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Diagnoses
1. for the first time I got a diagnoses on paper from the onc.......it says T1,N2b squamous cell carcinoma of the right tongue base treated with primary surgery and adjuvant radiotherapy completed Oct2013 3 cancerous lymph nodes. 2. hypopharyngeal/cricopharyngeal narrowing post radiotherapy can anybody translate this for…
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Update - "Carniofacial Resection" very soon
Hello all, The decision is made, i will be doing a surgery soon "Carniofacial Resection" since this is the best option to remove those stupid 2 cm that are stuck at the buttom of my frontal left skull (in few days the doctor will assign the date of the surgery) Its a minimum 8 or 9 hours surgery, 1 week recovery in the…
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skiffin16
was just wondering how is John doing these days is he out fishing?Hope he is feeling better,If anyone hears from him tell him to have a great Day.
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Encouraging news on HVP related cancers
Probably most of you have heard the news about the clinical trial using targeted T-cell therapy on a young woman with advanced HPV caused cervical cancer that had spread throughout and was threatening to cut off her windpipe. She and one other person out of 9 had a positive response and is in remission now and one other…
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warm salted water vs mouthwashes
Hi, I have a query about the best way possible to keep my mouth clean and possibly avoid sores if I can. I have noticed through reading posts that many of you use mouthwashes ? Here in Australia certain mouthwashes, the most common brand was linked to mouth cancers, being listerine, but apparently any alcohol based one.…
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Leaving Soon
Hello All, Please forgive me if I have posted any of this before. My mind remains in a whirlwind. I am leaving in a couple of weeks to stay with my daughter for a month or more. I have sadly completed the sale of our cabin and after taking care of major financial issues here, will be on my way. She is not doing well. She's…
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Tightness of upper chest area after lymph gland removal
Has anyone ever experienced persistent tightness inneck area after lymph gland removal? If so, what makes it go away?
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Florida Lauderdale
Any suggestions of good restaurants in the area we go to aruba that is in lauderdale on the beach heading down soon ........
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Radiation Therapy mask made for me today
Hello there, Today I had a ct scan , radiation mask made and an mri done. Its inching closer to the start of my treatment in just over 3 weeks. It was so overwhelming today wearing this mask , I think they added some other things around or near on it and strapped my waist. Going into the mri tunnel with all that on, was…
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About to Start Unusual Treatment Plan: Questions
Getting ready to start my treatment plan on June 8the for tongue cancer. First, some background info. Had lateral tongue lesion surgically removed in Sept 2013. Clear margins. Neck dissection to check for lymph nodes, Oct 2013, all clear. One lymph node lit up and another neck dissection, January 2014. Removed node and…
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Connie needs your help & Support
To all my friends on this network, I do not come around as often as I did when Connie was really sick although as most of you know this disease always keeps a person on edge even when the scans come back clean. Connie has been out of treatment since 2011 and she had her feeding tube taken out in early 2012. We really could…
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Mouth exercises
After surgery in upper jaw area (Trigonal area) mouth no longer opens fully. Any exercises to widen openiing back to normal?
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Has anyone had this?
The left side of my tongue rapidly pulsates. I can't feel it moving but can see it in a mirror. If memory serves me right, it happened before and resolved itself. My dentist thought maybe damaged sensory nerves trying to reattach. Since it has been going on 2 weeks now, my speech is not as clear and on rare occasion water…
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GoodMorning
Good Morning Hope Everyone Has A wonderful Day Or At Least try's To Sending happy Thoughts Your Way.................I Have A dentist app This Morn I hate Going To The Dentist............................................
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Endoscopy
had an endoscopy this morning for second try to open my blockage. No luck again, next stage they will put me out and go through stomach and up to blockage guided by X-ray. If that doesn't work next step surgery. I don't fancy more X-ray seems I've had more than my share lately. It would be nice to eat and drink properly…
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My Introduction & Sharing About Squamous Cell Carcinoma
I officially became a member of this club two weeks ago when I was diagnosed with Level 1 Squamous. A few notable and relatable things are that I am a 60-year old man. Okay, TOMORROW I will be 60. I am a survivor of non-hodgkins lymphoma as of 2006. I quit smoking in 1991 and to say I drink alcohol lightly is putting it…
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All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
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Update
Had a scope done by my oncologist on 20-May-2014, during my regular follow-up (done every 4 months, and from now every 6 months). I am at 1 year 9 months post radiation and 1y 6m post last chemo treatment for NPC. Everything looks OK. No imaging done though (as per Hospital’s policy), so I can’t possibly know if anything’s…
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Insurance woes....****UPDATE****
Back in January I had an MRI (I had to go to a hospital out of town because the local imaging center wasn't in the network)...the scan was denied by the insurance company as an "unneccesary procedure".....I went through the Oncologist's office and got that straightened out, and in February I received a letter from the…
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It's not cancer till the doc's say it's cancer. Well, they said it's cancer+UPDATE of UPDATE
Went in this morning to have a 1.4 cm lesion removed along with half my thyroid. They did a quick check of the tissue in the OR and found some cancer cells. The surgeon, who told me before the surgery that if it was positive was going to take the whole thyroid. Well he didn't. He felt that the margins were firmly defined…
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How do I check in on the 2014 roll.
I'm 3 years cancer free but I do not know how to add my name to roll call
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Back From The Doctors
I just got back from my E.N.T............. He sprayed some funny stuff in my nose and kinda froze me hate that stuff 30 buks later.....he put this long thing up my nose He said my tonsil were good and didnt see anything down my throat out of the normal and told me he thought the iratation In my throat was due to alergies…
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1 Year NED - UPDATE
Just a quick note to say I've been given the great news of being NED one year post treatment by my ENT/Surgeon. I have an upcoming appointment for a swallow study, blood work and visit with my MO but I expect all will be well. The side effects, while many, are managable. Keep up the good fight! Positive thoughts and…
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week #4 into tx's (brother)
Hey everyone, Wanted to update on my brother. He's having issues with a low white count so no chemo this week. Rads. continue. On the nystatin for thrush, so of coarse they increased the pain meds for awhile. Just starting to notice spices hurt....as is temp of foods and swallowing is getting a bit rough. I had told him…
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Stupid Chatroom
I downloaded java and chat is still not working go figure.....................................
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CAN NOT BELIEVE THAT SOMEONE WOULD POST THIS IN MY PRIVATE MESSAGE
Dearest one, I do sincerely apologize for my intrusion of your privacy here in this wonderful site, I have a serious concern with which I believe you might be of help and for this reason, I cannot but reach out to someone. My name is, Mrs Sarah Duke. A Nationality of Finland I am married to late Mr. David Duke, who worked…
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Aggressive Tongue Cancer Surgery
Good Morning, I have been off and on this board since 2008 when I was first diagnosed with tongue cancer. I have had chemo and radiation and then 3 surgeries to get rid of 'small' cancers on the tongue. I had a biopsy last Friday and a CT scan. The surgeon is pretty certain the cancer is back and this time I will need…
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Sour sop
Just read an article on the Glaviola....Sour-sop fruit. It says its a natural cure for cancer...anyone heard of it?
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NPC treatment longterm side effects
Hello gentle folks, It's been a while since I posted on the forum. I have checked it out only a couple of times lately. Hope all of you are doing fine. It's been 2.5 years since my treatment ended for T2-N0-M0 NPC. I am happy to report that I am still in remission. However, I have been experiencing some side effects of the…
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Prayers Needed
My Dad "HAWVET" has been in ICU for 4 nights and needs your prayers. From his daughter, Shirley