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Post 25 Days...Still Strange Symptoms...Fissure Better Today..
Various body parts fall asleep but Fissure a little better today for first time...maybe just a one off...will see how am feeling tomorrow. Would be nice to heal after post 25 Days of Chemoradiation...hmmm
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Obesity and Medication
Anyone have their medicine capped at a top limit because of their weight that would be less than the normal protocal? “Chemotherapy consists of mitomycin C 10mg/m2 (capped at total of 15 mg because of obesity) on days 1 and 29 of treatment” The dosage would normally be 21.9 (at 10/m2). They are capping it at 15 mg. Has to…
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Anyone have to take the chemo pills? Do they make you sic? I will be taking them when I start radita
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Complications..Cant Get A Break...Want To Heal!!
Post 19 Days. Chemoradiation...want to heal no more damn pain. Stupid Fissure or new hole in Anus...a friggin nightmare. Like tumour all over again.Radiology Team wont see me bacause of the 'Past 14 Day Policy' BS that policy is. There machine put a new hole in me. Why wont they see me. Called Patient Services at Cancer…
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Itching, plus head stink
Hi everyone! I'm so thankful for this board and all of your help and advice. It seems that there are not many forums out there for this cancer! I have a couple questions, I hope someone can help. I finished my treatment for anal cancer this past February 9th, so as of today it's been a little over five months. One of my…
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Anal cancer, part deux.
I treated with radiation, 5FU, and mytomycin for anal cancer in 2014 for stage 3b. In April, I had a routine CT scan that showed metastisis; a PET scan corroborated the finding. The local oncologist wanted me to have a colonoscopy, which I did. Besides the radiation damage to my anal canal, everything was perfectly fine.…
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Has Anyone Explored the Immunotherapy Drugs?
I have been researching the new immunotherapy drugs as a possible alternative to chemo-radiation treatment for anal cancer. I am talking about drugs such as Keytruda (pembrolizumab) and Opdivo (nivolumab). There are others. Has anybody here gone this route for anal cancer? Perhaps via a clinical trial? Or via some…
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4 weeks
I'm nearly done with the 4th week of treatment. 28 total radiation treatments. The burns are starting to hurt. The itching is the worst.
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Is Calamine Lotion Safe For Radiation Itching?
Does anybody know? Thanks Suffering post 4 days treatment.
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starting radiation and chemo Monday
Feeling a little overwhelmed. I start treatment on Monday. I have the chemo pills, but not sure if I will have the infussuon first? I see the oncologist tomorrow afternoon for more information. I will have 5-1/2 weeks of treatment. stage 1 anal cancer.
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Cant Clean After Poo...Water Stings Too Much from Burns..
1 Day after final treatment...frustrating lots of burning sensations all over body and not able to clean anal area...water Stings. This better not last forever...afraid if possible infection if i cant clean down there!
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Question? Anybody Know If Rad Treatments Injury Groin Muscles?...
Post 18 days...my right Groin muscle very sore like Hernia Pain. Anybody know if Radiation Treatments down there destroy or injure the 'Groin Muscles'...this pain is to be expected? Thanks
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Sore spot in Vagina
Hi again, I have one more question, if anyone could be so kind as to give me some input. About two months after my treatments ended, I went for a GYN exam and found I had vaginal stenosis due to radiation. There was also a small area on one side that hurt when they tried to examine me, so they didn't pursue the usual exam…
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Oral HPV cancer following anal cancer treatment
I finished the usual chemoradio regime for Stage I anal cancer mid-April. Exams by radiologist and surgeon so far are good. But I showed a spot on my gum to my dentist and he's referred me to an oral surgeon for a biopsy of what the dentist described as a lesion. My oncologist says it sounds suspicious because HPV can…
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Any advice on how to prepare my body for treatmen
I will be starting chemo and radiation soon. Is there anything I can do to prepare for this.
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How long into treatment before tumor starts shrinking?
With the 6-week chemo-radiation treatment, how many weeks into treatment does it take before the primary tumor begins to shrink? The most recent oncologist I saw told me that the tumor in anal canal would begin to shrink 1-2 weeks into treatment. Does that match what you experienced during treatment? Has anyone gone…
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Anybody Here Taken Lyrica (Pregabalin) for Anal Nerve Damage..Suicide?
Anybody prescribed this drug for Radiation Nerve Damage and 'suffered' from the Number #1 Side Effect...."Suicidal Thoughts". Not sure if I want to take it or just 'stare at the bottle'? Thanks!
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thinking of getting an emotional support animal for my mom, input?
My mom was diagnosed with squamos cell carcinal of the anal canal last week. She has her initial cosult appointment with the oncologist tomorrow so as of right now we do not know the stage and what the exact treatment plan will be, however we were told it will be a combonation of chemo and radiation. My question, one of…
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PET vs. MRI
The doctor has ordered a PET scan instead of MRI. I was just diagnosed with stage 2A. But without an MRI, can they discover the extent that the tumor may have invaded the surrounding issue? The first CT scan didn't show very clearly the tumor (about 3-4 mm), but showed a thickening of the wall.... Just wondering whether to…
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2 Weeks Post Radiation...Foods All Taste Sour...
Anyone else experience this awful expeience. Everything i eat from Chips. Lasagna..Milk...Yougurt...Chocolate...All taste SOUR!! What gives...?
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Healing Paste for Burns
I haven't seen this product mentioned anywhere on the forum for burn healing. It was recommended to me by a burn/pain specialist and I am still using it as needed 8 months out from the end of my treatment. I wouldn't recommend using this during radiation treatment because it is a very thick paste and might be difficult to…
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Capecitabine pills 3,000 mg -anal cancer - localized
Hello Everyone, I was wondering, if there are any past or present patients w/localized anal carcinoma. No lymph nodes or organs involvement. My oncologist is prescribing 3,000 mg of Capecitabine and 28 radiation treatments. I went on the NCCN.org website to research treatment needed for localized anal carcinoma. Localized…
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Results of PET
It's always so good to see NED when someone reports on their latest scan. It didn't happen to me though. Sigh! I haven't gone over the results with my once yet. That will happen on next week. But I pulled down my results from the patient portal and saw for myself. Looks like Mets to lung. I have scheduled a visit today for…
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Post radiation nerve damage
I am 5 years out from anal cancer treatment. Experiencing feet, leg thigh, buttocks tingling and pretty substantial leg weakness walking long distances or inclines. Anyone else?
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Does Chemo-Radiation Increase Chance of Fistula?
I don't currently have a fistula. Vaginal wall intact. Will be starting chemo-radiation in about 6 weeks. Does chemo-radiation increase the chance of developing a fistuala? Perhaps by further thinning/damaging the wall separating anal canal and vagina? That's where my tumor is located - front side of anal canal, invading…
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Mouth sores side effects of chemo
New here, so not sure how to post stuff YET. I'm a 3 year cancer patient, diagnosed in February 2015 with anal cancer. Treatment was radiation and chemo therapy and it was successful with this cancer - however, on my 3 year anniversary I was diagnosed again. My cancer had metastasized to my back - one tumor, and several…
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Bowel Movements
So I'm 10 weeks post treatment and here's it is, my bowel movements are still "funny shaped" doctor says I'm still early in recovery and not to worry, ok they know best. I still take miralax & stool softener every night, doctors are ok with that but I think my colon shrunk from radiation! Anyone else have this issue?
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SCUBAJOE Update
So I had my Biopsy three months ago and everything came back as scar tissue. YAY. Tuesday which is about 6 months post treatment I had a PET scan and everything was normal. NED. I was freaking out a bit when I did not hear anything Wednesday because that is a fairly quick test to get results back from. Anyway, Everythign…
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Post Radiation Treatment Pains...
5 days and 4 morning small poos have left my innards in a mess with horrible pain...no way i can bathe to clean leftover poo up. Too [Content removed by CSN Support Team.] raw. So much fpr planning to go somewhere today...that aint happening. Lying on my right side of bed in BD suit hoping and hoping there is NO more poo…
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Anybody Here..."Not Eventually Had Sugery" to get Rid If Leftover Tumour...
...or do we all have to have the Surgery eventually after Chemo and Radiation are completed?