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It's been awhile
Hi everybody. It's been awhile since I last posted. I guess I just became adjusted to my "new normal" and my scans, etc. were good and I was busy in life, so I haven't checked in. And now... I was diagnosed with uterine cancer yesterday. It's all very new right now so I have many more questions than answers. During anal…
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Were You Told Your Odds of Cure Before Starting Treatment?
I have not yet commenced treatment (apart from some naturopathic treatments I am doing). When I met with the radiation oncologist last month and asked him what my likelihood of cure was from chemo-radiation, he gave me several scenarios. But basically, the most realistic scenario places my likelihood of chemo-radiation…
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Surgeon Appt
I'm 9 weeks post treatment, met with my surgeon he checked the tumor which shrunk a lot! He still feels a ridge and in 3 weeks will do a mini colonoscopy to biopsy the spot he wants to make sure it's scar tissue, not a new cancer either way I'm glad he's not waiting. I thank God gor healing me and trust he will keep on…
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I meet my Oncologist tomorrow
I'm feeling very nervous, I see my Oncologist tomorrow to talk over treatment. I see the Radiation Dr. next week. I'm still feeling like I'm in shock. Overwhelimg!
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Avoiding types of food?
For those that have been thrugh the radiation tratment do certain foods cause more mucous or stomach issues? 5 months post-treatment here and would love to stop wearing panty liners. I find certain days much better than others but have not been able to specifically determine what foods are the culprit. I am sure chips and…
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Having Patience
I'm 6 weeks post chemo & radiation, what a whirl wind this has been I don't think I'm dealing with everything yet! How to have patience for the next year whilke this tumor shrinkjs and disappears completely! Positive thinking is my task but it's so hard! I still have some skin issues and itching, my energy level is getting…
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Vaginal Stenosis
Has anyone gotten through vaginal stenosis on their own?
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Mom pet scan
Just a brief background my mom was initially diagnosed stage 2 in jan 2015, received standard treatment was great until feb 2017 biopsy confirmed recurrence. Apr colostomy was her only option done in May 2017, some hicups on recovery but doing great! Had her pet scan tues went for results today and NED! Don’t lose hope I…
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Treatment started today!
Hello everyone. I had my first radiation and chemo infusion treatments today. Radiation 5 days/week, chemo pills twice/day. Wow! Help!!! Is coconut oil good to apply daily after radaition treatmemt/does it help? I also have Aquaphor. First treatment so no skin irritation yet. Want to be as prepared as I can. Any…
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Anal Adeno Carcinoma
I was diagnosed with Anal Adeno Carcinoma in March 2018. I'm currently receiving chemo (using Xeloda) and radiation treatment at St. Joe in Brighton (MI), which is using their brand new (one month ago) radiation contraption. I would like to compare notes with either someone who has or had the same or similar diagosis or…
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Cazz Update
Having just completed four rounds of Cisplatin/5-FU, I went last week to MD Anderson for a CT scan to see what affect it had. I had what they are calling a mixed response. Two of my biggest liver tumors grew, one by a lot, while the third stayed the same. All of the lymph nodes shrank a little bit and there were no new…
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ASCO meeting abstracts 2018
ASCO (American Society of Clinical Oncology) annual meeting is next week. The abstracts are searchable. More info for colon and rectal cancers, and a few for anal cancer. Possibly more for us from The GI Symposium sometime later in the year. One interesting abstract compares 5FU and capecetabine(Xeloda)…
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Folate level & B12
Anyone have a high folate level? B12 was in normal range, I'm 6 week post treatments.
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The Empire Strikes Back.
Greetings, everyone. It seems that I come here only when I have problems. I regret that. However, today is no different. On the 4th anniversary of my anal cancer diagnosis, I had a follow-up CT scan with a lymph node that the radiation oncologist thought should be further explored, "just to cover things". I had a full-body…
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Straight to surgery?
I was just diagnosed with stage IIIB. I’ve been reading about the initial treatment consisting of chemoradiation using 5FU and Mitomycin (Nigro Protocol) and the side effects. Of course, if the treatments don’t get it all surgery is usually the next option. Has anyone else had thoughts of going straight to the surgical…
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bleeding after digital exam
Hey guys, So I had a huge biopsy done 3 months post treatment and all came back as scar tissue. BEcause of the huge bipsy I haad a painful fissue for two months. After that healed I went in for another digital exam and he felt a lot of scarring and smthing on the other side that he was nt too concerned with...that is where…
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Is a colostomy the only option after recurrence?
I'm five years out from treatment, but still have issues. "Tissue: at AIN 3 are removed with greater frequency. A surgeon mentioned, of course, that a colostomy is the next step. I've been reading about innumotherapy, plastic/rubbber spinchters, and other developments. If if returns, is there still hope?
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NED 6 months - New Member
Hi! While I am a new member now, I have been reading the posts in this forum for 8 months. And all of your tips really helped me get through it. On June 9th 2017 I awoke from a colonoscopy (thought I had a hemroid) and was advised that I had a large anal tumor. I was handed contrast to drink and was immediately escorted…
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Biopsy again?
So I have finished treatment in December and when the Radiation Oncologist did the digital exam he still felt something where the cancer was. I was pretty agressive with treatment and excersied a lot following treatment and even during treatment some. Walking 3 miles a couple times a week etc. So in March he had me go in…
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Mom one year out from apr for recurrence
Hi all just wanted to check in, my mom was initially diagnosed in Jan 2015 stage 2. Treated with standard treatment, jan 2017 started with bleeding and pain again ct and biopsie showed recurrence. She was tested in May 2017 with an apr colostomy, she has been doing much better but we went to a different dr for oncology for…
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No more radiation treatment for life after doing RT for anal cancer?
Just wondered if anyone here has been told this by their doctors - that after completing radiation treatment for your anal cancer, you will not be able to do more radiation therapy anytime in your life for any future cancers because that would be too much radiation exposure. A friend of mine who was recently successfully…
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Anal / rectal stenosis?
I have not yet recovered from the pain of the last scoping. As a matter of fact, the pain is getting worse. It's not just that fissure site that hurts, but my whole anal vault is painful and throbbing after passing stools. They are more formed these days, though far from firm, and each go-time is dreaded. I pass blood and…
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Beginning Week 9 - Update
Thanks to all who have offered support along the way. It's much appreciated! My last day of radiation was April 18, so it will be three weeks post radiation on Wed. May 9th. My bottom is still sore and very itchy, but slowly getting better. I am so impatient! Not too many other issues. I tire quickly and lost a bit more…
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Radiation proctitis
After 2 surgeries and 37 radiations which I finished on August 17th...after about a month I developed radiation proctitis. They have tried everything and are now scheduling me for a colostomy. The pain is absolutely unbearable. Just wondering if there is anyone out there like me.
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Biopsy Results Update
Hey guys, 12 weeks out from my treatment and had my Biopsy Tuesday. The waiting was excutiating and mentally I was a wreck. Now I am in tears of joy because the biopsy results came back as just scar tissue. Not sure how many they took but they all came back as scar tissue. Thank you all for helping me get through this…
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Getting ready to start chemo and radiation
I will be starting chemo and radiation at the end of this month. They are waiting to put port in. They plan on using pump to administer chemo. Also will do radiation at same time. Hope to shrink mass before doing surgery. Have been told I will need permament colosomy. Any thoughts or suggestions will be appreciated.
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Fatigue post treatment
Hi All! I finished my 2 cycles of chemo and all my radiation treatment almost 3 weeks ago. The skin on my bottom is greatly improved, but still pretty ouchy on the inside and BM's are better but still not fun. The worst part for me right now is this horrible fatigue. I went back to work this week, 4 hrs per day. But I'm…
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Starting Treatment Soon
Hi everyone. I just joined. I am a 63-year-old female and was recently diagnosed with Squamous Cell Cancer of Anal Margin/Canal. Same cancer that my mother had. I am awaiting my appointments with my 2 oncologists who will be treating me (Chemo Onc & Radiation Onc). I have been reading up on the Chemo-Radiation treatment…
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End of Week Five
I did ok the first four weeks of one chemo and 20 radiation treatments, but last weekend, the burns just came on and this past week five, along with round two of chemo, it's been rough. I have three radiation treatments left. How long before things down there settle down a bit? I've read the radiation continues to burn for…
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Need to talk to Anal Cancer Survivors who are Post Treatment.
I had the most bizarre appt with Radiologist today. I'm 3 months post treatment. I went in to Rad's office for follow-up. This Rad did not examine me once during my whole entire 6 weeks of treatments meaning she never saw any of my burns. Now, she examined me after everything had healed up. When I told her about the…