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Brain Cancer

Parent of young man with GBM
MY son was diagnosed with GBM in March 2016. He had been misdiagnosed as Bipolar and none of the psychiatrists ever did a brain scan when I asked. We are very isolated as I just moved to the CA desert for a job in JAN. My son was in a PhD program, got his masters in Economics a year ago and has just finished his first…
Texas Survivors, Fighters and Caregivers
hi I am organizing a team to raise awareness for brain cancer and I was wondering if anyone from east texas wants to come join me in may
Brain tumor and the diagnosis procedures
Hello my 20 year old niece is currently in Yale brain tumor center. Tuesday she had her first appointment wiith the oncology neuolologist and was immediately admitted and has since learned nothing more in regards to prognosis, treatment or what the discovery process is. We are frustrated and confused. There is a team of 3…
Astrocytoma grade 2 valoni
I was recently biopsied and diagnosed with an astrocytoma grade 2 tumor . With the exception of the symptoms that led me to my Doctor I've only dealt with the side effects,like not moving my legs,and not remembering things before surgery,i have bin diagnosed in short time i made biopsy and then surgery so i can clean the…
Brain Lymphoma
Hello, I was diagnosed at the end of 2012 with primary brain Lymphoma. I have heard it referred to by a number of different names including Primary Central Nervous system Lymphoma, and Non-Hodkinson Lymphoma. I essentially underwent Chemo and radiation and by May 2013 declared to be in remission. I still suffer from…
Pxa grade 3 anaplastic Tumor .. Rare .. 11 year old boy
My sons been diagnosed with a rare pxa grade 3 Tumor ? Anyone heard of this before ? He has had surgery and are confident they have got it all, will be starting radiation for 6 weeks and chemo for 6-8 months HAs anyone come across this before .. We are devastated thank you
Glioblastoma
My Glioblastoma “If God Dwells inside of us like some people say, I sure hope he likes BBQ, because that’s what He’s getting” August 1st 2015. Driving alone in Utah with onset of Nausea requiring me to pull over on a back street to a grass median. A few dry heaves and everything felt fine. Returned to my truck and realized…
early 1980's radiation treatment for brain tumers
I'm looking for survivors or friends of 1980's radiation treatment for brain tumers. My mother is a 20 year survivor who has gradually decreased brain and motorskill functions. She's been diagnosed with organic brain syndrome and really been given no hope.It's cruel to think you've beaten cancer but now the cure is killing…
GBM Stage 4 recent diagnosis
My wife was just diagnosed with a GMB after she has a tumor removed 2 weeks ago and the pathology results came back. She is 47 years old. That part was in the previous post. The rest of what i posted has take care of itself. I am not sad about it anymore now I am tired of feeling helpless and it is time to fight. She has a…
Glioblastoma Grade IV - chemio tratment how to prevent nausea please
Dear all, my name is mari and my mum erminia is the love all my life! we had a great Christmas altogether with me and my sister and our families coming to visit her...our children running and bouncing waiting for Santa... big feast on the table ,that days were full of joy and happiness..... On the 16th of January my mum…
Astrocytoma Grade III-Survivor
Astrocytoma Grade III-Survivor. Anyone can help me with this one?
I need opinions on hospice care for my mom!
So my mom is 51 and she has had breast cancer since 2001. the cancer metastasized to her lungs about 6 years ago, and we recently found out that it is now in her brain. She had a total of 7 tumors, and they removed one. Since August 1st she has been in the hospital 3 times. The first time they did an emergency surgery to…
GBM Cancer Stage 4
Submitted by barbn on January 30, 2012 - 4:56am January 28, 2012 - 7:40am My husband was diagnosed with GBM STAGE 4 on Nov.1st, 2011. he was told 12-14 months prognosis. He had surgery on Nov. 7th. The surgeon went an inch into his brain and removed 90-100% of tumor. The tumor had affected his left side. They call it "left…
Gliomatosis Cerebri
I am a 31 year old male and was diagnosed with Grade III gliomatosis cerebri in Oct 2013 and miraculously doing fine now with minimal symptoms. I did 6 weeks of radiation and temodar followed by 12 months of "maintenace" temodar. I'm off of all treatments and getting bi-monthly scans that show a stable, not growing tumor.…
DOES WBRT WORK? IS IT WORTH IT WHEN IT IS NOT A CURE?
My poor Mother. Stage 4 adenocarcinoma of the lung which has metastasized to the brain. Lung spot was caught early and successfully treated with stereotactic radiation, but not before it metastasized to the brain. Initial brain spots were treated with stereotactic radiation, but recent MRI shows more spots have appeared.…
Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
Newly Diagnosed AAIII
My 32 year old husband was just diagnosed yesterday with an AAIII. We have been told it is not operable given the location and the treatment plan will consist of some combination of radiation and chemo. We are meeting with the oncologist on Monday to discuss details. I have also started discussions with Dr. Mitchell Berger…
Views on proton therapy for a 6 year old
Hi Everybody, My son is 6 years old has been diagnosed with medallublastoma. Radiation oncologist has told me several impacts of radiation on a 6 year old. Can anybody tell me in more detail the impacts of radiation at his age and also I am in NZ and was hoping to go over to USA for Proton beam therapy as I have been told…
Anaplastic astrocytoma and seizures
I'm trying to decide whether to stay on Keppra. I was diagnosed with anaplastic astrocytoma (grade 3) in June 2013. I had a focal seizure before the tumor was removed, and have been on a low dose of Keppra since. I've gotten conflicting information from doctors on whether it's necessary since I haven't had any seizures…
High grade glioma III-IIII
My father has a High Grade Glioma. He was just diagnosed a few days ago. They say they range from about a 1-5, and hes between a 3-4. It was in a inoperable spot, and he should be doing radiation and chemo soon. Of course, google is not the best place to go to when you find things out like that, but thats how I found this…
Polio Virus for Stage 4 GBM
Hello, I am new to this group. I am wondering if any of you have tried the Polio Virus for GBM? I know there are only 16 patients in the study, but just thoght maybe someone on this board is in the study. My best friend, age 40, is being considered for this trial and we are wondering what the experience has been like from…
aa3, frontal lobe
my mom was just given pathology on her tumor that was resected. she has 98 percent taken out. will follow up with radiationa nd chemo. im so scared. does anyone have any positive stories on surviving aa3? r we lucky we got 98% of it? she has no deficits and no symptoms... i luv my mom she is my best friend i cant lose her.
HELP NEEDED!! Malignant Neoplasm Stage 3
My husband left me a year ago & we are in the process of divorcing. He was diagnosed with a malignant neoplasm tumor & just had surgery to remove it. The doctor said it was stage 3 & doesn't know until he does a scan if he got it all. I'm trying to find out any info on this & what the outcome can be since its stage 3. I'm…
Are there any survivors of Pontine Glioma
Can anybody tell me of any kind of treatment that worked on this type of tumor?It would be deeply appreciated.Thanks
Proton therapy for DIPG
I wonder if anyone has any information about the effectiveness of proton therapy against DIPG (diffuse intrinsic pontine glioma).
Mom on capecetabine
Hello everyone! I am trying to find more info about this med. does anyone know if it is ok to come in close contact with my son.aI am asking because when she was in chemo with platina dr wouldn't let her hug or kiss my son for 48 hours. He is 15 months old and mom is taking 8 pills 500mlg. Thank u very much in advance!
Deterioation quickly - CNS Lymphoma - one treatment of Methotrexate
Hello - I am new to this board and new to learning about CNS Lymphoma quickly as it has affected my 75 year old father. On Father's Day (June 2015) I went to visit him and he was walking very gingerly, slow and I was afraid of him falling over. Prior to this he has been very active. We have gone on hikes, and we even split…
My Experience with Brain cancer, from almost no hope to complete remission
I’d just like to start off by saying I’m here to give my own story of cancer and the success I’ve had with treatment using DCA. Your mileage my vary but don’t overlook DCA as a possible option. I was first diagnosed with brain cancer on Feb.18th 2012 after an MRI revealed a grade 3 Astrocytoma tumor. My Oncologist’s…
Caregiver for Oligodendroglioma - need an idea of what to expect and resources
My husband was diagnosed with an oligodendroglioma in Feb 2014. He went through radiation and the tumor shrunk. In January 2015, it came back with a vengance and the doctors started him on Temodar. As of June 2015, the MRI shows no new tumor growth and any radiation neurocrosis has cleared up. However, two weeks ago my…
Baby after male on temodar
I would like to know if anyone has had a baby after the male was on temodar. I haven't found anything online about anyone having a baby that had issues. But I would like to be safe on how long we wait. I've heard windows of 3 months to 3 years. We would really like to have another child. Any stories will be helpful, thanks.

Brain Cancer

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