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seeing onc tomorrow and surgeon next day
Its probably an important visit to say the least. yes its the second cea rise in a few weeks, so i will see whats said. so my my cea rose to 7.4 from 6 18 days earlier. still clear pet and ct a few weeks ago. doing lots of interesting research as always on samE, melatonnin and immunotherapy. when i take specific treatments…
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found an interesting article
Hello All . . . . Read this article yesterday and have been thinking about it a lot since then. It doesn't talk about stages, but as a stage IV with 32 chemos so far and no chance (yet) for surgery it gave me some much needed hope with survivorship. Thought it was worth sharing.…
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Venting
stage IV colon cancer, it is back in my bowel, lung and as odd as this is in the muscle near my spine causing great pain. Radiation is what is perscribed and a cocktail of chemo after the biospy of the "genetic make up" is of the reaccurance. The thought process is that they need to know what the genetic code is to…
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Any one know what has happened to Da Beach Bum?
Hi all: Any information on Da Beach Bum? He hasn't posted in awhile. Cheryl
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illeostomy
My husband got an illeostomy put on Oct 13th 2011 when he had colon resection. He is telling me now that he feels like he has the urge to go and there is something passing through. Is this normal? I can't remember if anyone told us about this or not. I will call his doc but I was just hoping to get some input here. I was…
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Arms are leaking
Hi everyone! After unsuccessful surgery to reinstall a port in hubby's chest, the dr put a port in his upper arm 2 weeks ago.(and also drained 12 pounds from his abdomen again). Anyway, he developed a clot in his neck last week. They put him on shots in his abdoman as well as cumundin (sp?) pills. Took him off both 2 days…
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air travel - my experience . . . . . . any tips from others?
Two weekends ago my husband and I went to New York for an extra long weekend (arrived Friday and left late on Monday) - it was just fabulous!! It was a first for both of us and I am already planning a trip back in the spring, so much to do and see. We found everybody so friendly, the city so clean - and of course, being…
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♥ Have a great recipe to share ?
In the spirit of sharing and gratitude, a website has been set up where recipes can be entered, viewed or downloaded by members. The recipes don’t have to be holiday oriented and can be anything you enjoy and would like to share. Thanks for contributing! Clickable Link: ♥ Recipe Sharing Project…
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consultation with specialist after Lynch diagnosis
I thought this might be the best place to start for feedback from others with Lynch syndrome - after your Lynch diagnosis, did you seek a consult with a specialist beyond your primary oncologist? I had endometrial cancer and recently received my Lynch diagnosis through genetic testing, etc. What I'm wondering is if it's…
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seriously?!? . . . . . please have a read and think this over
Okay . . . . . here it goes . . . . I have not waded into any of the controversial posts to date - and I have seen a few. I am trying to keep my world peaceful and full of positive energies - this is the best kind of environment for our bodies to fight and heal. What has been happening lately has become ridiculous folks!!!…
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Should I be concerned?
Sitting in physicians office waiting on surgical clearance papers for iliostomy reversal Friday. Tomorrow PET scan and other tests for surgery. Phils only had 2 CEA tests since diagnoses and both were very low ( .7 and .9) today his CEA is 1.1 which I know is still very low but it has changed. He finished chemo almost 4…
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Should I be concerned?
Sitting in physicians office waiting on surgical clearance papers for iliostomy reversal Friday. Tomorrow PET scan and other tests for surgery. Phils only had 2 CEA tests since diagnoses and both were very low ( .7 and .9) today his CEA is 1.1 which I know is still very low but it has changed. He finished chemo almost 4…
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New Hope for Managing Cancer
http://www.thehindu.com/health/medicine-and-research/article2712237.ece research done by university of georgia and mayoclinic arizona. Using immune system to kill cancel cells..
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Lynch Syndrome
After being diagnosed with Colon Cancer (at age 31) I ended up being diagnosed with Lynch Syndrome (at 32) as well. I am wondering if anyone knows of any online support groups for those who have had hereditary cancers. It is believed I was given the Lynch mutation from my mother, who passed away at age 50 when I was 23. I…
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Pepe
You okay? Haven't seen you for a few days. Missin' ya! Peace, Laurie
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Can't get any funding for Avastin . . . . . what the 'F' am I supposed to do now?!?!?!
Hello all, I am at my wits end. My first round of treatments has stopped working - 30 treatments total of Irinotican, Leucovoren and 5FU (sorry . . . . didn't check spelling on these). The tumors on my liver are growing again. SHEEEEEET!!!! So, I am now on Oxaliplatin (spelling again!), Leucovorin, 5FU and…
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Post surgery discomfort - 4 weeks out
Four weeks ago tomorrow, I had an anterior proctosigmoidectomy and coloanal anastomosis with a loop ileostomy. I also had a complete hysterectomy. I was in the hospital for 13 days because I developed an ileus but have been home now for about two weeks. On a happy note, my path report was amazing, no cancer cells left even…
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Celebrex-adhesions
Adhesions - bands of scar tissue that bind together two internal body surfaces - develop in 55 percent to more than 90 percent of patients undergoing surgery, depending on the type of operation. They are part of normal healing, but when surfaces fuse together that shouldn't, serious pain and complications can result.…
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If only local modes are involved, is chemo always recommended?
If inly local nodes are involved is chemo always recommended? I've tried to read through the posts before asking this but it seems when I read a post involving chemo people are mentioning mets to the liver, bone or lungs. Also what are the most recent chemo drugs being used for cc?
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christmas list
Ok i have my cards, my pen and i am ready. Now where is the list? I am pleading, sr. moment chemo brain. It is a new disease. Please help : ( Judy
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Folfiri tips
I'm starting Folfiri with Avastin on Wednesday to treat my remaining lung mets and the three minuscule bone mets that just showed up on my last PET. Any tips? I'm going to try to keep working? Is that a possibility with this treatment? Thanks for giving me some idea of what to expect. Rebecca
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CEA after surgery
Hello everyone, I just registered mainly for my mom. I love the form right after I found it the day before yesterday. I have one question regarding CEA after surgery. My mom got resection for both rectum and left leaf of liver on 11/01/2011 and just finished two cycles of FOLFOX treatment. However, the CEA was 35.4 right…
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Computer Question(Not Cancer Related)
I'm looking for some help here from the computer gurus(Blake, John, etc.). Almost every time I am on the board, and I use the back button to get out of a topic, I get the response page "Internet explorer cannot display the webpage". This also happens when I am in my insurance providers website and transferring to the…
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surgery in 4 hours
4th lung resection coming up...lying in bed and just weird knowing what is coming up but not being able to really do anything. It is just a sucky roller coaster that you want off but the train has left the station... Chip
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How much of Colon does an Abdominal CT scan pick up?
How much of the Colon does an Abdominal CT scan pick up? I read something about a virtual Colonoscopy and was wondering if that is derived from an Abdominal CT?
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Follow up after PET Scan
Had a Pet scan on Tuesday, and did a follow up with the oncologist yesterday. I have 6 tumors on the liver. We are starting 5-FU and Oxaliplatin for two months, then another Pet scan, and then potentially surgery on the liver. They have talked about installing a port in the chest on Tuesday, starting chemo on Thursday.…
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Question
You know, after all of the destruction of the "Gerson" post, I was thinking like others previously, that this isn't the place for me anymore. I'm sorry to say that because of the kindness and support I have recieved here from so many, and at times when there just wasn't any other place or person I could talk to, cry,…
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Wondering about Buzzard...anyone know how he is doing?
It has been several weeks since Jennie gave us an update and was wondering if anyone had any more recent news. Marie who loves kitties
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Two years
After more than two years of being unemployed (going through cancer, treatment and my life's savings) I finally got a job! Spotty (infrequent and unreliable) jobs consulting just never got the bills paid.
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Need your help Mates!
Does any of you ever had severe hemorrhages in your stomach while in chemo or after that?. Does any of you ever had portal hypertension due to liver surgery?. Varicose veins due to hight portal pressure?. Would like discus about it with you, solutions , preventing hemorrhages ,necessary to stop chemo forever? etc! Thanks…