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PEG tube feeding question - 8 oz. bolus anyone?
Hi everybody! First, I wish everybody here as good a recovery as I have been blessed with. I'm sure my "problem" is insiginificant compared to almost everybody here, but it is important to me. I went through the entire chemo/radiation treatment for cancer at the base of my tongue almost three years ago. Complications from…
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Tooth Extraction Protocol
I have read many posts here and elsewhere regarding the fact that many people have had to have teeth removed before radiation treatment. Some people not losing any, and some losing all, and others varying numbers, "before" rads. Is this the norm in American oncology treatment pre-rad? The protocol here in Canada, as I…
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i need information about the effects of radiation
Hi.. I am new here and have read posts and comments all afternoon. I hope someone can help because we are scared and dr doesn't seem to have any answers. My husband was diagnosed with nasopharnal cancer in Jan 2013. It was in both neck nodes. We thought he had strep. He has gone through radiation and chemo. He had the peg…
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has anyone lost thir voice post treatment
Just wondering if anyone else has lost their voice post treatment? I am two years post treatment and just lost my voice a couple of days ago. Robert
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trach tube removed
Last Friday the doctor finally removed the trach tube.I asked how long do I need to keep the gauze covering it he said about week.I have been changing it everyday but the thing is it hasn't closed up like I thought it would.Do you keep the it bandaged or just leave it open now and see if it closes as it is more exposed to…
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Not Sure
Not sure if I should go back to my ent .......I still have a raw burning sensation on the left side of my throat I feel when I have a coffee its worse he sent me for one of those acid reflux test I have not gone yet ...when he scoped me he didn't see anything out of the ordinary....Hmmm…
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Mucoepidermoid Carcinoma Palate Low Grade - Help
Hi! I've been diagnosed with Mucoepidermoid carcinoma involving the minor salivary glands on the palate. Had a surgery 20 days ago to remove a lump on my right palate (1.4 cm) which turned out to be Low Grade Mucoepidermoid. I've been told margins were free and I don't need any radiation or Chemio. But I'm very scared and…
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Titanium Plate after mandibulectomy
Hello, I have a titanium plate in my lower jaw due to an inadvertent fracture of my jaw during the removal of the tumor My tumor margins and subsequent lymph nodes removed were clear, so thankfully, I did not need radiation. Is there anyone out there who can share with me how the plate has affected them? I know I am very…
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Wondering if it has happen
Hi guys just wondering if this happened .When they operated they took part of the tounge then graphed mucle from my thigh to rebuild tounge.As they did they tied it to bottom of jaw.Now for the question.When I seen my doctor last friday and he finally pulledthe trach tube we started to talk about getting teeth.He said lets…
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The new normal ?
Hello, I havent posted very much lately. I am actually finding it difficult to stay on these sites and read the posts. So many of you having so many struggles during and after teatment. At times these posts do scare me and makes me wonder how am I going to cope, treatment starts on the 23rd. I know I just want to go back…
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Metal plate
I had partial removel of my left lower jaw bone removed because of cancer a metal plate was put in. Now the plate is broken and will be removed. HAS this happened to any one else out there.
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tx's done on Friday (brother)
Hello everyone, Well he's finished as of Friday morning and doing very well. We had one major set back last week. His blood panels had been off (chemo and hydration issues). The magnesium level was at danger level (way too low) so through the IV they gave him a supp. But it was as with other meds suppose to take time and…
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Next step
Jury still out but now I know, a worst case scenario would be doable :-) This suspect lymph node (and Don, sorry don't see SUV anywhere), is now going to get fine needle biopsy. It is too small (less than 1 cm) to meet criteria for cancer and doctor can't feel it even though knows it is there. Just behind collar bone. If…
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Had 5 cavities filled yesterday
All went well. I chose to try it without novacaine as my dentist said the cavities were not deep and were near the bottom of my 4 front teeth and top of one lower tooth. I cranked up tunes on my I-phone so I would not have to listen to the drill and distracted myself. I could still hear my dentist huming and tapping (he…
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neck disection
FIrst post so be gentle. HAd lymph nodes on both sides removed as precaution, after biopsy this procedure was proven to be not required. This was 3 weeks ago, very numb in neck chin throat and left breast/ chest area . Also terrible irritation similar to prickly heat. Doing physio as recommended but irritation is almost…
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Check in + vocal cord rad treatment info (for others in my boat)
Hi all, Just wanted to do a check in with progress, mostly for any others that come along afterwards in my boat. I've had a hard time finding info on people with vocal cord cancer and what their treatments were like. I've got stage 1 squamous cell carcinoma, vocal cords, treatment plan is radiation only. For those who like…
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Lotions and Potions
Folks, the dreadded rash from Eributux has showed up. What lotions did you all find sucessful. I know to us mild soap and not scrub them. Thanks, Joe
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USA
FRIENDS, I know this is not on topic but I should just like to wish USA the very best if luck tonight, G.
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dose ear tubes hurt to get put in
HI all i hope everyone is good and well I have a ? im still having trouble with my ear I had prednisone but it helped a little I might need the ear tube they said they will cut my ear and i will be woke is this painfull?
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Side Effects from radiation
Hi all, I'm excited to say that I just became a member of CSN today. I have read some of your stories and know I will learn alot from all your experiences because I do have questions that only you guys can answer. First, briefly about me. I was diagnosed with Squamous cell cancer on the floor of my mouth in Sept of 2013…
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PET result
Interval resolution of previous areas :-) However...always that damn however...slight uptake in right supraclavicular lymph node. (Collar bone area) What that means...another CT scan this Wednesday. Really, is the insurance going to buy into a CT last Thursday, a PET Friday and another CT Wednesday?Doc claims CT last week…
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On the road again...
Well folks, H&N Squamous part duex began today. I had radical neck dissection on the left side with a thyroidectomy two weeks ago and today we started 18 weeks of chemo. Three rounds of Carbo/tax/eributux and then 15 rounds of eributux alone. We took a CT (from abdomen to neck) on Monday as a bench mark and nothing showed…
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Fingers crossed
Just finished 35 radiations over seven weeks and three chemo treatments over the same period of time with infusion of cisplatin. all the tumors appear to be gone this includes one or two lymph nodes and one at the base of my tongue. My radiologist believes that the cancer is now gone but we won't know until the pet scan in…
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Olfactory neuroblastoma... Plz help
I checked my husband MRI last night and this what i found Heterogeneous tumor along both sides of cribriform plate with solid and cystic component as described above. The appearances favor an olfactory neuroblastoma/esthesioneuroblastoma. Neurosurgical consultation and further evaluation with MIBG scan is recommended.…
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Thyroid?/Update 6-18-2014
First off how is everyone doing this Fathers Day?Hope everyone is fine and having a good time,I was going to post a new thread about the thyroid gland,Went in Friday to have an ultra sound done on my thyroid and during my check up the Lady running the ultra sound was stopping frequently and marking small dark spots here…
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Peg insertion tomorrow :-(
Hi there, I am very very nervous. It is now 11.50 pm and I am going to be at the hospital tomorrow morning at 7.30 for peg insertion, think I am the first of the day. I am extremely nervous. Then 1 more week and treatment starts. Its now becoming real. Robyn
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Took another step
Hey gang Took another step in my recovering.Seen my Dr and he finally removed the trach tube.What a break that was.He said to keep it covered for about a week and to press my finger over as I speak,cough,or sneeze.Seems like my swollowing is a little better also.Maybe someone has gone though this or knows something about…
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Thinking of you, Candi....
I am an idiot....I thought today was Friday (this is what retirement has done to me...I don't know what day it is!!).....But at least you know I'm thinking of you, even on a Tues.... It is Tues, isn't it? p
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CT Scan...
I have myself completely freaked out. I did my 18 month CT scan Tuesday night after work. Dr says she does not have the results back yet. All prior scans were back within 24 hours. I have myself convinced that something showed up thus creating a delay. Ugggg. Wish I could do something to calm myself down. Now I will have…
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Well, that escalated quickly. How to manage pain when swallowing?
Hi all, I posted in another thread on Thursday about having a 'lump' in my throat feeling while eating. Well, now it's very painful to swallow anything. Water, ice cream, doesn't matter, anything that makes me do a swallowing motion is very painful. I can get food down fine but it just hurts like a bugger. I think it might…