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Brain Cancer

grade III, Anaplastic Astrocytoma in 3 year old
Very dear friends of mine just had their three year old grandchild diagnosed with grade III, Anaplastic Astrocytoma. It's not where they can do surgery and her prognosis is very grave. However, the doctor has not given up, instead is searching to see what else up there can be done for her. She had vision problems and lost…
First brain tumor from ionizing radiation(not treatment)
Its very complicated situation. Im male in my early 30. I had a head injury at age 8. Nothing serious apart from loss of consciousness for some hours. Later in life I've spent sometimes talking over 8hours on mobile phone with gf, i was only 16. No symptoms of anything, until i started going to load concerts and gigs. I…
Cerebellum IMRT experiences -- prior AAIII IMRT patient
Good afternoon, I've read through many, many of the threads here and my heart and mind goes out to everyone who has suffered a loss. I'm also at a cross-roads right now and would appreciate the board's collective experience: At 25 years old, in 9/2009 I had a seizure, MRI dx was low-grade glioma in left frontal lobe 6cm x…
Oligodendroglioma Grade II - Update
It has been a while since I have been around, thought I would post an update on me and Jordan. Jordan was diagnosed three years ago with Oligodendroglioma Grade II. He had a partial removal and has been on the wait and see program since then. There has been no growth, no effects from surgery other than.... he is now able…
brain surgery
I just wondering what are the chances of my mother surviving brain surgery she has a tumor on her right frontal lobe she is 60 years old and just recovered from a stroke a little over weight i just need to know if shes coming out Thanks anyone
Methotrexate dosage question...does 60 per cent really work as fast as 100 per cent for PCNSL
Hi all, best wishes in your battles and God bless... My dad, 73, has been diagnosed with PCNSL Fec 27 2015, a 5cm diffuse tumor in his cerebullum. He was diagnosed without biopsy after much discussion about whether it was PCNSL or Glioblastoma or possibly Astrocytoma. After one treatment of 60 per cent MTX a BP Shunt was…
Anaplastic Oliogodendroglioma Chemotherapy
I am looking for information on PCV chemotherapy. Has anyone been on this regime. I may only receive the Procarbazine and CCNU, but not sure yet. Just finished radiation and chemo to start on June 15th. Any information is greatly appreciated. What I can expect and any tips.
Lymphoma Meningitis
In December 2013 my husband was diagnosed with Diffused Large Blue Cell Lymphoma. In April 2014 he finished is last chemo cycle (R-EPOCH) and was in remission. Unfortunately, he relapsed in April 2015 with DLBCL in his menigies, AKA Lymphoma Meningitis. This is a sub-type cancer that enters into the fluid of the Central…
GBM IV, Duke University Studies, & Insurance
Dear Friends, October 15, 2013 Initial discovery of GBM Grade IV brain cancer June 13th, 2010 by CAT SCAN. Initial symptoms were equlibrium imbalance. I was losing my equilibrium and my legs felt disconnnected from my body. Brain Tumor is 17mm x 19 mm in the Left lower Motor region. Ressection Surgery was scheduled for…
Left frontal lobe tumor Just removed
My husband had a left frontal lobe tumor removed 4 days ago. He was released from the hospital less than 48 hours after surgery. He is suffering from ahpasia (the reason I took him to ER originally). I don't know what kind of cancer it is yet, no patholgy report is ready. I don't know what the post surgery MRI showed. I…
GBM Grade 4 - Need advice on diet, supplements & Novocure??
My 56 year old, picture of health, Step-Dad was just diagnosed with Grade 4 GBM. He had a seizure on Feb 19, 2013 and the MRI found a grape sized spot in his brain, he went in to surgery on Feb 22, 2013 and got all or most of it out. He is going to start Chemo and Radiation this week. I was wondering if anyone had a list…
GBM Grade 4
Hello. My mom was just diagnosed with GBM. Surgery was 4/2/15. Friday we have an appointment at MD Anderson for a 2nd opinion and treatment options. My mom is a healthy 70 year old. No other medical issues. Her symptoms were tingling on her left arm and leg. Blurred speech on a Saturday was when she went to the ER and they…
GBM4 trial vaccine
i am new to this site. My husband (52) was diagnosed with a right temporal GBM4 on oct 9th. Had surgery on October 10th. He will do chemo and radiation and then will be taking Part in a clinical trial that uses his tumor cells mixed with his stem cells to make a vaccine. The surgery was so quick we were not prepared. he…
Anaplastic Oligodendroglioma Grade 3
My short version of my husband's fight My husband was DX July 2010, standard treatment. Had gamma knife in July 2013 for small area along with Temodar . Showed signs of progression while taking Temodar after 3 months so they put him on CCNU. After 6 months of CCNU that area cleared but another area appeared and the doctor…
Thoughts about improving survival
Hello, I just stubbled upon a website www.astrocytomaoptions.com It is really well done. The amount of wealth in that webside in terms of treatment options is astronomical. From that site I saw the short film www.survivingterminalcancer.com It really resonated with me. The idea is that you have to be your own advocate for…
Grade III Anaplastic Oligodendroastrocytoma
My 64 year old dad was just DX with Grade III Anaplastic Oligodendroastrocytoma. It goes from his left frontal lobe to his right, and has been described as diffuse and infiltrative. We have been told surgery is not an option because nod its size its location, and that it would remove too much brain tissue. It seems like…
Grade II Oligodenroglimas Bengin or Malignant
I am a 26-year-old female running on very little sleep and concentration so I apologize for any typos in this. I was diagnosed this grade II oligodendroglima this past spring because of sudden severe migraines lasting 4 to 5 weeks. An MRI was found which showed the tumor as an incidentaly finding. I had it resected one…
Undiagnosed brain tumor in cerebellum (possible primary lymphoma)
Good evening to everyone, Before I tell my father's story, I'd first like to thank everyone that posts on this website for sharing your stories of hope, and courage. The knowledge that I have gleaned from reading people's first hand accounts of their fight, or those of their loved ones, has been invalauble to me. My…
Anyone know the progessive effects of gliomatosis cerebri?
My wife had a brain tumor diagnosed over three years ago (anaplastic astrocytoma, grade III). All of her MRIs looked good over the last few years but we got a bad surprise in December, 2011. A couple of small lesions had formed away from her original tumor. So, a gamma knife was scheduled a few weeks later and she was put…
Headaches from tumor
Hello. My husband was diagnosed 3 years ago at age 28 with a oligoastrocytoma WHO grade II. He had a 13cm tumor in the right temporal lobe of his brain. About 70% was removed at Duke University. We now go to MD Anderson. He has aura seizures at least every few days. He has headaches everyday from the time he wakes up until…
Fainting when coughing after PCNSL
Hi, I have had PCNSL (primary central nervous system lymphoma) and am now NED (no evidence of disease, "cured"). I have bad and long colds with severe coughing and fainting tendences. Sometimes when I cough I actually do faint and fall. So far, I have been sitting on my bed when fainting, so the fall has not been so big,…
oligoastrocytoma Grade II survivor 12 years
Hello everyone I'm new to this site but I wish I found it sooner. My name is Scott I was diagnosed with a brain tumor in fall on 1998 it was a cancerous oligoastrocytoma grade 2 I only warning was a grand mall seizure in my sleep and I had waken up with blood on my shirt. At the time I was only 23 so I didn't have a clue…
Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
First MRI since chemo/radiation- share good news
Hi everyone. Just wanted to share some good news. I was diagnosed with AAIII in November 2014. I underwent surgery and recently completed radiation/chemo. I had MRI yesterday. Everything looks good! My oncologist would like to continue treating this aggressively and start chemo in March. Like most of us, I will be treated…
brain tumors
Ok, so my cousin just found out he has a brain tumor and went in after the swelling went down and had surgery. He ended up finding out that he has a very rare type of cancer...especially for adults. It is Teratoid/Rhabdoid(at/rt). It is usually found in babies and toddlers. Well, he in 34 years old and I have tried to…
GBM Grade 4
My mother has GBM grade 4. She had surgery in March. Did radiation with temadar. Now doing higher doses of temadar 5 days on 3 weeks off. MY mother is 80 years old. At the end of February she was completely independent. Driving, doing volunteer work, cooking, going out with family and friends. Now she has lost all…
CNS Lymphoma newly diagnosis-ed need only 27, need to know your treatments
Hi, Posting for another, just diagnosis-ed with CNS Lymphoma, with comprised immune system. Where are the specialist, where are you being treated. Anyone use Penn, what did you think of the doctors ? This rare cancer, is going to be a rollacoaster, any insites would be appreciated. Thanks Jay
What's Novocure? Does it work?
Are Optune and Novocure the same thing? Has anyone here tried it? It seems pretty science fiction to me, but if it works I'm game.
Laser Ablation Brain Surgery
Has anyone had laser ablation surgery for brain tumor that spread from the lung?
Augmenting Cancer Therapy with Diet - An Oncologist's View
Dr Champ is an Oncologist and Assistant Professor at the University of Pittsburgh Cancer Institute. Here is a link to a recent talk in which he discusses his views on diet for cancer patients and how he came to these views. He also discusses the mechanisms by which diet can fuel the growth of tumors or slow growth. I urge…

Brain Cancer

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