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Mid May health Update.
Update to my health status: Because not all of my friends and family are on csn I may not always post here Solution: I do have an email that I sent out with updates. If you would like for me to email you as well, please PM me with your email address. your email will be private and not shared or shown to anyone else, not…
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Paranoid in Montana.....
I've been freaking for about a week.....and can't seem to contain it to myself any more. I went to the Oncologist on May 22....all was fine....the same ol, same ol......decided to wait till August for another MRI. Then, 4 days later my right ear (that actual ear) started tingling....pins and needles, without stop. Strange…
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Weight gain difficulty
Please feel free to chime in or add your experiences in regard to gaining weight after treatment for NPC or any forms of head and neck cancer. I am about a little over 6 months out of treatment with 3 Chemos and 33 Radiations. Able to eat but struggle (manageable) with swallowing. Have been eating burritos, hamburgers,…
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Phrannie51
Good news I spoke to my hubby's colleague went through the same thing had the same feeling was worried to death went to her ent and it turned out to be the effects of the rad and chemo she is going on 15 months clear I spoke to her today she also had tinnitus before cancer soo try not to worry to much hang in there
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First scan after RADs
Gabe had his first scan post treatment on Friday. That was one of the longest weekends off my life waiting for those results! The Dr found some lumps on his opposite jawline from where the cancer was originally found so we decided to have the scans done a few weeks early. We are scheduled to head back to Houston the third…
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What changes did you make after treatment to improve your chances of cancer not returning ?
Hello there, I had my dentist today to see if they were taking any teeth out ready for my radiation treatment. Thankfully I get to keep them all. I am soo happy for once that something is in my favour. Speaking with the dentist, she said I have to take special care of my teeth because radiation can weaken them and muck…
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Docs app't result
At last found why I am so tired and breathless, it was the thyroid under active. The doc was smiling when I went in so I knew he had found something. he said it jumped out of the screen at him. I've been put on a low dose of Levothyroxine, he said I should respond quite quickly. I do hope so because I've felt so listless…
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Update on jaw resection
My jaw resection was 4+ weeks ago, and so far it's been a mixed bag to report. The good news is that the main surgical site appears to be healing well, as is the 'donor' site on my left leg where they took the skin and bone for my new left jaw. On the other side, I had some complications that have caused me to need a lot…
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Gum cancer in the jawbone 3 years out from treatment I'm here if u have questions
I don't get on her often but my email is debi16043@gmail.com for those out there with questions. I periodically post this and some have contacted me in the past with their questions. I am 3 years (June 15) post surgery, had fibula removed from leg to make my new jaw bone. I had stage 4 scc. Lymph odes all removed on…
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MuGard Feedback Please
I'm going to start treatment on June 8th. I asked my doctor to order MuGard for me and expect to get it on Friday. I've read that some have used MuGard to help with mucousitis. I'm interested in learning about your experience using it. Did it help? How and when did you use it? How many times per day? My understanding is…
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Docs tomorrow
had ECG and blood test on Mon, Doc rang yesterday wants to see me. With luck they may have found why I get breathless walking up stairs and slopes and feel tired all the time. They did several tests including thyroid. Several of you recommended to get a thyroid test. Fingers crossed they have found the cause now I may be…
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Titanic plate used in jaw replacement is broken
Md Anderson dentist x-rayed my jaw last month because my jaw isn't lining up correctly and she discovered my plate has been broken in two places. Anyone else have this happen? She seemed surprised surgery was just 3 years ago. debra
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Skiffin ~ 19MAY2014
Just a quick note... I didn't have an infection which is good... I still have two drains that are putting out about 1 - 2 Oz of gunky fluid that smells terrible, and they leak where the tubes are stitched and tied into my belly... Hopefully they will get these sealed off soon..., kinda demoralizing have crap leaking out of…
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four years out from diagnosis
Four years out from a late stage hypopharyngeal cancer diagnosis, Jim got an all clear from his ENT. This is rare for this kind of cancer so we are very happy with this report and hope others find the news encouraging. Remember: it's not cancer until they say it is cancer and, even then, statistics are just that. Keep…
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Starting the Journey
My husband just received his tongue cancer stage IVA diagnosis three weeks ago and we still have until June 9 before treatment starts. Up until I found this site, we felt so helpless and alone...just reading through some of the contributions from other people going through this process at various stages, gives us strength.…
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Diagnoses
1. for the first time I got a diagnoses on paper from the onc.......it says T1,N2b squamous cell carcinoma of the right tongue base treated with primary surgery and adjuvant radiotherapy completed Oct2013 3 cancerous lymph nodes. 2. hypopharyngeal/cricopharyngeal narrowing post radiotherapy can anybody translate this for…
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Update - "Carniofacial Resection" very soon
Hello all, The decision is made, i will be doing a surgery soon "Carniofacial Resection" since this is the best option to remove those stupid 2 cm that are stuck at the buttom of my frontal left skull (in few days the doctor will assign the date of the surgery) Its a minimum 8 or 9 hours surgery, 1 week recovery in the…
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skiffin16
was just wondering how is John doing these days is he out fishing?Hope he is feeling better,If anyone hears from him tell him to have a great Day.
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Encouraging news on HVP related cancers
Probably most of you have heard the news about the clinical trial using targeted T-cell therapy on a young woman with advanced HPV caused cervical cancer that had spread throughout and was threatening to cut off her windpipe. She and one other person out of 9 had a positive response and is in remission now and one other…
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warm salted water vs mouthwashes
Hi, I have a query about the best way possible to keep my mouth clean and possibly avoid sores if I can. I have noticed through reading posts that many of you use mouthwashes ? Here in Australia certain mouthwashes, the most common brand was linked to mouth cancers, being listerine, but apparently any alcohol based one.…
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Leaving Soon
Hello All, Please forgive me if I have posted any of this before. My mind remains in a whirlwind. I am leaving in a couple of weeks to stay with my daughter for a month or more. I have sadly completed the sale of our cabin and after taking care of major financial issues here, will be on my way. She is not doing well. She's…
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Tightness of upper chest area after lymph gland removal
Has anyone ever experienced persistent tightness inneck area after lymph gland removal? If so, what makes it go away?
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Florida Lauderdale
Any suggestions of good restaurants in the area we go to aruba that is in lauderdale on the beach heading down soon ........
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Radiation Therapy mask made for me today
Hello there, Today I had a ct scan , radiation mask made and an mri done. Its inching closer to the start of my treatment in just over 3 weeks. It was so overwhelming today wearing this mask , I think they added some other things around or near on it and strapped my waist. Going into the mri tunnel with all that on, was…
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About to Start Unusual Treatment Plan: Questions
Getting ready to start my treatment plan on June 8the for tongue cancer. First, some background info. Had lateral tongue lesion surgically removed in Sept 2013. Clear margins. Neck dissection to check for lymph nodes, Oct 2013, all clear. One lymph node lit up and another neck dissection, January 2014. Removed node and…
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Connie needs your help & Support
To all my friends on this network, I do not come around as often as I did when Connie was really sick although as most of you know this disease always keeps a person on edge even when the scans come back clean. Connie has been out of treatment since 2011 and she had her feeding tube taken out in early 2012. We really could…
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Mouth exercises
After surgery in upper jaw area (Trigonal area) mouth no longer opens fully. Any exercises to widen openiing back to normal?
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Has anyone had this?
The left side of my tongue rapidly pulsates. I can't feel it moving but can see it in a mirror. If memory serves me right, it happened before and resolved itself. My dentist thought maybe damaged sensory nerves trying to reattach. Since it has been going on 2 weeks now, my speech is not as clear and on rare occasion water…
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GoodMorning
Good Morning Hope Everyone Has A wonderful Day Or At Least try's To Sending happy Thoughts Your Way.................I Have A dentist app This Morn I hate Going To The Dentist............................................
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Endoscopy
had an endoscopy this morning for second try to open my blockage. No luck again, next stage they will put me out and go through stomach and up to blockage guided by X-ray. If that doesn't work next step surgery. I don't fancy more X-ray seems I've had more than my share lately. It would be nice to eat and drink properly…