Bone Cancers
Discussion List
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Treaments other than surgical for Chondrosarcoma
Hello, I recently ( a week ago) had surgery where they replaced 75% of my femur to remove the cancer portion. My doctor has told me that the only treatment for my cancer "Dedifferentiated Chondrosarcoma" is to remove it via surgery and that chemo and radio have no effect... Does anybody have experience with this type of…
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new member - bone cancer survivor
hi all, i am 33 and an 8 yr survivor of osteosarcoma of my right femur. i had pre-op and post-op chemo, limb salvage surgery, several other knee surgies including a total knee and recent total knee revision on 2/04, and most likely going to need another total knee replacement in near future. before my cancer i was a runner…
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Cancer Detectors
Cancers are nowadays the most serious threat for human beings. However, detecting cancer cells at the early stage can prevent the spread of cancer cells so patients can get correct treatment timely. Among these detecting methods, all I know is the cancer biomarker. Are there any other approaches in this field? I am looking…
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Tail bone
Hello everyone: I have had uterine cancer in 2010 then in 2014 I had a colonoscopy and found out I had rectal colon cancer and had my whole colon taken out in February 2015 and ended up with a ilostomy bag. I have had another operatation because the doctors thouht I had bowel obstruction. AT that time, I was also biopsy to…
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recurrent infections and excess fluid after total femoral replacement
Hi, my name is Tracey and I'm from Kent in England...my story is long as I expect can be said for alot of us! I'm 46 and after very successful limb salvage when I was 21 and 19 very healthy years with just a couple of revisions, at the age of 40 I developed a pseudomonas infection which has lead to 6 years of cnstant…
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Am I just a "worrywart"
Hello all. Question. I was diagnosed with UPSC (aggressive endometrial cancer) in May, 2011. I had a radical hysterectomy and chemo. Declined radiation because my CA125 was a 4 and a PET scan showed no signs of cancer in my body. Back in March I started having pain in my groin, left side. It was so bad for the first couple…
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Struggling with being a care giver
Im really struggling being a care giver. My wife has Multiple Myeloma and we are doing daily radiation and weekly chemo atm. She is somewhat bed ridden and needs a lot of care. I am stressed out very badly right now. I have a 14yr old son who is having to see his Mom deteriate before his eyes. I know there are people who…
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Head and neck tremers
Hello Everyone To any of you who has had bone cancer or that has your cancer met to the bones my question to you is has anyone got head and neck tremers prior to bone cancer diagnosis and someone with bone cancer had this problem my pain throughoout my entire spine and i was just wondering if anyone has had this it started…
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Need some advice
My name is Terin I'm 32 I'm a six year breast cancer survivor I had also been diagnosed with neuroendrocine tumor of the small bowel in 2015 found it by scope test and were able to removet it all. but my Maine concern right now is possible bone cancer of the spine I'm having bad bone pain throughout my entire spine hips…
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AMG 479 on Ewings
Hi Everyone, My husband had Ewing three years ago but the recent check up showed a lump in his right lung, next to the hear. I saw some people mentioned AMG 479 trial onewing's sarcoma lung metastases, will that work? Please help... Thanks Jia
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Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
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So Confused Someone Please Help
Ok it started with my arm hurting severly only in forearm. Went to the doctor and they gave me a shot of cortizone and ran an x ray where they saw a mass on my ulna. Then had MRI ran and was told radius was swelling and covered in calcium deposits the ulna is hollow and has a mass . Then sent for nuclear bone scone where i…
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3 Lesions on spine bones
New here and scared! Dr. Found lesions in my spinal bone.
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Adamantanoma - Many Reoccurences
Hello all, I'm a 30 yo female, who has had 3 reoccurences of Adamantanoma, plus kidney cancer. Is there anyone else out there diagnosed with Adamantanoma and having such reoccurences? Here is the breakdown of my history: 1) First diagnosis of the right tibia in 1999 with I was 13 years old; limb salvage surgery completed -…
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Does this seem like Bone cancer, Lymphoma, infection, or....?
Hello - Does this sound like Lymphoma, bone cancer, infection, something else? 39 year old male. Generally healthy. Not a hypochondriac, although I can certainly see how people can be given the past couple of months I've been through... I had a spot on my left forearm about 2 inches up my arm from where my wrist bends that…
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Best Osteosarcoma limb salvaging doctor
My 11 years old daughter was recently diagnosed with Osteosarcoma of the distal tibia. Since it is in the ankle join section, it is very complicated, our bone doctor said he cannot do it and he recommand Dr Temple in Miami, and we also talked with Dr Webb from John Hopkins where we do the chemos, she suggestted amputation…
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Need others' experiences with limb salvaging procedures for osteosarcoma
My 9 year old daughter was diagnosed with osteogenic sarcoma in March 2011. She is currently in her 6th week of treatment. Surgery is scheduled for week 11. Her orthopedic oncologist is suggesting the expandable prosthesis. We have not yet had our in-depth meeting to discuss options. I was hoping to get other's experiences…
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Long term survivor osteosarcoma limb salvage
I happened upon this forum while doing some research and I just wanted to share that my son was diagnosed with osteosarcoma left proximal tibia in 1992 when he was 17. He will be 40 this year with no recurrence and no further problems with his knee. He had no metastisis. The tumor was removed with 98% necrosis and clean…
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Osteosarcoma in an adult
I was diagnosed in Feb 08 with an osteosarcoma in my chest (usually a cancer found in kids, not adults). The cantelope-size tumor started in my right ribs. I had surgery to remove the tumor (they also took my entire right lung, 3 ribs and some lymph nodes). I then went through 5 months of brutal chemo (cisplatin and…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
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Any help/suggestions would be great.
I had posted to the breast cancer board but really wanted to get any support or info from this board since it looks like I have a secondary cancer that has spread. Hello. My name is Brandy and I am 37 years old. I was not sure which boards to post this to but I thought this might be the right one. Starting in August, I…
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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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6 year osteosarcoma survivor, with new lump on breast! Help!
Hi guys, I am a 25 year old osteosarcoma survivor. I was diagnosed in 2007 and underwent surgery and chemotherapy. My primary site was in my right mandible, and it never spread. Last night while showering, I felt a large mass in my upper right breast, and I am freaking out! I contacted the hospital and should be able to…
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bone mets
Hi for bone mets fro.m BC, is a Pet-Ct more accurate or a Bone Scan? Who has knowledge of this
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Osteosarcoma - Diagnose at 40
Hello there, I am a new member, just joined 60 minutes ago. Still find it hard to believe from a knee discomfort 2 months ago, I have now been diagnosed with Osteosarcoma. I would appreciate sharing about treatment options and life after treatment, how fast one can walk again. I am a working mom, just over 40 and have…
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CT and bone scans / bone met test results
Question for those with bone mets. I have had clear scans and x-rays for the last 3 years and was feeling like it now time to move on. I had surgery to correct a double mastectomy that left me with a ugly mess. The pre op xray showed 'patchy atelectasis'. I wasn't too worried after a google search said it could possibly be…
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Alternative treatment for Chordoma
Hello Everyone, My husband has recently been diagnosed with Chordoma (sacrum area). Has anyone treated this type of cancer through alternative treatment such as Dr. Burzynski or others. Thank you for your help.
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Good response to chemo-Osteosarcoma
Hello, This is my first post. I was diagnosed with osteosarcoma in my right tibia with metastasis to lungs in Sept 2013. I just recently finished my neo-adjuvant chemo consisting of high dose methotrexate as well as cisplatin and doxorubicin. I had an MRI and chest CT scan last week to measure my progess. My chemo…
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new survivor joining - osteosarcoma
Hi, I am a 34 year old bone cancer survivor. I was diagnosed at age 13 with osteosarcoma and was "terminal" I had my Illium removed, an infected bone grat taken out but managed to learn how to walk again. I also have chronci staff infection in my leg and had my femeral head removed a few years ago..but agian can still…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…
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