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Cargiving husband with brain cancer

blocke
blocke CSN Member Posts: 1
in Brain Cancer #1

Does anyone have any experience to share?  I'm in month five and am struggling.  Glioblastoma grade 4.  Craniotomy, radiation, temodar and avastin.  Still on decadron and walking is very limited and only with a walker. 

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  • lthenderson
    lthenderson CSN Member Posts: 19
    #2
    After my mother was diagnosed

    After my mother was diagnosed with brain cancer, I found lots of helpful words of wisdom and advice through books. Some of the ones I recommend are:

     

    So Far, So Good: A Memoir of a Brain Tumor Patient and His Caregiver by Kathy Beechem

    Chasing Daylight: How My Forthcoming Death Transformed My Life by Eugene & Corinne O'Kelly

    Being Mortal: Medicine and What Matters in the End by Atul Gawande (I highly recommend this one the most.)

    Pear Shaped by Adam Blain



     


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  • robinson3
    robinson3 CSN Member Posts: 1
    #3
    My name is Jill. Husband 47

    My name is Jill. Husband 47 yo has had a Oli for for 20 years. Now upgraded to a GBM. Just finished surgery with some speech and reading deficits.  started 6 weeeks of Rt with Tmz. Pending genetic test results.

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  • clgoelzer
    clgoelzer CSN Member Posts: 6 Member
    edited July 2017 #4
    robinson3 said:

    My name is Jill. Husband 47

    My name is Jill. Husband 47 yo has had a Oli for for 20 years. Now upgraded to a GBM. Just finished surgery with some speech and reading deficits.  started 6 weeeks of Rt with Tmz. Pending genetic test results.

    Hi Jill. How are things going

    Hi Jill. How are things going for you and your husband? My husband battled a GBM 4 for 14 months. Happy to help in any way I can.

    Cathy

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