-
Infection
I was diagnosed with bladder cancer February this year. Tumor removed, then kidney problems. I'm 2 weeks out of my last BCG treatment but have a big stint from left kidney to bladder that has to be surgically removed. Urologist said he used the "biggest stint he could find" and I feel it constantly. I've also kept an…
-
Question about PCI (Prophylactic Cranial Irradiation) for small cell carcinoma
Hello everyone. I’m new to this site and need some guidance if you can help. My mother is 65 and was diagnosed with small cell bladder cancer. From what I understand small cell is usually found in the lungs and is rare in the bladder. She’s been through chemo since August and began radiation partway through her chemo so…
-
BRIP1 Gene Mutation and Blood in Urine
Hi, I may be putting the cart before the horse, but has anyone diagnosed with Bladder or Urethelial Cancer also been diagnosed with a BRIP1 gene mutation? I am passing blood clots and blood in my urine and have a history of bilateral breast cancer and BRIP1 gene mutation. I did a little research and see that risk for…
-
Does nitrous oxide help with cystoscopies?
Has anyone tried nitrous oxide (laughing gas) to ease the discomfort of cystoscopies? My urologist offers it. Did you find it helpful? Thanks?
-
Can you recommend a urologic oncologist in Portland, Oregon?
Hi, I'm currently being treated by a generalist urologist for bladder cancer but would like to switch to a urologic oncologist. Does anyone know a good urologic oncologist in Portland, Oregon? Preferably at OHSU, which is easily accessible to me. And do you know how long the wait is to see that person? Also, am I right…
-
bladder cancer
does loss of bowel control mean bladder cancer has metastisized ?
-
Starting 7 hour chemo: What to bring?
This is my first session of chemotherapy. It will last about 7 hours. what do I need to bring with me, besides reading material, lap top, water bottle? will I want food? anything else? Thank you
-
Loss of my uncle due to Bladder cancer
Hi all, I'm new to this site. I just want to share the story of my uncle who was diagnosed with bladder cancer and due to irresponsibility and carelessness of doctors, he died two years ago. It was a great loss for his family, as he was the only source of income in the family. Now the backbone and lifeline of the family…
-
NED today!
So today I was cleared for another 4 months. God is so good. Whoop Whoop, Roar!!!
-
Cancer ureter
Alguien que después de un CIS vesical haya tenido cáncer uroterial de ureter?
-
Nephrostomy bag problem
Hi! I’m visiting from the uterine cancer board. I have a nephrostomy and have a kind of odd problem with my leg bag. Sometimes when I’m walking or even I bed somehow the bag comes open where the twist closure is. I don’t know if friction against my leg when walking or somehow when I turn over in bed it’s enough to twist it…
-
BCG Treatment
Hi, I'm a newby with questions; I have been recently diagnosed with bladder cancer. After two TURBTs my pathology results were as High-grade papillary urothelial carcinoma. My doctor has recommended BCG treatment once a week for six weeks, then after a six week break we'll take another look and make determination as to the…
-
Hello?
I have TCC in renal pelvis. No one is around. I am at the kidney cancer site and breast cancer site. contact me if you all want to talk. sad
-
protective seals
does anyone here use coloplast brava protective seals for their stoma?
-
help with urostomy bag!!!!!
Hello my name is Wendy Johnson, my dad has just recently been diagnosed with bladder and just had the surgery to remove the bladder. He is suppose to start chemo in the 11th of this month, but we are having difficulty with the bag leaking. His stoma was not placed where it normally would go due to his body structure so it…
-
Bag vs. Neo Bladder
When originally diagnosed with stage four bladder cancer, we were told the journey ahead would be long and hard. The left kidney was already enlarged due to a tumor encasing the ureter. This resulted in urine retention in the kidney and we were told that a nephrostomy tube would have to be placed in my husband's back…
-
Bladder Cancer
I have a friend that has just found out he has bladder cancer. They removed the tumor (golf ball size) and said that the lymph nodes were clean around it but they also found spots on his liver, and they are gonna biopsy that. Now they are talking about removing the bladder. He was to see an onocologist this week. Has…
-
Cyst, Mass or tumor?
I was diagnosed with stage 1, grade 1 endometrial cancer in August. I had a total hysterectomy with removal of ovaries and Fallopian tubes. I was told I was cured a few weeks after the surgery and needed no chemo or radiation. Before the hysterectomy I was diagnosed with a UTI and given antibiotics. In September I noticed…
-
adenocarcinoma/bladder
Anyone out there with this type of cancer? Mine is stage four. Diagnosed in May and am in third cycle of cispaltin/gemzar chemo. Would love to chat with you.
-
Gallbladder Cancer
Hi, My mom is diagnosed with Gallbladder Cancer recently. I want to check with the people who has survived atleast 5 yrs with all the therapy. Can anyone help me.
-
Sludge in GB???
Hello - I am coming over from Kidney Cancer board to ask a question. I am 33 years old, female and just had a 1/4 of my kidney removed in December. It was Renal Cell Carcinoma. Yesterday I had my 3 month post surgery scan and all looked good except my Gall Bladder. They said there is "sludge" in my gallbladder... exact…
-
Bladder Cancer Robotic Surgery
Hi Everyone... Im a 66 years old Aussie living in Sydney Australia.... My cancer journey started July 2017, after a urine scope revealed cancer cells in my bladder. Ive had four cystoscopies, BCG which gave me BCGosis, and Chemo infusion, which also failed. I was thinking of undertaking Chemoradiation, but my CIS T1 says…
-
Post NeoBladder Surgery
Hi: I'm a new member here and I'm hoping to find other other women primarily but interested in hearing from men too who have a neobladder and are willing to share their post surgery experiences with me here. I am currently 56 years old and was diagnoised with bladder cancer in March 2016. I had chemotherapy followed by…
-
Trigonitis of Bladder, micro hematuria and sometimes hematuria
Hello all. I have had a few bladder infections in the past and usually when the urinaylsis came back, it showed microhematuria. I was never sure why. Last summer, I had an episode of blood in my underwear. Not much, but enough to alarm me. I am an endometrial cancer survivor. At first I thought I migth be bleeding…
-
Bladder cancer metastasis to lung
Am new to the site. In August 2008 I had my right kidney and ureter removed because of cancer. In Sept 2009 I had my bladder, prostate and left ureter removed and wear an urostomy bag. I am 67 and was in excellent health till 2008. I went to my oncologist and he said my last ct scan showed a nodule on my lung that was…
-
Some rookie questions: bladder cancer treatment
Hi, Last week, I had the surgery (TURBT?), which apparently went well. Spent the night and was home the next day. More reecently, the doctor and pathologist informed me that my situation is as follows: * High-grade papillary urothelial carcinoma, invading muscularis propria. Obviously, this diagnosis is potentially a big…
-
Indiana Pouch Infections
Hello - I am hoping you can help my father, he has had his Indiana pouch for about 8 years and he is suffering terribly with infections in the pouch. Have you experienced any types of infections associated with the pouch or have you heard of anything like this? Every time the infection strikes, it's a different stain of…
-
Bladder Hemangioma
HI - bladder hemangioma - arteriorvenus malformation kind. Did anyone hear of it? From what i hear and read it's extremely rare. Uro aleady biopsied, fulgurized it. The clots keep coming with gross hemautria. They want to fulgurize again. Would tthat be the righ tthing to do. Thank you all.
-
life expectancy?
I found out that my father has stage 4 bladder cancer mestasized to the bone in october. He is currently in the hospital due to his platelets from chemo and a blockage in his urinary tract. I have always been Daddys girl and he is very protective of me. He doesnt really discuss a lot of the details with me concerning his…
-
Possible Cancer
I am a 57 year old male. Smoked for about 18 years, but have recently quit. Have had kidney and prostate infections since I was in my 20's. Kidney stones came into play roughly 20 years ago. I have had blood in my urine many times while having kidney stones and when I had infections. In the past four or five months I have…