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My dad passed away May 18th, 2012
My dad was diagnosed with invasive bladder cancer in December 2011. He had his bladder, prostate and surrounding lymph nodes removed February 28, 2012, 3 days after his 71st birthday. He attempted chemotherapy in December and January, but was unable to tolerate. He was very weak, so they decided to go ahead with radical…
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I'm going to lose my mom
So my mom is terminal. I can't image my life without her, she has been everything in my life. The doctor told us a few days ago. He said she has weeks left....I thought we had years. In my mind she would go into remission and 10 years from now she would still have clean scans. How is it that one day your making plans and…
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Questions, questions, questions
Hi Everone. I am a colon and endometrial cancer survivor, but my genetics make it probably that I will eventually be dealing with bladder and/or kidney cancer. Since I am experiencing new things regarding urination, I was wondering what the symptoms were for everyone. I don't want to take myself to the doctor if everything…
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Recovery suggestions for Ureteroneocystostomy with possible psoas hitch
This is the first time on this board but not my first rodeo. Colon cancer stage T3N0M0 in 1995 (20 year survivor), Esophageal cancer T3N0M0 in 2011 (3 year survivor) and now Bladder cancer. Staging to be determined after surgery on Monday the 26th. I'll have a catheter and bag for about two weeks along with my third stent.…
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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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Newly Diagnosed
Hi everyone. I am new to the group and wanted to introduce myself. I am a blind Christian woman that has been recently diagnosed with agressive T2 high grade bladder cancer. The plan is to have 3 months of intense Chemotherapy followed by RC. I was suppose to begin Chemotherapy this past week, however the day before I was…
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Please help. Husband (41 yrs old) scheduled for CT's, Cytoscopy...I have a bad feeling...
3 months ago, my Husband had some pain real low near his groin, but not severe. He had frequent urination, burning while urinating. Went to a general practicioner who found blood in urine (not visible to the eye) did a CT Scan and said it was a kidney stone. A few days went by and the pain did not go away so they tested…
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Water intake before and durring chemo help please
Hello, My Mother was diagnosed with cancer a few months ago. Cancer of an unknown primary, but the pathology is leaning towards Something in the blatter area. I need a little help from members here, to be honest. My mother is not drinking near enough water. maybe 22 ounces on a good day to nill on a bad day. She has yet to…
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metastaszed to lung
Got he news 10/29/2014 after all the scans biopsies, etc. Treatment is going to chemo. Don't know what to expect. If anyone has been through this, I'd like to hear from them. Also, I'd like to know about survival rates. Mine is stage four. And lastly, what is the end like? pneumonia? or what? Would appreciate any info I…
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surgery
Hi I am a 52 year old female with stage 4 bladder cancer I have had 4 rounds of Chemo and now it is time for surgery and I am freaking out, I have researched everything regarding the surgery but I am still very scrared thanks
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my mom is starting chemo
So this is my first post. I needed a way to share my fears and anger without putting more stress on those around me. On Monday my mom starts chemo. I'm terrified of what's to come. My husband and I life 4 states away from her. In fact right now we are racing to Illinois so I can hung her. It's a strange thing about mommas…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…
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Immense pain and discomfort after 9th BCG.
Hello everyone, I read the post of guys undergoing BCG treatement and was quite surprised when people say its not painful. My dad is undergoing this treatement and having great discomfort and had to skip one of the third BCG in third round before cystoscopy because blood started coming when the medicine was put. He is…
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Neobladder aftercare in Thailand
I have a friend who wants to visit Thailand next month, and has asked about hospitals that can provide aftercare for neo bladders in needed. Can anyone recommend a hospital in Thailand that is up to speed on this procedure and would know how to deal with any problems that might prent during the trip? Thanks so much in…
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Transport from hospital for terminally ill
My sister was diagnosed with primary bladder squamous carcinoma (SCC) with Peritoneal Metastases just under two months ago, and because of an infection from the hospital she is unable to continue chemotherapy and is now under heavy pain medication. She said she does not want to die in the hospital, so we wanted to…
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Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
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The journey continues
Hi we are new to the bladder cancer forum after a journey down the ovarian cancer lane. My loving wife of 37 years was diagnosed with ovarian cancer with spots on an ovarey her peretineal, bowel and omentum in August 2013. She was treated with carbo taxol for 3 rounds and then booked in for surgery. The debaulking surgery…
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weakness after surgery
I'm a 75 year old male and had an apparently successful partial cystectomy on February 1. All seems to be going well, but for lingering weakness. Some days I can hardly function, while other days I am near to my old self. Any comments?
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All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
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Spam Emails
We have been made aware of another round of spam emails being sent to users. While We try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
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Planned CSN Outage Tonight
The Cancer Survivors Network is undergoing a planned maintenance to improve site performance. You will see some test forum topics, comments and replies on a few boards. We will clean them up before our maintenance ends. There might be some intermittent outages during this maintenance. The site will be back up as quickly as…
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Polyp on my 16 year olds gall bladder, need advice
Hi, I'm popping over from the colon page where I spend most of my time since I just got treated for colon cancer. After my cancer, my father's family shared a secret, cancer runs rampant on my father's side of the family. Why it was a secret, I'll never know. One ostomy and several treatments later I'm now faced with a…
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CSN survey FAQ
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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New Here: Malignant Renal Pelvis
HI, I'm new, frightened and would like some support. I had an MRI for back pain that discovered a cyst on my left kidney. I had a sonogram and was refered to a urologist. The diagnosis was malignant renal pelvis. (3 CM Bosniak III cyst) I am waiting on approval for a CT scan and appointment with a surgeon. Now what? Im…
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Chemo gemcitabine plus cisplatin
MY dad is 54 and is detected with TCC cancer having lump nodes in kidney and lesion in liver and neck and nodules in lungs . Doctor suggested chemo gemcitabine plus cisplatin 1.6 gm. for 2 days and the for day 3,4,5 inj Ancount 300 Mcg. Is this the right way for such a cancer or .. its better to have the kideny removed…
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WHo has had Carboplatin and Gemcitabime??
My father was just diagnosed with metastatic transitional cell carcinoma of renal pelvis. Starting Chemo on Monday with Carboplatin and Gemcitabime. Could anybody tell me if they have had any tumor regression from this or how they tolerated it?? would greatly appreciate any response.
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what is the Justice of God?
Hi, My mom is suffering from Gallbladder cancer stage 4. Within a month our life change to hell. Chemotherapy is goining on. My mom is a school teacher. She sacrificed her life for her family and students. and look at the justice of God. Can anybody able to tell me what should I do? Any homeopathy will work? Is there is…
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Type 2a bladder cancer
I will be starting treament soon. I have been seen by two Dr. the first just wanted to go in and remove everything. The one I am now seeing is going to try treatment he is in Abany Ihe took over one hour with me and answered all my questions. There is one thing I do not understand. He said if after two months of treatment…
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looking for cases similiar to my dads ureter cancer
Hello... My dad was diagnosed with a very aggressive bladder cancer last year. He had his bladder, prostate, urethra, amd some lymph nodes removed. The lymph nodes were negative. Now he has a ilieal conduit and has been doing fine. Just this past month he had a blockage in his ureter and had to put a stent in one of…
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Radical cystectomy-saveing the prostate and Continent diversion vs Bag
I am a 63 year old very active male. My wife and I live on a boat and travel. (Now on hold due to my condition) My Doc states it is normal to remove the prostate along with the bladder. So far all test show the prostate is OK. I wish to take the gamble and keep it.We have a very active sex life and I do not want it to…