??? I thought about this. At first of course I would wish him health and a speedy recovery. Then what??? What would I really say after having lived with this for 15 years Would I tell him how many on this site have survived only to lose everything that they have…
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Neck dissection
had just talked to the doctor today and found out my scans came back and was told that I had limp nodes on both sides of my neck that were border line,The lump was the only other place that showed any signs of cancer,My neck is the only place for reoccurence and the doctor says we still don't know the primary yet,Also…
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The Rolling Green Hills Of Kentucky
Hello, my friends. Just wanted to let you know that I have been in Kentucky with my daughter since June 14. Can't remember when I last posted, but am reading posts & following everyone's journey, old friends & new. I was stunned to see the change in my daughter from a year ago. As I watched Ron slip away, I now watch this…
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Tomorrow's the day...
for my CT scan.....my ear is still tingling and still feels like it needs to pop. This last month has been nerve wracking, since I can never escape "the ear" reminding me that something is different this time around. Asking for good mojo, positive thoughts, prayers.....crossed digits too, if it's not too uncomfortable. You…
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second opinion
well we went for our second opinion and this dr stopped the new chemo right away..said his scan looks good..he is concerned about the one node but said a 6 weeksscan is really early ...but he just wants my hunny to heal and get stronger and get a new scan in 6 weeks and go from there..he felt pretty confident his scan…
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Mike Metzler
Has anyone heard from Mike? He has a site of his own but hasn't posted there since June 19th. Hoping to hear good news on his recovery. He had an infection but at last post was off the antibiotics and taking in soft foods. His drop foot was improving and he was hoping to be in a walk/run over the 4th so was thinking about…
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Eviction
WHere can I go for help? Eviction next week. Been out of work w/out pay since cancer surgery in March followed for 7 1/2 weeks chemo/radiation
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H&N Strikes Another High Profile Person
NEW YORK (Reuters) - JPMorgan Chase & Co Chief Executive Officer Jamie Dimon said he has been diagnosed with throat cancer but that the ailment is curable and he plans to remain actively involved in the largest U.S. bank's business. In a memo to the bank's employees and shareholders on Tuesday, Dimon, 58, said the cancer…
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Back to the grindstone....
All, any thoughts about returning to work? I'm not quite ready to return yet 2.5 weeks post treatment but am planning ahead. Any examples of how long before a staged return? I had neck dissection/tonsil out/3 cisplatin/33 rads. IM very active and eating well. Neck still a bit stiff. I know there will be lots of experience…
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Question about teeth extractions
Hello to all my dad recently went to the dentist because his cap came out. The dentist said he had 2 teeth eroding from dry mouth and that he recommended pulling them. We went to an oral surgeon and he would recommend grinding them down and then leaving them. He did talk about the hyperbaric oxygen chamber but said it had…
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One year....NED
My bloodwork shows that my thyroid is still functioning normalls (for now, they said!) and my chest xrays all came back clear. They have not done any scans and do not feel that any are needed. I feel so relieved! Thank you ALL for your encouragement last year. YOU helped me through!!
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Thursday
This coming Thursday the 3rd July is my next appointment with the ENT at Hershey, will have a strobescope like always and then a meeting with the man. This will be my five year checkup for my larynx. Last July he said if the throat looks the same next July he will consider my larynx cancer to be cured. Throat still feels…
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It is more than cellulitus
Saw new ENT Thursday who delivered not so good news. The fibula they used to rebuild my jaw 2 1/2 years ago is dead. Will have bone scan to see if all or part is bad. It is exposed inside with no good blood supply. Also, my left vocal cord is paralyized. Don't know how long it has been that way. He said they will remove…