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Had to have radiation after reconstruction
Hi all, I went into my journey stage two invasive ductal breast cancer. The plan was mastectomy, with tram flap reconstruction. Nine hours of surgery. The next day I was informed there was more lympnode involvement and radiation was to be added to my treatment plan....and I went to stage 3 so, the possibility of scarring…
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What can be done after ixempra and zeloda?
Hi! My sister in law is in the last part of her journey with stage IV breast cancer. She was just on a treatment that consisted of Zeloda and Ixempra. It halted the progression in the lungs and bones but it still grew in her liver. She was on this treatment cuz the Gemzar stopped working. Her onc is trying to figure out…
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I'm a childhood cancer survivor and now trying to deal with mom w/ breast cancer
Hello all - Twenty years ago I was diagnosed with Leukemia. Even though I'm in my late twenties now, I'm still dealing with the emotional process as I never dealt with it when I was young. My mother was diagnosed with breast cancer last Fall. I can clearly see she has some emotional issues that she needs to heal as well.…
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Waiting... is over
Friday the 13th turned out to be just that... I had a follow up ultrasound, and being that I have had lots of fibrous tissues show was not overly concerned when they told me they wanted to take a couple of pictures. But then they said the radiologist wanted to talk with me about what she was seeing and I started getting a…
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Wonky labs
I see my MO Tuesday morning. Had my labs last week and got the results online. Nothing that says OMG, rather WTH? I'm not really worried about anything cancer related, just wondering how to react if she says let's just watch these or they're nothing to worry about or if I'll freak if she wants to investigate more. These…
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Hello again!
I found this board back in '09 when I was diagnosed with DCIS. I had a lumpectomy and radiation and thankfully am still cancer free! Is there anyone here from that long ago? My best friend has recently been diagnosed with BC. I've told her about this site and hope that she looks here and finds it as comforting as I did/do.…
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Had my break, back on Chemo
Started out feeling much better without the chemo. 3 weeks where food actually had flavor and tasted good. Lost most of the steroid weight again! That was all good. Had a great time with family and friends in California. Really enjoyed meeting Victoria.... By the end of the 2nd week of no chemo, started to have a lot of…
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I'm a little confused.
I saw the surgeon this morning about getting a port. I'm using a different surgeon this time because my previous port didn't work for blood draws and barely worked for chemo. The new surgeon started out telling me that ports aren't designed for blood draws and that using them that way damages them. He then proceeded to…
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Linda..GabeNAbbysMom
Linda....you'll always have me and the pinks in your corner....ALWAYS! I'll share what I can about my brain rads.in March.....I had hair when I had rads...so of course it started falling out in clumps so I had my head basically shaved afterwards...so I had zero burning of my head....just use Johnson's Baby Head to toe…
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Useful prescription information for others in the future?
Being Triple Negative, I'm new to taking pills for chemo but, with the recurrence, I will be starting on Xeloda probably next week. My cancer center got the prescription filled through their pharmacy and I was told it had a zero dollar co-pay. Today I received a phone call from someone informing me that they work with my…
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Love my NEW MO
OMG ... a lot of the crap I've been through would not have happened IF I had this MO in the first place. She and I are on the same page. I told her why I was in search of a new doctor. I was diagnosed on August 26 of last year. Surgery in September. Then a second surgery for clean margins in November. That was way too…
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Yesterday was LineDancer54's Birthday!
HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY DEAR SANDY HAPPY BIRTHDAY TO YOU!! AND MANY MORE...!!! *So sorry I am late. I was not able to get service yesterday. I hope you had a wonderful day filled with all the things you love most. Love, Cat
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One proud Grammy
I put a picture of me and my new love on my expression page. I'm just giddy! Hugs, Renee
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FDA Approved Afinitor For Breast Cancer
http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm312965.htm FDA NEWS RELEASE For Immediate Release: July 20, 2012 Media Inquiries: Erica Jefferson, 301-796-4988, erica.jefferson@fda.hhs.gov Consumer Inquiries: 888-INFO-FDA FDA approves Afinitor for advanced breast cancer The U.S. Food and Drug Administration…
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Camp Kesem
Hi all, Camp Kesem is a summer camp for kids who have a parent dx'd with cancer, it's about a week long and it's free. My daughter has been back from camp for a while now, and she's still talking about it. It was a really good experience for her. So for those of you with kids, please check their website. There are camps…
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Pain Meds
The aching from the chemo has been very hard to deal with. Do any of you use pain meds other than Tylenol or advil, etc. (these really do nothing for me). Everytime I mention this I feel like the P.A. and Dr. just blow me off. I take TCH and will have the 4th of 6 on July 16th. Any input would be greatly appreciated.
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embarassed to say
Hi everyone, I have a question that I would like to ask anyone out there willing to respond. I am six months post chemo and have now found a new solid lump in of all places "sorry to say" my buttocks, now has anyone had this and is it something I should get checked out. just feeling kind of wierded out about talking to my…
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Bras after reconstruction
Just wondering if anyone found a preference in bras after reconstruction or is this something my PS will tell me that I should have? Thanks! Sandy
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Robert aka ManWithaMission - How Are You Doing?
Robert, I hope your recovery is going smoothly. Let us know how you are doing? Best to you, Doris
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Phoenix people--let's set up a luncheon!
Okay, I've heard from the following regarding getting together for a Saturday luncheon: Trixytwo, debsweb18, Mary Ann and Edna (through emails--they don't get on this board very often). Anyone else wanting to join from Phoenix or traveling through--just let me know. Which Saturday is best for everyone--Aug. 4 or Aug. 11? I…
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Family member having cancer
I have recently found out the devastating news that my Gran has cancer and was wondering if anyone has any good quotes about it. I really want to get a tattoo so that I will have something to remember her by in the future. I'm really stuck for ideas as I really do not know what to get and want to make it something worth…
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Are sharp pains a symptom???
Hello All, So I am a fellow lymphoma survivor and I am freaking out a bit. I developed a lump in my right breast a few years ago but it never bothered me. I had an ultra sound done on it shortly after I discovered it but the doctor claimed nothing looked unusual and it was probably just breast tissue. A few months ago I…
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Thickening of uterus
I had posted some time back I had total hysterctomy due to TAMOXIFEN....enlarging my uterus. I have seen others post they have had hysterectomy but for same reason. I never hear anyone mention thickening. MY oncologist insisted from the get to to have interanl ultra sound each 3-6 mths...my gyno stated he normally doesn't…
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Some can donate blood/organs after BC
Roseann posted the great news that she has been approved to donate a kidney to her Son after BC. That is fantastic but quite complicated to be able to do BUT for many of us who have been blood donors and thought that we could not ever donate again - we can (as long as everything else makes us elligiable). We can also be…
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O.T>fell at work yesterday
not sure what hurts more pride or knees...I went down with a BANG...knees swollen, scraped adn bruised!...about 3 co workers saw me go down..so there goes my pride...hehe... laughing today...but NOT yesterday.. Denise
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Discomfort after nipple saving bilateral mastectomy
It is now 3 weeks after my bilateral mastectomy. The plastic surgeon put in expanders for reconstruction and my breasts feel so tender. I am not sure what hurts but I go off pain killers and get caught with nothing but lots of pain. What is all the sensitivity? inside? outside? the expanders? If I change bras that helps,…
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Reconstruction/ Newbe here!
Hi Everyone, I am 55 years old and relate so much to many of you here. My mother was a primary breast cancer survivor X2. First at age 38 (1968) and then again at age 52 (1982). She passed away at age 72 but it had nothing to do with breast cancer. I knew after her second diagnosis (probably before) that if this day ever…
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Exchange surgery
I had my exchange surgery today. Silicone implants for expanders. I am pleasantly surprised as to how much softer & natural the implants feel to the touch as compared to the uncomfortable expanders. I guess as soon as this heals I will have no more excuses & will have to fill the dreaded tamoxifen script that is on my…
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breast removal last week
I have been bottling all my anger and frustrations up ever since I was diagnosed with BC. After several months of treatment and only being able to stop it from spreading I finally gave in and did about an 80% removal June 13th. I was a DDD and now I'm a small B. I'm lost and all the emotions I have been holding back from…
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It's the Big Day
Today will be my 1st mamo since my breast dx. I know this day will be fine as I have you ladies and God on my side. I'll be on the bus to Kaiser Canoga Park CA at 1:30pm. Come and join me for some drinks, good food and most of all good laughs and stories to tell. Constance