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need your prayers please
Hi all, I am a 1 1/2 year survivor of breast cancer and have come to this board in the past to offer advice and to seek it. Today I am seeking prayers for a young man, who is my cousins son. He is 8 years old and was just recently diagnosed with rhapdomyocarsenoma. (forgive my spelling if it's wrong!) He is at the Devous…
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Myriad Labs/Genetic Testing
An update on my situation with genetic testing. It seems because Myriad Labs didn't notify me for a year that the claim hadn't been paid, I've lost my ability to file an appeal with BC/BS. That has to be done within 180 days. I have filed a complaint with the Iowa Division of Insurance. I'm still trying to get to the…
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I'm so very embarrassed!
I haven't posted lately-I've tried to stay away from the computer so that I don't spend the whole day on it.I really am sorta not sure how to say this ....or sure if it's something to worry about on top of everything else.Okay--for about the last 2 1/2 weeks or so during an intimate moment I'll say(there's not as many as…
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Radiation Therapy
I had a WLE 1/5/05 and an AND on 1/25/05. I started RT about 2 weeks ago. My right breast has swollen (minimal, but noticeably), and because of that, there is discomfort bordering on pain. I have no redness (yet). I take motrin for the pain, which helps only a little. I am wondering if the mild edema is due to my massage…
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ONE YEAR LATER I NEED TO TALK TO SOMEONE ABOUT RECONSTUCTION
i have been through it all, and now considering taking my overaries out april 20th i plan to do everything all together but i need to talk to someone on size of implants they are happy with. im all done with my reconstruction but right side has to be fixed so i figured they have to open me up again i might as well go abit…
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Jean Miller at rest
Hello everyone, I wanted to tell those of you who remember Jean Miller, that she has passed on to her final rest, the afternoon of March 15th. I hesitate to put such dishearting news on the board but I feel there are those of you who will want to know. Jean and I met here almost 5 years ago and kept in close touch ever…
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Skin sparing mastectomy-delayed reconstruction
Hi to all. I just wanted to share this bit of information which I recently found out (too late for me). I was diagnosed with a very large tumor (8cm) so my surgeon knew right away that I was stage III. I was scheduled for a mastectomy and when I asked about reconstruction I was told that it would have to wait since they…
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arm port-o-cath
I'm looking for anyone with experience with a port-o-cath placed in the arm. I have read that there is less pain with the arm placement, versus the chest placement. Is this true? Has anyone had movement problems associated with a port located in the arm? Any advice is appreciated. Thanks, Rechelle
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Tamoxifen after DCIS & Mastectomy
Has anyone turned this drug down after a mastectomy and not developed cancer in the other breast after a 5 year period?
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troyryans I need your help
Kathy, I need to get some more information about your insurance claim. Please e-mail me at ostendorfs@jefferson-scranton.k12.ia.us. Thanks, Sandy
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I'm tired of 'poor me'
In the past three years, I have had 2 bouts of breast cancer. Lumps removed, radiation, tamoxifin, lousy white blood cell count, misshapened boobs, and the whole nine yards. 6 months before the first diagnosis, my beloved husband passed away from a massive heart attack. I was reeling from the loss of my husband, when the…
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Inflammatory Breast Cancer
Is there anyone available to chat
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bilateral mastectomy and reconstruction
i was diagnosed with dcis about two weeks before christmas (2004) - since then i've had two surgeries, however these have indicated that the cancer is spread throughout both breasts, along with plenty of atypical cells. in spite of all this, i feel positively blessed that the cancer is of the non-invasive type! on friday…
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hope this does not embarras anyone
I have a problem and need advice I do not have any breasts due to having breastcancer twice the first time was in 1989 and the second time was in February of 2003 .The first time I went through 6 months of chemo treatments and the second time I went through a total of 4 but I was on Adrimyacin Rubex which they call red…
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Not the greatest Question
Hi everybody. I haven't been here for awhile. I have been trying over the three years since my diagnosis to help newly diagnosed girls get through this rollercoaster. And I try really hard to be upbeat and positive and a "cheerleader". But lately I am not doing so well. I do see other boards but they seem to all know one…
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blood from the breast
Hi..First I want to say that in May of this year, I will be a 5 year survivor. I am doing very good, with only minor problems from the tamoxifen. My question is not about me, I have a friend that had breast cancer 3 years ago, and she told me that she woke up the other morning with blood on her nightgown and that it came…
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New to the Site, Introduction
Hi! I'm new to this site (after seeing an ad on TV). I am currently being treated for breast cancer. On January 10th, I had a skin-sparing mastectomy (left side), for what they thought was DCIS. It turned out to be Infiltrating Ductal Carcinoma. Fortunately, there was NO lymph node involvement. At the same time, I had tram…
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Arimidex Side Effects
I've been on Arimidex for almost 3 years. After reading the message boards, misery loves company! I too have been on a l-o-n-g search for anything and everything to help relieve the side effects and make it through the next two years. I offer these and, because everyone reacts differently, they may or may not help you. But…
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Coulda, woulda, shoulda
Hello all, I have been recently diagnosed with dcis non-invasive breast cancer in my left breast. My pathology on my last re-excision has come back with too many sections with unclear margins. My breast surgeon has pretty much summed up that the dcis is too widespread and recommends a simple mastectomy and will need no…
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Anybody over 60?
I do enjoy the message board and find many concerns are shared by all ages. I am a long time survivor, for which I am thankful, but I have not found many survivors in my age range. If there are any out there, I would like to communicate with you. Betty
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sentinel node procedure
Sorry I do not know all the correct terminology, but I will try. I am unsure how I feel about what happened to me. A day before my bilateral mastechtomy, I had the dye injected in my breast so (I thought) I would have only a couple of lymph nodes removed. Well, I had 16 and no cancer was found (thank God). But I questioned…
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Fear after Cancer Treatment
Hello my good friends, I just wanted to say a few things. Being a survivor of leukemia, for those of whom survived breast and other cancers, living life after treatment is not so easy at first. We all have the emotional impact of *no treatment*. The treatment has become our security blanket. We are now at home and finished…
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port-a-cath
Hi everyone! I am scheduled on 3/16 for a port-a-cath (I think that's what is called). I'm not sure what to expect so if anyone would like to share their experience & give a few words of advice, I would appreciate it! I know it is scheduled as an outpatient procedure & was told not to eat or drink after midnight the night…
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Genetic Testing/Insurance
This is just a warning. My oncologist wanted me to have genetic testing done for BRCA 1/BRCA 2. My insurance plan did not cover testing, but Myriad Laboratories checked with my carrier and told me it would be covered based on medical necessity. After the fact, I found out they didn't get the approval in writing and now my…
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tram flap reconstruction
On 2/16, I had a mastectomy w/ tram flap reconstruction. I still have the drain. How long does this drain normally stay in? I'll be glad when it is removed so I can take a shower. Comments and suggestions would be appreciated!
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Breast reconstruction-To Do and How?
I have completed a left breast mastectomy, chemo and radiation. Got approved for implant or tram flap reconstruction. Not sure what to do? Seems like a lot of procedures and recovery for the convenience of another boob? Which type should I get? Please help.
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hair question please help!
Hi Everybody, I have a hair question. To tell you all the truth I thought I was pretty much done with hair issues since my chemo ended Sept 03. My hair came back really fast and thick. Different color and different texture at first but it pretty much turned back to normal. Here is my question. I noticed the other day that…
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Thanks
DebRoa, Jili, Jerlice, Ktinkey,JKAlley,Sweet Onion: I appreciate your advice on how to handle the aches and pains of life now without thinking it is cancer...I have had tunnel vision this past month and moved myself pretty quickly through the whole thing because I refused to become paralyzed with fear (although last night…
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Mammogram showed spots! 3/05
When i went for my mamo it showed spots. No big worrie the tech. said will have another mamo in 6 mo. That just doesnt do it for me though. Anyone else have a spotty mamo?
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Emotional help
I am 48 years old, diagnosed on Feb 23, 2005 with ductal carcinoma in situ, stage zero...there is no history of breast ca in my family...had a lumpectomy and sentinel node biopsy on march 9,2005 will have radiation, as a precaution (as per my breast surgeon)for 40 days...cancer was a low grade..here is my question...how do…