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mouth sores and swollen neck
I finished Chemo and Radiation Therapy about 2 months ago. About 2 weeks ago my throat has gotten swollen around and below my adams apple making it a challenge to swallow. It doesn't help breathing much either. I am wondering if anyone else has experienced this? I am wondering if it might be Lymphadema. Any input would be…
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Joining the Tonsillectomy Club and the Triple Endoscopy Club
Hi, I guess I dont have an unknown primary anywhere. They did see the pyriform tumor and then my PET scan lit up my left tonsil and something in the base of my right tongue. My lymph node was on the left. So tomorrow they are going to do the surgery. Then they think they want to do concurrent rad and chemo, only doing a…
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I am Starting in our Week Three
It appears like it's beginning to get interesting. I was doing effectively until a couple of days ago once the mouth sores arrived in a significant way. One i'm all over this the roof of my mouth has been excessively painful for a coupoe of days. [Content removed by CSN Support Team]
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Lymph Node biopsy...
Remember the enlarged lymph node from my MRI?? Well, today I saw the ENT, and it's gotten larger...not much, just larger....so he felt we should biopsy it. Now I have to wait a week to find out the results. Oh brother....pray for me, guys....you know I'm no good at the waiting around part of anything. p
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Thoughts and prayers...........
In the two years I have lost how many I tell someone you are in my thought and prayers. It is true you really are, but the list has gotten soooo long I just hold up the pages and look up and quietly say, you got this right. With this site and the many people I have met here you all feel like family. So many that have been…
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Just diagnosed with OSCC, 30 yr old, looking for advice on care
received tongue biopsy results Thursday that I have squamous cell carcinoma of the tongue. Had a CT scan which showed that it has not spread to lymph nodes. My best estimate is the spot on my tongue is 2 CM and about half way back on the riget side. So just self diagnosing I would say I'm a Stage 1 or at worst Stage 2. I'm…
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NPC with adjuvant therapy
I was diagnosized with NPC stage IV on July and still in treatment. My family and I was shocked and thanks to God I found this site and noticed a lot of NPC servivors. I got motivated to fight this desease! I have a question need you help. My medical oncologist suggested cocurrent chemotherapy but without adjuvant chemo.…
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NPC Survivors
Hi, My husband finished up chemo/radiation treatment for NPC stage IV over 2 months ago and are are anxious for the 3 month mark to do the PET and CT scans to see the results of the treatment (he only had one CT scan during the treatement - and it was at the half way point). He still has some of the same symptoms he had…
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New here;husband has nasalpharyngeal cancer ;can someone relate?
Hello All, My husband has recurrent nasalpharyngeal cancer after being recovered for four years. He is undergoing chemo and radiation. I believe he needs support from someone in his age group( he is 44). I want to offer him suggestion of viewing this site. Although Im sure any cancer patient can relate to him, he seems to…
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3 Years NED!
I just wanted to share with everyone that Kreg had his 3 year checkup yesterday and was told another NED! We feel blessed and thrilled! For any of you who may be new, this was Kreg's diagnosis and treatment plan: Noticed a lump on left side of neck end of June 2012. Doctor treated with antibiotics. No effect. Went on to…
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Celebrating victories
When my husband finished his 35th radiation treatment I wanted to celebrate in a special way. Since I love to quilt I made him a signature quilt that was signed by his co-workers, friends and parishioners from church and gave it to him after the last treatment. I'm curious how others have celebrated victories and…
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Intimacy after treatment
This is a rather delicate, personal question but one I need an answer to and you guys have always had the right answers before. Now that all the side effects such as excess mucous, etc seem to be subsiding I want to be intimate with my husband again. After two failed attempts, I am heartbroken that there seems to be a…
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My First Post: mouth sores
Hello everyone, I have been on this forum many times in the past few months and have found it so very helpful, though never wrote or commented. Many times I felt very alone in this battle, even though I had the wonderful support of my family and friends. I just happened to search for head and neck and there you were:) Now…
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donfoo and WMC meet......
It is really great when you get to meet face to face some who you have been talking to for more than a year. It was great to meet Don in person. I will say he is one special man. Thanks for taking the time for me, and I also had my 18 month check up......NED agian. I sure love to hear that NED Bill
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How do you add a picture?
I noticed some of you have added a photo to a post and I would like to know how to do that. Couls someone explain pleaae? Barbara
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Primary probably found... Pyriform Sinus Anyone have this?
Hi me again. I went to CTCA and the ENT there found a tumour in my left Pyriform Sinus. That is the same side my positive lymph node was on. He showed my husband and I on the endoscope. I have my PET scan Mon 10/12 and hopefully that is what glows. So its at best Stage III. Who knows the involvement. They are scheduling a…
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Being strong
I just saw this and it reminded me of us as we started our little journeys .
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Starting Week three
Hello everyone, I just wanted to give an update. I'm about to start week three of Cetuximab and radiation post tongue and lymph node cancer. It looks like it's starting to get interesting. I was doing really well until a couple days ago when the mouth sores showed up in a major way. One spot on the roof of my mouth has…
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Aloe Vera juice
I did a search of previous posts and didn't find too much regarding the juice. A physician friend of ours gave us a bottle of aloe Vera juice to help with mouth/throat rawness. I am wondering if any one else has used this and how much daily etc? Barbara
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Newly diagnosed SCC unk Primary so far Help?
Hi, new here. 48yo female, west of Atlanta, GA. I'm learning all I can. I have SCC unk primary. I have an appt with CTCA next Friday for evaluation, tests etc. I had a cervical lymph node level II biopsied that came back cancer. I also had ThyCa in 2003 but this seems to be unrelated although I had RAI with the thyroid. I…
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Pill crusher
I'm starting a new topic just short and sweet. Get a pill crusher and a pot of jelly. Twist the crusher tightly put the powder in a little jelly on a spoon ( jam in uk) and place it on your tongue then have a sip of drink through a straw to wash it back, no more gagging on pills.
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Winter around the orner
I have got through the last three years without a cough or cold. Two weeks ago I got a chest infection and I cancelled my throat dilation. I got better, now today I'm aching in bone joints in my hands, my head, my teeth, my eyes my nose is alternating between stuffed up and runny., I have a temperature of 38.1. I don't…
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Proton Radiation for base of tongue HPV+ at Scripps in San Diego, CA
Hello all...it's my first post on here but I wanted to post because I thought our experience might be helpful to others and I have gained a lot of support and information on here as well. If you are reading this then I assume your life has been touched by cancer either as a patient or loved one and I'm sorry for that but…
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now this
After all of this, during the past 36 hours my throat has gotten to point I cannot speak, or just barely audible.. Except for the discomfort maybe not all that bad. I naver have been exactly a chatty socialite, as you guys can probably tell. More hoarse than when I initially visited the ENT and was diagnosed in July.
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new from England, 2yrs post op and having problem
Hi new here from England, two years post op( Oct 13) for stage 3 SCC left tongue,partial glossectomy, reconst from leg, neck dissection, 35 rads and have peg fitted. Have got through many effects and always exercise for tight neck. Really thought i was "on my way". For the past four months have had a feeling of pressure on…
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burning sore throat
I have been cancer free for 4 years. Last month I posted on the board that I had just started having a burning sore throat. Several helpful people suggested that it might be caused by acid reflux. I have been taking Prilosec now for about three weeks, but I still have the sore throat and now ear pain (probably…
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back...with more paranoia
So, I finished my treatment one week ago and things are calming down,.. still my taste has eveaporated again. No pain or anything residual from the treatment to speak of but one week out I am noticing the same issue that had me seek treatment in the first place. Scratchy, itchy throat, coughing caused by that constant…
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Kritter up date 10-06-15
Hi everyone, I got an e-mail from Keitter yesterday that was not so good, She is down hurting trying to deal with the bad news the doctors gave her. They told her she had at best 12 months to live. Please keep praying for her, because the doctors don’t have the last word, the last word is with God up above. There is a…
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NED
On May 12th I was diagnosed with stage 4 right tonsil cancer with multiple node mets. May 27th I started 35 treatments of radiation with 5 treatments of Erbitux. Today, the 7th day of October, my Follow-up PET Scan shows no evidence of any remaining disease. Hmmm, the 7th, seems a familiar number to me. On the 7th day God…
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Clinical trial
My husband Mike was diagnosed with Hypopharangial cancer (which had matastisized to several lymph nodes in the right side of his neck) the first of April. We choose to go with a clinical trial taking place at the University of North Carolina Cancer Hospital instead of traditional treatment. He receives weekly chemo…