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Bladder Cancer

need someone to talk to with colostomy and illiostomy
I am looking for a person or persons who have been through surgery for both a colostomy and illiostomy. My father is facing a colostomy surgery next month. He has had an illiostomy (hope spelling is right!) for 40 years. Understandably he is quite nervous and anxious about life with 2 stomas and bags. He asked me if I…
Leaking after neobladder
My brother is 30 and just had his bladder removed. The doctors made him a Kock pouch. He just had the catheder removed a few days ago. He is becoming very depressed because he is leaking urine. I understand that it is happening alot not just when he moves. Can someone tell me if this is normal and if it will be permanent?…
after surgery - providing emotional support
My sister-in-law recently had her bladder removed, and she has an excellent prognosis. We know she has a lot to adjust to. It has been 3 months since the surgery, and we don't know how to provide the emotional support she needs now. She seems sad more often now, post surgery, than she was during treatment or right…
results
hi steve thank you i'm so sorry to here about your new developement. I had the surgery to remove the frond turns out it was a uro. papilloma found out myself since dr 6 days later still hasnt called. Im have to see him in abt a week so im assuming they will do anthr urine test to chk for micro blood again and if nothing…
Aunt is having surgery
My aunt is going to have surgery for her bladder cancer and I want to send her something. From what she's told me they will remove her bladder and everything else ... What is a good gift?
cystoscope finding
i just had my cystoscope today (never again had to be the most painful thing and i had breast surgery while awake and that was nothing comepared to this)dr said bladder looked good but he showed me an area that had a frond looking thing he said it was nothing probly caused by a previous infection, which i had none that i…
worried
My mom, who is 76 years old, found out she had gall stones in October 2008 and also around that time, she found out she has gallbladder cancer. She agreed to have the gall stones removed, but did not want to even consider treatment for the cancer. She did have surgery in December 2008 to have her gall bladder removed, and…
What stage is this likely to be?
Hello all, I am new here, and from the UK. I am desperately worried about my Grandfather, who is 78. My dear Grandmother died from breast cancer in November and now her husband has just been diagnosed with bladder cancer. The problem is, he is very protective of all of us, and is trying to take the weight of it by himself.…
BC with Neo-Bladder
I am having much trouble regulating my BM's 18 days post-op. If I take the Stool Softener that was prescribed (Surfak), it causes me to have explosive diarrhea that can last for 3 hours and wipes me out. After 3 days of this, I called my urologist and he prescribed Lomotil. I only took one dose of this and then no Surfak…
Dad just diagnosed....
My Dad had a mass removed on Wednesday. Today he went back to see the doctor and was told he has stage 3 cancer and to come back in 2 months for a recheck. He was also told they may have to "pump" some chemo into his bladder at that time. I don't understand how they could have given him a stage if they didn't remove any…
Incontinence Issues
My husband was diagnosed with T2a N0M0 bladder cancer in January, and he had RC Neobladder Surgery at IU Medical Center on March 31, 2009. (That hospital was a great experience, by the way.) They used the DaVinci Robot, so his recovery time was five days in the hospital, which was great. The pathology report came back just…
Chemoradiation Vs Radical Cystectomy
Is there anybody out there who has some sucess stories about deciding to use the chemo and or radiation therapy instead of radical cystectomy? My 81 year old mother (generally good health) has a major decision to make soon. She has been diagnosed with Stage 2 or Stage 3 (aggresive) bladder cancer. The surgical oncologist…
BCG vs Neobladder
I am 55, male, and recently was diagnosed with BC - Stage 1 Grade 3 tumor, removed recently. My doctor is leaning towards bcg treatments and close monitoring, but my concern is the % of tumors that seem to be understaged at diagnosis, and the time lost if bcg doesn't work and the tumor comes back. The bladder removal…
bladder cancer metastasized to lung
I have been fighting cancer since 8/2006. Blood in urine, lost kidney and ureter, had chemo (gemzar & carboplatin). Cancer showed up in bladder, had BCG which did not work. Bladder removed 9/2007 along with prostate, lymph nodes. Now it has shown up in pleura (lung) area. Anyone out there with similar story? clarence1
help
see rare cancers
FISH Test Results, Interpretation, and Prospects
My FISH test results state: "POSITIVE fluorescence in situ hybridization (FISH) result using the Vysis UroVysion TM assay... INTERPRETATION AND COMMENTS: An ABNORMAL hybridization pattern was observed with 5 cells exhibiting numerical abnormalities for chromosomes 3,7,9, and 17. This result is indicative of bladder cancer…
Intravesical BCG/Interferon combo
I'd like to hear from anyone who has had personal experiences with having the combination of BCG and Interferon introduced into the bladder.
Need support
Hi, I am just looking for some support. My dad has bladder cancer, he is living with me as I am his main support. I am not sure what stage he has, but it is not good. He had a cat scan done a week or two ago, and they have found that the cancer has spread. It is now also in his kidneys, his liver, in his lymph-noids and…
test
please disregard
Have new unused urine bags to give away for free
I have a neo bladder now, and do not need the urine leg bags I have. If someone has a need for them I have quite a few. Also, if anybody knows where I can put this information so someone in need will see it please let me know. My e-mail is kerisplace@hotmail.com
Indiana Pouch
I would love to talk with any women who have an Indiana Pouch. I had my radical cystestomy surgery on 10-05-05. I'm in my 7th week of recovery and have some questions. I'm currently voiding every 3 to 3-1/2 hours and not getting much sleep. Will I ever be able to sleep on my stomach again? How often should I irrigate?…
is tumor back
i had a tumor removed 2mon ago, im getting the same feeling i did befor but no blood in urine.Can anyone tell me how fast the tumor can come back
indiana pouch vs external bag
My father has to have his bladder removed and I have been to alot of sites. I am getting info. on both procedures but none rate one above the other.I want him to have the right info to make the right choice. I figure personal experience would be the best. Anything shared would be greatly appreciated.
RUSS 2006....Please read
Russ, as my Dr. told me..age and activity have alot to do w/ your decision. I'm 47 and still have a very active life style. I had to wear a bag for 4 weeks or so, until I healed enough to use my internal pouch (Indiana Pouch). I can tell you now that the internal pouch is so much easier. The only thing is you have to empty…
Blood in Bag
My Mom had her bladder removed 5 years ago because of Bladder Cancer. Thank god she has been cancer free since. For the last 2 months she has had blood in her bag and severe back pain. Has this happened to anyone else out there? She has had 2 scans and has been told that everything is fine. She can barely walk and the…
Surgery March 12-VERY AFRAID
I am a 58 yr. old male who has been bladder cancer free for 15 years. It has returned and is a T-1 High grade and my urologist, whom I highly respect, feels that the best thing to do to give me a long term prognosis is to remove the bladder, prostate and one ureter. I know this is a huge surgery and I know what the results…
Post polyp removal symtpoms
My husband had 2 low grade cancer polyps removed from his bladder 16 days ago. His doctor said that they flooded his bladder with Chemo and in 2 months when his bladder heals my husband will start a 6 week regiment with BCG. All of his symptoms are gone except light nausea, frequent urination and a burning sensation at end…
infections
diag 2006 blad ca 3 turbts i rigid 1 flex 2 chemo in this time i;v had 14 infections starts in blad ends in kidneys is this normal any help appreciated
BCG treatment
two years ago bladder cancer diagonised and surgically removed the cancer growth. Then BCG treattment was done weekly once. Cistoscopy was done every three months. So far no recurrence or any problems. Was chooing tobaco and drinking alcohol twice a week. After cancer however continued tobaco and also drinking moderately.…
Psycological Problems
Since being told I had cancer of the bladder, even though mine was caught early and removed, it has affected me mentally. I cannot get over the fact that I might not be around that much longer so it is hard for me to think of the future. It this normal? Has anyone else had these feelings? I want to try and put this behind…

Bladder Cancer

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