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I am feeling lost!
I am 34 years old. My last son was born in may 2003, after which I immediatly began having the heaviest periods ever. My periods were heavy enough to make me anemic, so my gyn at the time did some testing which revealed nothing abnormal. No fibroids, polyps, nothing. I was given the choice of a hysterectomy or endometrial…
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Friday's CT-Scan 'official' results & pre-treatment mtg. today with radiation oncologist
I met with my radiation oncologist today for the first time since right after my surgery. You may remember that initially I thought we would be doing my radiation first after the surgery, but instead they wanted to do all of the chemo 1st, since at Stage 3, UPSC is just as likely or even more likely to recur at a distant…
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help my ca 125 isup
Hi everyone I read about everyones ca 125 dropping during therapy Mine was 29 prior to surgery and it was not done prior to first chemo, but before second chemo it went up to 61 and I am soooo upset Has this happened to anyone with chemo, and then went down? thanks Janet
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how to change my photo
I thought I would post a picture of my new bald look and have gone in and deleted my other one, uploaded my new one and the old one just stays up.. Any tips on how to do this janet
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Extra special gentle hugs today for ((((Mary Ann / Daisey)))), ((((Kris Ann & Judy)))), and ((((Barb
Reading the Roll Call posts, I can see what a powerful gathering of strong brave women we have here. I have such a wonderful support system with my family and friends, but I still don't know how I'd cope with how HUGE this whole cancer journey is, without you all who are walking it with me. Thank you. Special prayers and…
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Ro10 how are you
Hi Ro, I was just curious on how you are doing these days. I don't see you writing to much. Hugs to you, Sharon
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Great Website
I am part of another online support group through cancer care. One of the ladies shared this website with the group. There are some really helpful tools on here, especially for those of you just starting your journey. Check it out... www.canceradvocacy.org Hope you all find it helpful.
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Denied my chemo AGAIN! Platelets too low even after an extra week & a transfusion
I just want to get this LAST ROUND in me and move on! (sigh). Last Monday when I went in for my scheduled chemo, my platelets were 27. My red blood cells were also too low, so I had a blood transfusion and was told to come back today. Today all of my other blood work was really good, but my platelets were 64. 100 is…
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question for anyone re: my mom
Linda, Ro Deanna, anyone on this discussion board, i have a question. My mom had a complete abdominal hysterectomy march 12th 09, had UPSC stage 1a. She is doing quite well for her being 85, but now today (she lives next door) said she thought she may be worrying for nothing, but she had a slight itch so she looked to see…
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CT scan results
Hello to all you wonderful people who have helped me through a rough time. I had endometrial cancer stage 2b grade2, had a radical hysterectomy in 2007 and 26 radiation treatments (external). All was going well until a CT scan caught some nodules in my lungs 1 year later. Mets in my lungs, so now it was time for chemo and…
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the knickname kimosabe, (chemo-sobby)
I saw that "kimosabe = chemo-sobby" pun this morning on the Breast Cancer Discussion Board when I was searching for information on Taxatere, and just had to share it with you. That's what someone said they called those chemo-induced nights of depression and crying: chemo-sobby. Get it? I must be a twisted, but that really…
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Had my '7-days-after-last-chemo' safety checkup today.
I just got back from having my blood drawn and meeting with my oncologist. I had my last chemo last Thursday, and have to appear every 7 days for a 'safety' monitoring, to make sure my already-low counts don't fall into the scary range as that last round of chemo kicks in. Everyone seemed pretty happy about today's blood…
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Frustrated...
I didn't get chemo again today. My platelets were normal this time, but the WBC had dropped to 2.1. He said they were not at a dangerous level if I were to acquire an infection right now. However, if he were to give me chemo, they would drop to a dangerous level and that it just wasn't safe. Also, my RBC dropped a little…
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LAST CHEMO TODAY AT LAST!!! (at 80% strength & Neulasta tomorrow & close monitoring now)
I FINALLY got my last chemo round today, at 80% strength because my blood count numbers were still pretty bad and the oncologist said we ‘pushing the envelope’ giving me chemo today. (i.e. my platelets were 84 instead of the 100 cut-off number; and absolute segs at 1.01 which is the subset of white blood counts that…
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After the full abdominal radiation
Kris Ann, it does seem like your mom has been suffering awhile but I do remember it taking some time for my body to feel normal (It never feels like it did pre-cancer, but it is fine). Before the whole abdominal radiation my doctor spent a great deal of time telling me all the possible side effects- there were quite a lot…
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Linda; How did it go.. did it go??
Had you in my thoughts and prayers all day. Are you OK? Hugs to you. CRFB!!
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we are back from hosp
All is well!! G had his surgery. Great care. Great pain management. We are home. Spring is here...with snow again!! How are all of you?? Is quiet a good thing?
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treatment guidelines
I was told by my onc nurse today that my doctor uses the "National Comprehensive Cancer Network (NCCN) Guidelines". I looked it up and it is very interesting. It has decision trees for each stage of cancer. Search endometrial and you will find "Uterine Neoplasms" including UPSC. Check out-…
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Great Website
Found a great website for endometrial cancer awareness paraphernalia. Following is the link: http://www.zazzle.com/endometrial+cancer+tshirts Hope all are doing well today, you are all in my prayers. MIND, BODY AND SOUL! Hugs
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Treatment #4
Linda, I am off to treatment #4... hoping that all goes well for you and you get your last chemo! Hugs and prayer, Deanna
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my fear
I had a total hysterectomy and my cervic was also removed. I'm almost 74 so other than wishing I didn't have to have any kind of surgery I didn't care about the removal of all that stuff. I certainly don't need it anymore. The gynecologic oncologist told me that the cancer was contained inside the uterus and there was no…
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Relay for life
Have any of you sisters ever participated in the Relay for Life? God bless. Peggy
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Remission
I just felt I needed to express my feelings on this word. I don't like it! To me it says that they believe the cancer will come back for sure, it's just taking a break for now. I would rather the doctors tell me I'm "Cancer Free". Sounds much more positive, it allows you not to worry as much. So let's refer to ourselves as…
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Last treatment for me
I just got back from my last treatment and of course I feel great(steroids). I will have my ct scan in 3 weeks to see what has happened. The nurses at the infusion room handed me a angel coin when I left and I wore a tiara for the time I was there. Now, it's time to try and relax and work on getting my hair, eyebrows,and…
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Happy St. Patricks Day
Happy St. Patricks Day to all of my UPSC sisters. So good to see many of you through or almost through the treatments. May God guide and bless you all. CRFB!!!
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serous carcinoma
Hi Linda, Ro and all of you wonderful gals, I was the one who wrote my 85 yr old mom was having a total hysterectomy for serous carcinoma uterine cancer., which was a shock really at her age., but as someone said cancer knows no age, young or old. Anyway, thanks for your ecouragement Linda and all of you, and my mom is…
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Reunion
Well gals, since we are all going to be around a long time we should start some traditions!! Maybe we should rotate coming to each others Relay for Life walks. It would be so AWESOME to physically WALK WITH ALL OF YOU. CRFB!!!
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Halfway!
I was able to take my 3rd chemo treatment today... 3 more to go. My white count doubled this time to 6.1 before treatment. Everything else was good except my hgb dropped from 11 something to 10.5. Not so bad considering, but I think I need to spend the next 3 weeks eating something that will help me build that back up. I…
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Nausea
Does anyone have any tips for the nausea. I had only mild nausea with the 2nd treatment. Today has been rough. I am taking Compazine and Zofran. Trying to keep down soda crackers and ginger ale. I'd appreciate any ideas. Thanks.
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UPSC is second primary cancer
Hi everyone, My mom was just diagnosed with UPSC this past December. She is a stage IV breast cancer patient that presented with post menapausal bleeding so her onc. ordered an internal ultra sound, and found a polyp and thickening of endometrial lining. He sent us to the obgyn/onc who due to the damage from all of the…