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port and chemo questions -starting thursday
I had my port put in on thursday. It is quite uncomfortable and I am hoping it is because it needs to heal. Its on my left side and I slept on it so I am in pain this morning. I thought the port would be smaller and I thought there was little or no recovery time involved. How long til it feels ok? Dr said some start chemo…
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Breast cancer and how to explain it for kids
Hey, at the end of February my wife Alice was diagnosed with stage two breast cancer, our lives changed immediately. We trying to keep it positive for our daughters Joana and Rachel, It seems that they don't quite understand what's happening, and why mom isn't at home. We tell them that mom is sick, and it weighs heavily…
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cost of anti-nausea meds vs benefit
Hi- I was just put on a new anti-nausea med called (Emend)sp? Anyway, I was SHOCKED at the price. I have really decent insurance and all my meds have only been a dollar or two. My cost was $54.00 for 2 pills! WOW..that is expensive. I hope it works. I was soooooo sick for the first week. It would be worth the money to feel…
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Enhertu and CA 15-3
my mother has breast cancer stage 4 which has metastasized to the bone and liver. She is currently on enhertu and she did the first cycle , however when they did blood testing for the tumor markers CA 15-3 was very high. Even higher than when she wasn't getting the treatment. Is this a cause of concern and indication that…
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Symptoms of brain mets
I would love to hear from anyone who has experience brain mets. I had stage 3 bc diagnosed in 2004. Over the last 4 weeks I have been having difficulty walking, kind of like feeling off balanced not vertigo. I have had problems with dizziness that started after chemo but it has never lasted this long so of course I worry…
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Breast cancer that thrives on hormones
Greetings all, how common is breast cancer that thrives on hormones? My cancer does, I was advised to read all labels at the grocery store and be sure to choose foods that don't have rbst or hormones in them. After the first few times reading labels I was HORRIFIED at the amount of hormones that we eat every day! To be…
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bisphosphonate (Zometa)
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Er + , tamoxifen and hysterectomy anyone?
Has anyone Er+ had a hysterectomy to supress estrogen? My insurance company is approving ovaries being removed but not the total hysterectomy- it seems like more studies are showing tamoxifen causing uterine cancer thus my goal for total hysterectomy- suggestions welcome!
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Anastrozole Question
Anyone on Anastrozole have their cholesterol numbers go up? Been on anastrozole for a year and a half and the last checkup my cholesterol was up without any difference in exercise of diet.
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14 year post double mastectomy onset of pain
I had a double mastectomy almost 14 years ago. Just recently I began having left breast discomfort/pain mostly near the outer/upper quadrant near my armpit and slightly above my breast implant on the chest wall area. The pain seems to be spreading/radiating to my left back shoulder blade area. It should be noted I have…
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Husband Does Not Want me.
I have been married for 25 years. My husband has been drinking heavily. He is now in jail he had been threatening to kill me for 3 days and punched me in my breast and said he wants a pretty nasty woman. I am devastated we were so much in love Went through everything with me. Verbally abusive I tried to keep strong but I…
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DIEP Reconstruction
Doing a search yields next to nothing for recent discussions of this procedure. I am scheduled for DIEP reconstruction three days before Christmas and would appreciate hearing about others' experiences and advice. And, even if there aren't a lot of responses, maybe this thread can become a more current repository of…
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Herceptin
Does anybody had herception longer than one year and if so how long and why? Somebody told me that it would be too dangerous to have herception more than one year but my onco told me that I have to have it at least for 5 more years. Coming up this September will be one year and my joints already aching like crazzy every…
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Long-term hair loss
I had my 2-year survival anniversary on Mar 1 2002 (yeah!). I am still suffering from hair loss due to chemo. I have tried the Nioxin products and have checked with my oncologist who says that she has never seen hair that has refused to grow back as mine has. My first chemo round was adriamycin/cytoxin and the second round…
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Help with decision for surgery. Mom’s triple negative and not sure about surgery.
Please help. My mom was recently diagnosed with triple negative breast cancer. She’s 86 and in good health. She’s starting to waiver on having surgery to remove the tumor or mastectomy. I think she’s afraid and also tired of all of the prep work for surgery. Can anyone offer any advice on how to encourage her to at least…
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cold cap for chemo
Does anyone have directions for making a cold cap for chemo. I've looked on Amazon but don't think those featured will help me avoid hair loss.
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Radiation Update
I have now undergone 12 treatments my 13th is tomorrow, I find myself counting the treatments till it's over. It's not too bad, the hour drive there sticks to only have treatment for 10 mins. i am going through Jan 2024. As of Thanksgiving I began to have some problems with eating, this morning i ate some scrambled eggs it…
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Tattoo Artist Wanted!
I saw my PS Monday. I was so hopeful he would have great ideas for whipping these disappointing girls into shape. I left very upset. He acted as though, now that its 5 months since my implants were put in, that we're 'done'. I made it clear that I don't think we're 'done' and while he was whipping out his camera for my…
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Just Diagnosed - Scared and Stressed about doctor selection
Hi all, during a routine annual mammogram followed by a biopsy I was diagnosed with breast cancer. My radiologist said I would need a lumpectomy and suggested I go to a doctor named Dr Mcntoch out of Englewood hospital in NJ (very close to where I live) who is highly recommended. I also called a trustworthy organization…
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Update on my journey.
I finished radiation 10 days ago. I had used aquaphor from the start. Had turned a bit pink, then red, then rather purpley, then brownish black. It hurt, only yesterday did I figure out most of the paint and itch was from the aquaphor. Got it washed off and was so much better. Today the skin began coming off. Saw my onc 2…
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Questions to ask before starting radiation about how the radiation machine works
Hi, I have come up with a list of questions I wish I had known needed to be asked about what my eyes would see and what my ears would hear while the radiation machine is moving around me. The only information I was given was that the treatments would be "quick", which I interpreted to mean "the same", and it really scared…
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Prayers please for my firend
I've tried to get her to join us but she wasn't sure she'd fit in since she was diagnosed 4 1/2 years ago and has been doing well. To make a long sotry short, sort of, things have changed. She had a lumpectomy and rads when originally diagnosed. She has now been told that she is one of the "rare birds" whose rads caused…
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Port films
I would be interested in hearing breast cancer radiation experiences with port films, the extra weekly xrays taken during radiation to check the machine alignment with the tumor area. Were you told ahead about these port films, or was this information withheld from you?
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Arms and legs feel like rubber
Hi all I had Chemo 5 days ago (TCH ). My third day was the worst ( weak sick exhausted ) but I am feeling pretty good now except my arms and legs feel like rubber, when I do anything. I was wondering if any of you have had this feeling and how did you get rid of it? I feel OK when I am just sitting but when I get up to do…
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Frozen shoulder.....
Hey rizzo, how long have you had a frozen shoulder? Anybody else have this? hummer
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XELODA
My wife's metastatic breast cancer did not respond to the Faslodex and Kisqali treatments so her doctor is going to put her on the oral chemo XELODA. She says it's her "go to" drug for skin metastasis and tumor reduction. I have read positive clinical studies on it. Just wondering if anyone has any experience with this…
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Thanks for port film response
Thank you nursejulie for responding to my port film post question. It made my day that you understood how I felt about the secret port films. I don't know why more people haven't responded. I think people are intelligent enough to understand a procedure if it is explained to them. I hope the rest of your treatment goes…
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Starting to feel scared
Hi all…I don’t of anyone is in this group. I read Carol’s share of feeling scared and that was in September of 2022…a year ago. I was just officially diagnosed on Fri. The radiologist suspected about a week ago during my mammogram…and the biopsy confirmed it. Interestingly, I was terminated from my job a day before my…
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chest wall resection
facing my third go round with the dreaded C word. Docs recommending chest wall resection...anyone familiar with process or recovery?
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Newly Diagnosed Two Weeks - Post Op Recovery question
Hi, I was just diagnosed two weeks ago with breast cancer, and I am in the process of setting up surgery, genetics, MRI, etc. I am most concerned about the recovery at this point. I will be having a double mastectomy with reconstruction at the same time. I don't know yet if I am a candidate for fat grafting, but if I am, I…