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Sad time...
I had a plan to meet with my sister that I haven't haven't spent any time with in years last night and was so excited. My husband got the news on Monday that his friend lost his battle with lung cancer and wouldn't you know it his funeral was the night that I was driving to meet my sister (my sister understood completely).…
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Has anyone ever had a false positive on a pet scan?
My husband will be six years from stage 3 rectal cancer diagnosis in Jan. He has always had hot spots in the rectal area on his pet due to inflamation biopsies have always been negative. Last week his pet scan was all clear except this area again but less uptake but also a small area next to the rectum showing a lymph node…
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post-colectomy experience
It's been almost a year since they took 14 cm of my colon. I have had a few adjustments to make since then, the first being I occassionally end up with what feels like "kinks" in my colon. The best way for me to describe this is that I imagine it's like when a garden hose gets pinched, and then the water doesn't come out…
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Scared about Scan
Hey guys, need some advice... mum has her first scan after 5 out of 8 chemo sessions. They are doing a PET scan i think it is.. pretty much whole area We dont get results back until christmas eve and the scan is next week prayers needed is this normal procedure? thanks for your support
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Oxaliplatin
Hello friends, i have just started my number 5 cicle of chemo with the 2 weeks of Xeloda and the infusion of 2 hours of Oxaliplatin every 3 weeks. In my experience the oxaliplatin is a terrible nightmare, my legs, feet and heands don't work proper, i can't drive them well, i can't drink not even room temperature water,…
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Surgery---stunned
Since my Stage IV diagnosis the doctor has said I would never be a surgical candidate, too many tumors in my liver. I have been doing chemo for 14 months. I know that I've responded very well to the chemo, as the doctor was actually noticeably excited by my last CT scan. At my last oncology appointment the doctor said "how…
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Hi I'm back !
It's been quite hard one week at the hospital .It was a varicose vein hemorrhage in my esophagus due to hight portal pressure , already put rubber bands on the vein and some portal vein anti inflammatory pills . Hope this is sorted out forever . Hugs family !
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Update
all polyps benine yea but dr did say they were pre cancer so colonoscopy next year .One big worry not bad now whew take care michelle
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Need advice on symptoms
Hello everyone and hope you all are having a good week! My husband had his liver resection on Wednesday and recovery has been hard. We are still in the hospital and he is still having lots of pain. The pain is so bad now he can not walk or eat. He has been up to walk seceral times a day but has worse pain today. They won't…
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We're home from my little girls appointment with good news
I'm home! And with good news. The oncologist at the Childrens Hospital seemed to be very thourough. When we first arrived they repeated labs and did a chest xray (to look for suspicious lymphs?). He went over her labs, xrays, and CT. Asked questions about recent health issues and illness. Explained how a lymphoma develops…
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Lynch syndrome/ stage 3 colon cancer
I have been diagnosed with lynch syndrome ( a hereditary form of cancer) I had a sub-total colectomy to remove my whole large intestine and worry that cancer will reoccur somewhere else. Does anybody have experience with lynch syndrome & colon cancer thanks RKSTR DAVE
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I am from the Uterine cancer board but...
I have a problem I hope you guys can help me with! I have heard you guys are nice over here!!!! My moms mom was diagnosed with colon cancer at 48 and died at 49. My mom was diagnosed with colon cancer at 48 and died at 50. So, back in Febuary Dr.Rafiq did a colonoscopy and removed 4 polopys and 3 came back pre-cancerous. I…
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Extreme Fatigue on Camptosar???
My dad was on oxalyplatin(?), then they stopped it for awhile and switched him to just lecuvorin/avastin/5fu, that combo quit working so now he is on Camptosar. He is extremely tired, falling asleep without warning, ect. His last chemo cycle ended last Wed. It is now Monday. This is his 2 round of this. Is this normal?…
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Cant find much info....
My friend just called me with the name of her Cancer... "Adenosquamous" of the Colon. I cant seem to find much information on this. I gather it's a bit rare. Does anyone now anything about this "Villian"??? I would appreciate any info at all. Thank you so much... Liz
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Ever hear of Dietmor Wittman MD
I read some articles about this doc and his organization openabdomen.org. My husband has mcrc with an open wound, hernia, and fistula. Was wondering if anyone knows anything about this guy. We are desperate to get this closed. Thanks all.
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It's Dutch St. Nicholas day today!!!!
http://www.stnicholascenter.org/pages/netherlands/ Hugs to you all! Kathi
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Twin Cities new support group
Our new group meets again tomorrow. All affected by the colon, anal, and rectal cancer world are welcome, whether you are a patient, caregiver, medical professional, or nonprofit fundraiser. Anne Carlson of Get Your Rear in Gear will speak at our next meeting on 20DEC. This has been rescheduled from tomorrow night because…
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Xeloda and dizziness
My husband has been on Xeloda now for 4 weeks (except weekends) and he is dizzy a lot of the time. Just wondering if anyone else experienced this. His oncologist was concerned so I'm assuming it's just a side effect. Michele
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Got PET scan results today...
...And not what I really wanted to hear.Appears my cancer has metatisized to lungs. Multiple 5-7mm nodules in lungs all new compared to my last scan. Most have mild FDG activity with a SUV max of approximately 2. Onc basically said I'll be on indefinate chemo. Had already done 12 rds of 5/fu and now wanted to put me on…
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Husband Half Way Done
Hi everyone. My husband is half way through his treatment. He has done 6 of 12. We notice that he is not due to go get the 7th treatment until the 19th of DEC. This means that he should get a treatment tomorrow. He also gets a follow up with his Oncologist. Is it normal to skip a treatment half way through? Last follow up,…
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cea levels
just wondering if it is normal not to have the cea level tested during the routine bloodwork...my dads onc has not tested his since start of treatment.. he is now starting his fourth round tomoro.
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Last Post so Take Care
It's been quite a while since I posted here. For those of you who don't know me I had rectal cancer stage 3c. 1n 2006 usual treatment radiation/chemo/surgery/chemo then NED until summer 2010 about four and half years later. Colon cancer stage 3c again but this time in the ascending colon by transverse with three localized…
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Wheezing after liver resection
Hi everyone! Hope everyone is doing well. My husband has his liver resection onWednesday and has wheezing bad all day? The nurses don'tseem concerned but he has never has asthma before and he isn't able to breathe deeply. He is able to walk but has hard time getting up and down. They took 10% of his liver but the incision…
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3 year anniversary
Yesterday was the 3 year anniversary of my diagnosis, it is weird the way I will start to get stressed when it gets close to that date, even still. Yesterday though I bought a bottle a champagne and celebrated still being alive. I feel that every year I am alive steals one year back away from my cancer. Thank you to…
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cea dropped
update. My cea came back 3.7 from a 4. yea!!! also, since my feet now look like Rocky's face after a fight, i am done with chemo. Yea!! CT in jan so i have a month off from everything. yea!!!! I have my Christmas present, now am praying everyone else gets the news they want to hear. Hugs to all, Judy
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Hi mates it's FRIDAY any interesting plan for the week end ?
I'm in the hospital nothing important but a bleeding ulcer caused by old chemos hope to be at ohm on monday!
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erbitux and acne/rash?
my mom started erbitux 2 1/2 weeks ago and started to get acne on her rose....i hear thats the norm with erbitux. does anyone have any remedies for this? ive heard of docs prescribing antibiotics, how effective are they? i brought this up with my moms onco and she says shes hessitant of prescribing a full blown antibiotic…
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Abdominal Pain a year later?
Does anyone have any idea why I would be experiencing pain a year later where my resection was done? It's a dull ache that comes and goes. I see the surgeon Monday for dilation, but was going to ask her about this too as it is bothering/worrying me. Your Friend in California~
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Liver resection and chemo following
Hello and happy Friday- Tony and I visited UCLA this week and he is getting set up at the liver cancer center with an amazing Doctor to have liver resection surgery very soon, within the next 10 days. I am a nervous wreck, as I know many of the other wives or caregivers on this board have expressed. I am thankful we have…
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CHRISTMAS CARD LIST
Hello ALL, Just wanted to send a friendly reminder that the deadline for submitting your info if you want to be apart of the CHRISTMAS CARD EXCHANGE this year is rapidly coming up. For all the newbies, this is something we started a few years ago, you supply your name address and email address and when its all compiled I…