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Bladder Cancer

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New bladder cancer diagnosis
I just found on Tuesday that I have low grade bladder cancer. I went into the cysto thinking cancer wasn’t in the picture because an earlier urine test was negative. Only to find out it was negative only for high grade bladder cancer. Someone is supposed to call tomorrow with a surgery date. Needless to say I am very…
BCG is killing me
Aloha, I had very small tumors removed both in December and April. 4/20 i began BCG. Last treatment was 5/25. For the most part side-effects have eased up. However I still have horrible horrible weakness in my legs. It doesn't seem to be improving. It has me terrified as my mobility is becoming impaired. Has anyone else…
Pregnancy?
Hi everyone. I know I am a real anomaly here, as I’m only 39 and female and was diagnosed with bladder cancer in 2021 when I was 37. It was Ta, removed with TURBT, and follow up cystoscopies were performed every three months. I am now 39 and have had two small reoccurrences the past few months I also just found out I am…
4mm Gallbladder Polyp found in Ultrasound
Hi I was just told that I have a 4mm polyp in my gallbladder today. I have done some research and learnt that they can be cancerous once reached at 1cm. I was advised to remove my gallbladder. I am 36 years old, and confused what to be done. Sould I wait and monitor it or just go for the surgery? Can anyone share their…
bladder cancer - recurrence
within the last 2 years i've had bladder tumors removed, then gemcitabine chemo into the bladder (this is still ongoing once a month). then kidney removed due to tumor. now my urologist surgeon saw 1 spot of tumor regrowth in bladder that he says is 'tiny'. his recommendation is to check it again at my 3 month checkup. he…
Urtheria/Bladder cancer-
First time posting. I went through what my doctor called urtheria cancer back in 2019. However I find it difficult to find things under that title. It is like a subtitle as it falls under the Bladder cancer category, yet I had no issue with the bladder. The type of cancer was squamous cell, which is a skin cancer but can…
Seeking treatment near Syracuse.
Hello from DeRuyter ny to anyone who is out there my 68 year old father is not very computer savvy so I’m here on his behalf. Ill skip the symptoms and jump to the case. Yesterday my mother and him got the call that he has bladder cancer and had 2 tumors, one being over and inch. We’re pretty nervous for him and they have…
Large amount of blood found on urine dipstick
Good Morning, I’m a member of the endometrial cancer board. I was diagnosed 4 1/2 years ago. I have been in remission since. I went to urgent care for the flu. Covid test came back negative along with influenza A and B. Since I had a high fever of 103.3. I asked them to run a urine dipstick to make sure I did not have a…
Helping my mom choose whether to do treatment for high-grade invasive bladder cancer, stage 3 or 4
Hi everyone, My mom was recently diagnosed with a very aggressive bladder cancer -- high grade, muscle-invasive urothelial carcinoma with extensive squamous differentiation, and it has spread to at least one lymph node nearby so is stage 3 or 4. She is almost 78. She is otherwise in good health except for recently having a…
Gemcitabine treatment
Hi, I hope I am posting in the correct space. I was diagnosed with low leverl non invasive bladder cancer in May 2018. I Have had 5 turbts and in 2020 I had 6 weekw of Gemcitabine. Then we had the Covid 19 shutdown. In June of this year I started an 11 month - once a month - maintenance program of Gemcitabine. July 2, 2021…
Jelmyto
Hello, my father has been battling bladder & kidney cancer for a few years now and at his last follow up they spotted a suspicious spot on his remaining kidney. He’s already had his bladder, prostate, & one kidney removed. The biopsy is being scheduled but in the mean time his surgeon has asked him to think about his…
For those recently diagnosed....
There is hope. I was diagnosed last February, had surgeries in March and October, and am currently on the path to recovery. One thing I learned: Cancer is not a "ME" disease, but a "WE" proposition. WE CAN ALL HELP EACH OTHER. I detailed my journey in this 10 minute read. I hope this helps YOU, whether you are a patient or…
Invasive urothelial carcinoma, high-grade, invasive of muscularis propria (T2)
Hi, I'm new here. I was just diagnosed with the following a couple of weeks ago after TURBT: Invasive urothelial carcinoma, high-grade (grade 3 of 3), invasive of muscularis propria (T2) I don't know yet how it will be treated. The hospital I'm going to has a tumor review board, and because of high demand, I won't be…
Leaks due to leg bag tube dislodging from urostomy bag
My significant other is having trouble with the Hollister 18423 urostomy pouch coming apart at the connection to the tube of a Hollister 5174 urinary leg bag. She prefers wearing the leg bag all the time to reduce trips to bathroom. The connectors can separate at night while turning in bed or during the day just doing…
Urothelial Carcinoma Newly Diagnosed/Post-op Reccurence???
Hello, I am new to the site and was hoping if anyone had a history of urotelial carcinoma that can shine some light on the my problems. Initially beginning of Jan 2021, I have been experiencing intermittent gross hematuria (brown/pink blood in urine) which alerted me to go see the doctor. However when they took urine…
Papillary urothelial neoplasm of low malignant potential (PUNLMP)
Hi, I am a young person who has just been diagnosed with bladder cancer. My type of cancer is Papillary urothelial neoplasm of low malignant potential (PUNLMP). It is not known if anyone has been diagnosed with this type of cancer. I am very worried and scared.
Andy starts Chemo soon on Monday
As this journey is almost with he has to go through chemo Andy's in great health and in good mood and sometimes grochy lol but we go threw cancer stuff Andy's old dr never kept Andy threw the loop and now we have a wonderful Dr in Michigan I'm always looking for people to chat since we don't have that much support The day…
Bladder Tumor Free
After being diagnosed with "something in your bladder" in 2005, I had three recurrences about every two years thereafter, for a total of eight tumors removed. Six out of the eight were malignant. My last two TURBTs occurred in 2009 and 2012, followed by intravesical treatments with Mitomycin-C. I assume I haven't had…
TURBT, Chemotherapy, Survival, and Beyond
I haven't visited the survivors network in a while because it's been an eventful year for me. At the end of last year, a strange patch of tumor cells was found in my bladder at my 3-month follow-up (which ended up being 6 months, instead). At the end of January 2022, I had my 6th TURBT, followed by a 6-week intravesical…
New problem for me
In 2013 I had my left kidney removed due to RCC. Have had check ups ever since all NED until this month. My ultrasound report returned with 1.2 cm x 0.9 echogenic nodule on right bladder. My follow up with urologist isn't until 8/5/22 and I am going nuts with worry. What are the chances a benign cyst or am i facing bladder…
neobladder
I am having surgery in a few weeks and have decided to have a neobladder. Is here anyone out there that has had this done?
Bladder cancer
Had bladder and prostate removed 2/23/22. Opted for the ostomy bag. Physically I'm feeling pretty good and getting back to "normal ". Mentally I'm struggling with this new appendage to my body and realizing this is going to be with me for the rest of my life. I have always been healthy and was not prepared for this. I've…
Bladder Tumor
I'm new here as I had a cystocopy on Tuesday and it revealed a tumor. I have surgery scheduled on June 7th to have it removed and sent for pathology, so I don't yet know the diagnosis. I'm in my early 40s and don't know what to think about all of this. I am trying not to let my mind think negatively since I don't have any…
Upper Tract Urothelial Carcinoma
I'm new to this site. I was diagnosed with upper tract urothelial carcinoma in December 2017. My local doctor wanted to remove my kidney and ureter right way, but MD Anderson said not so fast. Since January I've been in a clinical trial at MD Anderson in Houston and I've had very good results so far. I'm still not sure…
How to find good oncologist/urologist
Newly diagnosed bladder cancer and wondering how to find good oncologist/urologist. Any insight would be greatly appreciated.
Radical cistectomy very soon for me
Hello everybody. I am new to this group. After 15 months of BCG treatment, the cancer finally invaded the muscle. The doctors have recommended me to remove my bladder and replace it with a neobladder. I don't have many options, so I accepted. My operation is on the 29th of March 2022. Happily the operation will be at MD…
What is it like living with stage 4 bladder cancer
I had my bladder removed October 8, 2021. Everything looked great, no spread to the lymph nodes that were removed or the prostrate that was removed. Went back in 3 months for a CT Scan and it was found that the cancer spread to my lungs. The doctor recommends immunotherapy because chemo didn’t work. Said I have about 10…
Gathering info
My 41 year old brother was just diagnosed with high grade bladder cancer that invades the muscle. His doctors want to remove his bladder. My question is how is the quality of life after the surgery? My brother is very active with skiing, hiking and camping, we are being told by his doctors that after his surgery due to the…
Recurrence with treatment questions
I was diagnosed with stage 3 bladder cancer back in 2015.Underwent 4 months of chemo then major surgery to remove bladder as well as prostate and surrounding lymph nodes then had a neo bladder constructed.All was fine and check ups ok until I began to have symptoms occur which ranged from constant back/torso pain as well…
Stage 4 Bladder Cancer - Share Hopeful Stories
New to this group. My husband (55) has stage 4 bladder cancer. We’ve done chemo, currently on immunotherapy, and considering proton radiation. It’s been a year since we started treatment. We have 2 young boys (9 and 7). Trying to stay hopeful. Any survivors out there I’m the same stage that can share hope?

Bladder Cancer

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