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Colorectal Cancer

New and a bit lost
I am 51 and was diagnosed last week with Stage 4 colon cancer that has progressed to my liver and potentially adrenals. From what I understand I have over 30 lesions in my liver and some are very large. My initial consult with the oncologist left me feeling hopeless-no clinical trial options or even a sliver of hope for…
Infections Caused By Cancer Tumor
Hi, Does anyone have experience with infections caused by a cancer tumor? I'm Stage IV, diagnosed 2020. I had an abscess/bacterial infection in February which has recurred twice. I'm on antibiotics. Today I learned that there are now multiple abscesses in pockets that cannot be reached for testing which means that the…
Father is pain free now Forever
Hello All, Yesterday morning my father was relieved at our home from all his pain after fighting the beast for about 3 years , he never feared even when he was told no more treatments 10 days ago. Don't know how he was getting all the strength. It may sounds crazy when I saw him sleeping calmly it felt good , I was sad but…
PET/CT 5 weeks post rads revealed increased SUV
So my dad went 25 fractions of radiation (45 Gy) for pelvic radiation and sacral met which he finished on 11 May, 2022. Last PET scan was done in Mar 2022 and the recent PET scan was just done yesterday in (June 2022). ill defined soft tissue lesion in pelvic cavity (SUVmax 8.54 vs 8.16, 46x43 vs 45x41 mm). It was SUVmax…
signet ring cell carcinoma of colon
my 69 yr old fit and healthy husband had surgery last week for srcc in his colon with 2 lymph nodes involved. We're meeting with oncologist Weds. He only has 1 kidney due to a previous cancer. Not sure how that will affect any chemo regimen. If chemo is even effective with srcc. Any comments?
Extreme Belly and Back pain due to Gas, Bloating, and Constipation. Reusing 5fu for progression.
Hello All, This is going to be a long post. The past few weeks were very rough on dad, he is usually not the one to complain but he was moaning with abdominal pain so we took him to ER. The initial scan shows signs of inflammation in the intestine and colon which didn’t get better with steroids. Neither his oncologist nor…
There is always something new right around the corner. . .
First human patient injected with revolutionary cancer-killing virus (yahoo.com)
This trial had good results
I don't have a mutation so this isn't a trial for me. But the results sound incredible. This article showed in my newsfeed, so thought I would share. I was in an immunotherapy trial that didn't work. https://www.mskcc.org/news/rectal-cancer-disappears-after-experimental-use-immunotherapy
It has been 6 years since my stage 4 diagnosis!
Well, I just keep right on going with this stuff. I would love to be able to tell you that I've been in remission, or that I have a break in treatment or something like that, but all I have at the moment is an extremely stubborn will to keep going, and a reasonably good response to treatment. Today I'm in the middle of my…
New diagnosis
I was diagnosed via colonoscopy after a positive Cologuard result. Having my CT Friday. My main concern is that the DR couldn't push the wand past the mass even though I've had no change I bowel movements. It's lower left so most of the bowel remains un checked at this point. He said the mass was wrapped around the inside…
Large masses
Are large colon masses usually an indicator of advanced disease?
Rash after stopping Folfiri+Cetuximab
My father stopped chemo after 6 full cycles of Folfiri+Cetuximab (with no more cancer showing up on scans, CEA, or Signature), and another few cycles of 5fu+Cetuximab maintenance chemo. He had some rashes from the Cetuximab during treatment, but the antibiotics the doctor prescribed seemed to help. About 3 weeks after…
Lonsurf Experience
What has been everyone’s experience with Lonsurf? I keep reading conflicting things regarding efficacy of this medication. Husband now has met all over the pelvis, peritoneum, bowels and now lungs. We have burned through all of the pervious chemo’s. Thanks in advance.
Good news
I have good news to share. I had MRI and CT scans last week and the results are good. I'm now 5 years out cancer-free. It took a couple of years to get my stage 4 colon cancer into remission. My cancer had spread to two lymph nodes, two tumors in my liver, and three in my lungs. I'm very grateful and hope my story can give…
Update
Hello friends I have not checked in this forum for months. I still have three mets in my lungs and was on maintenance chemo 5fu until today. My doctor ordered a blood /tissue test called Signatera which looks for cancer cells in your blood. The results came up negative so we decided to take me off all chemo and observe me…
My One Year+ Adventure, So Far
Nov 2020 diagnosed with colorectal stage 2. 1st step was radiation and then a month of chemo. This was to check to see if the mass might shrink. No change in 8 cm mass. On to surgery they call "abdominal pernial resection with external ostomy". 1st report no sign of "C'' in lmypth Glands. Dr suggested another round of…
Severe Cramps (Gas Pain) after radiotherapy
My dad completed his 25 radiations of 45gy just a week ago to sacral vertebra, mesocrectum and pelvis. Ever since radiations he been having radiation cramps and bowel movement issue. Since finishing it, the bowel movements seem alright but cramps pain have increased. He have been given Grade II RTOG Lower GI toxicity and…
BMI, Diet, and NED
Is anyone here at a higher BMI than they should be and long time NED? This study says it doesn't seem to matter for long term survival but I'm not sure if anyone has more info. Does body mass index impact the number of LNs harvested and influence long-term survival rate in patients with stage III colon cancer? - PubMed…
Clinical Trial KRAS G12C - Adagrasib (MRTX849) + TNO155 = Acne
Hello everyone, I have searched some terms and found no on point results, hence my new topic creation here. I have metastisised colon cancer with KRAS G12C mutation and have just started a drug trial with the new targeting drug, Adagrasib (Merati's MRTX849) combined with SHP2 inhibitor TNO155. I have 2 main side effects…
Stage 4 colon cancer continue…
Thanks so much for your support from another thread…I’ve asked his primary doctor to help speed up the process. He tried but no luck. I’ve been calling and planning to keep calling several time a day to see if any cancellations pops up. I’m also planning to get 2nd opinion from UCI colorectal surgeon to see what they think…
Ct Scan
Hello, Brand new here. I had a colonoscopy last week and a biopsy (no polyps) was taken in the cecum. The results: Diagnosis: Colon, cecum, submuocsal mass, biopsy: Colonic mucosa with lymphoid aggregate. My doctor ordered a CT scan and I was told I have somewhat enlarged lymph nodes (possible metastasis) in the same area…
3 pet scans in your life
had a pet scan for nov 24th after haveing nodes removed from groin but becuse im on medicare with humana and medicade seems only 3 petscans in your lifetime but unlimted cat scans this was part of the obama health care package
Cancer and now a STEMI - Heart Attack
February has been quite the month. At the beginning of the month I got my eight year NED news from my Oncologist, and this week I had a heart attack - (An ST-elevation myocardial infarction (STEMI) is a type of heart attack that is more serious and has a greater risk of serious complications and death. It gets its name…
low fiber/residue diet
My current plan of action is to avoid surgery until after I can finish another round of chemo and then portal vein embolization, so about another 6-8 weeks. After that time I would have surgery on both the colon and liver. I have had one bowel obstruction and am a good candidate for another. If I do obstruct again they are…
Stage 2 colon cancer and now concerning spot on my lung
I had lost this support group link so I hadn’t posted for a bit. I saw the cancer dr and she will be scheduling a new colonoscopy since the large tumor was removed and they can now see if there is further cancer. She said so far she considers it stage 2. We talked about radiation or chemo. She said at this point there is a…
Stage 4 with mets to skin
Hi all, I'm looking for some uplifting encouragement. My husband was originally diagnosed with stage 4 adenocarcinoma at the age of 32 in 2017. He underwent 12 rounds of FolFox, 5 weeks of radiation and a total colectomy. At the time of the colectomy he had 4 tumors in his colon but we were told he was left with negative…
Evusheld
"Evusheld, This treatment can protect vulnerable people from COVID. But many don’t know about it." Article: COVID-19 drug Evusheld for vulnerable people can be hard to get - Los Angeles Times (latimes.com)
Suggested break during radiotherapy
My dad is currently having radiation for pelvic recurrence and sacral mets. He still have final 5 radiations left of his 5 weeks treatment but he been having continuous cramps from today morning so doc advised to take a break for 2-3 days because they say these cramps are because of radiation. The side effects of…
New to CSN and a little lost
I’m new here and I’m not sure if this is where I should introduce myself (I did look for a category for newcomers but didn’t see one) but I also don’t want to be thought of as a “lurker” so here goes – short story: colon cancer (tumor removed in 2019 along with resectioning) that metastasized in the liver after a few…
Lower Anterior Resection Syndrome
I just found out that the interesting bowel habits I have had since my surgery back in 2012, has a name - Lower Anterior Resection Syndrome. Why did my Oncologist or Radiation Oncologist not tell me that before? It has always just been a side effect, and now I have a name for it. Somehow, it makes me feel good, to be able…

Colorectal Cancer

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