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Brain Cancer

Coping
Hi all, To those of you who are fighting the fight, please don't giveup. Both Duke and City of Hope have many trials, some with encouraging results.To those who have lost loved ones, how do you cope? How do you get through the day with the heartache? Thank you
Austin - Emotional and psychological weight of astrocytoma
I was recently diagnosed with an astrocytoma in my right temporal lobe, pressing against my spinal cord. Rather than wait and let the fear cripple me, I opted for a fast-track treatment path. I had had a craniotomy last week and the surgeon was able to remove about 90% of the tumor. What remains is categorized as a grade 3…
Gliomatosis Cerebri -- Insight and Help
I am writing on behalf of a good friend who -- after 2.5 months of tests and scans, including a small needle brain biopsy that showed absolutely no results -- was just today diagnosed with gliomatosis cerebri. Maybe I'm grasping at straws, but I am afraid he has gotten an incorrect diagnosis and will not receive the right…
Glioblastoma IDH Wild Type
Hi, I'm new to this and am looking for support I suppose. My dad was diagnosed in Seattle with Glioblastoma IDH Wild Type. From April 2016 to August 2016 my dad's tumor went from 2cm to 9cm. In April we are guessing while on a scaffold the he had is first seizure, somehow he was able to get up and make his way to the house…
Free flights for cancer patients
Please watch this video and let people know Angel Flight will take all cancer patients to any hospital in America for absolutely no cost to the patient and typically 1 person can go with them at no cost. Once you get to the hospital there is a ground crew to drive you to and from the airport. These are private airplanes…
My mom had a Glioblastoma Grade 4
My beautiful amazingly strong mom, 48, had a seizure July 2 2012 and was rushed to emergency where they found her brain tumor. She had surgery on July 14 where they removed most of the tumor and was diagnosed with a Glioblastoma stage 4 Aug 15. Started chemo/radiation aug 22 and completed one out of six weeks of treatment…
Glioblastoma Multiforme HCC
Hi On 9/20/2016 my world went into a tail spin. My mother went to health center to get her blood pressure meds adjusted. She had been missing words and confused and her BP was high. By 9/23 she was having a brain tumor removed. now she needs 6 weeks of chemo pills and radiation and so far her insurance is denying…
First symptoms of brain cancer
Hello all, I am a new here. I am wondering what are the very first symptoms of brain cancer.
Avastin chemo Drug -- Has anyone here taken it?
Hi everyone! I come from the breast cancer forum. I have a friend who is now facing brain mets. She received full brain radiation and it did not work as well as they wished it did. They are now offering the chemo drug called Avastin, which is usually used for brain cancer but they have seen good results with it for breast…
Would luv some positive stories...
Hi everybody. I've changed from the lung cancer group to here. My Dad (who is 56) is having a few setbacks at the moment. We just found out that he has a tumour on top of his brain (1.5cm). He had lung cancer but had been in the 'all clear' for 5months, of course we were all ecstatic. Doctors were very impressed with the…
Frontal anaplastic oligodendroglioma - Grade 3 - Side effects
Hi - I am new to this site and ama hoping to find some help here. My fiance had a seizure in June, which led to us finding out that he had this brain tumor. It was removed two days later and he just finished the 6 week radiation treatment along with the Chemo (oral Temador) at the same time. He is now 1 1/2 weeks into his…
Hello my journey is just beginning.
from my right frontal lobe. I am 1 week away from starting my treatments of 7 weeks of radiation and chemotherap. I am really nervous about the chemo part of the treatment Your still in a fog at least I was when this whole snow ball started rolling. So let me tell you the whole story from the beginning . I am a 47-year-old…
Dexamethasone taper: how did you do it?
My father was diagnosed with a very small brain tumor, but with a big swelling so the doctor put him on Dexamethasone (8mg daily: 4mg in the morning, 4mg in the afternoon) in order to reduce that swelling. After a couple of months he was doing pretty fine, until the tapering process started. The doctor said we should go…
Steroid treatment (Dexamethasone/Decadron)
Hi, In October, 2002 my mom was diagnosed with an malignant Asterocytoma. She has been receiving steroid treatment since. The doctors tried to wean her off the steroids once before (in January) which landed her back in the hospital. Monday she was weaned down to 1 mg per day and she began having terrible weakness in her…
6 Brain Surgeries
I have been diagnosed with a pituitary adenoma about six years ago. Even though the tumor is benign it has been extremely aggressive. In six years I have had six brain surgeries plus one month of radiation about two years ago. This past July was my last surgery and it was the worst one. My eye was completely shut for a…
Stage 3/4 GBM
I just wanted to make a quick trip post to introduce myself to everybody here, my name is Jason Rowley and I just had a 4 cm x 4 cm right frontal GBM states 304 glioma removed I'm as I go through these initial stages of grief and why in the hell what the hell happened I just wanted to seek some advice from people on what…
Can I have a brain tumor? 1.5 y since last CT.
Hi everyone. 1.5 years ago I had a head CT, with contrast. The study did not show any changes in the brain. A few weeks ago I had a severe attack of pain, which continues today, with varying intensity. A few days ago I had another CT (without contrast), which also showed no change. Does this basis, we can eliminate the…
Oligodendroglioma MRI Results
I had my latest MRI two weeks ago and the Doctor, a fellow and 3 residents reviewed my results and said there was no indication of any disease. My hospital also sends out the MRI result report in their MyChart system. When I looked at the report today it said there was a region that was "suspicious for recurrent disease"…
Oligodendroglioma Research & Clinical Trials!!
Hello. I was diagnosed in 2005 and for a year or two after, I followed and researched greatly...then put the cancer experience behind me. In May I received an email from the NBTS about Oligo research! I had never heard of http://www.oligonation.org/ a GREAT resource for the oligo patient! Has anyone else heard of them? Web…
Oligodendroglioma II, recurrence after 2 and a half years
I'm looking for similar experiences or support with this. I posted this on another person's comment, but I don't think this is what she was looking for. And I am looking for something myself... I have a stage II Oligodendroglioma, and have 1p, 19q deletion. My tumour is on the left-frontal lobe, right up against my motor…
Diagnosed with brain cancer
I was recently diagnosed with brain cancer with severe swelling in the brain. I even have abnormalities in vision. I went for an eye check yesterday and the doctor advised me to take the Lasik eye surgery procedure from any nearby clinic in Oakville like the See By Intravision. But I don’t know whether Lasik is safe at…
Joint pain and chemo
I have been on Temodar for 9 months now and am starting to experience some intense joint pain. I could chalk up the pain and stiffness to getting older but I am 30 and have never had joint issues like this. I am wondering if this is in any way related to chemo. I have read that breast cancer patients experience this during…
After cancer
Doctors discovered a massive brain tumor on my sisters frontal right lobe in 2012. She was immeadiatly admitted into the Neuro ICU and operated on the next day. She then spent 10 weeks at MD Anderson recieving chemo and radiation every day. She was only given 3 years to live and miracously the tunor completely disappeared.…
Hi! I'm new here and want to introduce myself.
Hello! My dear friend was diagnosed with inoperable grade 4 GBM in May. She had no other symptoms other than confusion one weekend. She started her 6th and final week of daily radiation and chemo today, and is looking forward to returning to a new normal in her life. With the addition of Dexamethazone the confusion quickly…
My mother has Glioblastoma Stage 4 Cancer
I am in desperate need of help and understanding. My mother was diagnosed October 2014 with stage 4 Glioblastoma Brain cancer. There were two tumors, one they removed part of, and another they tried to treat but looks as though now has doubled in size. She cannot drive, has memory lose, and some of her motor skills and…
Brain Tumour
Here in the UK my wife had a brain tumour in 2009 removed and in 2013 she was recommended to have radiotherapy which has scared the brain, this has left her with a very heavy left leg and foot. Can anybody tell me if they have experienced the same and if so what medication have you used to ease the problem.
PNET Cancer
Very recently a family member has been diagnosed with PNET cancer which has spread to his spine. He is in his 30's (certainly not a child, and not typical of this particular form of cancer). I am wondering if anyone else in here has had any experiences? My family is understandably a lot freaked out as anything online…
Adult Brain Stem Glioma C71.9
Diagnosis, I started noticing the first symptoms back in December 2015 but since they presented themselves at different times and were so random I never though anything of it. On April 13th, 2016 I had already started experiencing double vision and I brought it up to my optometrist’s attention on my regular yearly…
Migraines after craniectomy olgo stage II
I am an oligodendroglioma grade II survivor, 88% was removed in 2011, the 12% that remains is inoperable. It was and is a right frontal lobe tumor. I was diagnosed @ 27, and am now only 32 and still have a lot to live for. My oncologist doesn't want to do chemo or radiation, until it shows signs of regrowth. Tuesday is my…
Church Member Faking terminal cancer
Yes it's true. A lady I know has been faking cancer for the past two years. She has scammed her church, family and friends out of thousands upon thousands of dollars. Let me give you some background on me so you know I do not make such accusations lightly. I say these things with a very heavy heart and with intense…

Brain Cancer

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