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New Guy Starting Chemoradiation treatment tomorrow... Yikes!
Hello All, I am am new to this site and a first time poster. I would first like to say a quick thank you all of you who are on here and continue to post valuable information and answer other various questions concerning all things H&N cancer related. I have already learned a lot from all your many posts and I really…
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PET Scan Results
Praise God! No recurrance! The doctor said it looks like inflammation and they will recheck in three months. I am praying for good news from the rest of you. Bill echoed my feelings so well in his earlier post. As one of my favorite passages says, "I thank my God for every remembrance of you!"
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New Granddaughter
My number 7 grandchild came to be a part of our family yesterday. She weighed in at 8lbs \13oz and 19 inches long. I now have 5 Girls and 2 Boys; just 10 years ago I did not believe I would ever see this day. It sure makes an old man happy
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3 year anniversary-pyriform sinus ssc
Posts: 1 Joined: Oct 2015 Oct 13, 2015 - 4:19 pm My husband finished treatment three years ago today. He was diagnosed with ssc in his right pyriform sinus. At the time he was 55 and a non smoker. He has always exercised and had a very healthy diet. He had his treatment at the University of Chicago and we would highly…
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what can help reach and keep remission
I am almost 3 weeks after treatment and I am still struggling for the side effects, mainly on mouse soar, throat soar, etc. This is tough and the contents in the site helped a lot. But I actually want to bring a topic on what we as a patient can do to reach or keep remission. I always curious about what others in this site…
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Larynx Radiation - BIG Lump Sensation
Greetings... I am a 39 y/o male and I was diagnosed with very early Stage 1 Laryngeal Cancer recently. I've never smoked, and do not drink... so everyone was shocked that my simple vocal "polyp" turned out to be cancerous. I'm thinking it may be due to Reflux, which I've always had, but my ENT thinks it's more likely due…
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What is LPR? GURD that goes higher up........
WHAT IS LPR? This is just an FYI, as I have GURD and LPR: During gastroesophageal reflux, the contents of the stomach and upper digestive tract may reflux all the way up the esophagus, beyond the upper esophageal sphincter (a ring of muscle at the top of the esophagus), and into the back of the throat and possibly the back…
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NED for me
Greetings all, I began using this site 6 years ago after my daughter was diagnosed with multiple myeloma and then shortly after my wife with Lung cancer. Although I lost them both to cancer the information I gathered was invaluable so when I was diagnosed this past December 2014 with SCC I looked up my password and entered…
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neck dissection after effects
Besides the issue that I'm having with the radiation side effects that everyone here has been very helpful with on advise on my other post, I have another issue I would like to hear your comments on. If you don't mind. I had surgery done for the tumor at the base of my tongue and right tonsil and then a dissection to…
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mouth sores and swollen neck
I finished Chemo and Radiation Therapy about 2 months ago. About 2 weeks ago my throat has gotten swollen around and below my adams apple making it a challenge to swallow. It doesn't help breathing much either. I am wondering if anyone else has experienced this? I am wondering if it might be Lymphadema. Any input would be…
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Joining the Tonsillectomy Club and the Triple Endoscopy Club
Hi, I guess I dont have an unknown primary anywhere. They did see the pyriform tumor and then my PET scan lit up my left tonsil and something in the base of my right tongue. My lymph node was on the left. So tomorrow they are going to do the surgery. Then they think they want to do concurrent rad and chemo, only doing a…
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I am Starting in our Week Three
It appears like it's beginning to get interesting. I was doing effectively until a couple of days ago once the mouth sores arrived in a significant way. One i'm all over this the roof of my mouth has been excessively painful for a coupoe of days. [Content removed by CSN Support Team]
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Lymph Node biopsy...
Remember the enlarged lymph node from my MRI?? Well, today I saw the ENT, and it's gotten larger...not much, just larger....so he felt we should biopsy it. Now I have to wait a week to find out the results. Oh brother....pray for me, guys....you know I'm no good at the waiting around part of anything. p
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Thoughts and prayers...........
In the two years I have lost how many I tell someone you are in my thought and prayers. It is true you really are, but the list has gotten soooo long I just hold up the pages and look up and quietly say, you got this right. With this site and the many people I have met here you all feel like family. So many that have been…
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Just diagnosed with OSCC, 30 yr old, looking for advice on care
received tongue biopsy results Thursday that I have squamous cell carcinoma of the tongue. Had a CT scan which showed that it has not spread to lymph nodes. My best estimate is the spot on my tongue is 2 CM and about half way back on the riget side. So just self diagnosing I would say I'm a Stage 1 or at worst Stage 2. I'm…
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NPC with adjuvant therapy
I was diagnosized with NPC stage IV on July and still in treatment. My family and I was shocked and thanks to God I found this site and noticed a lot of NPC servivors. I got motivated to fight this desease! I have a question need you help. My medical oncologist suggested cocurrent chemotherapy but without adjuvant chemo.…
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NPC Survivors
Hi, My husband finished up chemo/radiation treatment for NPC stage IV over 2 months ago and are are anxious for the 3 month mark to do the PET and CT scans to see the results of the treatment (he only had one CT scan during the treatement - and it was at the half way point). He still has some of the same symptoms he had…
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New here;husband has nasalpharyngeal cancer ;can someone relate?
Hello All, My husband has recurrent nasalpharyngeal cancer after being recovered for four years. He is undergoing chemo and radiation. I believe he needs support from someone in his age group( he is 44). I want to offer him suggestion of viewing this site. Although Im sure any cancer patient can relate to him, he seems to…
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3 Years NED!
I just wanted to share with everyone that Kreg had his 3 year checkup yesterday and was told another NED! We feel blessed and thrilled! For any of you who may be new, this was Kreg's diagnosis and treatment plan: Noticed a lump on left side of neck end of June 2012. Doctor treated with antibiotics. No effect. Went on to…
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Celebrating victories
When my husband finished his 35th radiation treatment I wanted to celebrate in a special way. Since I love to quilt I made him a signature quilt that was signed by his co-workers, friends and parishioners from church and gave it to him after the last treatment. I'm curious how others have celebrated victories and…
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Intimacy after treatment
This is a rather delicate, personal question but one I need an answer to and you guys have always had the right answers before. Now that all the side effects such as excess mucous, etc seem to be subsiding I want to be intimate with my husband again. After two failed attempts, I am heartbroken that there seems to be a…
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My First Post: mouth sores
Hello everyone, I have been on this forum many times in the past few months and have found it so very helpful, though never wrote or commented. Many times I felt very alone in this battle, even though I had the wonderful support of my family and friends. I just happened to search for head and neck and there you were:) Now…
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donfoo and WMC meet......
It is really great when you get to meet face to face some who you have been talking to for more than a year. It was great to meet Don in person. I will say he is one special man. Thanks for taking the time for me, and I also had my 18 month check up......NED agian. I sure love to hear that NED Bill
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How do you add a picture?
I noticed some of you have added a photo to a post and I would like to know how to do that. Couls someone explain pleaae? Barbara
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Primary probably found... Pyriform Sinus Anyone have this?
Hi me again. I went to CTCA and the ENT there found a tumour in my left Pyriform Sinus. That is the same side my positive lymph node was on. He showed my husband and I on the endoscope. I have my PET scan Mon 10/12 and hopefully that is what glows. So its at best Stage III. Who knows the involvement. They are scheduling a…
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Being strong
I just saw this and it reminded me of us as we started our little journeys .
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Starting Week three
Hello everyone, I just wanted to give an update. I'm about to start week three of Cetuximab and radiation post tongue and lymph node cancer. It looks like it's starting to get interesting. I was doing really well until a couple days ago when the mouth sores showed up in a major way. One spot on the roof of my mouth has…
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Aloe Vera juice
I did a search of previous posts and didn't find too much regarding the juice. A physician friend of ours gave us a bottle of aloe Vera juice to help with mouth/throat rawness. I am wondering if any one else has used this and how much daily etc? Barbara
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Newly diagnosed SCC unk Primary so far Help?
Hi, new here. 48yo female, west of Atlanta, GA. I'm learning all I can. I have SCC unk primary. I have an appt with CTCA next Friday for evaluation, tests etc. I had a cervical lymph node level II biopsied that came back cancer. I also had ThyCa in 2003 but this seems to be unrelated although I had RAI with the thyroid. I…
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Pill crusher
I'm starting a new topic just short and sweet. Get a pill crusher and a pot of jelly. Twist the crusher tightly put the powder in a little jelly on a spoon ( jam in uk) and place it on your tongue then have a sip of drink through a straw to wash it back, no more gagging on pills.