Treatment

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CAS316
CAS316 Member Posts: 1 Member
edited June 21 in Bladder Cancer #1

My husband was recently diagnosed with Muscle Invasive Bladder Cancer. He just started a new job less than two months before he got sick so no health insurance. He is 60 years old and is not able to do his job anymore. We did self pay for everything up to the TURBT and now he needs chemo and surgery. We have applied for the Compassion Care plan with the hospital and are still waiting. I've heard nothing from the care team since the meeting with the doctors to discuss the plan of treatment. I've asked our assigned coordinator if they are not going to do anything due to lack of insurance and the response was well it is expensive. We have gone on the PA pennie.com for insurance, unfortunately with him not being able to work we cannot afford the $853 per month for the cheapest policy. So on top of dealing with the diagnosis itself, the frustration that comes from acknowledging that there is treatment he just can't get it is indescribable.

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  • barehead
    barehead Member Posts: 40 Member
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    Sorry that you are having to deal with cancer and funding for its treatment. Go to the bcan.org web site. It has the finest medical info for bladder cancer. In addition, it has a partnership with CancerCare which offers a variety of support services to bladder cancer patients. There also may be funds available through it for patients in the NY, NJ, PA area, so check with them. There are also other funding resources out there. Try contacting American Cancer Society for their input. Social workers in all of these organizations should be able to help locate some funding.

  • rubyshoes0709
    rubyshoes0709 Member Posts: 1 Member
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    I’m so sorry for you and your husband last thing you need is additional stress. It’s horrible that you don’t have insurance from his job. Have you contacted anyone at social services for possibly getting insurance as he’s unemployed. Also look into unemployment and ask for social workers are usually available to help apply for grants or financial aid. If you can get the cheapest or any insurance most good places will work with you. It might be worth looking into the top hospitals outside your area in NYC, Boston, TX MD Anderson have funding it’s worth thinking outside your area. I’m dealing with similar financial hardship with private insurance costs post surgery and chemo. It’s terrible that there’s no help for people close to retiring get sick but not covered by government assistance. It’s terrible i was denied SSDI for 5 years at stage 3b bladder cancer

    God bless you and I’ll say prayers. If you don’t have the mental strength right now try to find a cancer support center to ask for help.