New and a bit scared

bigdreams
bigdreams Member Posts: 6 Member
in Bone Cancers #1

I’m new to cancer. I was diagnosed with high grade Chondrosarchomas (grade 3). It was a huge lump on my collarbone. My doctor removed my collarbone and the pathology report says it didn’t spread. But the CT shows a small nodule in my lung and scattered lucencies on my sternum. I’m no doctor but that sounds like it spread. My doctor said the scan showed good news. So I’m just realizing that “good news” to him is still scary news to me. Other people’s stories talk about how they were able to have radiation on their nodules when they became problematic. My kind of Chondrosarchomas doesn’t respond to either of those treatments. I don’t know. I was hoping to just have it removed with surgery. But I’m starting to realize what having cancer means. I hope I stay well for a long time. I’m not sure what to expect really.

Comments

  • peppysuzy
    peppysuzy Member Posts: 11 Member
    #2

    prayed going out to you i hope all your scans stay good news

  • lenachase
    lenachase Member Posts: 5 Member
    #3

    I'm sorry to hear about your diagnosis. It’s completely normal to feel scared and uncertain. It's important to seek clarity from your doctor about your CT results, especially regarding the lung nodule and sternum lucencies. If you're unsure about your treatment options, consider getting a second opinion from a sarcoma specialist. Since your type of chondrosarcoma may not respond to traditional treatments, explore other options, including clinical trials. Connecting with a support group can also help you feel less alone. Focus on what you can control, and remember it's okay to express your feelings and ask questions. Wishing you strength as you navigate this journey.

  • bigdreams
    bigdreams Member Posts: 6 Member
    #4
    https://csn.cancer.org/discussion/comment/1718373#Comment_1718373

    thank you! Today I’m less afraid. I’m researching and getting some questions together for my doctor’s visit. Some answers will help me understand more. I don’t know much about Chondrosarchomas and what to expect at all. So I’m just looking forward to upcoming appointments when I can ask more questions.

  • bigdreams
    bigdreams Member Posts: 6 Member
    #5

    Thank you! I’m looking forward to upcoming appointments so I can ask questions. My next appointment is at the end of this month but I can message my doctor before then which I will probably do. My next scan is at the end of January so I’m going to ask if there is anything I can do to prevent any bad outcomes. I read that anticoagulants could possibly be helpful and that makes sense to me, I think. So I’ll ask about that. And I will definitely look up a Chondrosarchoma expert!

  • peppysuzy
    peppysuzy Member Posts: 11 Member
    #6

    my son in law 34yo starts his 1st very very aggressive round 1 of chemo for a rare form of ewing sarcoma today so of course i’m super worried about him unfortunately i don’t see any current ewing stories on here to talk to anyone one about so i will be praying for you both

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