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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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6 year osteosarcoma survivor, with new lump on breast! Help!
Hi guys, I am a 25 year old osteosarcoma survivor. I was diagnosed in 2007 and underwent surgery and chemotherapy. My primary site was in my right mandible, and it never spread. Last night while showering, I felt a large mass in my upper right breast, and I am freaking out! I contacted the hospital and should be able to…
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bone mets
Hi for bone mets fro.m BC, is a Pet-Ct more accurate or a Bone Scan? Who has knowledge of this
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Osteosarcoma - Diagnose at 40
Hello there, I am a new member, just joined 60 minutes ago. Still find it hard to believe from a knee discomfort 2 months ago, I have now been diagnosed with Osteosarcoma. I would appreciate sharing about treatment options and life after treatment, how fast one can walk again. I am a working mom, just over 40 and have…
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CT and bone scans / bone met test results
Question for those with bone mets. I have had clear scans and x-rays for the last 3 years and was feeling like it now time to move on. I had surgery to correct a double mastectomy that left me with a ugly mess. The pre op xray showed 'patchy atelectasis'. I wasn't too worried after a google search said it could possibly be…
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Alternative treatment for Chordoma
Hello Everyone, My husband has recently been diagnosed with Chordoma (sacrum area). Has anyone treated this type of cancer through alternative treatment such as Dr. Burzynski or others. Thank you for your help.
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Good response to chemo-Osteosarcoma
Hello, This is my first post. I was diagnosed with osteosarcoma in my right tibia with metastasis to lungs in Sept 2013. I just recently finished my neo-adjuvant chemo consisting of high dose methotrexate as well as cisplatin and doxorubicin. I had an MRI and chest CT scan last week to measure my progess. My chemo…
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new survivor joining - osteosarcoma
Hi, I am a 34 year old bone cancer survivor. I was diagnosed at age 13 with osteosarcoma and was "terminal" I had my Illium removed, an infected bone grat taken out but managed to learn how to walk again. I also have chronci staff infection in my leg and had my femeral head removed a few years ago..but agian can still…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…
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cancer of the spinal cord
I waas diagnosed with bone cancer a few months back. I was told it is in the 4th stage. Had my first chemo. Reacted badly to it and ended up in the hospital for 5 weeks. There my heart got affected as well. Lost all muscle power of the limbs as well. Specially the lowerr ones. I am now on hormone tablets, which is not a…
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Ewing's Survivors - rib tumors - long term issues
abc
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Osteosarcoma metastasized to lungs... what now?
My husband was diagnosed with osteosarcoma in September 2013, he endured 6 rounds of intensive chemo before his hemipelvectomy April 2014. Now, only three months later, there are multiple nodes showing up on both lungs. Can anyone offer any guidance on what we may be facing on this next journey?
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Parosteal Osteosarcoma - Proximal Humerus - Age 28
I would like to welcome anyone who has questions about limb salvage surgery of the humerus, or anyone who would like to connect with an adult suvivor of osteosarcoma, to contact me. My story is written here. And I am starting a web page for parosteal osteosarcoma survivors here. I enjoy sending cards to patients in…
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Grandson, age 12, recently diagnosed with Ewing Sarcoma
Hello everyone:) Two months ago my grandson Ethan, age 12, was diagnosed with Ewing sarcoma. The primary site was in the nasal cavity, very close to the brain. This was a late diagnosis because he was thought to have just a very bad sinus infection, which did not clear up with antibiotics. One night they took him to the…
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Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
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Ewings Sarcoma
My brother is 22 years old diagosed in December with metastasis Ewings Sarcoma in his right pelvis (bone and soft tissue) and bilateral lungs. He has completed 6 rounds of VIDE and 1 round of VIA. After completing the VIDE in April his scans showed he had two remaining tumors in his lungs. They decided to remove his lower…
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All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
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Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
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GREAT LOSS FOR CANCER FRIENDS
So sad to hear about Kevin Sharp's passing on Sat. at 43 years young. His songs and all the efforts he put into the cause will always be rememberred by all who new of his work . RIP my friend. SOUL-MATE
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Question Nerve sheath tumour from MRI of cervical spine?
I have some queries about the report I've received from MRI scan as below: (Queries listed at the end .... ) --------------------------------------- Protocol: Multiplanar MRI of the cervical spine was performed using T1 & T2 weighted turbo spin echo and T2 weighted gradient echo sequences on 3 Telsa MR Scaner. Additional…
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New and scared...intro to myself
Hello I'm a head and neck cancer survivor. Now going in hospital for tests next week. Recent scans show shadows being further investigating. Including bone scan. I have severe lower leg pain and some lower back and hip. Also having a biopsy done in the lung. Arrangements for radiation to brain lesions. I'm very scared. I…
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Mets to bone
My dad dx with EC 9/2012, found out cancer now in hip and very small spot on spine. Looking for hope. Worried about how much longer. Can he beat it with chemo and rad. Is the chemo worse that the chemo for EC. Any encoraging stories of hope or advice would be wonderful to hear. God bless!!
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How is lower leg treated for bone cancer?
Going in hospital in 2 days for lung biopsy and bone scan. Wondering on treatment for lower leg. Read online about amputation. Scary enough. Stopped reading that. Came here to ask real people. I'm from head and neck group. Thanks, Vicki
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My dad has EC, but was told it may have spread to the hip...is there hope?
Hi everybody, I normally am on the Esophegeal cancer forum, but have a question you guys may be able to help me with. My dad is 62 years old. On Dec. 1st he learned that he had Stage 2 Esophegeal cancer. He had surgery to remove the esophagus. He met with his Oncologist (Dr. Noble, Sudbury, ON Canada) for the first time on…
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Planned CSN Outage Tonight
Dear Users, CSN will be down for routine maintenance tonight from around midnight to 3:00 AM Eastern Time. We apologize for any inconvenience. The site will be up and running as quickly as possible. Thank you for all you do for CSN! CSN_Nick
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questions
I recently survived bone cancer in my left leg,after 4 surgery's and a year of chemotherapy im worried that it may have come back in my tailbone, about 3months ago I started having pain when I sit now it's warm to the touch I still can't sit on it right. Today they did a body bone scan and im so worried and I still have…
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help?!?
For the past month or so my left leg has felt achy, but I just thought it was sore. Then, this past week, its started hurting really bad in my knee,lower shin, and upper thigh/hip bone.It kinda rotates between feeling like a deep bruise or feeling like someone is carving out the inside of my shin bone with a tooth pick.…
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Aaaaaagh!
Had cancer in right breast 2005. All clear now. However, a couple of weeks ago I had a fall and injured my left arm. Xrays showed abnormalities. Had a call from GP who wanted to see me to dicuss xrays. Went this morning. Apparantely I have lesions on bone in arm. Was told it must be investigated as it could be cancer. Just…
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CSN study
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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Soft tissue sarcoma to Osteosarcoma
Hi. I was a former cancer survivor of 7 years until recently, I went on one of my normal routine check ups and once I did my xrays, my doctor told me a small legion appeared on my right shoulder. My first cancer was under my right arm, so after doing a biopsy (no good results) and then a surgery, my doctors still weren't…