-
anyone ever not eat or use pegtube because they are mad at wife?
Ok I never have liked airing dirty laundry but this is life or death so here goes. My husband Robert diagnosed first part of June tonsil and neck and 3 lymph nodes involved. Well Robert never has been a big eater and he weighed 129 lbs and 5 11. They put tube in before treatment started. He had reaction to first chemo but…
-
Recovery
So mom is in her last week. She has 4 days of treatment left. Her throat is so raw and tight she is having trouble getting anything at all down. She's using magic mouthwash but it's not helping a whole lot becuase her throat is so tight. After treatment ends, how long does this last on average? Does the throat ever loosen?…
-
Worrying
Fr
-
Hello Again
At some point, I just got too busy to keep up with the forum. As with everything else, I needed to tell myself to make time, as this site was so helpful to us when we really needed it. Doug might come on and update for himself, but the short form of the news is: he's finally joined the low-thyroid club. The GP called today…
-
Searing, stabbing mucositis?
Since starting the adjuvant chemo with Cisplatin and 5-FU over a 4 days span the pain from mucositis seems different in nature from the radiation treatments and Cisplatin. Words my husband has used to help describe it are burning, searing, stabbing, granular. It seems to be more localized - especially up behind the palate,…
-
Dry Mouth
I feel like I'm going backwards in a sense. I completed radiation 7 weeks ago to the day. Seems my salivary function was better during treatment and up to a few weeks ago. It just seems like they shut down over the last few weeks. I thought after treatment I would only have one way to go, that was to only improve. Getting…
-
Gelclair for mucositis
Just wanted to mention one more option for oral mucositis.... Gelclair. Here is the info from their website. www.gelclair.com Barbara
-
Hey kids.....guess what time it is!?!
Yes....it's ceiling fan time....again. I'm doing better this time, I think....I didn't start getting worried until last Friday...and the scan is day after tomorrow....so, that means I didn't climb up here for a two week stay, just a few days. As always, I'd appreciate the prayers, good mojo, crossing digits....anything…
-
Scc in Gums
Im 22 years old. Diagnosed with SCC in my gums. Doctors did surgery and i was doing pretty great. They couldn't decide if it was stage 2 or 3. Recommended radiation But didnt require it. I started radiation but since i started getting symptoms of chemo patients the doctor said that was very unusual not normal. I want to…
-
Financial milestone!
As many of you know, I started my journey of fighting cancer with NO insurance. My employer keeps us under a certain # of hours as not to have to offer benefits. My husband is self employed so we honestly could not afford the premiums when this all started back in December 2013. I had to fight like crazy to get ANY…
-
Neck support and elevation while sleeping?
For the last month and a half my husband has been sleeping in a recliner to help with the mucositis. I bought him one of those airline neck pillows to help stabilize his head and neck but he still wakes up with a fairly stiff and uncomfortable neck from it falling forward or to the side as he sleeps. Can anyone recommend…
-
Interesting article on recurrence
http://www.nbcnews.com/health/cancer/more-patients-are-hearing-words-you-have-cancer-again-n414846 j.
-
Trials and how to choose
Hello everyone, I'm wondering if anyone has any experience with choosing a trial for mets ? I'm on a national waiting list for any matches for my specific tumor type. But of as today none have been found. I was given a name at the Mayo here in Minnesota that I will be checking out. (trial specific for rare cancers but not…
-
Tonsil biopsy
Hi, I have a biopsy scheduled for late August for what the ent thinks is a regrown left tonsil but isn't quite positive. I was wondering if you could share your experience with having one? Everything that happened during and after? This will be an office procedure. Thanks.
-
Thoughts of suicide?
Just wondered if any of you thought about doing yourself in when first diagnosed? I was reading an article online today that some when first told they had cancer (especially younger people commit suicide). It got me to remembering that first week after I knew I was in bad shape. I have to admit the thought flickered thru…
-
Burning in esophagus, throat, stomach from 5FU
My husband just started 5FU with a pump via port for 4 days. At day 2 the burning in esophagus, throat and stomach seems unbearable. He is 100% PEG dependent at this point, inability to swallow due to intense pain. Any one else find a way to counter this side effect? Oncologist recommended over the counter Prilosec. We had…
-
Pet Scans
How many Pet Scans has anyone had and do you see any relationship betwen radiation and an ischemic colon? TIA
-
eating at eight weeks
Tomorrow is eight weeks post radiation/chemo for squamous cell carcinoma of my facial nerve. Earlier this week I tried to eat a fried egg and gave up on it. Today I tried some chicken rice soup. I tasted it, I enjoyed it and I had no pain. I even went back and got a bigger bowl and polished that off too. Tonight I think…
-
Using Aloe juice to help promote healing in mouth
I am in my second week of treatment and was trying aloe juice to help promote healing in my mouth from the radiation. Has anyone else tried this and what experience did you have? i just swish some around my mouth and swallow, then do not drink anything for a while. Thanks and this is a great forum with lots of good info…
-
Well, that sucks...
Got a PET scan last week and got the results today. The rad onc says two of the lymph nodes lit up. Fine needle biopsy next Monday to confirm and then he suggests surgery to remove them. One year after tx and dealing with the daily bs of taste and saliva issues and now this...thought I was free and clear...guess…
-
I hopefully will have some normalacy back in my life
Another appointment down, this time with the Radiation Oncologist. Yes, it has been 15 1/2 years since I completed radiation, but he still sees me once a year. The appointment went well and he has given his OK, that I can start Hyperbaric Oxygen Treatments. This will consist of 30 dives pre oral surgery which is to remove…
-
Melanoma in head and neck area?
my friend has been treated for 20 years for her arthritis with a drug that has high risk for cancer. in febuary 2015 she was told she has non hogeskins lymphoma, she did some chemo with great results. in late may 2015 they found melanoma on her forehead and removed with surgery late june 2015 there was a large fast growing…
-
hit my first wall today
I am now into just the 3rd week of chemo and 2nd week of radiation, everything has been fairly smooth up to today when I felt, for the first time, the radiation burn in my throat. Came home and made the nasty backing soda, salt gargle and it greatly minimized the discomfort immediately. So far, I have been going to the car…
-
August 18,2015~~Graduation Day
Yesterday, having a routine visit and scope schuduled with my surgeon Dr Ricardo Carrau, at The James in Columbus Ohio, I was given a total surprise and the most welcome news. He came in with 3 of his students, did the usual poking and prodding..and of course, down the nose scope..explaining what he had done to his…
-
eating solids
I am 7 1/2 weeks out from radiation therapy. I still have a sore on the bottom of my tongue. Did you force yourself to try to food like eggs or soup or were you content to drink boost untill you mouth was more healed?
-
Kritter Up-date 8-15-15
Hi everyone Kritter is going through treatment and having a very hard time; please keep her in your thought & prayers that she will have the strength to continue. A few weeks ago a lot of her hair was falling out so she cut it all off; I told her that I will do the same to help in supporting her through her treatment. So…
-
NED....with a "but......" hanging on the end of it!
Oncology called today to tell me there is no sign of a recurrance.....BUT.....one lymph node lit up....it is normal sized, but that "we" (ongology and ENT) will be keeping an eye on it....kind of raining on my parade . I keep telling myself that it's nothing...around here this time of year, we're breathing smoke 24/7 from…
-
Scar Tissue problems
I had radiation and chemo for voice box cancer four years ago and have been cancer free since then. Lately I have had a very sore throat, itchy cough and pflem in my throat. I just went to my ENT, sure that my cancer had come back but thank goodness everything looked great. She said my symptons were from scar tissue from…
-
QUICK REFERENCE GUIDE TO TNM Staging of Head and Neck Cancer and Neck Dissection Classification
Just an FYI; I ran across this Guide and found it very helpful on staging and Neck dissection by the different locations for H & N. http://www.entnet.org/sites/default/files/NeckDissection_QuickRefGuide_highresFINAL.pdf American Joint Committee on Cancer (AJCC) Tumor Staging by Site A. Oral Cavity B. Oropharynx C. Larynx…
-
SUPERTHREAD UPDATES~
I'm working on updating the links on the SuperThread..., it's been awhile. While I'm working on it, my stopping point will be recognized by GREEN text, until I get back to it again.. If you want something added, or find an update for a broken link, let me know and I'll get to that also.. Thanks, John