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Gathering info
My 41 year old brother was just diagnosed with high grade bladder cancer that invades the muscle. His doctors want to remove his bladder. My question is how is the quality of life after the surgery? My brother is very active with skiing, hiking and camping, we are being told by his doctors that after his surgery due to the…
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Recurrence with treatment questions
I was diagnosed with stage 3 bladder cancer back in 2015.Underwent 4 months of chemo then major surgery to remove bladder as well as prostate and surrounding lymph nodes then had a neo bladder constructed.All was fine and check ups ok until I began to have symptoms occur which ranged from constant back/torso pain as well…
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Stage 4 Bladder Cancer - Share Hopeful Stories
New to this group. My husband (55) has stage 4 bladder cancer. We’ve done chemo, currently on immunotherapy, and considering proton radiation. It’s been a year since we started treatment. We have 2 young boys (9 and 7). Trying to stay hopeful. Any survivors out there I’m the same stage that can share hope?
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Bladder Cancer at 85 - Risks
My Mom was diaghosed with T2B Muscle invasive Bladder cancer. She had a portion of tumor removed before Christmas but it was deep into the muscle. Went yesterday to surgeon and he did cystoscopy and showed me large tumor stuck to lining into muscle. We are faced with this: Mom had Breast cancer 12 years ago and had a VERY…
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Bladder cancer treatment
My friend diagnosed with stage 2 bladder cancer, doctor say that they need to remove bladder in order to treat cancer. but, my friend worred about bladder removal, is any other effective way to treat stage 2 bladder cancer.
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Bladder and Urinary Tract Cancers Patient Education Event (Virtual, March 5, 2022)
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Mild thickening of bladder wall
12/07 went to ER for groin pressure, back and flank pain, had a little blood and burning after urination. At ER had normal blood work, but gave urine sample it look liked Coca Cola. The doc told me it was intestinal cystitus. Gave me keflex. 12/09 went to pcp gave urine and it had moderate blood in urine, positive for…
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Newly Diagnosed with Bladder Cancer
Hi, glad I found this site. I am 61 years old / never smoked other than SECOND HAND. I have a history of kidney stones and occasional blood in urine. But I always assumed it was from the stones and never got alarmed. I went in for a CT scan for another issue and a small 5mm mass was ssen on my bladder. I followed up with…
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Chemo w/ Radiation after a Chemo only Clinical Trial
My father (71) has stage II high grade bladder cancer invasive into the muscle wall but it has not spread beyond the bladder. He (my father) said that he would literally rather die than have his bladder/prostate/lymph nodes removed. We are at the point now where we want to try a clinical trial involving Opdivo (nivolumab),…
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Needing advice
Hi! I have a few questions on what to expect. some background, I was referred to a Urolgist due to Frequent urination, and frequent utis. In April, I had a urinallysis done in the office. I was spotting that day as my period started a couple of days later. Never got a call back about anything regarding urinalysis results.…
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What does this mean
What does "nonopacification of a portion of the proximal right ureter" mean? I'm waiting for Dr. to call with results. Does this mean furthur testing, or do they usually disregard when that happens on the ct urogram. Has anyone had this happen, and if so, what was the outcome? Thank you in advance!
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Breast reconstruction
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Depression
I'm 18 weeks into a clinical chemotherapy trial for stage 4 bladder cancer, possibly metastasized. On May 9th we take scans to see how things are and discuss future steps. My immediate problem in my depression. I'm not optimistic about the future -- I'm 62, single, and have led a relatively "loner" lifestyle (not a lot of…
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Cytology Results
I just got my cytology results. They say that I am negative for high grade urothelial carcinoma but that I have scattered urothelial cells and squamous cells present. I have a CT tomorrow and my next doctor appt isn't until June 4. I'm curious if anyone here has had a similar cytology result like mine. I'm relieved about…
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bladder cancer spread to lymph nodes
Can anyone help please? My father in law has bladder cancer which has now spread to his lymph nodes both sides of the diaphragm. The hospital are saying it is untreatable but he is determined to try anything to treat it. Is there anything anyone can suggest? Thank you
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BCG treatment Immunotherpy Best Practices Before/During/ After
Check with anyone who has had BCG Immmunotherpy treatments. What are the best practices befoe/during/after treatment and foods/supplements to avoid, pain ?
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BCG intravesical therapy
I am currently deciding on a course of treatment for my bladder cancer, called carcinoma in situ. It is called "superficial", but has been progressing some. I have had bladder cancer for 5 years now, but have reached the stage where something more than cutting out a tumor is necessary. does anyone out there have any…
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I don’t want a Cystecomy!
Hi everyone! I was told I have bladder cancer after a Cystocopy TURB surgery this Nov 2019. The biopsies from that showed invasive T2 Cancer into inner muscl. I am currently doing chemotherapy for the next 12 weeks! They still will want to remove my bladder! I'm taking Beta-Glucans as a vitamin. ever heard of these ! any…
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cystectomy
HI all, I do not have bladder cancer but do have a bladder that is completely shot, I do have prostate cancer but that is pretty dormant at the moment.The doctor inserted a supra pubic catheter in my bladder when the bladder spasms got too great. Problem is Urinary tract infections, I have one go on anti biotics, clears…
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Any recommendations for excellent urologist in NYC for early bladder cancer
Can go anywhere in Greater NYC area. Sister was diagnosed with very early transitional cell bladder cancer at an outlying medical center. The urologist there felt he had ablated the entire small tumor (after having obtained a biopsy). Wants her back in 90 days for repeat cystoscopy. She is in agreement that she should now…
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Jelmyto
Hi there. I was diagnosed in 2019 with low grade upper tract urolelial carcinoma. Have had several procedures where the cancer lesions are burned off but they keep recurring. Suppose to undergo treatment with Jelmyto. Has anyone undergone treatment with this chemo agent .
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Newly diagnosed...
My husband was diagnosed 4 weeks ago with stage 4 bladder cancer. No "urinary" symtoms at all, just stomach pain that we spent a few months trying to figure out with diferent docs. Lymph node involvement shows up on the PET scan and possibly a spot on his hip. We have 2 rounds of chemo under our belt and Im just wondering…
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my sister
hope all are doing well! I am at my wits end, don't know what to do any more. my sister has bladder cancer. she had one surgery to remove some tumors and her surgeon said she needed a second surgery! he did the first surgery pro bono but he can't do her second surgery. she has no insurance and she is still working but I…
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worried on 3rd day aft chemo
I just got my first round 3 days ago...I'm worried cuz I forgot to pickup the vitamins and steroids and today's Thanksgiving so I can't get them. I'm not eating like I should and don't drink water like I should. I'm starting to feel yucky I have some women's vitamins...think I'll take them. Do you think I'll be OK til I…
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Infection
I was diagnosed with bladder cancer February this year. Tumor removed, then kidney problems. I'm 2 weeks out of my last BCG treatment but have a big stint from left kidney to bladder that has to be surgically removed. Urologist said he used the "biggest stint he could find" and I feel it constantly. I've also kept an…
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Question about PCI (Prophylactic Cranial Irradiation) for small cell carcinoma
Hello everyone. I’m new to this site and need some guidance if you can help. My mother is 65 and was diagnosed with small cell bladder cancer. From what I understand small cell is usually found in the lungs and is rare in the bladder. She’s been through chemo since August and began radiation partway through her chemo so…
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BRIP1 Gene Mutation and Blood in Urine
Hi, I may be putting the cart before the horse, but has anyone diagnosed with Bladder or Urethelial Cancer also been diagnosed with a BRIP1 gene mutation? I am passing blood clots and blood in my urine and have a history of bilateral breast cancer and BRIP1 gene mutation. I did a little research and see that risk for…
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Does nitrous oxide help with cystoscopies?
Has anyone tried nitrous oxide (laughing gas) to ease the discomfort of cystoscopies? My urologist offers it. Did you find it helpful? Thanks?
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Can you recommend a urologic oncologist in Portland, Oregon?
Hi, I'm currently being treated by a generalist urologist for bladder cancer but would like to switch to a urologic oncologist. Does anyone know a good urologic oncologist in Portland, Oregon? Preferably at OHSU, which is easily accessible to me. And do you know how long the wait is to see that person? Also, am I right…
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bladder cancer
does loss of bowel control mean bladder cancer has metastisized ?