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Not Really Sure Where I Belong
Hello all. I'm not new to cancer but I'm new to this board. Don't know if I should be in the bladder cancer or kidney cancer group but all help or direction would be greatly appreciated. My husband has been a six year survivor of stage III colon cancer and just received his officially cured credintials September 2009.…
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cola colored/dark red/black urine
I truly am sorry for all you have endured and am truly grateful if someone's experience can help me. 41 yr female Urinating cola/tea/black/dark brown/dark red urine for the last 6 months. Almost on a daily basis. I have upper ab spasms near right rib cage , flank pain, jaundice, extreme fatigue, salt cravings, severe pain…
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Urological oncologist in/around Charlotte, NC??
Anyone have any recommendations for a thorough, knowledgeable, experienced oncologist in and around Charlotte, NC? I'm willing to travel to near-by states if necessary. I'm a 32 year old female with 2 young children and want to stay on top of this diagnosis, esp. since it was stage 1 when it ws found. Thank you!
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OSTOMY COVER
I'M TRYING TO LOCATEA SEWING PATTERN OFR MY SISTER'S UROSTOMY BAG TO MAKE A COVER.
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so many decisions to make
I am a 42 yr old woman and was recently diagnosed with stage 3 bladder cancer. It is all happening so fast. I would like to hear from some people that have had MVAC Chemo followed by cystectomy. My dad and an uncle also had stage 3 bladder cancer and had the cystectomy immediately following diagnosis and neither one of…
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Seeking others experience with BCG treatments
I have Stage 1 high grade bladder cancer and am scheduled to begin BCG treatments next week. Wanted to hear from others on this site their experiences. Trying to be prepared for what to expect. Thanks in advance.
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Chemo Drug Pemetrexed
Has anyone ever been treated with this drug? My mom has metastatic bladder cancer in the small intestine and is suffering tremendously. We were told by Dr. more than one treatment is needed before it starts to work. So far she has had two and is feeling worse than ever. Can't eat, sleep or do anything and has become…
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anyone on here
i am looking to talk to someone about bladder cancer
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Tumor Found on Bladder
Hi everyone. I received a call the other day from my mom and dad notifying me that my mother in her late 50's; had been bleeding for around 3 weeks when she urinated. She saw a doctor who did a CT Scan and they found a tumor on her bladder. And was scheduled to have the tumor removed Friday the 15th of January. I asked if…
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Bladder cancer
My husband has had bladder cancer for six years and is on BCG and is having severe burning and cannot hold the treatment for even an hour anymore. He has frequent urination and cannot even hardly leave the house. He is on lot of different meds for the problem but nothing is working. Has anyone else had these issues? He is…
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Bladder Cancer Advocacy Network (BCAN)
Hi, A great place for resources about bladder cancer is the Bladder Cancer Advocacy Network (BCAN) http://www.bcan.org/ They also have a very active discussion forum. http://www.inspire.com/groups/bladder-cancer-advocacy-network/ Bob
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Cystoscopy, fulguration, Mitomycin C
Hello folks. I was on these boards 4 years ago but changed email address and couldn't remember password, I think my old user name was JD_Smith58. But anyway. I've been dealing with bladder cancer tumors for 4 years now. I've had many removed via cystoscope fulguration and many times I've been anesthetized for the…
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Neobladder
I have had bladder cancer. I had my bladder replaced with the neobladder last February. I have been very happy with my new bladder. I have control during the day for the best part. I wear a pad just to be safe during the day and depends at night. I will get a little squirt when my new bladder is full and I am trying to…
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possible cancer symptoms?
I am a 27 year old male and I am really concerned about my health. I have been having strange urinary symptoms since December and I am affraid it might be cancer .I would like for some one to please look over my symptoms and tell me if these symptoms are chararistic of cancer. keep in mind that I have been having digestive…
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6 month check up
Tomorrow I go for my 6 month cystoscope(8 months really) after have surgery to remove a beg.polp.I almost canceled. Hate cystos they hurt so bad wish they cld come up w/ sometime so it wnt besides being knocked out.
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Introduction, New Here
Hi all, I’d like to say it’s a pleasure to be here, but it’s not. I'm a M 58 year old and found out on Saturday that the cancer is going to cost me my bladder and I’m scared and worried. Thought I’d find others that have been through this for some real information and someone to talk to that understand what’s going on, so…
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A Victory for Hyperthermia in Bladder Cancer
There was another victory for the use of regional deep hyperthermia in the treatment of cancer. The latest victory occurred in the treatment of high-risk bladder cancer. Heat treatment, delivered via the BSD 2000 machine, improved such patients' five-year survival rate from 67 to 80 percent.he local tumor control rate went…
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New, yet hopeful
I just received word that I have bladder cancer. It seems we caught this very early and my doctor cauterized the cell after taking the sample. I guess I am now in the every 3 month check routine. It is all so surreal right now and I am researching every place I can, have bought books on bladder cancer and diet when you…
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Experimental Drug or Bladder removal
I have had bladder cancer for approx. eight years. BCG's has put it into remission twice but it just came back. Now I am offered a experimental program using a non approved drug or bladder reconstruction. I need some pros and cons on the removal process.Thanks
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BCG and Interferon treatments
My husband was diagnosed with bladder cancer in 2006 after a biopsy, went through several regiments of the BCG; had second biopsy in 2009 and cancer was back. Our Doctor recommended bladder removal. We went to the Moffit Cancer Center and we discussed our options. The said that their were clinical trials going on with BCG…
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Thank You All For Your Posts
I just wanted to thank you all for your posts. I am 52 and have been recently diagnosed with a bladder lession that will be removed on X-Mas Eve morning. As all of you have, my wife and I have been riding the emotional roller coaster. I just wanted to let everyone one of you know that your posts have been such a comfort.…
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bladder the size of a beach ball
my husband will have another scope test to see if he has anymore canerous poloys in his bladder had 3 removed 3 yrs ago and at that time he was told he had a bladder the size of a beach ball and it held over 5000 cc of urine. He has been unable to urinate on his own since that time he self caths 3 times a day works a full…
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Dad considering Neobladder
My dad is 71 and has recurring bladder cancer after several bouts with BCG and Interferon....keeps coming back. His Dr at the University Hosp in Charleston SC is supposedly a leading urologist specializing in Neo's. I'd really like to connect him with others that have had the same procedure so he can get a realistic idea…
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Bladder Removable
My Bladder is going to be removed August 16 because of Bladder Cancer. I want to know the Pros and Cons of the 3 different types of urine exits. Which is best,The Bag on the side, the Stoma on the belly or the other method thru the penis. What are the advantages and disadvantages of each? Any info will be helpful. I'm…
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bladder cancer?
Hi I am a 39 yrs old femaleand I was wondering if anybody else was diagnosed w/bladder or kidney cancer when there only symtom was microscopic blood on urine test i have had 4 tests since feb. all showing micro blood. Of course there was a urine test 1.5 yrs ago too that showed but i was never told about that. I had breast…
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Tumor Markers
I have terminal GI and bladder cancer. I had surgery and have just completed 8 months of chemo, gemcitabine, carboplatin and erbitux. My tumor markers have decreased all through my chemo treatments. This week (after my last chemo) I had new tumor markers and a PET scan. My ovarian, pancreatic and GI markers have all…
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blood and clots in urin 5 weeks after bcg treatment
Iam still getting blood and clots in my urin 5 weeks after the 6 weeks of BCG. Dr says not to worry. Is this normal?
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JUst Found Out That I Have Stage 3 Bladder Cancer
Hi All, I am a 56 year old female with T3 stage 3 bladder cancer. I had surgery last week that was supposed to be be for a superficial papillary tumor. It turned out to be worse. OK I have been reading everything that I can Get my hands on about my cancer and the neobladder. I have a 10 yearold so I have a lot at stake…
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Working/Manual Labor after Neobladder
Hello, My Dad is about to undergo surgery to remove his bladder, he is gathering information on which procedure to have done, either the neobladder or the illeostomy urinary tube w/ collection bag, his biggest concern is whether he will be able to continue working after surgery, he is a Stone Mason and with this line of…
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Blood in Urine
This May I had a routine physical which showed microscopic blood in my urine. Like most men, I let it go for a couple of months until I just happened to run into a nurse friend of mine in the gym. I told her about it and she said she had a friend who had the same situation who innored the problem. He later died due to…