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Have very thick uterus
Hi, I have not been diagnosed with anything cancerous. But I have 3 children all were born by c-section. My last child was born in Oct. I never stopped bleeding after I had her. Sometimes it was heavy sometimes I spotted and other times just a wierd discharge. I went to the doctor and they done a transvaginal sonogram.…
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Endometrial biopsy
Hello. I am new here. I am scheduled for endometrial biopsy tomorrow that I have put off for far too long. My mom passed from uterine cancer. I had some bleeding but I was barely perimenopausal. Ultrasound showed the lining was enlarged. My question is, I asked for a paracervical block. I am wondering if anyone had a block…
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The wheels are in motion
Saw the GYN onc today, I need labs next week because I am diabetic and I'm going to have a CT chest/abdomen/pelvis with contrast on Aug 8, then I need to get an appointment w/my PCP to get clearance for surgery and having a robotic hysterectomy (everything) on Aug 29. My postop for the D&C is this coming Tuesday, still…
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Immunotherapy
I have vaginal cancer - serous adenocarcinoma. I've been through carboplatin and taxol, and external & internal radiation. I'm supposed to start immunotherapy this next week. Keytruda and Lenvima. Was curious as to anyone's experience with these drugs. How were your side effects? How long before side effects appeared.…
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high-grade serous carcinoma - likely uterus - experiences, thoughts, hope?
Hi, first time here. Got results from biopsy of a mammoth lymph node (inguinal) today--I have this type of carcinoma. CT scan received Sunday said I had what looked like a neoplasm that had invaded my uterus. Waiting to get a uterine biopsy, but I am hoping they cut straight to a radical hysterectomy, as the scan…
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The more I know the less I feel like I know.
Hi all, I had FIGO grade 1 adenocarcinoma with hysterectomy in 2019. I had bad medical care and my ovaries were left in place. After diagnosis I was referred to Siteman, had a PET scan that showed nothing and was monitored the next three years. In spite of multiple appointments due to cramping/bloating the only test…
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Help me understand my path report
Histologic Type: Endometrioid carcinoma, NOS Histologic Grade: FIGO grade 2 Two-Tier Grading System: Low grade (encompassing FIGO 1 and 2) Myometrial Invasion: Not identified Uterine Serosa Involvement: Present Lower Uterine Segment Involvement: Not identified Cervical Stromal Involvement: Not identified Other Tissue /…
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MMMT survivors
Hi to June, Jan and all the other MMMT ladies Just wanted to check in with you. I had a check-up today with my surgeon and all seems to be fine. It was just a physical exam - they don't believe in routine scans at UCLH - but I feel reassured. Just fyi I was stage Ia and had TAH/BSO in November 2010 with removal of several…
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Looking for advice/ similar experience
I’m 41. I had my tubes tied 13 years ago. I’ve struggled with horrific periods. Blood gushing when I stand up, terrible cramps, anemic, long heavy periods. Spot in between periods. I went to the GYN who initially thought I had adenomyosis. He said my uterus was globally slightly enlarged “8-10 weeks”He suggested a…
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Just Released A New Video "Recurrences" On My UPSC YouTube Channel
Just released episode 8 to my YouTube channel. I decided to cover "Why Does Cancer Come Back". If interested, you can watch this episode by clicking on the link below. Thank you all for your suggestions for this episode! ❤️ https://www.youtube.com/watch?v=Ca8VXeOKNCI&t=8s
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MMMT Stage IV
Hello all - My Mom was very recently diagnosed with MMMT - malignant mixed Müllerian tumor. At first they thought it was localized to her uterus, and were confident it was Stage I or II, but her CT scan shows a mass in her lung as well, making it Stage IV. She's having a total hysterectomy next week, and chmo following. We…
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Newly Diagnosed
Greetings to all you prayer warriors! We got some not so good news on Friday, but we’re trying to stay positive. After an ultrasound and D&C, I received preliminary results stating I have Endometrioid endometrial carcinoma, FIGO grade 1. My GYN told me that I will need to have a hysterectomy to start with. So, we have…
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Topics for Next YouTube Episode
Hi everyone, I will be working on episode 8 of my UPSC YouTube channel and wanted to get your input as to what you would be interested in hearing about. I was considering 1)What causes cancer to recur 2)Medical marijuana 3)Keytruda....I asked this question in the Facebook group and got a few ideas and am leaning toward…
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Highlights from SGO Meeting for Endometrial Cancer
Hello everyone! If you are interested, I am so hoping you can click on the link below and watch the eight, short videos from recent Society of Gynecologic Oncology meeting that just took place. They touch on the RUBY and GY018 studies that show some interesting promise on treating our cancer.…
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Fallopian tube recurrence in lung?
Hi, Ladies. I haven’t created a new post here in a very long time. And I’m just sick (and furious) that I have a reason to do so now. In late 2020 diagnosed Stage II FTC with secondary peritoneal. Remission 2021. Last fall my CA125 rose very slightly and so GYN/ONC was insistent I have CT. I was so devastated and so ill…
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Ibrance--Pfizer patient assistance
Hi everyone, I'm writing to share our experience with the Pfizer patient assistance/oncology together program. My mom was prescribed Ibrance for her recurrent MMMT based on the genomic testing results (CCND1 amplification, which may be targeted by Ibrance). Ibrance is not FDA approved for uterine cancer (just breast cancer…
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Ibrance and Aromitase Inhibitor
Hi there, After two recurrences, I was put on Ibrance and an aromatase inhibitor. I am in remission for now. I've been on this regimen since December, 2017. Is anyone else on this combo? If so, for how long? Thanks.
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With or without treatment
My husband has Stage 4a Squamous cell carcinoma in the left lymph node and base of the tongue with no distant metastatic disease. We are meeting with the surgeon next week. My husband is not known for going to the doctor and I wonder what course this will take if he refuses surgery and treatment and what to expect with…
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Waiting for biopsy
Hi all, I am a breast cancer survivor, stage 1 in 2018, cancer-free after bilateral mastectomy. I went to the ER last week with severe abdominal pain and had an abnormal vaginal ultrasound. Post-menopausal, 16mm endo thickening, small cysts throughout, and hyper vascular. I thought I was still perimenopausal so I didn’t…
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Endometrial cancer findings
Had radical hysterectomy 20 days ago. My follow up is in 3 days from now. The oncologist that performed the surgery already tood me I would need chemo and radiation so that is what it is. I have a long description in my online medical chart ..but this is the part I find confusing . Their findings ...no 1 and no 3 seem to…
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Dx with uterine cx 5 years ago, newly dx with breast cancer
Has any had breast cancer after having uterine cancer? I was diagnosed with endometrial cancer in 2018. Just diagnosed with breast cancer in May. Has anyone been through this?
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DazedScaredConfused
I’m new here. On 7/11 I received the most frightening news of my life, I was diagnosis with stage 1 endometrial cancer. Through out my life I’ve always suffered from heavy periods, heavy clotting at one point I bleed for 9 months straight. I was young adult no insurance to scared to tell my mother. After that I would have…
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I’m new here ~
May I ask why there is so little current activity? Or are questions just answered in posts that already exist? i’m 68, and very overweight. I had issues my while live with bad periods, heavy, clotting, bad cramps. I never took off work, unless getting a D&C, which my doc used to thin my uterine lining, I guess because…
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After Kidney Removal
Just told my left kidney has to come out due to a tumor. The only symptoms I've had is the usual blood in urine, fatigue, weight loss and slight back sensation. The actual description is: Left upper tract TCC. Discussed robot left neph-U. Recommend intravesical gemcitabine. The urologist didn't indicate that there was any…
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Just got biopsy results — A little overwhelmed
Hi everyone. My name is Elyce, I’m 66, and I’m in Chicago. My gynecologist, who performed my hysteroscopy and D&C, just informed me two days ago that my biopsy results showed endometrial cancer. I had previously had an ultrasound which didn’t show anything in the muscle wall, so she’s pretty sure that it’s early stage. She…
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Another newly diagnosed
hello, diagnosed with endometrial endometrioid carcinoma FIGO grade 1. I know it’s common and usually the hysterectomy will be all I need. But. Still scared and overwhelming. I am scheduled for my robotic total hysterectomy on 8/21. I am fortunate that my care team is very responsive and so far have been helpful. I will be…
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Considering hormone therapy, concerned about lipedema
Thanks to all who post here and who offer support to others – I’ve found reassurance here and I am grateful. I’m offering my story in case it is helpful to anyone. I will try to provide updates and answer questions. In Feb 2022 I was diagnosed with endometrial adenocarcinoma, FIGO grade 1, p53 wild type, ER positive and PR…
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Is it Lymphadema
good afternoon ladies, it's been a few weeks since I last posted here but I am again in search of your wisdom and knowledge. So, I completed 25 rounds of radiation on the 27th of Jan and it went fairly well with fatigue being the most significant issue. Towards the middle of the treatment I noticed swelling in the groin…
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Follow-Ups and Putting My Foot Down
I also second-guess myself but I put my foot down today and hope I made the right decision. I had my surgery last June and 5 brachy treatments too follow. I started my 3-month follow-up with my gynecologist oncologist last October (although she saw me a couple of times after surgery) and saw her in late January and will…
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Radiation/uterine
I was diagnosed in May 2023 with Adenocarcinoma Endometroid . Lining of my endometrium very thick more than likely due to 1 mg of estrogen for many many years without progestogen. I am 75 yrs. old and have never had surgery anesthesia. I was beyond depressed and terrified. Long story short referred to Oncologist GYN who…