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My Gyn/onc visit-UPDATE
Wow, what a difference in doctors! He was calm, cool, collected, informative, and took the time to actually educate me. He allowed me time for questions, and best of all he made me laugh!! Great bedside manner. In a nutshell, he explained my pathology. Yes, endometrial tissue was taken from my uterus, but there is no way…
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rectal bleeding
Just finished 25 pelvic radiation treatments. Yesterday started bleeding from rectum - heavily - when I have a bowel movement - same thing today (sunday) - and very sore rectum. Cannot find rectal bleeding in regular side effects. Has anyone else experienced this - and is it serious? Start localized radiation to just tumor…
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Found women with my diagnosis & a TY to ShortMarge
Guess where I found them?? Hystersisters! So a huge thank you ShortMarge for the recommendation! ((HUGS)) I love that website. :) It turns out BOTH women who had the same exact dx as me ended up having endometrial cancer. One was a Stage I requiring no further treatment, the other was a Stage III needing…
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Relay for Life
Just wanted to share because I am excited. I will be walking the survivor lap at Relay for Life tomorrow night. My Mom, a friend of hers and a friend of mine will be walking together. Next year I am going to start up a team, I wanted to this year but just wasn't up to it yet. Should be fun!
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New things I learned from my talk with radiation oncologist
I was under the impression that once you received radiation on a certain part of your body, that area could never be radiated again. Apparently, with IMRT, that isn't true. Just as the IMRT allows the technicians to lessen the radiation as the machine moves over bones and uninvolved vital organs, should I need radiated…
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TREATMENT DONE
I am DONE. After a hysterecomy, 25 IMRT and 4 HDR treament I am now done with treatment. I have a 2% chance of the endrometral cancer coming back but I can live with those odds. I was diagnosised with endrometral cancer on 1/20 and had surgey via DeVinic robot on 2/20 was found to have grade 2 stage 2b. Due to the staging…
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Lymphadema
http://www.lymphnotes.com/article.php/id/313/ This is the best site I've come across explaining swelling and drainage issues. There are many, many site to site references. Here's just a sample: Starting Treatment: The Intensive Introduction An intensive, which is also known as an intervention, is the beginning phase of…
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PET finally APPROVED for UPSC - Insurance denial OVERTURNED after long FIGHT!!!!! Tips on dealing w
I was SHOCKED yesterday when I got the call from my Aetna case manager - the insurance company had reversed their long-standing denials of my PET. Two days ago I received a special delivery letter from them that we were to go to a hearing on May 14th about this very issue. Don't know what happened that they changed their…
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Sharing something very beautiful...
I was sent this link by a dear friend, and wanted to share it with each of you, to inspire you and brighten your day. It's really beautiful. You may want to have your sound on LOW. Click on the word LIFE on the opening page, and ENJOY: http://www.greatdanepromilitary.com/Life/index.htm (It made me cry. I think I am overly…
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Who has had a D&C question and update on my doc's visit:
First thing I have to know is who has had a D & C and do you have a copy of the pathology report? Here is why I ask: My D & C pathology shows specimens of endometrial curettings and endocervical curettings...yet my doc said I dont have dysplasia in my uterus, only in my endocervix, that he didnt take samples from my…
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UPSC - aspiring new discussion member - recurrance last year - Mary Ann in San Francisco
Hi, Ladies. I was diagnosed with UPSC in February 2006, when I could not find a discussion like this. I have never met, in person or on line, anyone else with UPSC. They found recurrence in July 2008. I've finished my second series of 6 carboplatin-taxol chemo on March 17 and have the barest fuzz of hair back. My doctor is…
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happy mothers day
Have a happy mothers day tomorrow. bonniesue
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Aloha UPSC survivors
Glad to have found you all; diagnosed in May 08 with UPSC stage 1A; I was lucky and very blessed to find this killer early; all I noticed was some unusual moisture in the vagina during intercourse (this is NOT normal for a post menopausal woman); my further investigation of this change included a clear, odorless, sticky…
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Anyone know their Karnofsky Performance Scale Index score?
I was just reading a Clinical Trial and one of the "inclusion criteria" to be considered for the study group was that you must have a Karnofsky Performance Scale Index of greater than 60. So, naturally, I wondered what that was and looked it up. Apparently, it is a way that physicians measure how you are doing with your…
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Pre-diagnosis confusion...seeking answers
Hello everyone. I have had a very hard time finding someone who understands what I am going through...maybe I can find someone here (I have tried cervical cancer forums and only got answers to the cervical portion). I'm 32 years old. I originally went in to doc presenting with pelvic pain that worsened with menstruation,…
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Peggy
Has anyone heard from Peggy?
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Linda did you go visit your sister?
Linda how is the swelling to your feet and legs. Were you able to travel to see your sister, or did you go to the doctor instead? I hope you were able to visit you sister. I hope the swelling got better. Good luck with your appointment on Thursday with the radiation onocologist.
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Geting back into routine
Well I don't know how many of you have gone back to work or stayed working while doing treatments and had a rough time of adjusting to it all. I just recently went back to work on Wednesday and worked 8 hours that day and the next. I was so bone weary tired on Friday I had to call in. You don't really know how it's going…
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A local church knitted me a Prayer Shawl. Familiar with this ministry?
The Museum Director at one of my long-time grantwriting clients has become a dear friend over the years we've worked together. His church has been praying for me since the beginning of my cancer journey. He called me last week to tell me that they have knitted me a Prayer Shawl. I had never heard of this, so I Googled it,…
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Healthy Suggestions
Hello, I am about to start 6 weeks of radiation and chemo for Stage 3 cervical cancer. Does anyone have any words of wisdom as to help my body cope with the shock it is about to get? Thanks for listening. Sherry
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3 Month Check-Up
Well, today is the day that I start; my first three month check-up. Not really looking forward to walking into the cancer center but feeling great and having no worries. Y'all are in my prayers and hope all are feeling well today. MIND, BODY AND SOUL!!!! Hugs.
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Chemo
If all goes well, I will have chemo # 5 today! So close to being finished and hopefully for good! Also hoping to get CT results from the doc today. Hope everyone is feeling well. In my prayers always! Love and hugs, Deanna
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Ankles and legs really swollen the last 2 days. Serious?
I only have a couple of days before my external radiation starts and I plan to drive down to see my sister and step-mother tomorrow for an overnight visit. My problem: after taking the grandkids to an Amusement Park yesterday, and being on my feet all day, my ankles and lower legs ballooned up quite a bit. And even after a…
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I am feeling lost!
I am 34 years old. My last son was born in may 2003, after which I immediatly began having the heaviest periods ever. My periods were heavy enough to make me anemic, so my gyn at the time did some testing which revealed nothing abnormal. No fibroids, polyps, nothing. I was given the choice of a hysterectomy or endometrial…
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Friday's CT-Scan 'official' results & pre-treatment mtg. today with radiation oncologist
I met with my radiation oncologist today for the first time since right after my surgery. You may remember that initially I thought we would be doing my radiation first after the surgery, but instead they wanted to do all of the chemo 1st, since at Stage 3, UPSC is just as likely or even more likely to recur at a distant…
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help my ca 125 isup
Hi everyone I read about everyones ca 125 dropping during therapy Mine was 29 prior to surgery and it was not done prior to first chemo, but before second chemo it went up to 61 and I am soooo upset Has this happened to anyone with chemo, and then went down? thanks Janet
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how to change my photo
I thought I would post a picture of my new bald look and have gone in and deleted my other one, uploaded my new one and the old one just stays up.. Any tips on how to do this janet
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Extra special gentle hugs today for ((((Mary Ann / Daisey)))), ((((Kris Ann & Judy)))), and ((((Barb
Reading the Roll Call posts, I can see what a powerful gathering of strong brave women we have here. I have such a wonderful support system with my family and friends, but I still don't know how I'd cope with how HUGE this whole cancer journey is, without you all who are walking it with me. Thank you. Special prayers and…
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Ro10 how are you
Hi Ro, I was just curious on how you are doing these days. I don't see you writing to much. Hugs to you, Sharon
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Great Website
I am part of another online support group through cancer care. One of the ladies shared this website with the group. There are some really helpful tools on here, especially for those of you just starting your journey. Check it out... www.canceradvocacy.org Hope you all find it helpful.