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Squamous Cell In Small Intestine
Has anyone experienced SCC in intestines. Originally SCC of throat diagnosed 2 years ago with treatment ending in 03/10. My head/neck rad/onco doctor says he's never heard of SCC with mets to the bowel area????? Had 5 inches of intestine removed with clear margins and 5 lymph nodes NED. Just wondering....this board will…
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Recognize a multi-year battle
So I have now been battling cancer for 38 months. Colon to liver to lung. Radiation/Chemo/colon surgery/liver resection/lung ablation/lung resection. At what point do you recognize this is a long-term battle for which death will ultimately be the end?????????? I started out as Stage IV with progression from the colon to…
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Way too many bills!
My friends have set up a page for me at giveforward.com/ Just search for Elise's cancer battle. Anyone know of other ways to combat the bills? As a single mom, these bills are just getting CRAZY!
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Best Wishes to all!
Hi Guys, First of all I'd like to say thank you to all the people that sent Christmas Cards, you really brightened my Christmas! Just thought I'd stop by to wish everyone a great Holiday season. I've been lurking here and there, just trying to deal with my reoccurrence in my own way. Everyone is a great inspiration to all…
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Thanking god today :) plus thanks to Gail :)
Mum had a CT Chest, Abdomen, and Pelvis scan last week- met with her oncologist today- spots in abdomen are now resolved- clear scan !!!! :) :):) So happy right now- was beginning to panic about xmas- looks like god is looking after us- I know its possibly not forever but who knows - A special thanks to Gail from this…
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At hospital - trying not to freak out
Hi Dear Ones, I'm sitting at the hospital, waiting to get slotted in for an MRI brain scan -- to evaluate whether or not I have brain mets - auugghh! Talk about stressful. Now I have to actually LIVE the advise I dish out to others -- you don't know till you get the results and in the meantime FEED THE FAITH, STARVE THE…
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IV's Again
Hello everyone, I was in the hospital again over the weekend because of dehydration. Since my colon removal in July, I can't seem to keep any nutrients in my body at all. I have tried the soluable(?) vitamins that several on this board have recommended but its not working. I continually drink powerade zero and water but…
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Christmas Songs
For those of us that celebrate the holidays or just like Christmas songs and could use some cheer right now, what is your favorite Christmas song? Mine is "O Holy NIght". Happy Holidays to everyone, Luv, Wolfen
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After 8 years I'm gone too
My dear semi-colons, I actually decided to stop posting in the fall but after reading Emily’s farewell post I feel I need to clear up a few things up and explain a few more before I bid farewell. In my 8 years on this board I have never, I repeat NEVER, told anyone to stop or not to do chemo. When I decided to stop doing…
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where does hope come from?
Ultimately god inmho. So the west team Onc and surgeon say watchful wankkkking sorry waiting about my rising Cea. As no tumour to Target on recent pet and ft, thankgod. A reason for gratitude. My tcm oncologist, the eastern team which is qigong, tcm and accupture offer hope now. They say yes we can help. Boost lymphocytes…
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Hanging in there
Hey gang, Thanks to you folks for asking about me :-) I should post more often. I'm at my sister's place in PA with the dog and have been for a week or so. I'll probably be here through most of the Holidays. I had a setback starting last last week and my belly got swollen and by Thursday I was hurling like Linda Blair in…
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Starting first ever chemo
Starting chemo for the first time tomorrow. I have been approved for a clinical trial and have to be at the cancer facility tomorrow morning at 8:30. They said it will be an all day ordeal, at 6-7 hours worth of sitting there... Now I am really looking forward to getting this going, not sure when the nervousness will start…
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Blood Clots (pulomonary embolism)
After my most recent scan I received a call to get into the hospital. A blood clot was noted on my left lung. Now I am taking twice daily shots of Lovenox. Any experience out there with this new challenge? I thought I was done and now I have yet another drug to administer. What I thought was the silver lining was that my…
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Started clinical trial
Hello everyone, I haven't posted for awhile. I was in a dark mood for a time. When my CEA tripled from august to october and scan showed progression in my liver, I was about ready to call it quits.I had been on all approved chemos for colon cancer, some of them twice,and the cancer always seemed to find a way around the…
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Mags, how is your friend doing?
Dear Mags, I was wondering how your friend was doing. Did she get an ostomy? Is she home yet? Hugs to her for an easy recovery from surgery. Hugs to you for being a great friend. Marie who loves kitties
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A Christmas Card for All
If you click on my name under my pic and select my expressions page you will find my Christmas card for all of you. Be sure to click on the image to make it larger. Merry Christmas!
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Grace 14
Was it really necessaray for you to post on the Colon Club about our CSN board? You stated "there are nasty people on there and not very encouraging". Perhaps you should be more specific. Most people on CSN are very encouraging, respectful, well informed and compasionate. Yes, there are some bullies that seem to fade in…
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Shopping
Someone came and stayed with hubby for 3 hours this afternoon, so that I could leave and get some Christmas shopping done. I came home without buying a single gift. I just couldn't wrap my brain around it. All I can do is worry about how sick he is. Too late to order gifts online, I am running out of options. How can I…
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PET results are back
I can't even describe the relief and thankfulness that I'm experiencing! Pet scan was clear. We are waiting on a radiologists interpretation of an area in the small intestines, not concerning cancer, just an area from previous surgery. Hoping it does not play into not have iliostomy reversal tomorrow or my hubbys going to…
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Post-surgery and the shock of hearing the word "cure". And a philosophical question.
Two weeks ago, I had my fifth surgery in two years. I have a super-funky tumor type that normally never shows up in the colon (it's extremely rare under any circumstances but is usually in the uterus), and the chemos I've tried haven't worked for me at all, so surgery has been my best shot at survival. Surgeons took out…
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back from VATS surgry
Thanks all, I am at home now after VATS surgery which was successful and I must say very easy compared to the open ones I've had. 3 days in hospital and not too much discomfort at home. A lttle tired but eager to eat well, njoy the holidays and say bless all of you out there. Chip
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Hipec should be stopped
hipec results were horrible, with an ostomy that leaked contantly. death within less than three months made worse because of hipec results
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Stage 4 with liver, lung and brain mets-Cyber Knife or whole brain radiation for brain
I was diagnosed with stage 4 colon cancer in early May with liver, lung and brain mets. Early on I had Gamma Knife for the brain mets and it seems to have worked well. I originally had 9 spots in the brain. This week, I was told that 1 spot has done nothing...not growing, not shrinking. Dr says to watch it. The other two…
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Hi mates it is FRDAY here any interesting plan for the weekend?
Here just trying to recovery from the anemia caused by the hemorrhage , still tired and a little depressed despite labs are quite good ,and recovering very fast. Enjoy your weekend, enjoy your Christmas shopping!. Hugs!
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26 diagnosed with stage 4 cancer.
I'm 26 years old. I have gardners syndrome. Which causes colorectal cancer. I was diagnosed with it and it has spread to my lungs. I'm going through the 5FU chemo treatment. I'm on round two right now, and going into #3 next week. I'm stage 4 and scared. I feel very alone. I have wonderful support with family and friends.…
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Husband Surgery
Surgery lasted about eight hours, less than I expected. Surgeon cut out liver spot, took out original colon tumor, scraped diaphragm, removed any tumor visible, and finished with chemo bath. Surgeon was able to reconnect colon w/o ostomy. I realize there are challenges ahead but feel at peace tonight. I can't wait to tell…
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Astralagus
I've taken Astralagus supplements in capsule form bought at health food store. Now, I was at a chinese health store which sold ginseng, etc. They had bags of astralagus root slices they sold by the pound. Anyone have any experience how much you can use to make tea etc?? How many of these cups a tea would be beneficial??…
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CEA 165 the highest ever
Stage IV Rectal cancer mets in 3 of 4 lobes in lungs Unresponsive to all protocol chemo-therapies. What is next? Research Studies? anyone having success with experimental drugs? TCM? essiac and cottage cheese/flax oil are on my daily list Newbie on this board but well on into the journey. Not really symptomatic yet but to…
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Righ hepatic lobectomy
This will be my third liver surgery. The first 2 were wedge sections on my right lobe. The last one over 4 years ago. This time they are going to take my entire right lobe in hopes of getting it all. My surgery is this Friday. Anyone have any similar experiences they would be willing to share with me? Jeff
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signet ring colon cancer
Hi, I have Stage 4 signet ring colon cancer. I was diagnosed on June 29th of 2010 at the age of 18. I've had the large mass tumor removed last year along with half my colon. On November 1st I had surgery to remove my ovaries, tubes, and uterus. The cancer spread that. They said my ovaries were pretty much "eaten" up with…