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I am A Newbie
Seems Like A nice forum I havent gotten thrown off yet.......I am pretty worried that I mite have tonsil Cancer ....I havent been dx Yet have to go see my ent in 10 days...it started back In March I woke up with a severe Sore throat .....so instead of waiting 10 hrs at the clinic I decided to take some amoxil I had In the…
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update on brother...more good news to add ! 5-18
Hey everyone, I want to thank the entire board for the wonderful information I have been able to share with my older brother and his wife. He's 2 weeks into tx's. So far very minimal side effects. The worst so far has been hick-ups that lasted 12 hrs. after the first chemo tx. They did give him meds before hand and after…
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GoodMorning
Hope Everyone Has A Great Day ............And Always try to stay Positive ..............................
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Goodnight
Hope everyone had a so so day or a great day tomorrow is always a new day...................keep positive
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Thankyou Sooo Much
I am so thankful for all the people who responded to my posts in an upbeat fashion and wasnt rude and try to throw me off this site.....what ever my results are I have decided to stay on here anyway to help and support others......So Thanku Again to all of you who posted and gave me words of encouragement…
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Bad day in the grief department
Yesterday was one month since Jim has been gone and I am really depressed today. The depression came on slowly since Friday evening when I heard that the condo my son and I were planning on buying had a contract on it. Then a festival I worked hard to produce quilts to sell at was a bust, I made a whole $8 which didn't…
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Back from surgery
well, the worst looks to be behind me but still a very long to a full recovery from my jaw resection. 12 hours in surgery, 3 days iin an induced coma, 3days in IcU, 3days And counting on apost surgical floor. I hope to be home on Tuesday. Then 4-6 months to a full recovery from ORN.
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Prayers for sister and checking in
Soon will be a month since Jim died. I think I am still numb most days, with little breaks in the numbness where I can feel. That was until Monday. On Monday I cried most of the day. I just had this profound sadness. It does help to come visit this Board and encourage all who are facing new diagnosis or after effects of…
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For those in treatment
suffering from mouth sores....a new product (I heard about it on the Oral Cancer site on Facebook).....a dental professional on that site sent free samples to anybody who wanted to try it....and from the sounds of it, this stuff works....(and now I'm wondering if it might have a bit of the same "deal" going as MuGard did…
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web site for Tube Feeding Foods
I saw this on FB and wanted to share for those who are on tubes. if you check it out, let us know what you think. http://real-food-blends.myshopify.com/ dj
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Curious
Was reading a few threads and has I am understanding chemo is not for tonsil cancer only radiation is this true
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coughing up the mucus
Hey guys..went to the doctor today and everything is healing nicely.He probed around tounge then down throat and send looks good nice and pink.Wants me to start to eat more and move towards alittle solid.He also wants me to try to keep my trach capped all the time and to beabe cough up the mucus and next month he finally…
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John (Skiffin) Update of 5/16/14
Just a quick update on our bud, John. He coninues his recovery, but has developed some sort of infection that they are culturing so they can find the right antibiotic. in the meantime, he has been suffering with bad bouts of nausea and just generally feeling poorly. So, continued prayers and good mojo requested. We need…
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Can you open your mouth?
I am 2 years out of treatment for NPC and still can't open my mouth big enough to eat a sandwich. I was aware trismus comes with the rad treatmeant so I exercise daily with a TheraBite device but not really helping much. My question is if I need a tooth pulled how does the dentist extract it when I can't open wide enough?
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I am still here
I just celebrated two years without David and my second anniversary would have been on Monday. Each day without him is getting a bit easier. For those who haven't heard I moved to Lexington, KY. Wells Fargo did indeed foreclose on David's home; however, God provided for me. My new home is smaller, but it is perfect for me.…
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hey Guzzle and thennies61
yall are getting close to being finished with radiation right? been praying for yall...i am sure there are more but you two for some reason have been on my mind..my hunny finished friday and is on the way to recovery..odd to have 3 weeks off...before we have a dr appt...seems like we have lived there since January! touch…
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Update - scan results
Hello all, hope you are all doing well :) Happy Mother’s day to all mums here, even if it’s a bit late. Good news: The PET scan, CT scans, MRIs all came clean no other tumor anywhere else :) Bad news: the bad news is that i still have 2 cm of tumor at the skull bottom, still didn’t memorize the exact medical name of the…
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Jawbone Replacement due to disintegration of radiated jawbone
I have done tons of research on the best doctor and the best medical facility to have this procedure done. I have very strong opinions about this but hoping not to offend anyone would be willing to share them if there is interest. I was initially diagnosed with Stage 4 oral cancer of the tongue in 2002, I have had 5…
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"Blue" Day Today
Hello All, I am still here in the shadows watching over each of you. Today was a rather "blue" day for me as I recalled what I was doing on this day last year. Tomorrow at 9:17 AM, it will be one year since my wonderful Ron left on his final journey. I have to believe he reached his destination. This last year has probably…
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Neck stiffness
Hello everyone. Has anyone experience neck stiffness with muscles being very tight like beef jerky? Any advise or solution to the cure or management? Thanks. PM
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Teeth
I went to the Dentist today for a cleaning, and mentioned that I'd noticed part of a problem tooth appeared to be gone. Yep- another Crown at $957 is in the works! And they're talking about the need for 3 more Crowns! Yikes! I did some figuring awhile back, and by my count this next Crown is gonna put me up to the $8-9K…
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side effects of erbitux
Hi guys Only two more days of radiation and done and 4 weeks of erbitux.Anyway over the last week or so started to get what I thought was acne on the back of my neck.But seems that my trach coller has rubbed it.My speach specialist looked at it and took a pic of and went and seen the nurse that works in the wound division…
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Just a quick Hello
I'm 5 weeks out from a total knee replacement , all is going well, PT 3 days a week...since my office is quite a drive away my surgeon only wants me to go in 2 days a week for 4 hours each day, the other days I work from home. I started back to Crossfit today, baby steps , mostly upper body, I forgot how amped I get…
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IMRT for 82 yr. old Mom
My Mom has been diagnosed with scc oral cancer (after finding some red sores in the back of her mouth where her back teeth use to be) biopsy and ct scan determined it was Stage 0. Surgeon wants to do the fibular flap surgery, Rad oncologist wants her to get 30 treatments of IMRT. He feels certain this will get rid of the…
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Radiation & Teeth Hyperbaric Oxygen
my treatment starts in June 8th. They are telling me it will be 5 days in patient, 9 days home which will repeat 4-6 times. I'm not sure which it will be but am hoping for 4 cycles. So, total is 8-12 weeks. Chemo each day and if it's 4 cycles, rad 2x per day. If it's 6 cycles, its rads 1x per day. If I'm correct 30-40 rad…
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PEG feeding tube
I was refused MRI scan because I have a feeding tube. I thought it was all plastic but was told there may be metal on the inside. My tube is all plastic outside with a white triangle with a blue clip against my stomach with a plastic pipe coming out. I don't know what is inside. Is there anyone who knows the answer. I have…
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Happy Mothers Day
On this special day, we should spend a few moments to remember and give thanks to the many moms on this forum. There are many Mothers Day songs, but looking at another direction, I think the below song is appropriate for this occasion. http://tiny.cc/hm9nfx Although it was meant for the man above, the first verse can also…
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Skiffin Update 5/7/14
Well John is having a bit of a hard time getting comfortable at home. He has had a fever (got antibiotics for that); has had some acid reflux issues (got meds for that), still having some nausea. This was major surgery so it is going to take a while to get his old abi-normal self back. So... some more good mojo is needed.…
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Benzymadine/Gelclair
Friends, end week three and bit of a sore throat. Been issued with co codemol (don't need just yet) but also benzymadine and gel clair which are a mouth wash and something that put a coating on your mouth for ulcers. Any knowledge of these products? Cheers, G.
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Symptoms after tumor removal
My Brother-in-law had an extraction surgery about 3 weeks ago. He was able to begin eating and chewing food in the last 8-9 days. When he chews he is getting a shooting pain that goes from his ear into his jaw. The pain starts just before he puts offd in his mouth and stops about 8-10 min. into eating. It is on the side of…