-
Fecal incontinence
I just wanted to share with everyone out there suffering from fecal incontinence a few things... First and foremost ... if your doctor has not provided you with prescriptions for Lomotil and Immodium and Flexaril ... keep them in mind and have them on hand for when you need them. I had to ask my doctor for them when the…
-
Radiation Burns and Raw Skin
First, thank you to everyone who has posted questions and answers on this discussion board. I don't know anyone else who has anal cancer -- didn't even know it was a "thing," until I was diagnosed last February (2017). My 6 weeks of radiation/2 weeks of chemo started at the end of February and ended the first of April. I…
-
Biopsy Pain
Hey guys, So i had my Biopsy Tuesday and the pain is nt bad until I have a bowel movement; Then it REALLY hurts. How long before this goes away? Thanks Joe
-
Waiting
So I had my biopsy today. There is still some hard tissue mass under the scar tissue. Won't know what it is until biopsy results. Has anyone else experienced this?
-
DREs
I am newly diagnosed. My initial DRE and anoscopy was performed in the ER and was excruciating. I have a pretty high tolerance to pain so excruciating is accurate. My biopsies were done under general anesthesia. The tumor is 5.5cm. I had my radiology consult and simulation yesterday along with another DRE. Has anyone…
-
Freaking out
So I met with my doctor for a DRE 3 month out. He still felt some residual stuff present same as in the two month exam. He had me meet with the surgical oncologist so she could do a biopsy scheduled for next Tuesday. She said it could be scar tissie but she has seen cases where there was suspicious areas that came back…
-
Slight pain present
Hey guys, So I am five weeks out from radiation and still feel a slight discomfort minimal pain about level 1.5 at the place the tumor was and where the radiation was focused. Is this because the radiation is still active? Also does anyone have any details on how it is still active since there is no radiation source…
-
help new patient Squamous cell carcinom
Hi, My father is diagnosed with Squamous cell carcinom, Anal Canal, Stage 2. I have been searching and reading since last few days. There are so many things going on and I am just lost and not sure what I should be doing. He doesn't live in USA and going through the treatment outside. Two surgeons have suggested APR.…
-
Is a bioposy at 6 weeks normal?
I haven't checked in since treatment got tough! I guess I was hoping for a break, but of course I'm still worrying. I'm now 5 1/2 weeks out. I went to the doctor Monday and she did a rectal exam, then scheduled me next week for a bioposy. I asked if things were progressing normally as I still have pain with bm's and stools…
-
Anal cancer reoccurence
I am looking for someone like me. I have been diagnosed with reoccurent squamous cell cancer of the anus. Three years ago I had radiation and 5FU and mitomycin chemotherapy. Now that it has reoccurred, I have been told I need an APR with flap reconstruction due to radiation damage. I’m looking for someone out there who…
-
86 year old father finished last treatment now what to expect?
lHi everyone, These discussion boards have been so helpful in learning about symptoms to expect while my father went through treatment. Thanks for all of this helpful information. He completed his last treatment on Thursday. His last week of chemo was the week before. He's sore, tired and experiencing some nausea - all the…
-
ANY STAGE 3b OUT THERE
Iv'e been on this forum for a few months and just finished treatments I have read quite a few posts here on people who have gone through or going through their treatments but one thing I have not thought to ask or discovered by reading profiles is what stage each of you were when you were diagnosed, and how you are all…
-
Digit test
So I am two months out from radiation. This month feels better than last digit test but not where he wants it to be yet. Is this typical? He said it's going in the right direction and really was up there for a while this time. Not sure how he remembers where I was last month. Also some blood on toilet paper after? Also…
-
To all of you who helped so much
Hi everyone, I just returned from my Dr.s office and I am estatic to let you all know IT WAS GOOD! I am so happy and relieved, I can breath again! I do want to especially thank you all for so much positive encouraging support and love you all shared with me. For those of you who do not know, prior to having anal cancer I…
-
Treatment Started
Hi. I started treatment yesterday and everything went well. There was an issue with my alignment at radiation, so I had to get re-alignmed and come back a few hours later for treatment. In between that time, I had my first round (of 2) of Mitomycen chemo IV. (I'm also taking chemo pills on the same days as radiation). But…
-
Depends
So I'm getting tired of wearing depends at night because of liquid or mucus or whatever comes out of my butt. I think it's been getting better but it's so slow it's hard to tell. I also know it depends on person to person but can people tell me when they thought their stomach got back to normal with somewhat normal poos. I…
-
Please help,need guidance, advice, opinions, anything
Where to start, this is such a complicated and long story. My mother, my best friend, my absolute everything was given four months to live yesterday with radiation on treatments on brain. The last several years I've watched this women suffer and be put thru hell and she has fought and fought! My mom is 63 years old. In…
-
5 year anniversary
Today marks 5 years since I completed treatment. I don't have my follow up appointment until 12/2, but will be celebrating the anniversary anyway. I got through treatment as well as I did because of the kindness and generosity of people on this site sharing informatio and giving encouragement, both at the outset and when…
-
having a big scare
I am not sure what to think or what to do so I'm posting in hopes of finding someone here who's cancer journey has been somewhat similiar not only in the emotional aspects of the disease but also the physical. When first dx. I was 111b with lymph node involment, my Dr. told me that if the treatment was not sucessful I…
-
Dad broke pelvic bone after 1st chemo/rad advice about restarting
My father is 86 and was diagnosed with stage 1 squamous cell anal cancer and underwent chemo and radiation on November 27th, that evening/early morning on Tuesday he fell getting out of bed and fractured his pelvic bone. He is being discharged from rehab tomorrow morning and we are meeting with the oncology team tomorrow…
-
The Endless Diarrhea and Bowel Issues.......
Hello All- I should have joined earlier, but better late than never. I was diagnosed initially last February, 2016. My anal cancer had metastisized to my liver (only one spot, luckily), so my treatment course may have run a little differently than some of you. I Had 4 rounds of chemo and six weeks of radiation. At about…
-
4 weeks past treatment
Hi there, I was diagnosed with anal cancer on October 13th. I had a small protrusion which I thought could be a external hemorrhoid and went to my GI who did a MRI followed by a colonoscopy with a biopsy. I went to him 6 months earlier and nothing was there so it seemed to really come up quickly. Not sure how it would have…
-
Neuropathy after treatments
I was diagnosed with anal cancer in June 2017. There were squamous cells and small cell carcenoma in the same area, so I was treated with radiation for the squamous cells and chemo for both. That means I received some increased doses of cisplatin. I completed radiation in August and chemo in October. The treatments went…
-
The dreaded “nadir”
First post-I am a (reasonably) healthy 47 year old male, who was diagnosed with squamous cell anal cancer in December. I started treatment Dec. 27, flourfouracil and mitomycin with 7 weeks radiation. 2 1/2 weeks in, other than fatigue right after the first round of chemo, and increasing irritation of the “tuchus“ (I prefer…
-
Proton Therapy
Does anyone have any experience with Proton Therapy for anal cancer? Thanks
-
Today marks seven years . . .
Hi! Today is the anniversary of my final day of treatment back in 2011. Stage IIIB. At age 54, I feel that I am the happiest and healthiest ever. I rarely think about my cancer these days which really surprises me because it once consumed me so. But I am surprised how emotions are still just under the surface as I teared…
-
PET scan at end of treatment?
I am curious as to what scans, etc. everyone received at the end of their treatment. My insurance is denying my oncologist's request for a PET Scan. (Twice now.) My treatment ended Nov. 2nd, so I am two months out. Insurance is now saying I need a CT scan and then I can do a PET scan. I had a CT scan the last week of…
-
Blood in Urine (Anal Canal Cancer & Lung Adenocarcinoma, 2+ years in remission)
Hello! First I would like to thank this board for a lot of information and encouragement. It has been extremely helpful. I would like to ask for an information about my mother. Short background: My mother was diagnosed with anal canal cancer (Stage II) in May 2015, during the preparation for the radio/chemo therapy she was…
-
anal cancer newbie
Hello. I'm so glad to find this forum, writing and discussing is very therapeutic for me. I was recenlty diagnosed with anal cancer stage III A about 2 weeks ago from a biopsy. Since then, I've had blood work, ct scan, pet scan, and meetings with an oncologist and radiology. I've been sleeping pretty well, and my emotions…
-
Thinking of you ...
Hi everyone, It seems its been far too long since I have posted here but know that I think of you all so often. I've been reading when time and welcome all the new folks (though always sorry for the need, but hopefully like the rest of us you will find a great sorce of comfort and strength through this little family of…