Adamantinoma
cunderwood
Member Posts: 1
Do you have Adamantinoma?
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Comments
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Looking for info and support
Hi my six year old little girl has recently been diagnosed and we are hoping the treatment chosen is the best, they have taken 13cms of her tibia and we have just started to regrow the bone.Is there any body going through the same kind of thing that can share with me their experiences0 -
Hi Rebecca, I see your post is from 13 years ago. My son is 12 and is going through a similar experience: OFD-life adamantinoma on the left tibia. So, I wanted to ask you how things went for your daughter. She must be around 19 now?
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